Nonprofit · EIN 54-1652029
PRISMS INC
Tax-exempt · HERNDON, VA 20170
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $439,157 | $345,036 | $94,121 | $710,153 | $7,040 | $703,113 |
| December 31, 2024 | 990 | $473,555 | $549,812 | -$76,257 | $608,397 | $10,428 | $597,969 |
| December 31, 2023 | 990 | $420,621 | $274,778 | $145,843 | $691,354 | $21,609 | $669,745 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $399,190
- Program service revenue
- $2,750
- Investment income
- $21,747
- Net income from fundraising events
- $1,247
- Net income from sales of inventory
- $7,223
- Other revenue
- $15,470
Expenses
- Grants and similar amounts paid
- $28,870
- Compensation of officers, directors and key employees
- $100,000
- Salaries, compensation and benefits (total)
- $108,412
- Professional fundraising fees
- $0
- Accounting fees
- $22,694
- Travel
- $33,046
- Program services (functional)
- $218,712
- Management and general (functional)
- $99,976
- Fundraising (functional)
- $26,348
Balance sheet and other
- Total assets, start of year
- $608,397
- Total assets, end of year
- $710,153
- Total liabilities, end of year
- $7,040
- Net assets, end of year
- $703,113
- Publicly traded securities
- $442,189
- Net assets without donor restrictions
- $597,769
- Net assets with donor restrictions
- $105,344
- Gross receipts
- $447,228
- Employees
- 1
- Volunteers
- 97
- Year formed
- 1993
- State of legal domicile
- VA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Michelle Larscheid | Executive Director Officer | 40 | $100,000 |
| Percy Huston | President Trustee or director, Officer | 5 | $0 |
| Jackie Fallenstein | Vice President Trustee or director, Officer | 5 | $0 |
| Diane Erth | Secretary Trustee or director, Officer | 5 | $0 |
| Phil Ruedi | Treasurer Trustee or director, Officer | 5 | $0 |
| Margaret Miller | Founding Board Member Trustee or director | 3 | $0 |
| Eric Rogers | Board Member Trustee or director | 3 | $0 |
| Sarah Elsea PhD | Board Member Trustee or director | 3 | $0 |
| Allison Stephanouk | Board Member Trustee or director | 3 | $0 |
| Denien Rasmussen | Board Member Trustee or director | 3 | $0 |
| Amy Pereira | Board Member Trustee or director | 3 | $0 |
| Jason Michaud | Board Member Trustee or director | 3 | $0 |
990 for the year ended December 31, 2024: 14 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Michelle Larscheid | Executive Director Officer | 40 | $94,038 |
| Percy Huston | President Trustee or director, Officer | 5 | $0 |
| Jackie Fallenstein | Vice President Trustee or director, Officer | 5 | $0 |
| Diane Erth | Secretary Trustee or director, Officer | 5 | $0 |
| Phil Ruedi | Treasurer Trustee or director, Officer | 5 | $0 |
| Brandon Daniel | Immediate Past President Trustee or director, Officer | 5 | $0 |
| Margaret Miller | Founding Board Member Trustee or director | 3 | $0 |
| Sarah Elsea PhD | Board Member Trustee or director | 3 | $0 |
| Allison Stephanouk | Board Member Trustee or director | 3 | $0 |
| Denien Rasmussen | Board Member Trustee or director | 3 | $0 |
| Amy Pereira | Board Member Trustee or director | 3 | $0 |
| Jason Michaud | Board Member Trustee or director | 3 | $0 |
| Michelle Lee | Board Member Trustee or director | 3 | $0 |
| Eric Rogers | Board Member Trustee or director | 40 | $0 |
990 for the year ended December 31, 2023: 14 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Michelle Larscheid Com Mgr 012023-9 | Executive Director 10/2023-12/2023 Officer | 40 | $69,714 |
| Casey Gorman | Executive Director 1/2023-10/2023 Officer | 40 | $60,837 |
| Brandon Daniel | President Trustee or director, Officer | 5 | $0 |
| Margaret Miller | Vice President Trustee or director, Officer | 5 | $0 |
| Diane Erth | Secretary Trustee or director, Officer | 5 | $0 |
| Percy Huston | Treasurer Trustee or director, Officer | 5 | $0 |
| Amy Pereira | Board Member Trustee or director | 5 | $0 |
| Jason Michaud | Board Member Trustee or director | 3 | $0 |
| Sarah Elsea PhD | Board Member Trustee or director | 3 | $0 |
| Allison Stephanouk | Board Member Trustee or director | 3 | $0 |
| Denien Rasmussen | Board Member Trustee or director | 3 | $0 |
| Jackie Fallenstein | Board Member Trustee or director | 3 | $0 |
| Eric Rogers | Board Member Trustee or director | 3 | $0 |
