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Nonprofit · EIN 47-4456205

NEUROMUSCULAR STUDY GROUP INC

Tax-exempt (reinstated) · KANSAS CITY, KS 66103

Financials

$434K$462K2023$589K$519K2024
Revenue Expenses · by fiscal year end
Financials of NEUROMUSCULAR STUDY GROUP INC by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2024990$588,959$519,092$69,867$530,512$0$530,512
December 31, 2023990$434,016$462,062-$28,046$460,644$0$460,644
Financial details: 990 for the year ended December 31, 2024

Revenue

Contributions, gifts and grants
$0
Program service revenue
$580,823
Investment income
$8,136
Other revenue
$0

Expenses

Grants and similar amounts paid
$0
Salaries, compensation and benefits (total)
$0
Professional fundraising fees
$0
Legal fees
$693
Accounting fees
$820
Occupancy
$3,083
Travel
$44,541
Program services (functional)
$485,091
Management and general (functional)
$34,001

Balance sheet and other

Total assets, start of year
$460,644
Total assets, end of year
$530,512
Total liabilities, end of year
$0
Net assets, end of year
$530,512
Net assets without donor restrictions
$530,512
Gross receipts
$588,959
Employees
0
Volunteers
0
Year formed
2015
State of legal domicile
KS

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2024, highest compensation first.

NameTitleHours / weekCompensation
Amanda Guidon MDInvestigator Member
Trustee or director
0$0
Michael Hehir MDInvestigator Member
Trustee or director
0$0
John Vissing MDInvestigator Member
Trustee or director
0$0
Michaela Walker MPH CCRPCoordinator Member
Trustee or director
0$0
Michael McDermott PhDBiostatistician
Trustee or director
0$0
Emma Ciafaloni MD FAANDirector
Trustee or director
0$0
James Lilleker MBChB MRCP PhDInvestigator Member
Trustee or director
0$0
Bhaskar Roy MBB MHSYoung Investigator Member
Trustee or director
0$0
Richard Barohn MDChair
Officer
0$0
Michael Hanna MDCo-Chair
Officer
0$0
Mazen Dimachkie MDTreasurer
Officer
0$0
Liz PaulkSecretary
Officer
0$0
990 for the year ended December 31, 2023: 12 people
NameTitleHours / weekCompensation
Robert Griggs MDChairman Emeritus
Trustee or director
0$0
Valeria Sansone MDInvestigator Member
Trustee or director
0$0
William David MD PhDInvestigator Member
Trustee or director
0$0
Michael Hehir MDInvestigator Member
Trustee or director
0$0
Marie Wencel CCRPICoordinator Member
Trustee or director
0$0
Melissa McIntyre DPTEvaluator Member
Trustee or director
0$0
Michael McDermott PhDBiostatistician
Trustee or director
0$0
Rabi Tawil MDDirector
Trustee or director
0$0
Mazen Dimachkie MDTreasurer
Trustee or director, Officer
0$0
Richard Barohn MDChair
Officer
0$0
Michael Hanna MDCo-Chair
Officer
0$0
Liz PaulkSecretary
Officer
0$0

Address and contacts

Address (IRS master file)
3599 RAINBOW BLVD, KANSAS CITY, KS 66103-2078
In care of
% LAURA HERBELIN
Principal officer (990 for 2024)
Mazen Dimachkie MD, 3599 Rainbow Blvd, Kansas City, KS 66103
Signed the 990
Mazen Dimachkie MD, Treasurer
Return prepared by
CORNERSTONE CPA LLC

Mission

To advance knowledge about the cause(s), pathogenesis, epidemiology, and clinical manifestations of muscle disease and related neuromuscular disorders and to develop and implement strategies to examine promising therapeutic interventions.

990 for the year ended December 31, 2024

Program accomplishments

  • Cooperative planning, implementation, analysis and reporting of controlled clinical trials and of other research for muscle and other neuromuscular diseases
    Expenses $485,091

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026Not on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
47-4456205
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
2019
Accounting year ends
December
Files
Form 990 or 990-EZ
Category (NTEE)
Medical research (H50)
Assets (IRS master file)
$530,512
Income (IRS master file)
$588,959

Revocation and reinstatement

Exemption revoked
May 15, 2018
Posted by the IRS
February 12, 2019
Reinstated
Effective May 15, 2018

From the IRS automatic revocation list: organizations that did not file a required return or e-Postcard for three consecutive years.

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2024$588,959$519,092$530,512XML
990December 2023$434,016$462,062$460,644XML
990December 2022$278,605$425,917$488,693IRS
990December 2021–––IRS
990December 2020–––IRS
990December 2019–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 47-4456205).

Questions about NEUROMUSCULAR STUDY GROUP INC

What is the EIN of NEUROMUSCULAR STUDY GROUP INC?
The employer identification number (EIN) of NEUROMUSCULAR STUDY GROUP INC is 47-4456205.
Is NEUROMUSCULAR STUDY GROUP INC tax-exempt?
Yes. The IRS revoked its exemption on May 15, 2018 and reinstated it effective May 15, 2018.
Are donations to NEUROMUSCULAR STUDY GROUP INC tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does NEUROMUSCULAR STUDY GROUP INC file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of NEUROMUSCULAR STUDY GROUP INC due?
The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
When did NEUROMUSCULAR STUDY GROUP INC last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2024.
Who is the principal officer of NEUROMUSCULAR STUDY GROUP INC?
The 990 for the year ended December 31, 2024 names Mazen Dimachkie MD.
Who are the officers and directors of NEUROMUSCULAR STUDY GROUP INC?
The 990 for the year ended December 31, 2024 lists 12 people; 0 received compensation from the organization.
How much revenue does NEUROMUSCULAR STUDY GROUP INC have?
On its 990 for the year ended December 31, 2024 it reported revenue of $588,959, expenses of $519,092 and total assets of $530,512 at year end.

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