2026-09-14T13:04:07-05:00 2025-12-31 954557617 Harrington Group CPAs LLP 2698 Mataro Street Pasadena CA 91107 990 2025-01-01 454597425 The Familial Hypercholesterolemia Foundation FAMI 6265834674 5548 First Coast Hwy 204 Fernandina Beach FL 32034 Katherine Wilemon CEO 6265834674 2026-09-14 1 Jason K Stelling EA P02456446 6264036801 2025 Family Heart Foundation Katherine Wilemon 5548 First Coast Hwy 204 Fernandina Beach FL 32034 10718916 0 X www.familyheart.org X 2012 CA The mission of the Family Heart Foundation is to save generations of families from heart disease 5 4 23 374 0 0 8536472 10528777 240000 10000 54378 135616 60362 44523 8891212 10718916 0 0 0 0 3119803 3322483 0 0 102731 4721297 5560113 7841100 8882596 1050112 1836320 7350370 8670808 2079880 1490097 5270490 7180711 X The mission of the Family Heart Foundation is to save generations of families from heart disease through timely identification and improved care of familial hypercholesterolemia (FH) and elevated lipoprotein(a) (Lp(a)). Through research, advocacy, and education we play a critical role in driving change and empower families to navigate their own health. 0 0 2846957 EDUCATION: As an honest broker and neutral convener, the Family Heart Foundation provides education and tools to diverse audiences, from patients (through programs like Cholesterol Connect and our Community Engagement programs) to healthcare professionals, policymakers and payers (through programs like GOAL and Lp(a) AWARE). We host an annual scientific meeting, the Family Heart Global Summit and hold educational symposia at primary care medical conferences across the country. 2436983 10000 RESEARCH: The Family Heart Foundation conducts independent, observational and implementation research. Our major research initiatives involve characterizing familial hypercholesterolemia through our national CASCADE FH Registry, analyzing current screening rates, diagnosis and burden of disease of high lipoprotein(a), FH, and high LDL-C through our Family Heart Database and quality improvement research through our FIND-Lp(a), GOAL and Lp(a) AW(a)RE programs. We have published over 70 peer-reviewed manuscripts most notably in the European Heart Journal entitled "Lipoprotein(a) and recurrent atherosclerotic cardiovascular events: the US Family Heart Database". This landmark publication was officially selected by the European Heart Journal as a Top 10 Dyslipidemia Study globally. 2152213 ADVOCACY: The Family Heart Foundation provides individualized resources to those living with genetic dyslipidemias through our Care Navigation Center. We also engage and support communities through on-site community engagement, education and screening programs. In addition, we raise awareness of these highly undiagnosed conditions through national media and awareness campaigns, The Family Heart Foundation established FHAwareness Day in 2012 and Lp(a) Awareness Day in 2021. We also work at a policy level (GOAL and Lp(a) AW(a)RE programs) to represent and elevate the voices of our community and improve care. 7436153 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 23 0 1 23 1 0 0 0 0 0 0 0 0 0 0 0 0 X 5 4 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 CA X The Organization 6265834674 5548 First Coast Hwy 204 Fernandina Beach FL 32034 Seth Baum Chair 1.00 X X 0 0 0 Allison Jamison Vice President & Treasurer 1.00 X X 0 0 0 Katherine Wilemon CEO/Board Member 40.00 X X 468514 0 23817 Brian Mittman Board Member 1.00 X 0 0 0 Courtney Riley Board Member 1.00 X 0 0 0 Allison Hawke VP of Operations 40.00 X 213767 0 26097 Hilliard Paige Chief Innovation Officer 40.00 X 366568 0 39362 Susan Seim Creative Director 40.00 X 155960 0 16129 Diane MacDougall VP of Science and Research 40.00 X 193049 0 13374 Shoshana Bardach Director Quality/Research Operations 40.00 X 154200 0 17581 1552058 0 136360 10 0 1 0 Endless Health 2009 Ranch Road 620 N Ste 340 Lakeway TX 78734 Test kits & analysis lab 898887 Pri-Med LLC 855 Boylston Street Suite 501 Boston MA 02116 Professional Society Event 501850 Source Heathcare Analytics LLC 4130 ParkLake Ave Ste 400 Raleigh NC 27612 Data 385341 Emory Healthcare 1599 Clifton Rd 3rd floor Atlanta GA 30322 Consulting 295261 BIA Clinical Group LLC 2793 Plymouth Rd Suite J Ann Arbor MI 48105 Statistical & Programming Support 239238 12 10528777 10528777 Contract fees 