Nonprofit · EIN 27-1618835
MOVEMENT DISORDERS FOUNDATION
Tax-exempt · ARVADA, CO 80006
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $255,709 | $277,793 | -$22,084 | $596,239 | $0 | $596,239 |
| December 31, 2024 | 990 | $164,166 | $208,656 | -$44,490 | $620,271 | $0 | $620,271 |
| December 31, 2023 | 990 | $147,641 | $108,398 | $39,243 | $664,057 | $0 | $664,057 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $220,385
- Program service revenue
- $0
- Investment income
- $35,324
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $175,000
- Compensation of officers, directors and key employees
- $0
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Legal fees
- $150
- Accounting fees
- $813
- Travel
- $1,319
- Program services (functional)
- $261,788
- Management and general (functional)
- $12,508
- Fundraising (functional)
- $3,497
Balance sheet and other
- Total assets, start of year
- $620,271
- Total assets, end of year
- $596,239
- Total liabilities, end of year
- $0
- Net assets, end of year
- $596,239
- Publicly traded securities
- $428,709
- Gross receipts
- $255,709
- Employees
- 0
- Volunteers
- 6
- Year formed
- 2018
- State of legal domicile
- CO
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Eugene H Sobczak | Executive Director Key employee | 12.5 | $0 | $65,000 |
| Rajeev Kumar MD | Board member Trustee or director | 2 | $0 | $0 |
| Elizabeth Mathies | Board member Trustee or director | 1 | $0 | $0 |
| Meagen Salinas MD | Board member Trustee or director | 1 | $0 | $0 |
| Betty Ross | Chairperson Officer | 2 | $0 | $0 |
| Morris Susman MD | Secretary Officer | 1 | $0 | $0 |
| Peter McKown | Treasurer Officer | 1 | $0 | $0 |
990 for the year ended December 31, 2024: 6 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Eugene H Sobczak | Executive Director Highest-paid employee | 12.5 | $60,000 |
| Betty Ross | Chairperson Trustee or director | 2 | $0 |
| Morris Susman MD | Secretary Trustee or director | 1 | $0 |
| Peter McKown | Treasurer Trustee or director | 1 | $0 |
| Rajeev Kumar MD | Board member Trustee or director | 2 | $0 |
| Sara Minott | Board member Trustee or director | 1 | $0 |
990 for the year ended December 31, 2023: 6 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Eugene H Sobczak | Executive Director Trustee or director, Key employee | 12.5 | $55,750 |
| Betty Ross | Chairperson Trustee or director, Officer | 2 | $0 |
| Morris Susman MD | Secretary Trustee or director, Officer | 1 | $0 |
| Peter McKown | Treasurer Trustee or director, Officer | 1 | $0 |
| Rajeev Kumar MD | Board member Trustee or director | 2 | $0 |
| Sara Minott | Board member Trustee or director | 1 | $0 |
Address and contacts
- Address (IRS master file)
- 7765 WADSWORTH BLVD UNIT 740937, ARVADA, CO 80006-3038
- In care of
- % CHRISTIAN COOK
- Mailing address (990-N for 2017)
- 6006 Softwood Trail, McLean VA 22101
- Principal officer (990 for 2025)
- Betty Ross, 7765 Wadsworth Blvd No 740937, Arvada, CO 80006
- Principal officer (990-N for 2017)
- Christian Cook, 6006 Softwood Trail, McLean VA 22101
- Signed the 990
- Betty Ross, Chairperson of the Board
- Phone
- (303) 588-3496
Mission
We accelerate breakthroughs in Parkinson's disease, Huntington's disease, dystonia, essential tremor and related movement disorders by funding bold, cutting edge research; empowering scientists to pursue innovative ideas that translate laboratory discoveries into life-extending and life-enriching treatments and therapies; fostering collaboration across the global research community; and bridging the gap between scientists and society by mobilizing public engagement in movement disorders research.
