Nonprofit · EIN 35-1844264
NATIONAL NIEMANN-PICK DISEASE FOUNDATION
Tax-exempt · FORT ATKINSON, WI 53538
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $929,337 | $553,122 | $376,215 | $981,265 | $18,654 | $962,611 |
| December 31, 2024 | 990 | $676,224 | $589,340 | $86,884 | $607,164 | $20,768 | $586,396 |
| December 31, 2023 | 990 | $591,177 | $796,672 | -$205,495 | $581,378 | $81,866 | $499,512 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $886,744
- Program service revenue
- $24,425
- Investment income
- $18,168
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $49,356
- Compensation of officers, directors and key employees
- $30,514
- Other salaries and wages
- $74,824
- Salaries, compensation and benefits (total)
- $120,230
- Professional fundraising fees
- $0
- Legal fees
- $4,505
- Accounting fees
- $33,677
- Travel
- $11,774
- Program services (functional)
- $394,714
- Management and general (functional)
- $130,045
- Fundraising (functional)
- $28,363
Balance sheet and other
- Total assets, start of year
- $607,164
- Total assets, end of year
- $981,265
- Total liabilities, end of year
- $18,654
- Net assets, end of year
- $962,611
- Net assets without donor restrictions
- $822,057
- Net assets with donor restrictions
- $140,554
- Gross receipts
- $929,337
- Employees
- 3
- Volunteers
- 20
- Year formed
- 1992
- State of legal domicile
- WI
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| SHANTE ANTROM | INTERIM EXECUTIVE DIRECTOR (FROM NOVEMBER) Officer | 40 | $27,518 |
| ELIZABETH HEINZE | CHAIR Trustee or director, Officer | 20 | $0 |
| BECKY MCGUIRE | VICE CHAIR (THRU JUNE) Trustee or director, Officer | 1 | $0 |
| MIKE SMITH | TREASURER Trustee or director, Officer | 2 | $0 |
| TAYLOR SABKY | SECRETARY/VICE CHAIR Trustee or director, Officer | 5 | $0 |
| ANTHONY LEONI | DIRECTOR Trustee or director | 1 | $0 |
| DAWN STITES | DIRECTOR Trustee or director | 1 | $0 |
| GAIL KOUJAIAN | DIRECTOR Trustee or director | 1 | $0 |
| GARLAND ALVEY | DIRECTOR Trustee or director | 1 | $0 |
| KARI LATO | DIRECTOR (THRU JUNE) Trustee or director | 1 | $0 |
| KELLY LEE | DIRECTOR Trustee or director | 1 | $0 |
| MARY FRANCES HARMON | DIRECTOR Trustee or director | 1 | $0 |
| MEGHANN FERGUSON | DIRECTOR (THRU JUNE) Trustee or director | 1 | $0 |
| PAUL MERRIGAN | DIRECTOR Trustee or director | 1 | $0 |
| TRAVIS OBERMEYER | DIRECTOR (THRU JUNE) Trustee or director | 1 | $0 |
2 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| DEBORAH CHO | DIRECTOR Trustee or director | 1 | $0 |
| SAIRA SULTAN | EXECUTIVE DIRECTOR (THRU JUNE) Officer | 40 | $0 |
990 for the year ended December 31, 2024: 17 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| JOSLYN CROWE | EXECUTIVE DIRECTOR THRU SEPTEMBER Officer | 40 | $105,504 | $3,335 |
| ELIZABETH HEINZE | CHAIR Trustee or director, Officer | 6 | $0 | $0 |
| BECKY MCGUIRE | VICE CHAIR Trustee or director, Officer | 1 | $0 | $0 |
| MIKE SMITH | TREASURER Trustee or director, Officer | 2 | $0 | $0 |
| TAYLOR SABKY | SECRETARY Trustee or director, Officer | 2 | $0 | $0 |
| ANTHONY LEONI | DIRECTOR Trustee or director | 1 | $0 | $0 |
| CARA GILMORE | DIRECTOR THRU JUNE Trustee or director | 1 | $0 | $0 |
| CHRYSTELLE BOUGAULT | DIRECTOR Trustee or director | 1 | $0 | $0 |
| DAWN STITES | DIRECTOR Trustee or director | 1 | $0 | $0 |
| GAIL KOUJAIAN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| GARLAND ALVEY | DIRECTOR Trustee or director | 1 | $0 | $0 |
| KARI LATO | DIRECTOR Trustee or director | 1 | $0 | $0 |
| KELLY LEE | DIRECTOR Trustee or director | 1 | $0 | $0 |
| MARY FRANCES HARMON | DIRECTOR Trustee or director | 1 | $0 | $0 |
| MEGHANN FERGUSON | DIRECTOR Trustee or director | 1 | $0 | $0 |
| PAUL MERRIGAN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| TRAVIS OBERMEYER | DIRECTOR Trustee or director | 1 | $0 | $0 |
990 for the year ended December 31, 2023: 14 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| JOSLYN CROWE | EXECUTIVE DIRECTOR Officer | 40 | $130,060 | $5,009 |
| BECKY MCGUIRE | CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| ELIZABETH HEINZE | VICE CHAIR Trustee or director, Officer | 1 | $0 | $0 |
| MEGHANN FERGUSON | DIRECTOR Trustee or director | 1 | $0 | $0 |
| MIKE SMITH | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| MARY FRANCES HARMON | DIRECTOR Trustee or director | 1 | $0 | $0 |
| CHRYSTELLE BOUGAULT | DIRECTOR Trustee or director | 1 | $0 | $0 |
| GAIL KOUJAIAN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| CARA GILMORE | DIRECTOR Trustee or director | 1 | $0 | $0 |
| KARI LATO | DIRECTOR Trustee or director | 1 | $0 | $0 |
| ANTHONY LEONI | DIRECTOR Trustee or director | 1 | $0 | $0 |
| PAUL MERRIGAN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| TRAVIS OBERMEYER | DIRECTOR Trustee or director | 1 | $0 | $0 |
| TAYLOR SABKY | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 49, FORT ATKINSON, WI 53538-0049
- Principal officer (990 for 2025)
- TAYLOR SABKY, PO BOX 49, FORT ATKINSON, WI 53538
- Signed the 990
- TAYLOR SABKY, CHAIR
- Phone
- (877) 287-3672
- Website
- NNPDF.ORG
- Return prepared by
- WEGNER CPAS LLP
Mission
THE NATIONAL NIEMANN-PICK DISEASE FOUNDATION, INC. (NNPDF) IS A NON-PROFIT, PATIENT ADVOCACY AND FAMILY SUPPORT ORGANIZATION DEDICATED TO SUPPORTING AND EMPOWERING PATIENTS AND FAMILIES AFFECTED BY NIEMANN-PICK DISEASE, THROUGH EDUCATION, COLLABORATION AND RESEARCH.
