Nonprofit · EIN 47-3601782
FTD DISORDERS REGISTRY LLC
Tax-exempt · KNG OF PRUSSA, PA 19406
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| June 30, 2025 | 990 | $871,164 | $892,503 | -$21,339 | $2,218,789 | $236,444 | $1,982,345 |
| June 30, 2024 | 990 | $1,031,597 | $955,293 | $76,304 | $2,410,986 | $407,302 | $2,003,684 |
Financial details: 990 for the year ended June 30, 2025
Revenue
- Contributions, gifts and grants
- $800,479
- of which government grants
- $223,331
- Program service revenue
- $0
- Investment income
- $70,685
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $0
- Other salaries and wages
- $461,511
- Salaries, compensation and benefits (total)
- $561,410
- Professional fundraising fees
- $0
- Accounting fees
- $28,218
- Travel
- $19,916
- Depreciation
- $69,771
- Program services (functional)
- $633,262
- Management and general (functional)
- $259,241
Balance sheet and other
- Total assets, start of year
- $2,410,986
- Total assets, end of year
- $2,218,789
- Total liabilities, end of year
- $236,444
- Net assets, end of year
- $1,982,345
- Land, buildings and equipment
- $267,656
- Net assets without donor restrictions
- $1,982,345
- Gross receipts
- $871,164
- Employees
- 5
- Volunteers
- 0
- Year formed
- 2015
- State of legal domicile
- DE
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended June 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | From related orgs | Other / benefits |
|---|---|---|---|---|---|
| SUSAN DICKINSON | DIRECTOR-AFTD MEMBER REPRE Trustee or director, Officer | 4 | $0 | $320,026 | $29,988 |
| MITCH APPLESON | COO AND SECRETARY Officer | 2 | $0 | $255,015 | $28,570 |
| PENNY DACKS | PRESIDENT Officer | 10 | $0 | $226,491 | $17,572 |
| CARRIE MILLIARD | REGISTRY DIRECTOR Highest-paid employee | 40 | $149,435 | $0 | $17,265 |
| LAURA MITIC | DIRECTOR-BLUEFIELD MEMBER Trustee or director | 4 | $0 | $145,000 | $0 |
990 for the year ended June 30, 2024: 7 people
| Name | Title | Hours / week | Compensation | From related orgs | Other / benefits |
|---|---|---|---|---|---|
| RODNEY PEARLMAN THRU 83123 | DIRECTOR-BLUEFIELD MEMBER REPRESENTATIVE Trustee or director | 4 | $0 | $343,000 | $77,118 |
| SUSAN DICKINSON | DIRECTOR-AFTD MEMBER REPRESENTATIVE Trustee or director, Officer | 4 | $0 | $299,574 | $27,277 |
| MITCH APPLESON | COO AND SECRETARY Officer | 2 | $0 | $239,433 | $30,583 |
| PENNY DACKS | PRESIDENT Officer | 10 | $0 | $215,668 | $15,410 |
| CHRISTINE STEVENS | CFO (THRU 9/24) Officer | 4 | $0 | $182,806 | $25,570 |
| CARRIE MILLIARD | REGISTRY DIRECTOR Highest-paid employee | 25 | $76,816 | $64,950 | $25,561 |
| LAURA MITIC EFF 9123 | DIRECTOR-BLUEFIELD MEMBER REPRESENTATIVE Trustee or director | 4 | $0 | $101,728 | $0 |
Address and contacts
- Address (IRS master file)
- 2700 HORIZON DR STE 120, KNG OF PRUSSA, PA 19406-2726
- In care of
- % RODNEY PEARLMAN PHD
- Principal officer (990 for 2024)
- SUSAN L-J DICKINSON, 2700 HORIZON DRIVE 120, KING OF PRUSSIA, PA 19406
- Signed the 990
- SUSAN L-J DICKINSON, MANAGING MEMBER
- Phone
- (267) 514-7221
- Website
- WWW.FTDREGISTRY.ORG
- Return prepared by
- EISNER ADVISORY GROUP LLC
Mission
THE REGISTRY'S MISSION IS TO FACILITATE RESEARCH AND ADVANCE RESEARCH TO ACCELERATE TREATMENT DEVELOPMENT FOR ALL TYPES OF FTD, A DEVASTATING NEURODEGENERATIVE DISEASE THAT STRIKES PEOPLE IN THE PRIME OF LIFE AND FOR WHICH, CURRENTLY, THERE IS NO CURE.
