Nonprofit · EIN 46-2829156
CURE LBSL
Tax-exempt · ARLINGTON, VA 22206
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $651,672 | $307,430 | $344,242 | $1,315,374 | $0 | $1,315,374 |
| December 31, 2024 | 990 (amended) | $1,052,682 | $845,152 | $207,530 | $955,625 | $0 | $955,625 |
| December 31, 2023 | 990 | $1,852,552 | $1,661,665 | $190,887 | $739,400 | $0 | $739,400 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $629,886
- Program service revenue
- $0
- Investment income
- $21,786
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $123,984
- Compensation of officers, directors and key employees
- $50,000
- Other salaries and wages
- $2,250
- Salaries, compensation and benefits (total)
- $52,250
- Professional fundraising fees
- $0
- Accounting fees
- $1,480
- Travel
- $8,474
- Program services (functional)
- $307,430
Balance sheet and other
- Total assets, start of year
- $958,132
- Total assets, end of year
- $1,315,374
- Total liabilities, end of year
- $0
- Net assets, end of year
- $1,315,374
- Net assets without donor restrictions
- $942,707
- Net assets with donor restrictions
- $372,667
- Gross receipts
- $651,672
- Employees
- 0
- Volunteers
- 10
- Year formed
- 2013
- State of legal domicile
- VA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| MORGAN VOIGT | EXECUTIVE DIRECTOR Trustee or director | 30 | $50,000 |
| LANCE STERN | DIRECTOR Trustee or director | 1 | $0 |
| MEGAN MITCHELL | DIRECTOR Trustee or director | 1 | $0 |
| CHRIS GULUGIAN | DIRECTOR Trustee or director | 1 | $0 |
| EDWARD BLAKELY | DIRECTOR Trustee or director | 1 | $0 |
| ELIZABETH MCGINN | DIRECTOR Trustee or director, Officer | 15 | $0 |
| ELIZABETH GULUGIAN | BOARD CHAIR Trustee or director, Officer | 5 | $0 |
| MORGAN STERN | DIRECTOR Trustee or director | 1 | $0 |
990 for the year ended December 31, 2024: 8 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| MORGAN STERN | DIRECTOR Trustee or director | 1 | $0 |
| LANCE STERN | DIRECTOR Trustee or director | 1 | $0 |
| MEGAN MITCHELL | DIRECTOR Trustee or director | 1 | $0 |
| CHRIS GULUGIAN | DIRECTOR Trustee or director | 1 | $0 |
| EDWARD BLAKEY | DIRECTOR Trustee or director | 1 | $0 |
| MICHAEL MCGINN UNTIL 724 | DIRECTOR Trustee or director | 1 | $0 |
| ELIZABETH A MCGINN | DIRECTOR Trustee or director, Officer | 15 | $0 |
| ELIZABETH GULUGIAN | BOARD CHAIR Trustee or director, Officer | 5 | $0 |
990 for the year ended December 31, 2023: 8 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Morgan Stern | Director Trustee or director | 1 | $0 |
| Lance Stern | Director Trustee or director | 1 | $0 |
| Megan Mitchell | Director Trustee or director | 1 | $0 |
| Chris Gulugian | Director Trustee or director | 1 | $0 |
| Edward Blakely | Director Trustee or director | 1 | $0 |
| Michael McGinn until 724 | Director Trustee or director | 1 | $0 |
| Elizabeth A McGinn | Director Trustee or director, Officer | 15 | $0 |
| Elizabeth Gulugian | Board Chair Trustee or director, Officer | 5 | $0 |
Address and contacts
- Address (IRS master file)
- 3520 S WAKEFIELD ST, ARLINGTON, VA 22206-1708
- In care of
- % LANCE STERN
- Mailing address (990-N for 2016)
- 4414 36TH ST S, Arlington VA 22206
- Principal officer (990 for 2025)
- Morgan Voigt, 2403 Pond Rd, Kailua, HI 96734
- Principal officer (990-N for 2016)
- Michael McGinn, 4414 36TH ST S, Arlington VA 22206
- Signed the 990
- Morgan Voigt, Executive Director
- Phone
- (202) 487-4235
- Website
- www.acureforellie.org
Mission
PROVIDE FUNDING TO RARE DISEASE RESEARCH AND SUPPORT AFFECTED FAMILIES
Program accomplishments
- Cure LBSL's primary mission is to fund critical research into Leukoencephalopathy with Brain Stem and Spinal Cord Involvement and Lactate Elevation (LBSL), a rare genetic leukodystrophy. During 2025, the organization supported research initiatives designed to improve understanding of the disease, advance scientific knowledge of disease progression, and explore potential therapeutic approaches. Activities included support for natural history and qualitative patient studies as well as collaborations with academic and clinical research partners.Expenses $214,629 · grants $141,768
- Cure LBSL conducted an Externally-Led Patient Focused Drug Development meeting on August 1, 2025. This advocacy initiative gathered patient and caregiver perspectives regarding the impact of LBSL and provided information intended to support regulatory and therapeutic development efforts.Expenses $92,801
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 46-2829156
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2013
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G129)
- Assets (IRS master file)
- $1,315,374
- Income (IRS master file)
- $651,672
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $651,672 | $307,430 | $1,315,374 | XML |
| 990 | December 2024 | $1,052,682 | $845,152 | $955,625 | XML |
| 990 | December 2023 | $1,852,552 | $1,661,665 | $739,400 | XML |
| 990 | December 2022 | $1,410,138 | $1,319,933 | $535,129 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
| 990-EZ | December 2017 | – | – | – | IRS |
| 990-N for 2016 Officer: Michael McGinn | December 31, 2016 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 46-2829156).
Questions about CURE LBSL
- What is the EIN of CURE LBSL?
- The employer identification number (EIN) of CURE LBSL is 46-2829156.
- Is CURE LBSL tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2013.
- Are donations to CURE LBSL tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does CURE LBSL file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of CURE LBSL due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did CURE LBSL last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of CURE LBSL?
- The 990 for the year ended December 31, 2025 names Morgan Voigt.
- Who are the officers and directors of CURE LBSL?
- The 990 for the year ended December 31, 2025 lists 8 people; 1 received compensation from the organization, the highest $50,000 (MORGAN VOIGT, EXECUTIVE DIRECTOR).
- How much revenue does CURE LBSL have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $651,672, expenses of $307,430 and total assets of $1,315,374 at year end.
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