Nonprofit · EIN 45-4597425
THE FAMILIAL HYPERCHOLESTEROLEMIA FOUNDATION
Also known as FH FOUNDATION
Tax-exempt · FERN BCH, FL 32034
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $10,718,916 | $8,882,596 | $1,836,320 | $8,670,808 | $1,490,097 | $7,180,711 |
| December 31, 2024 | 990 | $8,891,212 | $7,841,100 | $1,050,112 | $7,350,370 | $2,079,880 | $5,270,490 |
| December 31, 2023 | 990 | $6,535,608 | $6,362,500 | $173,108 | $5,313,676 | $1,133,524 | $4,180,152 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $10,528,777
- Program service revenue
- $10,000
- Investment income
- $135,616
- Other revenue
- $44,523
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $492,331
- Other salaries and wages
- $2,333,429
- Salaries, compensation and benefits (total)
- $3,322,483
- Professional fundraising fees
- $0
- Legal fees
- $110,479
- Accounting fees
- $24,967
- Occupancy
- $8,779
- Travel
- $258,971
- Depreciation
- $12,310
- Program services (functional)
- $7,436,153
- Management and general (functional)
- $1,343,712
- Fundraising (functional)
- $102,731
Balance sheet and other
- Total assets, start of year
- $7,350,370
- Total assets, end of year
- $8,670,808
- Total liabilities, end of year
- $1,490,097
- Net assets, end of year
- $7,180,711
- Land, buildings and equipment
- $13,026
- Publicly traded securities
- $1,073,692
- Net assets without donor restrictions
- $7,180,711
- Gross receipts
- $10,718,916
- Employees
- 23
- Volunteers
- 374
- Year formed
- 2012
- State of legal domicile
- CA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Katherine Wilemon | CEO/Board Member Trustee or director, Officer | 40 | $468,514 | $23,817 |
| Hilliard Paige | Chief Innovation Officer Highest-paid employee | 40 | $366,568 | $39,362 |
| Allison Hawke | VP of Operations Highest-paid employee | 40 | $213,767 | $26,097 |
| Diane MacDougall | VP of Science and Research Highest-paid employee | 40 | $193,049 | $13,374 |
| Susan Seim | Creative Director Highest-paid employee | 40 | $155,960 | $16,129 |
| Shoshana Bardach | Director Quality/Research Operations Highest-paid employee | 40 | $154,200 | $17,581 |
| Seth Baum | Chair Trustee or director, Officer | 1 | $0 | $0 |
| Allison Jamison | Vice President & Treasurer Trustee or director, Officer | 1 | $0 | $0 |
| Brian Mittman | Board Member Trustee or director | 1 | $0 | $0 |
| Courtney Riley | Board Member Trustee or director | 1 | $0 | $0 |
990 for the year ended December 31, 2024: 12 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Katherine Wilemon | CEO/Board Member Trustee or director, Officer | 40 | $387,365 | $16,071 |
| Hilliard Paige | Chief Innovation Officer Highest-paid employee | 40 | $363,165 | $38,442 |
| Allison Hawke | VP of Operations Highest-paid employee | 40 | $208,984 | $24,874 |
| Diane MacDougall | VP of Science and Research Highest-paid employee | 40 | $194,774 | $25,627 |
| Susan Seim | Creative Director Highest-paid employee | 40 | $135,463 | $14,292 |
| Barbara Gladders | Sr. Healthcare Data Analyst Highest-paid employee | 40 | $124,000 | $18,842 |
| Joshua Knowles | Chair Trustee or director, Officer | 1 | $0 | $0 |
| Seth Baum | Vice Chair Trustee or director, Officer | 1 | $0 | $0 |
| Allison Jamison | Treasurer Trustee or director, Officer | 1 | $0 | $0 |
| Keith Ferdinand | Board Member Trustee or director | 1 | $0 | $0 |
| Brian Mittman | Board Member Trustee or director | 1 | $0 | $0 |
| Courtney Riley | Board Member Trustee or director | 1 | $0 | $0 |
990 for the year ended December 31, 2023: 14 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Katherine Wilemon | CEO/Board Member Trustee or director, Officer | 40 | $438,365 | $13,734 |
| Hilliard Paige | Chief Innovation Officer Highest-paid employee | 40 | $338,536 | $24,790 |
| M McGowan | CMO Highest-paid employee | 40 | $214,639 | $16,537 |
| Diane MacDougall | VP of Science and Research Highest-paid employee | 40 | $174,420 | $0 |
| Catherine Ahmed | VP of Policy Highest-paid employee | 40 | $141,418 | $658 |
| Susan Seim | Creative Director Highest-paid employee | 40 | $117,716 | $0 |
| Dan Rader | Chair (end Dec.) Trustee or director, Officer | 1 | $0 | $0 |
| Joshua Knowles | Chair Trustee or director, Officer | 1 | $0 | $0 |
| Seth Baum | Vice Chair (start Jan.) Trustee or director, Officer | 1 | $0 | $0 |
| Allison Jamison | Treasurer Trustee or director, Officer | 1 | $0 | $0 |
| Keith Ferdinand | Board Member (start Jan.) Trustee or director | 1 | $0 | $0 |
| Stacey Lane | Board Member (end Dec.) Trustee or director | 1 | $0 | $0 |
| Brian Mittman | Board Member Trustee or director | 1 | $0 | $0 |
| Courtney Riley | Board Member Trustee or director | 1 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 5548 FIRST COAST HWY STE 204, FERN BCH, FL 32034-5089
- Principal officer (990 for 2025)
- Katherine Wilemon, 5548 First Coast Hwy 204, Fernandina Beach, FL 32034
- Signed the 990
- Katherine Wilemon, CEO
- Phone
- (626) 583-4674
- Website
- www.familyheart.org
- Return prepared by
- Harrington Group CPAs LLP
Mission
The mission of the Family Heart Foundation is to save generations of families from heart disease through timely identification and improved care of familial hypercholesterolemia (FH) and elevated lipoprotein(a) (Lp(a)). Through research, advocacy, and education we play a critical role in driving change and empower families to navigate their own health.
