Nonprofit · EIN 23-7175985
SICKLE CELL DISEASE ASSOCIATION OF AMERICA INC
Tax-exempt · HANOVER, MD 21076
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $1,791,972 | $1,707,722 | $84,250 | $2,250,168 | $423,888 | $1,826,280 |
| December 31, 2023 | 990 | $1,811,601 | $1,810,923 | $678 | $2,256,766 | $518,736 | $1,738,030 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $601,221
- of which government grants
- $158,000
- Program service revenue
- $1,083,231
- Investment income
- $84,250
- Other revenue
- $23,270
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $19,056
- Other salaries and wages
- $194,000
- Salaries, compensation and benefits (total)
- $289,556
- Professional fundraising fees
- $0
- Travel
- $20,234
- Depreciation
- $7,815
- Program services (functional)
- $512,028
- Management and general (functional)
- $830,040
- Fundraising (functional)
- $365,654
Balance sheet and other
- Total assets, start of year
- $2,256,766
- Total assets, end of year
- $2,250,168
- Total liabilities, end of year
- $423,888
- Net assets, end of year
- $1,826,280
- Land, buildings and equipment
- $20,316
- Net assets without donor restrictions
- $1,811,280
- Net assets with donor restrictions
- $15,000
- Gross receipts
- $1,791,972
- Employees
- 15
- Volunteers
- 28
- Year formed
- 1972
- State of legal domicile
- MD
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Beverley Francis-Gibson | President/CEO Officer | 45 | $186,000 |
| David N Braxton Phd | Chair Trustee or director, Officer | 5 | $0 |
| Ed Folwers | Treasurer Trustee or director, Officer | 5 | $0 |
| Jakela Parker | Vice Chair Trustee or director, Officer | 5 | $0 |
| Genice T Nelson DNP APRN | Secretary Trustee or director, Officer | 5 | $0 |
| Biree Andemarian MD | Chief Medical Officer Trustee or director | 5 | $0 |
| Lewis Hsu MD | Vice Chief Medical Officer Trustee or director | 5 | $0 |
| Lennette J Benjamin MD | Board Member Emeritus Trustee or director | 5 | $0 |
| Kim Smith-Whitley MD | Member Trustee or director | 5 | $0 |
| Regina Hartfield | Member Trustee or director | 5 | $0 |
| Christopher Hollins MBA | Member Trustee or director | 5 | $0 |
| Wanda Whitten-Shurney MD | Member Trustee or director | 5 | $0 |
| Crystal A Riley MHA MBA | Member Trustee or director | 5 | $0 |
| Bernie Lawrence-Watkins | Member Trustee or director | 5 | $0 |
| Gwendolyn PolesDO | Member Trustee or director | 5 | $0 |
3 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Thomas L Johnson JD | Member Trustee or director | 5 | $0 |
| Tanique Mitchell | Member Trustee or director | 5 | $0 |
| Leroy Hughes | Vice President Key employee | 45 | $0 |
990 for the year ended December 31, 2023: 18 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Regina Hartfield | President & CEO Officer, Key employee | 40 | $185,096 |
| Reginald Hart | CFO Key employee | 40 | $135,861 |
| Thomas L Johnson JD | Chair Trustee or director, Officer | 5 | $0 |
| JaKela Walker | Treasurer Trustee or director, Officer | 5 | $0 |
| Bobby Staten III | Vice Chair Trustee or director, Officer | 5 | $0 |
| Bernie M Lawrence-Watkins Esq | Secretary Trustee or director, Officer | 5 | $0 |
| Ed Flowers | Member Trustee or director | 5 | $0 |
| Lewis Hsu MD | Vice Chief Medical Officer Trustee or director | 5 | $0 |
| Melissa Creary PhD | Board Member Emeritus Trustee or director | 5 | $0 |
| Kim Smith-Whitley MD | Member Trustee or director | 5 | $0 |
| Christopher Hollins MBA | Member Trustee or director | 5 | $0 |
| Crystal Riley PharmD | Member Trustee or director | 5 | $0 |
| Monica Mitchell EdD | Member Trustee or director | 5 | $0 |
| TaLana Hill-Hughes MPH | Member Trustee or director | 5 | $0 |
| Katherine Napier CPA MBA | Member Trustee or director | 5 | $0 |
| Dr Edward Donnell Ivy | Member Trustee or director | 5 | $0 |
| Lenneette J Benjamin MD | Member Trustee or director | 5 | $0 |
| Tanique Mitchell | Member Trustee or director | 5 | $0 |
Address and contacts
- Address (IRS master file)
- 7240 PARKWAY DR STE 180, HANOVER, MD 21076-1378
- Principal officer (990 for 2024)
- Beverley Francis-Gibson, 3700 Koppers Street, Baltimore, MD 21227
- Signed the 990
- Regina Hartfield, President and CEO
- Phone
- (410) 528-1555
- Website
- www.sicklecelldisease.org
- Return prepared by
- F S TAYLOR & ASSOCIATES P C
Mission
To advocate for people affected by sickle cell conditions and empower community-based organizations.
