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Nonprofit · EIN 13-3271855

AMYOTROPHIC LATERAL SCLEROSIS ASSN

Also known as NATIONAL OFFICE

Tax-exempt · ARLINGTON, VA 22209

Financials

$126.5M$98.8M2023$68.6M$82.2M2024$20.9M$26M2024
Revenue Expenses · by fiscal year end
Financials of AMYOTROPHIC LATERAL SCLEROSIS ASSN by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
June 30, 2025990$20,939,101$26,026,684-$5,087,583$100,352,304$15,035,467$85,316,837
January 31, 2025990$68,583,051$82,239,637-$13,656,586$107,245,128$18,270,156$88,974,972
January 31, 2024990$126,450,238$98,839,577$27,610,661$127,891,549$29,759,323$98,132,226
Financial details: 990 for the year ended June 30, 2025

Revenue

Contributions, gifts and grants
$20,291,104
of which government grants
$3,815,683
Program service revenue
$0
Investment income
$614,359
Royalties
$6,256
Net gain from sales of assets
$2,281
Net income from fundraising events
-$13,408
Other revenue
$33,638

Expenses

Grants and similar amounts paid
$6,230,875
Compensation of officers, directors and key employees
$918,081
Other salaries and wages
$8,749,416
Salaries, compensation and benefits (total)
$12,415,660
Professional fundraising fees
$544,654
Legal fees
$243,233
Accounting fees
$93,307
Occupancy
$621,005
Travel
$470,700
Depreciation
$294,649
Program services (functional)
$17,553,332
Management and general (functional)
$2,032,093
Fundraising (functional)
$6,441,259

Balance sheet and other

Total assets, start of year
$107,245,128
Total assets, end of year
$100,352,304
Total liabilities, end of year
$15,035,467
Net assets, end of year
$85,316,837
Land, buildings and equipment
$1,584,805
Publicly traded securities
$68,820,941
Net assets without donor restrictions
$2,247,915
Net assets with donor restrictions
$83,068,922
Gross receipts
$22,010,637
Employees
0
Volunteers
20
Year formed
1985
State of legal domicile
DE

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended June 30, 2025, highest compensation first.