| Michelle Lee | Board Member Trustee or director | 3 | $0 |
Address and contacts
- Address (IRS master file)
- 205 VAN BUREN STREET, HERNDON, VA 20170-5348
- In care of
- % PHILIP RUEDI
- Principal officer (990 for 2025)
- Michelle Larscheid, 205 Van Buren Street Suite 120-1027, Herndon, VA 20170
- Signed the 990
- Michelle Larscheid, Executive Director
- Phone
- (972) 231-0035
- Website
- www.prisms.org
- Return prepared by
- Sonnenberg & Company CPAs
Mission
PRISMS provides a range of services for persons with SMS telephone support, database of registered families, newsletters, informational packets for caregivers and medical professionals. P.R.I.S.M.S., Inc. engages individuals with medical and scientific expertise to serve on its Professional Advisory Board, conducts an international conference.
Program accomplishments
- PRISMS provides support to our SMS community in a number of ways in including phone and email support, information sharing newsletters, annual reports, webinars, awareness materials, informational packets, and a shared community Facebook Group for family support. PRISMS also offers guidebooks on topics such as medical management guidelines, constipation, behavior, and residential living. We provide an online store where our community can purchase PRISMS merchandise as well as the book On the Road to Success with SMS.Expenses $137,891 · grants $3,000
- PRISMS hosted the 12th Smith-Magenis Syndrome Research Symposium in Boulder, Colorado on September 25-26, 2025. The symposium brought together researchers from around the world to share and collaborate on research about Smith-Magenis Syndrome. Researchers new to the SMS community and graduate students were able to participate in person and virtually to share current and active research initiatives. The symposium was open to all members of the community to attend. PRISMS also funded the research of four summer scholars, graduate students that are working to expend our understanding of SMS.Expenses $27,238 · grants $12,028 · revenue $2,750
- PRISMS continued to support the PCRC PRISMS Clinics and Research Consortium. SMS Clinics provide multi-specialty, comprehensive and compassionate care for patients with SMS. PCRC also offers families the opportunity to carry home treatment recommendations to share with their local providers. The Clinic Travel Fund reimburses caregivers for expenses associated with travel to and from a SMS clinic. This helps ensure families seek the best medical care. With the addition of a clinic at St. Jude Childrens Clinic in Memphis, TN there are now nine clinics in the United States with locations on both the East and West Coast, the Central, and Mid-West.Expenses $53,583 · grants $13,842
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 54-1652029
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2000
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G20)
- Assets (IRS master file)
- $710,153
- Income (IRS master file)
- $447,228
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $439,157 | $345,036 | $710,153 | XML |
| 990 | December 2024 | $473,555 | $549,812 | $608,397 | XML |
| 990 | December 2023 | $420,621 | $274,778 | $691,354 | XML |
| 990 | December 2022 | $358,976 | $605,220 | $598,973 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 54-1652029).
Questions about PRISMS INC
- What is the EIN of PRISMS INC?
- The employer identification number (EIN) of PRISMS INC is 54-1652029.
- Is PRISMS INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2000.
- Are donations to PRISMS INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does PRISMS INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of PRISMS INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did PRISMS INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of PRISMS INC?
- The 990 for the year ended December 31, 2025 names Michelle Larscheid.
- Who are the officers and directors of PRISMS INC?
- The 990 for the year ended December 31, 2025 lists 12 people; 1 received compensation from the organization, the highest $100,000 (Michelle Larscheid, Executive Director).
- How much revenue does PRISMS INC have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $439,157, expenses of $345,036 and total assets of $710,153 at year end.
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