Nonprofit · EIN 23-2635206
SMITH-LEMLI-OPITZ FOUNDATION
Tax-exempt · FARGO, ND 58106
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990-EZ | $116,865 | $85,676 | $31,189 | $228,547 | $1,186 | $227,361 |
| December 31, 2023 | 990 | $205,034 | $177,048 | $27,986 | $197,358 | $1,186 | $196,172 |
Financial details: 990-EZ for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $109,993
- Program service revenue
- $6,872
Expenses
- Compensation of officers, directors and key employees
- $32,400
- Salaries, compensation and benefits (total)
- $35,315
- Other expenses
- $50,361
- Program services (functional)
- $69,715
Balance sheet and other
- Total assets, start of year
- $197,358
- Total assets, end of year
- $228,547
- Total liabilities, end of year
- $1,186
- Net assets, end of year
- $227,361
- Cash, savings and investments
- $72,064
- Gross receipts
- $116,865
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| GRETCHEN NOAH | PRESIDENT | 15 | $21,600 |
| KATE DUREN | VICE PRESIDENT | 10 | $10,800 |
| AMY DINUNZIO | BOARD MEMBER | 1 | $0 |
| KELLY NOAH | SECRETARY | 1 | $0 |
| MILI MAZZIOTTI IRIGOYEN | DIRECTOR | 3 | $0 |
| KAYLEIGH KEMPSTER | DIRECTOR | 1 | $0 |
| CAROLA GUTIERREZ | DIRECTOR | 1 | $0 |
| MICHAEL COHEN | DIRECTOR | 1 | $0 |
990 for the year ended December 31, 2023: 8 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| GRETCHEN NOAH | President Trustee or director, Officer | 15 | $20,800 |
| KATE DUREN | Vice President Trustee or director, Officer | 10 | $10,400 |
| AMY DINUNZIO | BOARD MEMBER Trustee or director | 1 | $0 |
| KELLY NOAH | Secretary Trustee or director, Officer | 1 | $0 |
| MILI MAZZZIOTTI IRIGOYEN | Director Trustee or director | 3 | $0 |
| KAYLEIGH KEMPSTER | Director Trustee or director | 1 | $0 |
| CAROLA GUTIERREZ | Director Trustee or director | 1 | $0 |
| MICHAEL COHEN | Director Trustee or director | 1 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 10598, FARGO, ND 58106-0598
- Signed the 990-EZ
- AMY S DINUNZIO, ACTING EXECUTIVE DIRECTOR
- Phone
- (701) 367-1976
- Website
- SMITHLEMLIOPITZ.ORG
- Return prepared by
- PEASE BELL CPAS LLC
Mission
THE SLO FOUNDATION WORKS TO IMPROVE THE QUALITY OF LIFE FOR THE PEOPLE WITH SMITH-LEMLI-OPITZ SYNDROME THOUGH EDUCATION, FAMILY SUPPORT, AWARENESS, AND FUNDING RESEARCH INTO THE DISORDER.
Program accomplishments
- THE SMITH-LEMLI-OPITZ (SLO) FOUNDATION PROVIDES EDUCATION AND SUPPORT SERVICES TO FAMILIES AND MEDICAL PROFESSIONALS DEALING WITH SMITH-LEMLI-OPITZ SYNDROME (SLOS). ORIGINALLY, THE SMITH-LEMLI-OPITZ (SLO) FOUNDATION WAS FOUNDED IN 1990 BY 37 FAMILIES WHO DESIRED A NETWORK OF SUPPORT TO EXCHANGE EXPERIENCES AND INFORMATION ABOUT SLOS. SINCE THEN, THE PATIENT ADVOCACY GROUP HAS GROWN TO MORE THAN 2,000 FAMILIES IN THE UNITED STATES AND AROUND THE WORLD. THE SLO FOUNDATIONS WEBSITE (SMITHLEMLIOPITZ.ORG) IS OFTEN A PARENT'S FIRST POINT OF CONTACT AFTER THEIR CHILD HAS BEEN NEWLY DIAGNOSED WITH SLOS. WITHIN THE WEBSITE, FAMILIES FIND A SYNDROME OVERVIEW AND RELATED RESEARCH ARTICLES, CONTACT INFORMATION FOR SLOS SPECIALISTS, EDUCATIONAL MATERIALS, AND ACCESS TO FAMILY MENTORS. THE FOUNDATION SPONSORS AN ONLINE LIBRARY OF CONFERENCE VIDEOS AND OTHER WEBINARS RELATED TO SLOS. THE FOUNDATION HAS THREE ACTIVE FAMILY SUPPORT GROUPS ON FACEBOOK AND IS ACTIVE IN OTHER VARIOUS SOCIAL MEDIA GROUPS. THIS MEDIUM PROVIDES IMMEDIATE SUPPORT FOR FAMILIES TO ASK QUESTIONS AND SHARE IN JOYFUL TIMES AND IN GRIEF. THE SLO FOUNDATION HOSTS BIENNIAL FAMILY AND SCIENTIFIC SLOS CONFERENCES AROUND THE COUNTRY WHERE PHYSICIANS, SCIENTISTS, AND PARENTS LEARN MORE ABOUT THE SYNDROME AND CONNECT WITH EACH OTHER. ANOTHER IMPORTANT MISSION OF THE SLO FOUNDATION IS TO RAISE FUNDS TO PROMOTE RESEARCH AND BETTER HEALTH TREATMENTS INTO THE DISORDER.Expenses $69,715
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 23-2635206
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1991
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Arts, culture and humanities (A99Z)
- Assets (IRS master file)
- $228,547
- Income (IRS master file)
- $116,865
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2024 | $116,865 | $85,676 | $228,547 | XML |
| 990 | December 2023 | $205,034 | $177,048 | $197,358 | XML |
| 990-EZ | December 2022 | – | – | – | IRS |
| 990-EZ | December 2021 | – | – | – | IRS |
| 990-EZ | December 2020 | – | – | – | IRS |
| 990-EZ | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 23-2635206).
Questions about SMITH-LEMLI-OPITZ FOUNDATION
- What is the EIN of SMITH-LEMLI-OPITZ FOUNDATION?
- The employer identification number (EIN) of SMITH-LEMLI-OPITZ FOUNDATION is 23-2635206.
- Is SMITH-LEMLI-OPITZ FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1991.
- Are donations to SMITH-LEMLI-OPITZ FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does SMITH-LEMLI-OPITZ FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of SMITH-LEMLI-OPITZ FOUNDATION due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did SMITH-LEMLI-OPITZ FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2024.
- Who are the officers and directors of SMITH-LEMLI-OPITZ FOUNDATION?
- The 990-EZ for the year ended December 31, 2024 lists 8 people; 2 received compensation from the organization, the highest $21,600 (GRETCHEN NOAH, PRESIDENT).
- How much revenue does SMITH-LEMLI-OPITZ FOUNDATION have?
- On its 990-EZ for the year ended December 31, 2024 it reported revenue of $116,865, expenses of $85,676 and total assets of $228,547 at year end.
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