Program accomplishments
- FAMILY SUPPORT - SUPPORT SERVICES TO FAMILIES WHO HAVE A FAMILY MEMBER DIAGNOSED WITH NIEMANN-PICK DISEASE AND PATIENT ADVOCACY EFFORTS. PATIENT ADVOCACY FOR ACCESS TO MEDICATIONS AND EXPERIMENTAL THERAPIES. EMOTIONAL SUPPORT TO INDIVIDUALS AND FAMILIES DEALING WITH ALL TYPES OF NIEMANN-PICK DISEASE, ASSISTANCE THROUGH CRISES, INFORMATION AND IDEAS ABOUT ISSUES SUCH AS DOCTORS, CLINICS, INSURANCE COMPANIES AND OTHER HEALTH AND HUMAN SERVICE PROGRAMS AND PRACTICAL SUGGESTIONS ABOUT DAY-TO-DAY CARE. COMMUNICATIONS INCLUDING MONTHLY NEWSLETTERS, E-NEWS, AND SOCIAL MEDIA NEWS UPDATES. THE ANNUAL NNPDF FAMILY SUPPORT AND MEDICAL CONFERENCE BRINGS TOGETHER FAMILIES, SCIENTISTS, AND MEDICAL PROFESSIONALS TO SHARE INFORMATION AND PROVIDE SUPPORT.Expenses $384,429 · grants $41,378 · revenue $24,425
- RESEARCH SUPPORT - NNPDF SUPPORTS OVER 450 DIAGNOSED FAMILIES AT ALL STAGES OF THEIR NIEMANN-PICK DISEASE JOURNEY. WE PROVIDE ACCURATE UP-TO-DATE INFORMATION ON THE LATEST ADVANCES IN MEDICINE AND SCIENCE RELATED TO NIEMANN-PICK DISEASE. PROVISION AND MONITORING OF SCIENTIFIC RESEARCH GRANTS AND FELLOWSHIPS TO RESEARCH SCIENTISTS.Expenses $10,285 · grants $7,978
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 35-1844264
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1993
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H110)
- Assets (IRS master file)
- $981,265
- Income (IRS master file)
- $929,337
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $929,337 | $553,122 | $981,265 | XML |
| 990 | December 2024 | $676,224 | $589,340 | $607,164 | XML |
| 990 | December 2023 | $591,177 | $796,672 | $581,378 | XML |
| 990 | December 2022 | $556,671 | $725,852 | $698,723 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 35-1844264).
Questions about NATIONAL NIEMANN-PICK DISEASE FOUNDATION
- What is the EIN of NATIONAL NIEMANN-PICK DISEASE FOUNDATION?
- The employer identification number (EIN) of NATIONAL NIEMANN-PICK DISEASE FOUNDATION is 35-1844264.
- Is NATIONAL NIEMANN-PICK DISEASE FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1993.
- Are donations to NATIONAL NIEMANN-PICK DISEASE FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does NATIONAL NIEMANN-PICK DISEASE FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of NATIONAL NIEMANN-PICK DISEASE FOUNDATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did NATIONAL NIEMANN-PICK DISEASE FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of NATIONAL NIEMANN-PICK DISEASE FOUNDATION?
- The 990 for the year ended December 31, 2025 names TAYLOR SABKY.
- Who are the officers and directors of NATIONAL NIEMANN-PICK DISEASE FOUNDATION?
- The 990 for the year ended December 31, 2025 lists 17 people; 1 received compensation from the organization, the highest $27,518 (SHANTE ANTROM, INTERIM EXECUTIVE DIRECTOR (FROM NOVEMBER)).
- How much revenue does NATIONAL NIEMANN-PICK DISEASE FOUNDATION have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $929,337, expenses of $553,122 and total assets of $981,265 at year end.
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