2024-12-16T15:38:27-06:00 2024-01-31 800316991 WINTER & LOZANO CPAS INC 942 E CHAPMAN ORANGE CA 92866 990 2023-02-01 330282720 ALS UNITED ORANGE COUNTY ALSU 7142851088 14471 CHAMBERS 111 TUSTIN CA 92780 NATALIE VILLEGAS EXECUTIVE DIRECTOR 7142851088 2024-12-16 1 1 X BRIAN WINTER CPA P00643656 7146026949 2024-12-16 2023 2024-10-15 13:58:12Z X NATALIE VILLEGAS 14471 CHAMBERS STE 111 TUSTIN CA 92780 980131 0 X HTTP//WWW.ALSUOC.ORG X 1987 CA THE ALS ASSOCIATION - ORANGE COUNTY CHAPTER IS LEADING THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSO EMPOWERING PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT. 14 14 0 75 20283 0 447231 590039 0 0 1193 20283 329726 275462 778150 885784 0 0 0 0 295059 311121 0 0 26688 402641 437637 697700 748758 80450 137026 905375 1017281 41550 16430 863825 1000851 X THE ALS ASSOCIATION IS THE ONLY NATIONAL NON-PROFIT VOLUNTARY HEALTH ORGANIZATION DEDICATED SOLELY TO THE FIGHT AGAINST ALS, OR AMYOTROPHIC LATERAL SCLEROSIS (OFTEN CALLED LOU GEHRIG'S DISEASE). THE ASSOCIATION'S MISSION IS TO FIND A CURE FOR AND IMPROVE THE LIVING CONDITIONS OF THOSE SUFFERING FROM ALS. 0 0 546739 THE ALS ASSOCIATION PROVIDES PATIENTS AND THEIR FAMILIES WITH CARE SERVICE PROGRAMS INCLUDING TELEPHONE CONSULTATIONS AND IN-HOME VISITS BY CARE SERVICES STAFF, PHYSICAL THERAPISTS AND SPEECH THERAPISTS. THE ASSOCIATION ALSO PURCHASES AUGMENTIVE COMMUNICATION DEVICES FOR ALS PATIENTS AND PROVIDES SUCH DEVICES VIA A COMPUTER LOAN BANK. THE ASSOCIATION HAS HELPED OVER 150 ALS PATIENTS AND RELATIVES THROUGHOUT THE YEAR. RESPITE CARE GRANTS (UP TO $500.00) ARE OFFERED TO ELIGIBLE FAMILIES, FREE TRANSPORTATION TO MD APPOINTMENTS IS OFFERED FOR PATIENTS LIVING WITH ALS. CAREGIVERS REST AND RELAXATION TREATMENT IS TO PRIMARY CARE TAKER. THE LOAN CLOSET PROVIDES A LOT OF EQUIPMENT OR WE PURCHASE NEW EQUIPMENT ITEMS IF THE EQUIPMENT IS NOT AVAILABLE. THE ALS ASSOCIATION SEEKS TO PROMOTE AWARENESS AND UNDERSTANDING OF ALS AND THE WORK OF THE ASSOCIATION BY PROVIDING UP-TO-DATE INFORMATION AND EDUCATION MATERIALS TO THE ALS COMMUNITY, ALS PATIENTS AND FAMILIES, CAREGIVERS, RESEARCHERS AND MEMBERS IN THE HEALTH CARE FIELDS. OUR VISION IS TO CREATE A WORLD WITHOUT ALS. OUR MISSION IS TO LEAD THE FIGHT TO TREAT AND CURE ALS THOUGHOUT RESEARCH AND EDUCATION. THE ALS ORANGE COUNTY CHAPTER DONATES CONTRIBUTES $30,000 EVERY YEAR TO THE UCI NEUROLOGY ALS CLINIC TO HELP PROVIDE STAFF, RESEARCH OPPORTUNITIES. IN ADDITION, AN ANNUAL ALS SYMPOSIUM IS OFFERRED TO PALS AND FAMILIES TO LEARN THE LATEST INFORMATION IN RESEARCH AND COMMUNITY RESOURCES. MONTHLY SUPPORT GROUP