Nonprofit · EIN 33-0282720
ALS SOUTHWEST ASSOCIATION
Also known as ORANGE COUNTY CHAPTER
Tax-exempt (reinstated) · TUSTIN, CA 92780
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $852,070 | $744,303 | $107,767 | $1,124,628 | $16,010 | $1,108,618 |
| January 31, 2024 | 990 | $885,784 | $748,758 | $137,026 | $1,017,281 | $16,430 | $1,000,851 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $638,001
- of which government grants
- $173,965
- Program service revenue
- $0
- Investment income
- $36,728
- Net income from fundraising events
- $177,341
- Other revenue
- $177,341
Expenses
- Grants and similar amounts paid
- $0
- Other salaries and wages
- $324,944
- Salaries, compensation and benefits (total)
- $324,944
- Professional fundraising fees
- $0
- Accounting fees
- $9,070
- Occupancy
- $35,930
- Depreciation
- $21,668
- Program services (functional)
- $595,442
- Management and general (functional)
- $128,959
- Fundraising (functional)
- $19,902
Balance sheet and other
- Total assets, start of year
- $1,017,281
- Total assets, end of year
- $1,124,628
- Total liabilities, end of year
- $16,010
- Net assets, end of year
- $1,108,618
- Land, buildings and equipment
- $23,648
- Net assets without donor restrictions
- $1,061,654
- Net assets with donor restrictions
- $46,964
- Gross unrelated business income
- $36,728
- Gross receipts
- $981,233
- Employees
- 0
- Volunteers
- 100
- Year formed
- 1987
- State of legal domicile
- CA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| NATALIE VILLEGAS | EXECUTIVE DIRECTOR Trustee or director, Officer | 45 | $147,557 |
| BILL COLLINS | PAST PRESIDENT Trustee or director, Officer | 3 | $0 |
| JEANNE FENDEL | DIRECTOR Trustee or director, Officer | 1 | $0 |
| SUE BASSETT | TREASURER Trustee or director, Officer | 3 | $0 |
| TOM MOTHERWAY | VICE PRESIDENT Trustee or director, Officer | 2 | $0 |
| MARK HERSHEY | PRESIDENT Trustee or director, Officer | 2 | $0 |
| SCOTT MCGINLEY | DIRECTOR Trustee or director, Officer | 1 | $0 |
| AUSTIN NIETO | DIRECTOR Trustee or director, Officer | 1 | $0 |
| NAOMI SAUCEDO-TANOUYE | DIRECTOR Trustee or director, Officer | 1 | $0 |
| NAMITA GOYAL | DIRECTOR Trustee or director, Officer | 1 | $0 |
| JOHN PORELLO | DIRECTOR Trustee or director, Officer | 1 | $0 |
| RICK HOFFPAUER | DIRECTOR Trustee or director, Officer | 1 | $0 |
| KELLEY HAGHIGHI | SECRETARY Trustee or director, Officer | 3 | $0 |
| ALEX YOUNG | DIRECTOR Trustee or director, Officer | 1 | $0 |
| MARY ANN EATON | DIRECTOR Trustee or director, Officer | 1 | $0 |
990 for the year ended January 31, 2024: 15 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| NATALIE VILLEGAS | EXECUTIVE DIRECTOR Trustee or director, Officer | 45 | $146,380 |
| BILL COLLINS | PAST PRESIDENT Trustee or director, Officer | 3 | $0 |
| JEANNE FENDEL | DIRECTOR Trustee or director, Officer | 1 | $0 |
| SUE BASSETT | TREASURER Trustee or director, Officer | 3 | $0 |
| TOM MOTHERWAY | VICE PRESIDENT Trustee or director, Officer | 2 | $0 |
| MARK HERSHEY | PRESIDENT Trustee or director, Officer | 2 | $0 |
| SCOTT MCGINLEY | DIRECTOR Trustee or director, Officer | 1 | $0 |
| AUSTIN NIETO | DIRECTOR Trustee or director, Officer | 1 | $0 |
| NAOMI SAUCEDO-TANOUYE | DIRECTOR Trustee or director, Officer | 1 | $0 |
| NAMITA GOYAL | DIRECTOR Trustee or director, Officer | 1 | $0 |
| JOHN PORELLO | DIRECTOR Trustee or director, Officer | 1 | $0 |
| RICK HOFFPAUER | DIRECTOR Trustee or director, Officer | 1 | $0 |
| KELLEY HAGHIGHI | SECRETARY Trustee or director, Officer | 3 | $0 |
| ALEX YOUNG | DIRECTOR Trustee or director, Officer | 1 | $0 |
| MARY ANN EATON | DIRECTOR Trustee or director, Officer | 1 | $0 |
Address and contacts
- Address (IRS master file)
- 14471 CHAMBERS RD STE 111, TUSTIN, CA 92780-6969
- In care of
- % NATALIE VILLEGAS-EXECUTIVE DIRECT
- Principal officer (990 for 2024)
- NATALIE VILLEGAS, 14471 CHAMBERS STE 111, TUSTIN, CA 92780
- Signed the 990
- NATALIE VILLEGAS, EXECUTIVE DIRECTOR
- Phone
- (714) 285-1088
- Website
- HTTP//WWW.ALSUOC.ORG
- Return prepared by
- WINTER & LOZANO CPAS INC
California records
California keeps its own records of charities and corporations. Search them by EIN 33-0282720 or by the name ALS SOUTHWEST ASSOCIATION.