NameTitleHours / weekCompensation
LARRY FALIVENACHAIR
Trustee or director, Officer
5$0
NANCY LEAMONDVICE CHAIR
Trustee or director, Officer
5$0
STEVE HANONSECRETARY
Trustee or director, Officer
4$0
MARK STANCILTREASURER
Trustee or director, Officer
4$0
SCOTT KAUFFMANIMMEDIATE PAST CHAIR
Trustee or director
4$0
PETER MCKOWNTRUSTEE
Trustee or director
2$0
REBECCA MOSSTRUSTEE
Trustee or director
2$0
DANIELLE BOISVERTTRUSTEE
Trustee or director
2$0
ANNETTE BOWMANTRUSTEE
Trustee or director
2$0
EVE DRYERTRUSTEE
Trustee or director
2$0
SEDA GOFFTRUSTEE
Trustee or director
2$0
KELLY HALLTRUSTEE
Trustee or director
2$0
MICHAEL BENATARTRUSTEE
Trustee or director
2$0
DOUG BUTCHERTRUSTEE
Trustee or director
2$0
WILLIAM SOFFELLTRUSTEE
Trustee or director
2$0
6 more people on this return
NameTitleHours / weekCompensation
CHRIS TONNIGESTRUSTEE
Trustee or director
2$0
JESSE YBARRATRUSTEE
Trustee or director
2$0
BERNIE ZIPPRICHTRUSTEE
Trustee or director
2$0
SANDRA PIERSOLTRUSTEE
Trustee or director
2$0
CALANEET BALASPRESIDENT AND CEO
Officer
37.5$0
GREG MITCHELLCHIEF FINANCIAL OFFICER
Officer
37.5$0
990 for the year ended January 31, 2025: 43 people
NameTitleHours / weekCompensationOther / benefits
CALANEET BALASPRESIDENT AND CEO
Officer
37.5$491,499$54,769
PATRICK REEDYCHIEF DEVELOPMENT OFFICER
Key employee
37.5$270,892$81,038
GREG MITCHELLCHIEF FINANCIAL OFFICER
Officer
37.5$288,086$35,917
KULDIP DAVESENIOR VICE PRESIDENT RESEARCH
Highest-paid employee
37.5$232,488$75,573
LANCE SLAUGHTERSVP STRATEGIC ALLIANCES & GOVERNANCE
Highest-paid employee
37.5$245,671$46,889
DEAN FEENERCHIEF INFORMATION & TECHNOLOGY OFFICER
Key employee
37.5$264,616$26,338
JENNIFER HJELLECHIEF COMMUNITY ENGAGEMENT OFFICER
Key employee
37.5$244,313$31,456
BRIAN FREDERICKCHIEF MARKETING & COMMUNICATIONS OFFICER
Key employee
37.5$250,253$15,417
KEITH GARYVICE PRESIDENT MISSION ACCELERATION
Highest-paid employee
37.5$219,020$45,964
VICKIE LOBELLOSENIOR VICE PRESIDENT ORGANIZATIONAL CHANGE
Highest-paid employee
37.5$237,001$19,437
KIMBERLY HARDING-MAGINNISSENIOR VICE PRESIDENT CARE SERVICES
Highest-paid employee
37.5$221,492$32,600
NICOLE ECKCHIEF STRATEGY OFFICER
Key employee
37.5$231,124$18,093
NEIL THAKURCHIEF MISSION OFFICER
Key employee
37.5$195,440$36,588
SCOTT KAUFFMANCHAIR
Trustee or director, Officer
5$0$0
LARRY FALIVENACHAIR-ELECT
Trustee or director, Officer
5$0$0
NANCY LEAMONDVICE CHAIR (AS OF 07/24)
Trustee or director, Officer
5$0$0
FRED M DEGRANDISVICE CHAIR (THRU 07/24)/TRUSTEE
Trustee or director, Officer
2$0$0
FRED M DEGRANDISTRUSTEE
Trustee or director, Officer
5$0$0
SANDRA PIERSOLSECRETARY
Trustee or director, Officer
4$0$0
MARK STANCILTREASURER
Trustee or director, Officer
4$0$0
CONNIE HOUSTONTRUSTEE
Trustee or director, Officer
2$0$0
EUGENE BRANDON PHDTRUSTEE
Trustee or director
2$0$0
DAVID VAN DE RIETTRUSTEE
Trustee or director
2$0$0
CHRISTI L KOLARCIK PHDTRUSTEE (THRU 07/24)
Trustee or director
2$0$0
J THOMAS MAYTRUSTEE
Trustee or director
2$0$0
MARK CALMESTRUSTEE (THRU 07/24)
Trustee or director
2$0$0
PAUL INGHOLTTRUSTEE (THRU 07/24)
Trustee or director
2$0$0
TOM CARROLLTRUSTEE
Trustee or director
2$0$0
MICHAEL BENATARTRUSTEE
Trustee or director
2$0$0
PETER MCKOWNTRUSTEE
Trustee or director
2$0$0
REBECCA MOSSTRUSTEE
Trustee or director
2$0$0
KENTON VAN HARTENTRUSTEE (THRU 10/24)
Trustee or director
2$0$0
