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Nonprofit · EIN 52-1449492

FRIENDS OF PATIENTS AT THE NIH INC

Tax-exempt · BETHESDA, MD 20892

Financials

$368K$374K2023$411K$423K2024
Revenue Expenses · by fiscal year end
Financials of FRIENDS OF PATIENTS AT THE NIH INC by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2024990$411,106$423,494-$12,388$828,162$19,207$808,955
December 31, 2023990$368,164$373,602-$5,438$776,374$19,805$756,569
Financial details: 990 for the year ended December 31, 2024

Revenue

Contributions, gifts and grants
$257,404
Program service revenue
$0
Investment income
$14,841
Net income from fundraising events
$138,861
Other revenue
$138,861

Expenses

Grants and similar amounts paid
$179,163
Compensation of officers, directors and key employees
$125,948
Other salaries and wages
$50,430
Salaries, compensation and benefits (total)
$193,721
Professional fundraising fees
$0
Accounting fees
$20,160
Travel
$215
Depreciation
$4,600
Program services (functional)
$369,320
Management and general (functional)
$26,207
Fundraising (functional)
$27,967

Balance sheet and other

Total assets, start of year
$776,374
Total assets, end of year
$828,162
Total liabilities, end of year
$19,207
Net assets, end of year
$808,955
Land, buildings and equipment
$16,329
Publicly traded securities
$665,045
Net assets without donor restrictions
$665,931
Net assets with donor restrictions
$143,024
Gross receipts
$467,862
Employees
4
Volunteers
12
Year formed
1984
State of legal domicile
MD

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2024, highest compensation first.

NameTitleHours / weekCompensation
Heidi WilliamsChief Executive Officer
Officer
40$125,948
David LiolaDirector
Trustee or director
4$0
Stephen Patrick McGowanDirector
Trustee or director
4$0
Randy SchoolsDirector
Trustee or director
4$0
Vivian BlairDirector
Trustee or director
4$0
Jeff VigneDirector
Trustee or director
4$0
Edouard Benjamin JrDirector
Trustee or director
4$0
Andrew DerrFirst Vice President
Trustee or director, Officer
4$0
Don HillTreasurer
Trustee or director, Officer
4$0
Jerry SachsSecond Vice President
Trustee or director, Officer
4$0
Jay ShahPresident
Trustee or director, Officer
4$0
990 for the year ended December 31, 2023: 13 people
NameTitleHours / weekCompensation
Heidi WilliamsChief Executive Officer
Officer
40$120,518
Dan LonnerdalFederal Liaison
Trustee or director
4$0
Stephen Patrick McGowanDirector
Trustee or director
4$0
Julie Wolf-RoddaDirector
Trustee or director
4$0
Randy SchoolsDirector
Trustee or director
4$0
Jeff VigneDirector
Trustee or director
4$0
Edouard Benjamin JrDirector
Trustee or director
4$0
David LiolaDirector
Trustee or director
4$0
Rich LaFleurDirector
Trustee or director
4$0
Don HillTreasurer
Trustee or director, Officer
4$0
Andrew DerrFirst Vice President
Trustee or director, Officer
4$0
Jay ShahPresident
Trustee or director, Officer
4$0
Jerry SachsSecond Vice President
Trustee or director, Officer
4$0

Address and contacts

Address (IRS master file)
9000 ROCKVILLE PIKE BLD 10, BETHESDA, MD 20892-0001
In care of
% HEIDI WILLIAMS
Principal officer (990 for 2024)
Heidi Williams, PO Box 34139, Bethesda, MD 20827
Signed the 990
HEIDI WILLIAMS, Chief Executive Officer
Phone
(301) 402-0193
Return prepared by
Mullins PC

Mission

To provide assistance to patients and their families undergoing treatment at the NIH Clinical Center.

990 for the year ended December 31, 2024

Program accomplishments

  • Patient Support Services - Friends at NIH provides hope by giving emotional and financial support to patients receiving ground breaking and life saving treatment at the Clinical Center. Friends at NIH helps patients cover their essential needs so that they can focus on recovery. This includes the provision of shelter near the Clinical Center during treatment and assistance with housing costs, support system for patient families and caregivers to enable them to travel to and from the Clinical Center and an allowance to cover meals, utilities, patient insurance, medical and non-medical expenses, long-term patient housing, and other costs incurred during the patients stay at the Clinical Center. RP Awareness and Support - Relapsing polychondritis (RP) is a rare autoimmune disease characterized by recurrent widespread inflammation of different body areas, in particularly, cartilage. Friends at NIH has partnered with the relapsing Polychondritis Awareness and Support Foundation to raise money to provide travel and lodging for patients receiving treatment for this disease. Additional Accomplishments for 2024: 1. Five Local furnished apartments for patients and caregivers stay. Free of charge to patients. 2. Support for patient emergency financial needs such as direct payments for rent, mortgage, transportation, food, essential medical devices. 3. Support of meals for patients and caregivers at Sunday Safra lodge dinners 4. Weekly distribution of wellness items for patients staying in the hospital.
    Expenses $369,320 · grants $179,163

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026Not on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
52-1449492
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
1986
Accounting year ends
December
Files
Form 990 or 990-EZ
Category (NTEE)
Health care (E860)
Assets (IRS master file)
$828,162
Income (IRS master file)
$467,862

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2024$411,106$423,494$828,162IRS
990December 2023$368,164$373,602$776,374XML
990December 2022$314,594$320,443$727,523IRS
990December 2021–––IRS
990December 2020–––IRS
990December 2018–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 52-1449492).

Questions about FRIENDS OF PATIENTS AT THE NIH INC

What is the EIN of FRIENDS OF PATIENTS AT THE NIH INC?
The employer identification number (EIN) of FRIENDS OF PATIENTS AT THE NIH INC is 52-1449492.
Is FRIENDS OF PATIENTS AT THE NIH INC tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1986.
Are donations to FRIENDS OF PATIENTS AT THE NIH INC tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does FRIENDS OF PATIENTS AT THE NIH INC file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of FRIENDS OF PATIENTS AT THE NIH INC due?
The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
When did FRIENDS OF PATIENTS AT THE NIH INC last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2024.
Who is the principal officer of FRIENDS OF PATIENTS AT THE NIH INC?
The 990 for the year ended December 31, 2024 names Heidi Williams.
Who are the officers and directors of FRIENDS OF PATIENTS AT THE NIH INC?
The 990 for the year ended December 31, 2024 lists 11 people; 1 received compensation from the organization, the highest $125,948 (Heidi Williams, Chief Executive Officer).
How much revenue does FRIENDS OF PATIENTS AT THE NIH INC have?
On its 990 for the year ended December 31, 2024 it reported revenue of $411,106, expenses of $423,494 and total assets of $828,162 at year end.

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