900099 10000 10000 10000 135616 135616 Other income 900099 44523 44523 44523 10718916 10000 0 180139 492331 363352 118713 10266 2333429 1801122 481177 51130 105046 7568 97478 206835 14901 191934 184842 13316 171526 110479 65511 44189 779 24967 24967 742241 732595 9646 2025041 2021901 3140 81334 29078 34394 17862 64172 1193 62979 8779 8779 258971 254362 4609 1331971 1329579 2392 12310 12310 79547 79547 Data & Research 774058 774058 Membership/subscription 27924 26130 1794 Bank charges 18319 1487 13925 2907 8882596 7436153 1343712 102731 3035008 2395539 2859676 4958524 362186 1096 94109 222709 79518 66492 20678 13026 964437 1073692 14276 6222 7350370 8670808 383264 411414 1683485 1073712 13131 4971 2079880 1490097 X 4908628 7180711 361862 0 5270490 7180711 7350370 8670808 1836320 73901 0 X 0 1 X 1 0 X 3613537 1824933 6160613 8536472 10528777 30664332 3613537 1824933 6160613 8536472 10528777 30664332 16796827 13867505 32015 31749 31584 54378 135616 285342 300 4366 25015 60362 44523 134566 31084240 2635228 0.44610 0.35560 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 79518 66492 13026 13026 Lease liabilities - operating leases 4971 4971 X 10971967 73901 179150 253051 10718916 0 10718916 9061746 179150 179150 8882596 0 8882596 Part X, Line 2: Family Heart Foundation is exempt from taxation under Internal Revenue Code Section 501(c)(3) and California Revenue and Taxation Code Section 23701d. Generally accepted accounting principles provide accounting and disclosure guidance about positions taken by an organization in its tax returns that might be uncertain. Management has considered its tax positions and believes that all of the positions taken by Family Heart Foundation in its federal and state exempt organization tax returns are more likely than not to be sustained upon examination. Family Heart Foundation's returns are subject to examination by federal and state taxing authorities, generally for three and four years, respectively, after they are filed. X 0 0 0 0 0 0 0 1 0 Katherine Wilemon CEO/Board Member 398514 0 70000 0 0 0 23817 0 0 0 492331 0 0 0 Hilliard Paige Chief Innovation Officer 326568 0 40000 0 0 0 22592 0 16770 0 405930 0 0 0 Allison Hawke VP of Operations 198767 0 15000 0 0 0 14227 0 11870 0 239864 0 0 0 Diane MacDougall VP of Science and Research 188049 0 5000 0 0 0 11520 0 1854 0 206423 0 0 0 Susan Seim Creative Director 140960 0 15000 0 0 0 7788 0 8341 0 172089 0 0 0 Shoshana Bardach Director Quality/Research Operations 147200 0 7000 0 0 0 9240 0 8341 0 171781 0 0 0 Part I, Line 7 Katherine Wilemon's bonus amount was determined and is agreed upon by the Family Heart Foundation Board, each year in the spring, based upon performance from the prior year. Other employees received periodic bonuses in recognition of their programmatic accomplishment throughout the reporting period. Form 990, Part I, line 1, Description of Organization Mission: through timely identification and improved care of familial hypercholesterolemia (FH) and elevated lipoprotein(a) (Lp(a)). Through research, advocacy, and education we play a critical role in driving change and empower families to navigate their own health. Programs and Initiatives are: Family Heart Awareness and Engagement Campaigns Community In Action Corporate Advisory Council Clinical Trial Awareness CASCADE FH Registry Family Heart Database Research FIND Lp(a) FIND FH Leveraging Evidence and Data (LEAD) to Accelerate Pediatric Screening for FH Leveraging Evidence and Data (LEAD) LDL Getting On Appropriate Lipid Lowering ("GOAL") Program Care Navigation Center Family Heart Global Summit Global Network Research Partnerships Cholesterol Connect Form 990, Part VI, Section B, line 11b The Form 990 is e-mailed to each member and reviewed via electronic media prior to filing. Form 990, Part VI, Section B, line 12c Conflicts of interest are monitored annually and reviewed by the governing body prior to approval or determination of action. Form 990, Part VI, Section B, line 15a The CEO's salary is reviewed on an annual basis by the Board of Directors and then approved by the Executive Committee. Part VI, line 15(b) was answered "no" as there were no other officers or key employees as defined in Form 990 instructions who received compensation. Form 990, Part VI, Section C, line 19 All documents are available to the public upon request.