Program accomplishments
- EDUCATION: As an honest broker and neutral convener, the Family Heart Foundation provides education and tools to diverse audiences, from patients (through programs like Cholesterol Connect and our Community Engagement programs) to healthcare professionals, policymakers and payers (through programs like GOAL and Lp(a) AWARE). We host an annual scientific meeting, the Family Heart Global Summit and hold educational symposia at primary care medical conferences across the country.Expenses $2,846,957
- RESEARCH: The Family Heart Foundation conducts independent, observational and implementation research. Our major research initiatives involve characterizing familial hypercholesterolemia through our national CASCADE FH Registry, analyzing current screening rates, diagnosis and burden of disease of high lipoprotein(a), FH, and high LDL-C through our Family Heart Database and quality improvement research through our FIND-Lp(a), GOAL and Lp(a) AW(a)RE programs. We have published over 70 peer-reviewed manuscripts most notably in the European Heart Journal entitled "Lipoprotein(a) and recurrent atherosclerotic cardiovascular events: the US Family Heart Database". This landmark publication was officially selected by the European Heart Journal as a Top 10 Dyslipidemia Study globally.Expenses $2,436,983 · revenue $10,000
- ADVOCACY: The Family Heart Foundation provides individualized resources to those living with genetic dyslipidemias through our Care Navigation Center. We also engage and support communities through on-site community engagement, education and screening programs. In addition, we raise awareness of these highly undiagnosed conditions through national media and awareness campaigns, The Family Heart Foundation established FHAwareness Day in 2012 and Lp(a) Awareness Day in 2021. We also work at a policy level (GOAL and Lp(a) AW(a)RE programs) to represent and elevate the voices of our community and improve care.Expenses $2,152,213
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 45-4597425
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2012
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G12)
- Assets (IRS master file)
- $8,670,808
- Income (IRS master file)
- $10,718,916
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $10,718,916 | $8,882,596 | $8,670,808 | XML |
| 990 | December 2024 | $8,891,212 | $7,841,100 | $7,350,370 | XML |
| 990 | December 2023 | $6,535,608 | $6,362,500 | $5,313,676 | XML |
| 990 | December 2022 | $2,813,780 | $4,729,443 | $4,488,377 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
| 990 | December 2017 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 45-4597425).
Questions about THE FAMILIAL HYPERCHOLESTEROLEMIA FOUNDATION
- What is the EIN of THE FAMILIAL HYPERCHOLESTEROLEMIA FOUNDATION?
- The employer identification number (EIN) of THE FAMILIAL HYPERCHOLESTEROLEMIA FOUNDATION is 45-4597425.
- Is THE FAMILIAL HYPERCHOLESTEROLEMIA FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2012.
- Are donations to THE FAMILIAL HYPERCHOLESTEROLEMIA FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does THE FAMILIAL HYPERCHOLESTEROLEMIA FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of THE FAMILIAL HYPERCHOLESTEROLEMIA FOUNDATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did THE FAMILIAL HYPERCHOLESTEROLEMIA FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of THE FAMILIAL HYPERCHOLESTEROLEMIA FOUNDATION?
- The 990 for the year ended December 31, 2025 names Katherine Wilemon.
- Who are the officers and directors of THE FAMILIAL HYPERCHOLESTEROLEMIA FOUNDATION?
- The 990 for the year ended December 31, 2025 lists 10 people; 6 received compensation from the organization, the highest $468,514 (Katherine Wilemon, CEO/Board Member).
- How much revenue does THE FAMILIAL HYPERCHOLESTEROLEMIA FOUNDATION have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $10,718,916, expenses of $8,882,596 and total assets of $8,670,808 at year end.
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