2026-06-16T11:19:40-00:00 2025-12-31 953749711 Sonnenberg & Company CPAs 5190 Governor Dr 201 San Diego CA 92122 990 2025-01-01 541652029 PRISMS Inc PRIS 9722310035 205 Van Buren Street STE 120-1027 Herndon VA 20170 Michelle Larscheid Executive Director 9722310035 2026-06-11 true Leonard C Sonnenberg P00287581 8584575252 2026-06-16 2025 2025-03-06 01:10:19Z Michelle Larscheid 205 Van Buren Street Suite 120-1027 Herndon VA 20170 447228 false X www.prisms.org X 1993 VA PRISMS is dedicated to providing information and support to families of persons with SMS, sponsoring research and fostering partnerships with professionals to increase awareness and understanding of SMS. 11 11 1 97 0 373750 399190 69500 2750 29240 21747 1065 15470 473555 439157 20938 28870 0 101242 108412 0 26348 427632 207754 549812 345036 -76257 94121 608397 710153 10428 7040 597969 703113 PRISMS provides a range of services for persons with SMS telephone support, database of registered families, newsletters, informational packets for caregivers and medical professionals. P.R.I.S.M.S., Inc. engages individuals with medical and scientific expertise to serve on its Professional Advisory Board, conducts an international conference. false false 137891 3000 PRISMS provides support to our SMS community in a number of ways in including phone and email support, information sharing newsletters, annual reports, webinars, awareness materials, informational packets, and a shared community Facebook Group for family support. PRISMS also offers guidebooks on topics such as medical management guidelines, constipation, behavior, and residential living. We provide an online store where our community can purchase PRISMS merchandise as well as the book On the Road to Success with SMS. 27238 12028 2750 PRISMS hosted the 12th Smith-Magenis Syndrome Research Symposium in Boulder, Colorado on September 25-26, 2025. The symposium brought together researchers from around the world to share and collaborate on research about Smith-Magenis Syndrome. Researchers new to the SMS community and graduate students were able to participate in person and virtually to share current and active research initiatives. The symposium was open to all members of the community to attend. PRISMS also funded the research of four summer scholars, graduate students that are working to expend our understanding of SMS. 53583 13842 PRISMS continued to support the PCRC PRISMS Clinics and Research Consortium. SMS Clinics provide multi-specialty, comprehensive and compassionate care for patients with SMS. PCRC also offers families the opportunity to carry home treatment recommendations to share with their local providers. The Clinic Travel Fund reimburses caregivers for expenses associated with travel to and from a SMS clinic. This helps ensure families seek the best medical care. With the addition of a clinic at St. Jude Childrens Clinic in Memphis, TN there are now nine clinics in the United States with locations on both the East and West Coast, the Central, and Mid-West. 218712 true true false false false false false false false false false false false false false false true false false false false false false false true false false true true false false false false false false false false false false false false false false false false false false true 4 0 true 1 true false false false false false false false false false false false false X 11 11 false false false false false false false true true false false true true true true true true true false false X Michelle Larscheid 9722310035 205 Van Buren Street Ste120-1027 Herndon VA 20170 Michelle Larscheid Executive Director 040.00 X 100000 0 0 Percy Huston President 005.00 X X 0 0 0 Jackie Fallenstein Vice President 005.00 X X 0 0 0 Diane Erth Secretary 005.00 X X 0 0 0 Phil Ruedi Treasurer 005.00 X X 0 0 0 Margaret Miller Founding Board Member 003.00 X 0 0 0 Eric Rogers Board Member 003.00 X 0 0 0 Sarah Elsea PhD Board Member 003.00 X 0 0 0 Allison Stephanouk Board Member 003.00 X 0 0 0 Denien Rasmussen Board Member 003.00 X 0 0 0 Amy Pereira Board Member 003.00 X 0 0 0 Jason Michaud Board Member 003.00 X 0 0 0 100000 false false false 141955 257235 12340 399190 Symposium registration fees 541700 2750 2750 2750 21747 21747 9318 141955 8071 1247 3088 7223 7223 7223 COVID payroll tax credit 7000 7000 7000 439157 9750 32058 X 13842 13842 15028 15028 0 0 100000 75000 20000 5000 0 0 0 0 8412 6309 1682 421 0 0 22694 1907 20660 127 0 0 55652 28418 27234 0 11366 4778 3741 2847 25350 20831 4519 0 0 33046 20414 11681 951 0 0 0 0 0 3701 3701 Patient registry 28000 28000 Dues and subscriptions 11136 1818 4152 5166 Contributed assets 12340 504 11836 4469 1863 2606 345036 218712 99976 26348 155550 226505 7459 5507 4526 6854 8901 8718 413245 442189 18716 20380 608397 710153 10428 7040 10428 7040 X 572769 597769 25200 105344 597969 703113 608397 710153 94121 11023 X false true X true false X 248668 305490 408965 373750 399190 1736063 248668 305490 408965 373750 399190 1736063 427643 1308420 10904 8809 8212 29240 21747 78912 10456 9953 11861 14557 23541 70368 1885343 0.69400 0.60730 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED false Financial derivatives and other financial products Closely-held equity interests Federal income taxes 450180 11023 11023 439157 439157 345036 345036 345036 Pickleball 36740 29933 6807 310 6534 SMS Awareness Day 82476 79965 2511 3 32057 32057 1227 151273 141955 9318 310 6534 1227 8071 1247 true Baylor College of Medicine PO Box 301207 Dallas TX 75303 741613878 501c3 13842 Book research 1 Summer scholar research program 4 12028 Book Educational scholarships for siblings of SMS individuals 2 3000 Book Form 990, Part VI, Section B, Line 11b The Form 990 is reviewed by the Board of Directors prior to filing. Form 990, Part VI, Section B, Line 12c All Board members are required yearly to aknowledge and sign Conflict of Interest Statement. Form 990, Part VI, Section B, Line 15a The Executive Directors performance and compensation are reviewed annually by the Board of Directors. Form 990, Part VI, Section C, Line 19 Governing documents, conflict of interest policy, and audited financial statements are available to the public upon request. Form 990, Part IX, Line 11g Management and administrative support 47,277 graphic designer 5,400, symposium audio/visual consultants 1,500, 1,475 donor management software