Nonprofit · EIN 31-1405490
THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC
Tax-exempt · WASHINGTON, DC 20005
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $12,049,446 | $11,895,953 | $153,493 | $12,713,304 | $1,186,492 | $11,526,812 |
| December 31, 2024 | 990 | $14,311,761 | $12,881,402 | $1,430,359 | $12,567,424 | $1,109,314 | $11,458,110 |
| December 31, 2023 | 990 | $13,881,085 | $12,112,486 | $1,768,599 | $10,440,900 | $634,715 | $9,806,185 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $8,061,163
- Program service revenue
- $2,310,082
- Investment income
- $174,692
- Net gain from sales of assets
- -$1,201
- Net income from fundraising events
- -$119,790
- Other revenue
- $1,503,509
Expenses
- Grants and similar amounts paid
- $1,500,817
- Compensation of officers, directors and key employees
- $391,500
- Other salaries and wages
- $3,237,043
- Salaries, compensation and benefits (total)
- $4,341,780
- Professional fundraising fees
- $0
- Legal fees
- $120,808
- Accounting fees
- $24,000
- Occupancy
- $67,586
- Depreciation
- $8,117
- Program services (functional)
- $10,435,388
- Management and general (functional)
- $834,189
- Fundraising (functional)
- $626,376
Balance sheet and other
- Total assets, start of year
- $12,567,424
- Total assets, end of year
- $12,713,304
- Total liabilities, end of year
- $1,186,492
- Net assets, end of year
- $11,526,812
- Land, buildings and equipment
- $5,583
- Publicly traded securities
- $419,791
- Net assets without donor restrictions
- $9,746,314
- Net assets with donor restrictions
- $1,780,498
- Gross receipts
- $13,108,512
- Employees
- 28
- Volunteers
- 550
- Year formed
- 1997
- State of legal domicile
- OH
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| PATRICIA A FURLONG | PRESIDENT AND CEO Officer | 40 | $391,500 | $14,365 |
| KAYLAN MOITOSO | CHIEF BUSINESS OFFICER Highest-paid employee | 40 | $316,440 | $10,996 |
| MEGAN FREED | CHIEF OF STRATEGIC INITIATIVES Highest-paid employee | 40 | $209,234 | $18,370 |
| KIMBERLY GALBERAITH | PRINCIPAL CREATIVE DIRECTOR Highest-paid employee | 40 | $190,487 | $22,725 |
| ANN MARTIN | VICE PRESIDENT, COMMUNITY RESEARCH & GENETIC SVCS. Highest-paid employee | 40 | $186,369 | $22,346 |
| RACHEL SCHRADER | VICE PRESIDENT, CLINICAL CARE & EDUCATION Highest-paid employee | 40 | $177,589 | $9,069 |
| JOHN KILLIAN | CHAIR Trustee or director, Officer | 8 | $0 | $0 |
| ALPA KHUSHALANI | VICE CHAIR Trustee or director, Officer | 6 | $0 | $0 |
| DAWN REZKALLA | TREASURER Trustee or director, Officer | 6 | $0 | $0 |
| DEANNE FRIAR | SECRETARY Trustee or director, Officer | 6 | $0 | $0 |
| COLIN RENSCH | DIRECTOR Trustee or director | 2 | $0 | $0 |
| MICHELLE FURLONG | DIRECTOR Trustee or director | 2 | $0 | $0 |
| SCOTT PERRIN PHD | DIRECTOR Trustee or director | 2 | $0 | $0 |
| MARU CHAPUR | DIRECTOR Trustee or director | 2 | $0 | $0 |
| SUSAN HUANG | DIRECTOR Trustee or director | 2 | $0 | $0 |
4 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| SUSAN APKON | DIRECTOR Trustee or director | 2 | $0 |
| TIM CRIPE MD PHD | DIRECTOR Trustee or director | 2 | $0 |
| LINDA CRIPE MD | EMERITUS Trustee or director | 2 | $0 |
| DAVID HOFSTEIN JD | EMERITUS Trustee or director | 2 | $0 |
990 for the year ended December 31, 2024: 21 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| PATRICIA A FURLONG | PRESIDENT AND CEO Officer | 40 | $370,075 | $13,694 |
| KAYLAN MOITOSO | CHIEF BUSINESS OFFICER Highest-paid employee | 40 | $293,650 | $9,025 |
| RACHEL SCHRADER | VICE PRESIDENT, CLINICAL CARE & EDUCATION Highest-paid employee | 40 | $174,800 | $33,557 |