Program accomplishments
- THE GOALS OF THE REGISTRY ARE TO - EMPOWER THE COMMUNITY OF CAREGIVERS, FAMILY MEMBERS, AND PEOPLE DIAGNOSED WITH FTD - FACILITATE ENROLLMENT FOR FTD CLINICAL RESEARCH AS A CENTRALIZED, INTERNATIONAL DATABASE AND COMMUNICATION HUB- INFORM THE FTD COMMUNITY ON RESEARCH AND PARTICIPATION OPPORTUNITIES AS A TRUSTED, NEUTRAL, SCIENCE-BASED NON-PROFIT VOICE- IMPROVE THE UNDERSTANDING OF FTD AND ITS IMPACT THROUGH SURVEY-BASED, LONGITUDINAL RESEARCH WITH PERSONS DIAGNOSED, FAMILY MEMBERS, AND CAREGIVERS - ENABLE INCLUSIVE AND SECURE RESEARCH DESIGNS AS A RESEARCH PARTNER FOR REMOTE DATA COLLECTION (CONTINUED ON SCHEDULE O)- LEVERAGE RESOURCES AS A PARTNER FOR ALL STAKEHOLDERS - ACADEMIC RESEARCHERS, NON-PROFITS, GOVERNMENT, AND INDUSTRY - WHO SHARE A COMMITMENT TO IMPROVING THE QUALITY OF LIFE OF THOSE AFFECTED BY FTDExpenses $633,262
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in June, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | June 30, 2026 | November 16, 2026 | Not due yet |
| 2024 | June 30, 2025 | November 17, 2025 | 990 on file |
| 2023 | June 30, 2024 | November 15, 2024 | 990 on file |
IRS record
- EIN
- 47-3601782
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2016
- Accounting year ends
- June
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G83)
- Assets (IRS master file)
- $2,218,789
- Income (IRS master file)
- $871,164
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | June 2025 | $871,164 | $892,503 | $2,218,789 | XML |
| 990 | June 2024 | $1,031,597 | $955,293 | $2,410,986 | XML |
| 990 | June 2023 | $1,600,782 | $759,009 | $2,043,499 | IRS |
| 990 | June 2022 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 47-3601782).
Questions about FTD DISORDERS REGISTRY LLC
- What is the EIN of FTD DISORDERS REGISTRY LLC?
- The employer identification number (EIN) of FTD DISORDERS REGISTRY LLC is 47-3601782.
- Is FTD DISORDERS REGISTRY LLC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2016.
- Are donations to FTD DISORDERS REGISTRY LLC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does FTD DISORDERS REGISTRY LLC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of FTD DISORDERS REGISTRY LLC due?
- The return for tax year 2025 (the year ending June 30, 2026) is due November 16, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did FTD DISORDERS REGISTRY LLC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended June 2025.
- Who is the principal officer of FTD DISORDERS REGISTRY LLC?
- The 990 for the year ended June 30, 2025 names SUSAN L-J DICKINSON.
- Who are the officers and directors of FTD DISORDERS REGISTRY LLC?
- The 990 for the year ended June 30, 2025 lists 5 people; 1 received compensation from the organization.
- How much revenue does FTD DISORDERS REGISTRY LLC have?
- On its 990 for the year ended June 30, 2025 it reported revenue of $871,164, expenses of $892,503 and total assets of $2,218,789 at year end.
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All nonprofits in KNG OF PRUSSA · Pennsylvania · Voluntary health associations and medical disciplines