Program accomplishments
- HRSA: To provide a newborn screening follow-up program that ensures access to care for individuals with sickle cell disease (SCD). It includes providing follow-up services: Education, counseling, lead advocacy initiatives, and access to medical home.Expenses $197,928 · revenue $365,250
- SCDAA: SCDAA and its member organizations engage in community outreach and program efforts throughout the United States and Canada. These efforts include but not limited to: Educational campaigns that build awareness of SCD and related conditions and programs that provide services such as genetic testing and counseling, case management, and psychosocial support for individuals and families impacted by sickle cell disease.Expenses $212,100 · revenue $435,333
- PCORI: To develop a national advocate network of sickle cell disease patients, families, caregivers and other stakeholders experts that can partner with clinicians and researchers to design, implement and eventually disseminate patient centered outcomes research and comparative effectiveness research (PCOR/CER) projects that improve outcomes to patients with sickle cell disease (SCD).Expenses $102,000 · revenue $123,222
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 23-7175985
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1972
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Assets (IRS master file)
- $2,250,168
- Income (IRS master file)
- $1,791,972
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $1,791,972 | $1,707,722 | $2,250,168 | XML |
| 990 | December 2023 | $1,811,601 | $1,810,923 | $2,256,766 | XML |
| 990 | December 2022 | $1,104,795 | $1,342,644 | $1,952,170 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 23-7175985).
Questions about SICKLE CELL DISEASE ASSOCIATION OF AMERICA INC
- What is the EIN of SICKLE CELL DISEASE ASSOCIATION OF AMERICA INC?
- The employer identification number (EIN) of SICKLE CELL DISEASE ASSOCIATION OF AMERICA INC is 23-7175985.
- Is SICKLE CELL DISEASE ASSOCIATION OF AMERICA INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1972.
- Are donations to SICKLE CELL DISEASE ASSOCIATION OF AMERICA INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does SICKLE CELL DISEASE ASSOCIATION OF AMERICA INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of SICKLE CELL DISEASE ASSOCIATION OF AMERICA INC due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did SICKLE CELL DISEASE ASSOCIATION OF AMERICA INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of SICKLE CELL DISEASE ASSOCIATION OF AMERICA INC?
- The 990 for the year ended December 31, 2024 names Beverley Francis-Gibson.
- Who are the officers and directors of SICKLE CELL DISEASE ASSOCIATION OF AMERICA INC?
- The 990 for the year ended December 31, 2024 lists 18 people; 1 received compensation from the organization, the highest $186,000 (Beverley Francis-Gibson, President/CEO).
- How much revenue does SICKLE CELL DISEASE ASSOCIATION OF AMERICA INC have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $1,791,972, expenses of $1,707,722 and total assets of $2,250,168 at year end.
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