2024-06-22T16:38:18-07:00 2023-12-31 990 2023-01-01 271618835 MOVEMENT DISORDERS FOUNDATION MOVE 3035883496 701 E Hampden Avenue Ste 510 Englewood CO 80113 Betty Ross Chairperson of the Board 3039126390 2024-06-22 Betty Ross 999009999 1 1 11 1 AAL2 X 2023 2023-04-26 12:10:37Z Betty Ross 701 E Hampden Avenue Ste 510 Englewood CO 80113 147641 0 X www.movementdisordersfoundation.org X 2018 CO We help people with movement disorders live better lives through collaborative partnerships with those who conduct innovative research, offer patient-focused education or provide unique care services. 5 5 0 5 0 0 160551 116078 0 0 13860 30650 1703 913 176114 147641 256379 0 0 0 57004 0 0 0 3748 62500 108398 375883 108398 -199769 39243 625005 664057 0 0 625005 664057 Movement Disorders Foundation helps people with movement disorders live better lives through collaborative partnerships with those who conduct innovative research, offer professional and patient-focused education and provide unique care services. 0 0 16000 0 0 Research projects funded by the Movement Disorders Foundation GRANT FUNDING program must have a clear possibility of working at scale and for which grant funding has been otherwise difficult to obtain. In 2023, the organization restructured its grant funding program to support early-career research scientists in their advancement of high risk/high reward translational and/or clinical research that advances the understanding, treatment or prevention of multiple movement disorders. Subsequently, the organization did not award any grants in 2023. The new Young Investigator Pilot Grant program formally launched in February 2024 with an invitational request for proposals to research institutions in the United States, Canada and United Kingdom. 47000 42000 Movement Disorder Foundation's HUNTINGTON'S DISEASE (HD) CLINIC provides an elite team approach to HD care and research. Patients benefit from expert neurologists, psychiatrists, social workers, therapists, counselors and other professionals who have extensive experience working with families affected by the disease and who work collaboratively to help families plan the best HD care program throughout the course of the disease. With the Huntington's Disease Society of America (HDSA), Movement Disorders Foundation helps fund and administers the Center of Excellence at the Rocky Mountain Movement Disorders Center, a comprehensive clinic where patients can visit with genetic counselors, psychologists, therapists and providers - at no charge. The Center of Excellence distinction is conferred on clinics who share HDSA's commitment to high-quality, comprehensive care and access to clinical research. 6498 2347 Movement Disorders Foundation hosted its annual Huntington's Disease FAMILY EDUCATION DAY symposium in October 2023. The event was held in person and later streamed to a combined audience of over 60 participants. 22500 0 0 Movement Disorders Foundation's ENEWSLETTER provides important news, information and resources each Thursday for individuals living with movement disorders and their care partners. Now in its second year, the MDF eNewsletter reaches over 3000 people each week with more than 1600 active readers. 22500 0 0 91998 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 X 5 5 0 1 0 0 0 0 0 1 1 0 0 1 1 1 1 1 0 1 1 0 CO X X Gene Sobczak 3035883496 701 E Hampden Avenue Ste 510 Englewood CO 80113 Eugene H Sobczak Executive Director 12.5 X X 55750 0 0 Betty Ross Chairperson 2 0 X X 0 0 0 Morris Susman MD Secretary 1 0 X X 0 0 0 Peter McKown Treasurer 1 X X 0 0 0 Rajeev Kumar MD Board member 2 0 X 0 0 0 Sara Minott Board member 1 0 X 0 0 0 55750 0 0 0 0 0 0 0 0 0 5300 0 0 110778 0 116078 0 30650 30650 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 913 913 0 0 913 147641 31563 0 0 X 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 55750 46500 7000 2250 0 0 0 0 433 0 433 0 0 0 0 0 0 0 26 0 26 0 40941 40941 0 0 386 0 386 0 2280 0 2280 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 2961 2961 0 0 0 0 0 0 0 0 0 0 0 0 0 0 650 0 650 0 Bloomerang (donor management service) 1498 0 0 1498 Bethany Lutheran (HDSA symposium venue) 750 750 0 0 Google Workspace 432 0 432 0 Constant Contact 846 846 0 0 1445 0 1445 0 108398 91998 12652 3748 100406 54802 0 0 0 0 13145 8825 0 0 0 0 0 0 0 0 0 0 0 511454 600430 0 0 0 0 0 0 0 0 625005 664057 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 0 0 0 0 625005 664057 625005 664057 625005 664057 39243 -191 0 0 0 0 X 0 0 0 X 93333 804871 472507 160552 116078 1647341 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 93333 804871 472507 160552 116078 1647341 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1647341 0 3317 10978 13860 30676 58831 0 0 0 0 0 0 0 3317 10978 13860 30676 58831 0 0 0 0 0 0 0 0 0 1702 913 2615 93333 808188 483485 176114 147667 1708787 0.96404 0.98260 0.03443 0.01641 X Schedule A, Part III, Line 12 Rebates and refunds RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Form 990, Part VI, Section A, Line 3 General operations, bookkeeping and accounting, marketing, fundraising and program administration duties are provided by PROTEA success navigation, inc. and its owner, Gene Sobczak. Form 990, Part VI, Section B, Line 11b A final version of the Form 990 was reviewed and approved by the Movement Disorders Foundation board of directors at their monthly meeting on June 17, 2024, and thereafter e-mailed to each member before the return was filed. Form 990, Part VI, Section B, Line 12c Members of the board of directors formally disclosed and discussed potential conflicts of interest during meetings. Form 990, Part VI, Section B, Line 15 The board of directors reviewed comparability data in determining compensation for the management company and its employee, who serves as the organization's executive director. Form 990, Part VI, Section C, Line 19 The organization posted its financial statements and governing documents on the websites of the Colorado Secretary of State and Community First Foundation, respectively, and made them available to the public upon request. Form 990, Part IX, Line 11g Professional, therapeutic services provided monthly to patients as part of the Huntington's Disease Society of America (HDSA) Center of Excellence program at the Rocky Mountain Movement Disorders Center. Additional time was required for the reconciliation of investment assets.