DOUGH BUTCHERTRUSTEE
Trustee or director
2$0$0
WILLIAM SOFFELLTRUSTEE
Trustee or director
2$0$0
CHRIS TONNIGESTRUSTEE
Trustee or director
2$0$0
JESSE YBARRATRUSTEE
Trustee or director
2$0$0
BERNIE ZIPPRICHTRUSTEE
Trustee or director
2$0$0
DANIELLE BOISVERTTRUSTEE
Trustee or director
2$0$0
ANNETTE BOWMANTRUSTEE
Trustee or director
2$0$0
EVE DRYERTRUSTEE
Trustee or director
2$0$0
SEDA GOFFTRUSTEE
Trustee or director
2$0$0
KELLY HALLTRUSTEE
Trustee or director
2$0$0
STEVE HANONTRUSTEE
Trustee or director
2$0$0
990 for the year ended January 31, 2024: 46 people
NameTitleHours / weekCompensationOther / benefits
CALANEET BALASPRESIDENT AND CEO
Officer
37.5$480,990$48,302
TINA ZEFFCHIEF OPERATIONS OFFICER
Key employee
37.5$396,929$22,599
GREG MITCHELLCHIEF FINANCIAL OFFICER
Officer
37.5$290,918$21,803
NEIL THAKURCHIEF MISSION OFFICER
Key employee
37.5$252,620$46,212
KULDIP DAVESENIOR VICE PRESIDENT RESE
Highest-paid employee
37.5$234,323$56,502
LANCE SLAUGHTERSVP STRATEGIC ALLIANCES AN
Highest-paid employee
37.5$245,541$40,069
MONICA SANTA CRUZCHIEF PEOPLE OFFICER
Key employee
37.5$263,468$20,968
DEAN FEENERCHIEF INFORMATION & MARKETING OFFICER
Key employee
37.5$261,683$17,049
KEITH GARYVICE PRESIDENT MISSION ACCELERATION
Highest-paid employee
37.5$221,069$39,249
VICKIE LOBELLOSENIOR VICE PRESIDENT ORG CHANGE
Highest-paid employee
37.5$234,023$25,796
BRIAN FREDERICKSENIOR VICE PRESIDENT STRATEGIC COMMUNICATIONS
Highest-paid employee
37.5$232,820$17,755
SCOTT KAUFFMANCHAIR
Trustee or director, Officer
5$0$0
FRED M DEGRANDISVICE-CHAIR
Trustee or director, Officer
5$0$0
SUE GORMANIMMEDIATE PAST CHAIR (THRU 09/23)
Trustee or director, Officer
5$0$0
SANDRA PIERSOLSECRETARY
Trustee or director, Officer
5$0$0
MARK STANCILTREASURER
Trustee or director
5$0$0
CONNIE HOUSTONTRUSTEE
Trustee or director, Officer
2$0$0
JINSY ANDREWSTRUSTEE (THRU 09/23)
Trustee or director
2$0$0
EUGENE BRANDON PHDTRUSTEE
Trustee or director
2$0$0
DAVID VAN DE RIETTRUSTEE
Trustee or director
2$0$0
CHRISTI L KOLARCIK PHDTRUSTEE
Trustee or director
2$0$0
CHARLIE ROBINSON D SC PETRUSTEE (THRU 03/23)
Trustee or director
2$0$0
J THOMAS MAYTRUSTEE
Trustee or director
2$0$0
JOHN P KRAVE JDTRUSTEE (THRU 03/23)
Trustee or director
2$0$0
JUDY PRATT DMDTRUSTEE (THRU 03/23)
Trustee or director
2$0$0
KENNETH MENKHAUSTRUSTEE (THRU 09/23)
Trustee or director
2$0$0
LARRY FALIVENATRUSTEE
Trustee or director
2$0$0
LOU LIBBY MDTRUSTEE (THRU 03/23)
Trustee or director
2$0$0
MARK CALMESTRUSTEE
Trustee or director
2$0$0
MILLIE ARNOLDTRUSTEE (THRU 09/23)
Trustee or director
2$0$0
NANCY LEAMONDTRUSTEE
Trustee or director
2$0$0
PAUL INGHOLTTRUSTEE
Trustee or director
2$0$0
TOM CARROLLTRUSTEE
Trustee or director
2$0$0
WARREN NELSONTRUSTEE (THRU 09/23)
Trustee or director
2$0$0
WENDY J SCHRIBERTRUSTEE (THRU 03/23)
Trustee or director
2$0$0
MICHAEL BENATARTRUSTEE
Trustee or director
2$0$0
PETER MCKOWNTRUSTEE
Trustee or director
2$0$0
REBECCA MOSSTRUSTEE
Trustee or director
2$0$0
KENTON VAN HARTENTRUSTEE
Trustee or director
2$0$0
KEVIN SPINELLATRUSTEE (THRU 03/23)
Trustee or director
2$0$0
JOHN ROBINSONTRUSTEE
Trustee or director
2$0$0
DOUGH BUTCHERTRUSTEE
Trustee or director
2$0$0
WILLIAM SOFFELLTRUSTEE
Trustee or director
2$0$0
CHRIS TONNIGESTRUSTEE
Trustee or director
2$0$0
JESSE YBARRATRUSTEE
Trustee or director
2$0$0
BERNIE ZIPPRICHTRUSTEE
Trustee or director
2$0$0