| JODI WOLFF | CHIEF PROGRAM OFFICER Highest-paid employee | 40 | $194,569 | $12,395 |
| ANN MARTIN | VICE PRESIDENT, COMMUNITY RESEARCH & GENETIC SERV. Highest-paid employee | 40 | $176,600 | $16,829 |
| GRETCHEN EGNER | BOARD CHAIRMAN Trustee or director, Officer | 8 | $0 | $0 |
| ALPA KHUSHALANI | VICE CHAIR Trustee or director, Officer | 8 | $0 | $0 |
| DAWN REZKALLA | TREASURER Trustee or director, Officer | 6 | $0 | $0 |
| DEANNE FRIAR | SECRETARY Trustee or director, Officer | 6 | $0 | $0 |
| DAVID N HOFSTEIN | EXECUTIVE COMMITTEE Trustee or director | 6 | $0 | $0 |
| SUE APKON | DIRECTOR Trustee or director | 2 | $0 | $0 |
| JEFFREY BIGELOW | DIRECTOR Trustee or director | 2 | $0 | $0 |
| MARU CHAPUR | DIRECTOR Trustee or director | 2 | $0 | $0 |
| TIMOTHY CRIPE | DIRECTOR Trustee or director | 2 | $0 | $0 |
| MICHELLE FURLONG | DIRECTOR Trustee or director | 2 | $0 | $0 |
| LANCE HESTER | DIRECTOR Trustee or director | 2 | $0 | $0 |
| SUSAN HUANG | DIRECTOR Trustee or director | 2 | $0 | $0 |
| JOHN KILLIAN | DIRECTOR Trustee or director | 2 | $0 | $0 |
| RICHARD KLEIN | DIRECTOR Trustee or director | 2 | $0 | $0 |
| SCOTT PERRIN | DIRECTOR Trustee or director | 2 | $0 | $0 |
| COLIN RENSCH | DIRECTOR Trustee or director | 2 | $0 | $0 |
990 for the year ended December 31, 2023: 21 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| PATRICIA A FURLONG | PRESIDENT AND CEO Officer | 40 | $371,400 | $15,379 |
| KAYLAN MOITOSO | CHIEF BUSINESS OFFICER Highest-paid employee | 40 | $256,267 | $10,431 |
| ANN MARTIN | VICE PRESIDENT, COMMUNITY RESEARCH & GENETIC SERVI Highest-paid employee | 40 | $172,800 | $22,640 |
| NICOLE HERRING | VICE PRESIDENT, DEVELOPMENT & COMMUNITY ENGAGEMENT Highest-paid employee | 40 | $157,850 | $34,706 |
| ERIC CAMINO | VICE PRESIDENT, RESEARCH AND CLINICAL INNOVATION Highest-paid employee | 40 | $159,938 | $22,180 |
| GRETCHEN EGNER | BOARD CHAIRMAN Trustee or director, Officer | 8 | $0 | $0 |
| ALPA KHUSHALANI | VICE CHAIR Trustee or director, Officer | 8 | $0 | $0 |
| DAWN REZKALLA | TREASURER Trustee or director, Officer | 6 | $0 | $0 |
| DEANNE FRIAR | SECRETARY Trustee or director, Officer | 6 | $0 | $0 |
| DAVID N HOFSTEIN | EXECUTIVE COMMITTEE Trustee or director | 6 | $0 | $0 |
| JOHN KILLIAN | EXECUTIVE COMMITTEE Trustee or director | 6 | $0 | $0 |
| RASHA ALNAIBARI | DIRECTOR Trustee or director | 2 | $0 | $0 |
| SUE APKON | DIRECTOR Trustee or director | 2 | $0 | $0 |
| JEFFREY BIGELOW | DIRECTOR Trustee or director | 2 | $0 | $0 |
| TIMOTHY CRIPE | DIRECTOR Trustee or director | 2 | $0 | $0 |
| ANESSA FEHSENFELD | DIRECTOR Trustee or director | 2 | $0 | $0 |
| MICHELLE FURLONG | DIRECTOR Trustee or director | 2 | $0 | $0 |
| LANCE HESTER | DIRECTOR Trustee or director | 2 | $0 | $0 |
| RICHARD KLEIN | DIRECTOR Trustee or director | 2 | $0 | $0 |
| COLIN RENSCH | DIRECTOR Trustee or director | 2 | $0 | $0 |
| BETH WHITE | DIRECTOR Trustee or director | 2 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 1012 14TH ST NW STE 500, WASHINGTON, DC 20005-3406
- Principal officer (990 for 2025)
- PATRICIA A FURLONG, 1012 14TH STREET NW 500, WASHINGTON, DC 20005
- Signed the 990
- PATRICIA A FURLONG, FOUNDING PRESIDENT/CEO
- Phone
- (201) 250-8440
- Website
- WWW.PARENTPROJECTMD.ORG
- Return prepared by
- JAMES M WOOD CPA
Mission
THE PARENT PROJECT MUSCULAR DYSTROPHY (PPMD) FIGHTS TO END DUCHENNE. WE ACCELERATE RESEARCH, RAISE OUR VOICES TO IMPACT POLICY, DEMAND OPTIMAL CARE FOR EVERY SINGLE FAMILY, AND STRIVE TO ENSURE ACCESS TO APPROVED THERAPIES.