MEETINGS ARE OFFERED TO BRING EDUCATION AND EXPERIENCE SHARING. EQUIPMENT LOAN PROGRAM: FIXED DONATED EQUIPMENT, PURCHASES OF NEW EQUIPMENT AND REPAIR PART. 546739 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 X 14 14 0 0 0 0 0 0 0 1 1 0 0 0 1 1 1 1 0 0 0 0 CA X X ALS ASSOCIATION ORANGE COUNTY 7142851088 14471 CHAMBERS ROAD SUITE 111 TUSTIN CA 92780 BILL COLLINS PAST PRESIDENT 3.00 X X 0 0 0 JEANNE FENDEL DIRECTOR 1.00 X X 0 0 0 SUE BASSETT TREASURER 3.00 X X 0 0 0 NATALIE VILLEGAS EXECUTIVE DIRECTOR 45.00 X X 146380 0 0 TOM MOTHERWAY VICE PRESIDENT 2.00 X X 0 0 0 MARK HERSHEY PRESIDENT 2.00 X X 0 0 0 SCOTT MCGINLEY DIRECTOR 1.00 X X 0 0 0 AUSTIN NIETO DIRECTOR 1.00 X X 0 0 0 NAOMI SAUCEDO-TANOUYE DIRECTOR 1.00 X X 0 0 0 NAMITA GOYAL DIRECTOR 1.00 X X 0 0 0 JOHN PORELLO DIRECTOR 1.00 X X 0 0 0 RICK HOFFPAUER DIRECTOR 1.00 X X 0 0 0 KELLEY HAGHIGHI SECRETARY 3.00 X X 0 0 0 ALEX YOUNG DIRECTOR 1.00 X X 0 0 0 MARY ANN EATON DIRECTOR 1.00 X X 0 0 0 146380 0 0 1 0 0 0 0 216657 373382 10104 590039 20283 20283 369809 94347 275462 275462 885784 0 20283 275462 311121 164074 131424 15623 4200 4200 17540 14180 1680 1680 34789 21238 9869 3682 26723 26723 COMPUTER ACCESSORIES 95687 95687 PROFESSIONAL SERVICES 79487 79487 PATIENT SERVICES PROGRA 69668 69668 ALS REVENUE SHARING 40715 40715 68828 34967 28158 5703 748758 546739 175331 26688 833829 966357 197882 149245 69259 48637 2287 2287 905375 1017281 41550 16430 41550 16430 X 816861 953887 46964 46964 863825 1000851 905375 1017281 137026 0 X 0 0 0 X X 1 THE UCI ALS CLINIC 952226406 7 0 17500 0 1 17500 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 SCHEDULE A, PART VI, EXPLANATION OF OTHER INCOME: SPECIAL EVENT - 2019 AMOUNT: $ 340,307. 2020 AMOUNT: $ 248,004. 2021 AMOUNT: $ 335,688. 2022 AMOUNT: $ 329,726. 2023 AMOUNT: $ 275,462. PPP LOAN - 2020 AMOUNT: $ 43,600. 2021 AMOUNT: $ 40,061. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 197882 149245 48637 48637 X X 0 WALK TO DEFEAT ALS 202787 202787 37364 MARATHON 129940 129940 5800 1 37082 37082 51183 369809 369809 94347 94347 275462 1 THE ALS ASSOCIATION NATIONAL OFFICE 1275 K STREET NW SUITE 250 WASHINGTON DC 20005 133271855 40715 0 TO FIGHT AND TREAT ALS TO IMPROVE GLOBAL RESEARCH AND NATIONAL ADVOCACY WHILE EMPOWERING PEOPLE WITH ALS TO LIVE FULLER LIVES. X PROPERTY & EQUIPMENT 0 10104 0 0 0 FORM 990, PART VI, SECTION B, LINE 11B UPON REQUEST FORM 990, PART VI, SECTION B, LINE 12C AVAILABLE UPON REQUEST FORM 990, PART VI, SECTION C, LINE 19 THE CONFLICT OF INTEREST POLICY IS REVIEWED BY THE BOARD ANNUALLY AND BY NEW MEMBERS UPON JOINING THE BOARD.