Address and contacts

Address (IRS master file)
1300 WILSON BLVD STE 600, ARLINGTON, VA 22209-2322
Principal officer (990 for 2024)
CALANEET BALAS, 1300 WILSON BLVD 600, ARLINGTON, VA 22209
Signed the 990
CALANEET BALAS, PRESIDENT AND CEO
Phone
(202) 407-8580
Return prepared by
CLIFTONLARSONALLEN LLP

Mission

LEADING THE FIGHT TO CURE AND TREAT ALS THROUGH RESEARCH, ADVOCACY AND CARE SERVICES.

990 for the year ended June 30, 2025

Program accomplishments

  • PATIENT AND COMMUNITY SERVICES: THE ASSOCIATION IS COMMITTED TO PROVIDING FULLY DEVELOPED, MANAGED AND EVALUATED PROGRAMS AND SERVICES TO PEOPLE LIVING WITH ALS, FAMILIES, CAREGIVERS AND PROFESSIONALS ACROSS THE UNITED STATES. PROGRAMS INCORPORATE THE PERSPECTIVES FROM KEY STAKEHOLDERS INCLUDING PEOPLE LIVING WITH THE DISEASE, SUBJECT MATTER EXPERTS, CLINICAL BEST PRACTICE, CAREGIVERS, TECHNOLOGY, ACADEMICIANS AND RESEARCH. ACTIVITIES ADDRESS CURRENT NEEDS AND EXPLORE FUTURE SERVICES, CREATING A FOUNDATION FOR INNOVATIVE AND ADVANCED PROGRAM DEVELOPMENT BASED ON SPECIFIC COMMUNITY NEEDS AND KNOWLEDGE ADVANCEMENTS. SPECIFIC ACTIVITIES INCLUDE 1) DEVELOPING AND IMPLEMENTING CLINICAL AND PROFESSIONAL EDUCATION PROGRAMS BASED ON ONGOING NEEDS ASSESSMENTS AND BEST PRACTICE; 2) IMPLEMENTING CERTIFIED CARE CENTER CERTIFICATION AND RECERTIFICATION PROGRAMS BASED ON NATIONALLY-RECOGNIZED STANDARDS OF PRACTICE, INCLUDING GRANTS TO SUPPORT CENTERS OF EXCELLENCE; 3) DEVELOPING STRATEGIES AND ACTUALIZING PLANS TO DELIVER CARE THROUGH OTHER THAN CERTIFIED CENTERS; 4) PROVIDING CURRENT INFORMATION, RESOURCES AND REFERRALS TO THE COMMUNITIES WE SERVE; AND 5) DEVELOPING AND IMPLEMENTING COMPREHENSIVE, CONSISTENT PROGRAMS AND SERVICES THAT ADDRESS INDIVIDUAL, FAMILY, AND CAREGIVER NEEDS BASED ON 'BEST PRACTICE AND AVAILABLE RESOURCES.
    Expenses $11,142,906 · grants $3,561,117
  • RESEARCH PROGRAMS - THE ASSOCIATION FUNDS SCIENTIFIC RESEARCH GRANTS TO DOCTORS/SCIENTISTS TO FIND THE CAUSE AND CURE OF AMYOTROPHIC LATERAL SCLEROSIS (ALS).
    Expenses $3,229,230 · grants $2,669,758
  • THE ALS ASSOCIATION DEVELOPS AWARENESS AND UNDERSTANDING OF ALS AND THE WORK OF THE ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS, THE SCIENTIFIC COMMUNITY AND ELECTED AND OTHER GOVERNMENT OFFICIALS. THE ALS ASSOCIATION'S ADVOCACY EFFORTS HELP SECURE FEDERAL AND STATE FUNDING IN SUPPORT OF ALS RESEARCH AND SUPPORT FOR PEOPLE LIVING WITH ALS. THE ADVOCACY EFFORTS INCLUDE ADVANCES IN LEGISLATION TO HELP THOSE LIVING WITH ALS NAVIGATE INSURANCE AND OTHER GOVERNMENT PROGRAMS.
    Expenses $3,181,196

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in June, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025June 30, 2026November 16, 2026Not due yet
2024June 30, 2025November 17, 2025990 on file
2023June 30, 2024November 15, 2024Check at the IRS

IRS record

EIN
13-3271855
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Group exemption
Exempt since
1990
Accounting year ends
June
Files
Form 990 or 990-EZ
Group exemption
4119 (10 member organizations)
Assets (IRS master file)
$100,352,304
Income (IRS master file)
$22,010,637

Filing history

FormYear endedRevenueExpensesAssetsReturn
990June 2025$20,939,101$26,026,684$100,352,304IRS
990January 2025$68,583,051$82,239,637$107,245,128XML
990January 2024$126,450,238$98,839,577$127,891,549XML
990January 2023$55,567,608$84,199,819$94,445,022IRS
990January 2022$39,792,803$44,852,298$98,343,083IRS
990January 2021–––IRS
990January 2020–––IRS
990January 2019–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 13-3271855).

Questions about AMYOTROPHIC LATERAL SCLEROSIS ASSN

What is the EIN of AMYOTROPHIC LATERAL SCLEROSIS ASSN?
The employer identification number (EIN) of AMYOTROPHIC LATERAL SCLEROSIS ASSN is 13-3271855.
Is AMYOTROPHIC LATERAL SCLEROSIS ASSN tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1990.
Are donations to AMYOTROPHIC LATERAL SCLEROSIS ASSN tax-deductible?
Yes. It is listed in IRS Publication 78 (Group exemption).
Which annual return does AMYOTROPHIC LATERAL SCLEROSIS ASSN file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of AMYOTROPHIC LATERAL SCLEROSIS ASSN due?
The return for tax year 2025 (the year ending June 30, 2026) is due November 16, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
When did AMYOTROPHIC LATERAL SCLEROSIS ASSN last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended June 2025.
Who is the principal officer of AMYOTROPHIC LATERAL SCLEROSIS ASSN?
The 990 for the year ended June 30, 2025 names CALANEET BALAS.
Who are the officers and directors of AMYOTROPHIC LATERAL SCLEROSIS ASSN?
The 990 for the year ended June 30, 2025 lists 21 people; 0 received compensation from the organization.
How much revenue does AMYOTROPHIC LATERAL SCLEROSIS ASSN have?
On its 990 for the year ended June 30, 2025 it reported revenue of $20,939,101, expenses of $26,026,684 and total assets of $100,352,304 at year end.

Organizations in its group exemption (10)

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