Program accomplishments
- RESEARCHPPMD'S RESEARCH PROGRAM IDENTIFIES AND FUNDS THE MOST PROMISING NEAR- AND LONG-TERM THERAPEUTIC STRATEGIES FOR DUCHENNE AND BECKER MUSCULAR DYSTROPHY. WE INVEST ACROSS THE DEVELOPMENT PIPELINE-FROM BASIC SCIENCE TO CLINICAL APPLICATION-WHILE ACTIVELY STIMULATING NEW RESEARCH TO KEEP THE THERAPEUTIC PIPELINE ROBUST. THROUGH INITIATIVES LIKE THE DUCHENNE DRUG DEVELOPMENT ROUNDTABLE, WE FOSTER INDUSTRY COLLABORATION TO HARMONIZE THE CLINICAL TRIAL LANDSCAPE AND ACCELERATE PROGRESS.IN ADDITION TO FUNDING ACADEMIC AND PRE-CLINICAL RESEARCH, OUR VENTURE PATHWAYS PROGRAM INVESTS IN EARLY-STAGE BIOPHARMACEUTICAL COMPANIES TO DRIVE THE DEVELOPMENT OF NOVEL TREATMENTS FOR DUCHENNE AND BECKER MUSCULAR DYSTROPHY.THE DUCHENNE REGISTRYTHE DUCHENNE REGISTRY REMAINS THE LARGEST PATIENT-REPORTED REGISTRY FOR DUCHENNE, BECKER AND CARRIER FEMALES. OVER 6,000 PEOPLE FROM MORE THAN 125 COUNTRIES HAVE JOINED SINCE 2007, CONTRIBUTING OVER 18 YEARS OF DATA. REGISTRY DATA HAS BEEN EXPORTED FOR RESEARCHERS OVER 80 TIMES, AND THE REGISTRY HAS BEEN USED TO IDENTIFY AND CONNECT PEOPLE WITH DUCHENNE AND BECKER TO MORE THAN 100 CLINICAL TRIALS AND RESEARCH STUDIES. PPMD ALSO MANAGES COMPLEMENTARY INITIATIVES:THE INTERCHANGE PROVIDES A CENTRAL PATIENT-AND CLINICIAN REPORTED DATA WAREHOUSE SO ALL TYPES OF DUCHENNE DATA FROM VARIOUS SOURCES, INCLUDING THE DUCHENNE REGISTRY, ACADEMIC CONSORTIA, REAL-WORLD DATA FROM ELECTRONIC HEALTH RECORDS (EHRS), AND POST-MARKET STUDIES FROM INDUSTRY PARTNERS, ARE COLLECTED AND ANALYZED IN ONE PLACE. BY DE-SILOING DATA, THE INTERCHANGE DELIVERS A MORE COMPLETE PICTURE OF DUCHENNE AND BECKER AND HELPS CLINICAL RESEARCHERS AND PARTNERS IN THERAPY DEVELOPMENT ADDRESS COMMON RESEARCH CHALLENGES. THUS, RESEARCHERS CAN EFFECTIVELY CONDUCT THEIR WORK AND ACCELERATE SCIENTIFIC DISCOVERY AND PATIENT ACCESS TO NEW THERAPIES.CAREPPMD'S CARE PROGRAM ENSURES INDIVIDUALS WITH DUCHENNE HAVE ACCESS TO EXPERT CLINICAL TEAMS, APPROVED THERAPIES, AND COMPREHENSIVE MULTIDISCIPLINARY CARE ACROSS THEIR LIFESPAN. WE IDENTIFY GAPS IN CARE AND WORK COLLABORATIVELY WITH GLOBAL HEALTHCARE PROVIDERS TO CLOSE THOSE GAPS AND IMPROVE OUTCOMES.OUR CERTIFIED DUCHENNE CARE CENTER (CDCC) PROGRAM CERTIFIES CARE CENTERS THAT MEET RIGOROUS STANDARDS ALIGNED WITH THE DUCHENNE CARE GUIDELINES. THESE CENTERS COMMIT TO DELIVERING CONSISTENT, HIGH-QUALITY CARE BASED ON BEST PRACTICES.Expenses $6,955,873 · grants $1,493,317 · revenue $3,932,180
- EDUCATIONPPMD'S EDUCATION INITIATIVES EQUIP FAMILIES, HEALTHCARE PROVIDERS, AND THE BROADER COMMUNITY WITH THE INFORMATION NEEDED TO NAVIGATE DUCHENNE CARE ACROSS ALL STAGES OF THE DISORDER. WE PARTNER WITH CLINICAL AND SCIENTIFIC EXPERTS TO DEVELOP ACCURATE, ACCESSIBLE RESOURCES AND SHARE THEM BROADLY. WE ALSO COLLABORATE WITH DOMESTIC AND INTERNATIONAL ORGANIZATIONS TO ENSURE EDUCATIONAL MATERIALS REACH GLOBAL AUDIENCES.ENGAGEMENTPPMD FOSTERS A STRONG, INFORMED, AND CONNECTED COMMUNITY. EACH SUMMER, WE HOST THE WORLD'S LARGEST DUCHENNE CONFERENCE, BRINGING TOGETHER FAMILIES, CLINICIANS, RESEARCHERS, AND INDUSTRY PARTNERS TO SHARE UPDATES AND BUILD CONNECTIONS.THROUGHOUT THE YEAR, WE OFFER VIRTUAL AND IN-PERSON GATHERINGS FOR SUBGROUPS INCLUDING DUCHENNE CARRIERS, SIBLINGS, DADS, GRANDPARENTS, AND NEWLY DIAGNOSED FAMILIES.THROUGH PPMD TOGETHER, WE ALSO PROVIDE PERSONALIZED ONE-ON-ONE VIRTUAL SUPPORT TO HELP FAMILIES NAVIGATE THEIR INDIVIDUAL CHALLENGES.Expenses $2,438,077 · grants $7,500