- Attorney General, Registry of Charities and Fundraisers
- Registration status and filed reports (CT-TR-1, RRF-1)
- Secretary of State, bizfile Online
- Corporation status, entity number, agent for service
- Franchise Tax Board
- Entity status letter (state tax exemption, good standing)
Mission
THE ALS ASSOCIATION IS THE ONLY NATIONAL NON-PROFIT VOLUNTARY HEALTH ORGANIZATION DEDICATED SOLELY TO THE FIGHT AGAINST ALS, OR AMYOTROPHIC LATERAL SCLEROSIS (OFTEN CALLED LOU GEHRIG'S DISEASE). THE ASSOCIATION'S MISSION IS TO FIND A CURE FOR AND IMPROVE THE LIVING CONDITIONS OF THOSE SUFFERING FROM ALS.
Program accomplishments
- THE ALS ASSOCIATION PROVIDES PATIENTS AND THEIR FAMILIES WITH CARE SERVICE PROGRAMS INCLUDING TELEPHONE CONSULTATIONS AND IN-HOME VISITS BY CARE SERVICES STAFF, PHYSICAL THERAPISTS AND SPEECH THERAPISTS. THE ASSOCIATION ALSO PURCHASES AUGMENTIVE COMMUNICATION DEVICES FOR ALS PATIENTS AND PROVIDES SUCH DEVICES VIA A COMPUTER LOAN BANK. THE ASSOCIATION HAS HELPED OVER 150 ALS PATIENTS AND RELATIVES THROUGHOUT THE YEAR. RESPITE CARE GRANTS (UP TO $500.00) ARE OFFERED TO ELIGIBLE FAMILIES, FREE TRANSPORTATION TO MD APPOINTMENTS IS OFFERED FOR PATIENTS LIVING WITH ALS. CAREGIVERS REST AND RELAXATION TREATMENT IS TO PRIMARY CARE TAKER. THE LOAN CLOSET PROVIDES A LOT OF EQUIPMENT OR WE PURCHASE NEW EQUIPMENT ITEMS IF THE EQUIPMENT IS NOT AVAILABLE.Expenses $595,442
- THE ALS ASSOCIATION SEEKS TO PROMOTE AWARENESS AND UNDERSTANDING OF ALS AND THE WORK OF THE ASSOCIATION BY PROVIDING UP-TO-DATE INFORMATION AND EDUCATION MATERIALS TO THE ALS COMMUNITY, ALS PATIENTS AND FAMILIES, CAREGIVERS, RESEARCHERS AND MEMBERS IN THE HEALTH CARE FIELDS. OUR VISION IS TO CREATE A WORLD WITHOUT ALS. OUR MISSION IS TO LEAD THE FIGHT TO TREAT AND CURE ALS THOUGHOUT RESEARCH AND EDUCATION. THE ALS ORANGE COUNTY CHAPTER DONATES CONTRIBUTES $30,000 EVERY YEAR TO THE UCI NEUROLOGY ALS CLINIC TO HELP PROVIDE STAFF, RESEARCH OPPORTUNITIES. IN ADDITION, AN ANNUAL ALS SYMPOSIUM IS OFFERRED TO PALS AND FAMILIES TO LEARN THE LATEST INFORMATION IN RESEARCH AND COMMUNITY RESOURCES. MONTHLY SUPPORT GROUP MEETINGS ARE OFFERED TO BRING EDUCATION AND EXPERIENCE SHARING.
- EQUIPMENT LOAN PROGRAM: FIXED DONATED EQUIPMENT, PURCHASES OF NEW EQUIPMENT AND REPAIR PART.
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | Check at the IRS |
IRS record
- EIN
- 33-0282720
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2024
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Health care (E60)
- Assets (IRS master file)
- $1,124,628
- Income (IRS master file)
- $981,233
Revocation and reinstatement
- Exemption revoked
- June 15, 2023
- Posted by the IRS
- September 11, 2023
- Reinstated
- Effective September 15, 2023
From the IRS automatic revocation list: organizations that did not file a required return or e-Postcard for three consecutive years.
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $852,070 | $744,303 | $1,124,628 | IRS |
| 990 | January 2024 | $885,784 | $748,758 | $1,017,281 | XML |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 33-0282720).
Questions about ALS SOUTHWEST ASSOCIATION
- What is the EIN of ALS SOUTHWEST ASSOCIATION?
- The employer identification number (EIN) of ALS SOUTHWEST ASSOCIATION is 33-0282720.
- Is ALS SOUTHWEST ASSOCIATION tax-exempt?
- Yes. The IRS revoked its exemption on June 15, 2023 and reinstated it effective September 15, 2023.
- Are donations to ALS SOUTHWEST ASSOCIATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does ALS SOUTHWEST ASSOCIATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of ALS SOUTHWEST ASSOCIATION due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did ALS SOUTHWEST ASSOCIATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of ALS SOUTHWEST ASSOCIATION?
- The 990 for the year ended December 31, 2024 names NATALIE VILLEGAS.
- Who are the officers and directors of ALS SOUTHWEST ASSOCIATION?
- The 990 for the year ended December 31, 2024 lists 15 people; 1 received compensation from the organization, the highest $147,557 (NATALIE VILLEGAS, EXECUTIVE DIRECTOR).
- How much revenue does ALS SOUTHWEST ASSOCIATION have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $852,070, expenses of $744,303 and total assets of $1,124,628 at year end.
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