2024-11-08T08:43:11-05:00 2023-12-31 474306215 Mullins PC 7625 Wisconsin Avenue Bethesda MD 20814 990 2023-01-01 521449492 Friends of Patients at the NIH Inc FRIE PO Box 34139 Bethesda MD 20827 Heidi Williams Chief Executive 3014020193 2024-11-14 true true John Mullins P01429307 2027706371 2024-11-08 2023 2024-10-15 13:58:12Z Heidi Williams 419718 false X www.friendsatnih.org X 1984 MD To provide assistance to patients and their families undergoing treatment at the NIH Clinical Center. 12 12 2 20 0 0 223749 265021 0 19837 11428 71008 91715 314594 368164 105021 137614 0 125671 145765 0 59096 89751 90223 320443 373602 -5849 -5438 727523 776374 35697 19805 691826 756569 To provide assistance to patients and their families undergoing treatment at the NIH Clinical Center. false false 293127 137614 Patient Support Services - Friends at NIH provides hope by giving emotional and financial support to patients receiving ground breaking and life saving treatment at the Clinical Center. Friends at NIH helps patients cover their essential needs so that they can focus on recovery. This includes the provision of shelter near the Clinical Center during treatment and assistance with housing costs, support system for patient families and caregivers to enable them to travel to and from the Clinical Center and an allowance to cover meals, utilities, patient insurance, medical and non-medical expenses, long-term patient housing, and other costs incurred during the patients stay at the Clinical Center. RP Awareness and Support - Relapsing polychondritis (RP) is a rare autoimmune disease characterized by recurrent widespread inflammation of different body areas, in particularly, cartilage. Friends at NIH has partnered with the relapsing Polychondritis Awareness and Support Foundation to raise money to provide travel and lodging for patients receiving treatment for this disease. Additional Accomplishments for 2023:Leased new apartment #738 at the Flats in Bethesda for Sickle Cell patients and family member long term stays.Created Fridays with Ana and Friends Wellness cart for adult cancer patients.We purchased a large, wheeled cart with drawers. Filled with snacks, toiletries, arts and crafts, comfort items that is taken around patient hospital rooms in cancer units 3NE and 3NW every Friday afternoon. We replenish the cart weekly and also provide special gifts during the holidays such as blankets, fuzzy socks, larger art projects, pizza delivery and additional treats and comfort items. 293127 true true false false false false false false false false true false false false false true true false false false false false false false true false false false false false false false false false false false false false false false false false false false false false false true 3 0 true 2 true false false false false false true true false false false false false false X 12 12 false false false false false false false true true false false true true true true true true true false false MD X The Organization 3014020193 PO Box 34139 Bethesda MD 20827 Heidi Williams Chief Executive Officer 40.00 0.00 X 120518 0 0 Dan Lonnerdal Federal Liaison 4.00 0.00 X 0 0 0 Stephen Patrick McGowan Director 4.00 0.00 X 0 0 0 Julie Wolf-Rodda Director 4.00 0.00 X 0 0 0 Randy Schools Director 4.00 0.00 X 0 0 0 Jeff Vigne Director 4.00 0.00 X 0 0 0 Edouard Benjamin Jr Director 4.00 0.00 X 0 0 0 David Liola Director 4.00 0.00 X 0 0 0 Rich LaFleur Director 4.00 0.00 X 0 0 0 Don Hill Treasurer 4.00 0.00 X X 0 0 0 Andrew Derr First Vice President 4.00 0.00 X X 0 0 0 Jay Shah President 4.00 0.00 X X 0 0 0 Jerry Sachs Second Vice President 4.00 0.00 X X 0 0 0 120518 0 0 1 false false false 82830 182191 15000 265021 11428 11428 143269 51554 91715 91715 368164 0 0 103143 X 137614 137614 120518 96414 13257 10847 10896 8717 1198 981 3726 2981 410 335 10625 8500 1169 956 19250 6789 934 11527 55036 19411 2669 32956 10369 8246 1129 994 162 130 18 14 656 525 72 59 1500 1200 165 135 3250 2600 358 292 373602 293127 21379 59096 113773 93500 37003 46016 27042 6113 7429 20929 568818 615429 500 500 727523 776374 35697 19805 35697 19805 X 566001 633983 125825 122586 691826 756569 727523 776374 -5438 70181 0 X false true X true false X 245735 200247 174926 223749 265021 1109678 245735 200247 174926 223749 265021 1109678 72985 1036693 12189 33877 6643 11335 11428 75472 1185150 0.87470 0.82630 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 27042 6113 20929 20929 X 617481 70181 179136 249317 368164 368164 552738 179136 179136 373602 373602 Footnote for uncertain tax position under FIN 48 (Part X) Friends at NIH believes that it has appropriate support for any tax positions taken, and as such, does not have any uncertain tax positions that are material to the financial statements. Night Out 81293 81293 2671 18073 2703 Golf Tournam 60124 60124 24507 1 1852 1852 3600 143269 143269 2671 42580 6303 51554 91715 true Patient Meals Travel and Other Fees 97 32008 Patient Rent and Lodging 42 105606 Monitoring procedures (Part I, line 2) The Organization provides financial assistance, housing, and other assistance to patients and their families who are unable to afford the necessary personal expenses while undergoing treatment at the center. The Organization works directly with NIH social workers who link qualifying patients and their families with assistance from the organization. Therefore, minimal monitoring is considered necessary. Form 990 governing body review Part VI line 11 The 990 will be reviewed by the CEO, then a copy is sent to the Executive Committee members for review before it is signed and filed with the IRS. Conflict of interest policy compliance Part VI line 12c Board Members and employees of the Friends of Patients at the NIH are required to complete a disclosure statement every year and during the on-boarding process for new Board Members. The President monitors compliance with this requirement. CEO executive director top management comp Part VI line 15a Compensation for the Executive Director is determined by the Board of Directors, using a compensation survey of similar organizations. The last such review of the executive directors salary was done in 2021. Governing documents etc available to public Part VI line 19 The Organization makes its governing documents, conflict of interest policy and financial statements available to the public upon request. List of other fees for services expenses Part IX line 11g Consulting: $54,000Marketing: $1,036 General explanation attachment Form 990, Part VI, Section A, Line 1:The Corporation shall have an Executive Committee comprising the President, first Vice President, second Vice President and Treasurer. The Executive Committee shall have and exercise all of the authority of the Board of Directors in the management of the Corporations affairs when necessary during intervals between the meetings of the board of directors, provided that the Executive Committee shall not have or exercise the authority to: (a) Fill vacancies on the Board of Directors; (b) Amend the articles of Incorporation; (c) Adopt, amend, or repeal the bylaws; or (d) Dissolve or merge the Corporation. The President shall be the chair of the Executive Committee, and the Executive Committee shall be subject to the authority and supervision of the Board of Directors.