- ADVOCACYPPMD LEADS FEDERAL AND STATE-LEVEL ADVOCACY TO IMPROVE ACCESS TO CARE, ACCELERATE THERAPEUTIC DEVELOPMENT, AND ENSURE REGULATORY FRAMEWORKS SUPPORT THE DUCHENNE COMMUNITY. WE PROVIDE ADVOCATES WITH THE TOOLS AND INFORMATION NEEDED TO ENGAGE POLICYMAKERS AND BUILD CONGRESSIONAL CHAMPIONS.WE ALSO SPEARHEAD EFFORTS TO EXPAND NEWBORN SCREENING FOR DUCHENNE, ENSURING EARLY DIAGNOSIS AND ACCESS TO INTERVENTIONS.Expenses $1,041,438
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 31-1405490
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1994
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Human services (P20Z)
- Assets (IRS master file)
- $12,713,304
- Income (IRS master file)
- $13,108,512
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $12,049,446 | $11,895,953 | $12,713,304 | XML |
| 990 | December 2024 | $14,311,761 | $12,881,402 | $12,567,424 | XML |
| 990 | December 2023 | $13,881,085 | $12,112,486 | $10,440,900 | XML |
| 990 | December 2022 | $10,753,014 | $11,037,641 | $8,648,654 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 31-1405490).
Questions about THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC
- What is the EIN of THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC?
- The employer identification number (EIN) of THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC is 31-1405490.
- Is THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1994.
- Are donations to THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC?
- The 990 for the year ended December 31, 2025 names PATRICIA A FURLONG.
- Who are the officers and directors of THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC?
- The 990 for the year ended December 31, 2025 lists 19 people; 6 received compensation from the organization, the highest $391,500 (PATRICIA A FURLONG, PRESIDENT AND CEO).
- How much revenue does THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $12,049,446, expenses of $11,895,953 and total assets of $12,713,304 at year end.
Other nonprofits in WASHINGTON
- AMERICAN NATIONAL RED CROSS EIN 53-0196605 · last filed 990 for 2025
- HEALTH SERVICES FOR CHILDREN WITH SPECIAL NEEDS INC EIN 52-1862406 · last filed 990 for 2025
- AARP FOUNDATION EIN 52-0794300 · last filed 990 for 2024
- GREATER WASHINGTON URBAN LEAGUE INC EIN 53-0208981 · last filed 990 for 2025
- FRIENDS OF THE WORLD FOOD PROGRAM INC EIN 13-3843435 · last filed 990 for 2025
- MAG AMERICA INC EIN 52-2302253 · last filed 990 for 2024
- ZERO TO THREE - NATIONAL CENTER FOR INFANTS TODDLERS AND FAMILIES EIN 52-1105189 · last filed 990 for 2025
- DEMOCRACY FUND INC EIN 38-3926408 · last filed 990-PF for 2024
All nonprofits in WASHINGTON · District of Columbia · Human services