Program accomplishments
- In 2025, the Movement Disorders Foundation (MDF) Board of Directors provided ongoing oversight and strategic development of the YOUNG INVESTIGATOR PILOT GRANT (YIPG) program, a cornerstone of MDF's research mission. The Board focused on strengthening scientific review, enhancing accountability for funded research, refining program scope, and positioning the program for long-term growth and donor engagement. Board members reviewed progress reports from active grantees, applying qualitative and quantitative criteria. Funding decisions were contingent in some cases on clarification, revised reporting, or adjusted timelines, balancing scientific accountability with support for early-career investigators. By year-end, all 2024 awardees had received full $50,000 grants, phased according to demonstrated progress. The Board also developed draft criteria for second-year funding, considering progress, likelihood of external support, adherence to acknowledgment requirements, and alignment with MDF research priorities. Beyond grant administration, the Board emphasized donor-facing strategies, including framing YIPGs as catalytic seed investments, exploring flexible funding models, and planning salon-style donor events to highlight investigator work. The Board also evaluated a high-impact translational research opportunity at the University of Denver, considering potential alignment and collaboration with YIPG-funded projects. By the end of 2025, MDF had established a more strategic research framework, positioning the YIPG program to expand impact, support innovative early-career investigators, and bridge promising science to larger-scale funding opportunities.Expenses $200,000 · grants $175,000 · revenue $200,000
- In 2025, the Movement Disorders Foundation (MDF) and Rocky Mountain Movement Disorders Center (RMMDC) maintained operations of the HUNTINGTON'S DISEASE SOCIETY OF AMERICA (HDSA) CENTER OF EXCELLENCE (COE) program while navigating leadership transitions, funding adjustments, and evolving program requirements. Early in the year, RMMDC advanced its leadership transition from Dr. Rajeev Kumar to Dr. Meagen Salinas, who formally assumed COE directorship in April. In response to a nationwide HDSA funding reduction of approximately 15%, Dr. Salinas presented a revised clinic structure to preserve required services while managing costs. By June, RMMDC delivered twelve clinics, including ten fully compliant multidisciplinary sessions and two modified-service clinics, ensuring continuity of care and compliance with HDSA standards. MDF supported the Annual Rocky Mountain Huntington's Disease Family Education Day on October 18 at the CU Anschutz Medical Campus and facilitated a November 1 rebroadcast to extend outreach. In November, HDSA maintained funding for an additional six months and indicated potential structural changes to its COE network. The Board recognized that program scale and resource allocation may require reassessment as further guidance emerges. Despite operational pressures, the COE program continues to provide critical community benefit, support clinical trial recruitment, and advance care for individuals affected by Huntington's disease.Expenses $36,788 · revenue $36,500
- In 2025, the Movement Disorders Foundation (MDF) advanced its mission by modernizing communications and digital infrastructure. The weekly electronic newsletter was rebranded as MOVEMENT DISORDERS RESEARCH NEWS, emphasizing its role as a nationally relevant, research-focused publication supporting innovative, disease-modifying studies. Despite a net loss of 252 subscribers, engagement remained strong, with a 46% open rate and stable click-through activity. Editorial enhancements expanded coverage of global research developments, emerging therapies, and scientific advances, providing readers with accessible, in-depth content. MDF also initiated sponsorship planning and conducted outreach through clinical centers, professional networks, and conferences, increasing visibility and strengthening donor messaging. MDF redesigned its website to prioritize donor engagement, simplify navigation, and provide clear access to research funding opportunities. Integration with the Colorado Gives platform streamlined online giving and reinforced transparency regarding impact. Strategic planning included exploring digital marketing and AI tools to optimize outreach, engagement, and fundraising. These initiatives strengthened MDF's public identity, elevated its research-focused brand, and expanded national visibility, positioning the organization for continued donor support and investment in early-career investigators and innovative movement disorders research.Expenses $25,000 · revenue $25,000
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 27-1618835
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2011
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H20)
- Assets (IRS master file)
- $596,239
- Income (IRS master file)
- $255,709
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $255,709 | $277,793 | $596,239 | IRS |
| 990 | December 2024 | $164,166 | $208,656 | $620,271 | IRS |
| 990 | December 2023 | $147,641 | $108,398 | $664,057 | XML |
| 990 | December 2022 | $176,114 | $375,883 | $691,041 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990-EZ | December 2019 | – | – | – | IRS |
| 990-EZ | December 2018 | – | – | – | IRS |
| 990-N for 2017 Officer: Christian Cook | December 31, 2017 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 27-1618835).
Questions about MOVEMENT DISORDERS FOUNDATION
- What is the EIN of MOVEMENT DISORDERS FOUNDATION?
- The employer identification number (EIN) of MOVEMENT DISORDERS FOUNDATION is 27-1618835.
- Is MOVEMENT DISORDERS FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2011.
- Are donations to MOVEMENT DISORDERS FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does MOVEMENT DISORDERS FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of MOVEMENT DISORDERS FOUNDATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did MOVEMENT DISORDERS FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of MOVEMENT DISORDERS FOUNDATION?
- The 990 for the year ended December 31, 2025 names Betty Ross.
- Who are the officers and directors of MOVEMENT DISORDERS FOUNDATION?
- The 990 for the year ended December 31, 2025 lists 7 people; 0 received compensation from the organization.
- How much revenue does MOVEMENT DISORDERS FOUNDATION have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $255,709, expenses of $277,793 and total assets of $596,239 at year end.
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