2025-11-17T09:39:52-06:00 2024-12-31 364267431 PEASE BELL CPAS LLC 3501 EMBASSY PKWY 200 AKRON OH 44333 990EZ 2024-01-01 232635206 SMITH-LEMLI-OPITZ FOUNDATION SMIT 7013671976 PO BOX 10598 FARGO ND 58106 AMY S DINUNZIO ACTING EXECUTIVE DIRECTOR 7013671976 2025-11-17 1 0 FRANCES A TAYLOR CPA P01293026 2163489600 2024 2025-03-06 01:10:19Z X SMITHLEMLIOPITZ.ORG X X 116865 X 109993 6872 116865 35315 50361 85676 31189 196172 0 227361 X 144462 72064 52896 156483 197358 228547 1186 1186 196172 227361 X THE SLO FOUNDATION WORKS TO IMPROVE THE QUALITY OF LIFE FOR THE PEOPLE WITH SMITH-LEMLI-OPITZ SYNDROME THOUGH EDUCATION, FAMILY SUPPORT, AWARENESS, AND FUNDING RESEARCH INTO THE DISORDER. THE SMITH-LEMLI-OPITZ (SLO) FOUNDATION PROVIDES EDUCATION AND SUPPORT SERVICES TO FAMILIES AND MEDICAL PROFESSIONALS DEALING WITH SMITH-LEMLI-OPITZ SYNDROME (SLOS). ORIGINALLY, THE SMITH-LEMLI-OPITZ (SLO) FOUNDATION WAS FOUNDED IN 1990 BY 37 FAMILIES WHO DESIRED A NETWORK OF SUPPORT TO EXCHANGE EXPERIENCES AND INFORMATION ABOUT SLOS. SINCE THEN, THE PATIENT ADVOCACY GROUP HAS GROWN TO MORE THAN 2,000 FAMILIES IN THE UNITED STATES AND AROUND THE WORLD. THE SLO FOUNDATIONS WEBSITE (SMITHLEMLIOPITZ.ORG) IS OFTEN A PARENT'S FIRST POINT OF CONTACT AFTER THEIR CHILD HAS BEEN NEWLY DIAGNOSED WITH SLOS. WITHIN THE WEBSITE, FAMILIES FIND A SYNDROME OVERVIEW AND RELATED RESEARCH ARTICLES, CONTACT INFORMATION FOR SLOS SPECIALISTS, EDUCATIONAL MATERIALS, AND ACCESS TO FAMILY MENTORS. THE FOUNDATION SPONSORS AN ONLINE LIBRARY OF CONFERENCE VIDEOS AND OTHER WEBINARS RELATED TO SLOS. THE FOUNDATION HAS THREE ACTIVE FAMILY SUPPORT GROUPS ON FACEBOOK AND IS ACTIVE IN OTHER VARIOUS SOCIAL MEDIA GROUPS. THIS MEDIUM PROVIDES IMMEDIATE SUPPORT FOR FAMILIES TO ASK QUESTIONS AND SHARE IN JOYFUL TIMES AND IN GRIEF. THE SLO FOUNDATION HOSTS BIENNIAL FAMILY AND SCIENTIFIC SLOS CONFERENCES AROUND THE COUNTRY WHERE PHYSICIANS, SCIENTISTS, AND PARENTS LEARN MORE ABOUT THE SYNDROME AND CONNECT WITH EACH OTHER. ANOTHER IMPORTANT MISSION OF THE SLO FOUNDATION IS TO RAISE FUNDS TO PROMOTE RESEARCH AND BETTER HEALTH TREATMENTS INTO THE DISORDER. 0 69715 69715 GRETCHEN NOAH PRESIDENT 15.00 21600 0 0 KATE DUREN VICE PRESIDENT 10.00 10800 0 0 AMY DINUNZIO BOARD MEMBER 1.00 0 0 0 KELLY NOAH SECRETARY 1.00 0 0 0 MILI MAZZIOTTI IRIGOYEN DIRECTOR 3.00 0 0 0 KAYLEIGH KEMPSTER DIRECTOR 1.00 0 0 0 CAROLA GUTIERREZ DIRECTOR 1.00 0 0 0 MICHAEL COHEN DIRECTOR 1.00 0 0 0 X 0 0 0 0 0 0 0 0 0 0 0 0 0 0 IL ND PA AMY S DINUNZIO 1470 OLD HICKORY LANE LEBANON PA 17046 7013671976 0 0 0 0 0 0 0 0 0 0 NONE NONE 1 X 56885 62150 59374 205034 109993 493436 56885 62150 59374 205034 109993 493436 157376 336060 493436 0.68110 0.69540 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED FORM 990-EZ, PART I, LINE 16 - OTHER EXPENSES DESCRIPTION: CONFERENCE EXPENSE. AMOUNT: 30,712. DESCRIPTION: DEPRECIATION EXPENSE. AMOUNT: 836. DESCRIPTION: OFFICE EXPENSE. AMOUNT: 14,021. DESCRIPTION: INSURANCE. AMOUNT: 2,033. DESCRIPTION: FUNDRAISING EXPENSE. AMOUNT: 975. DESCRIPTION: PAYORLL PROCESSING FEES. AMOUNT: 1,784. TOTAL TO FORM 990-EZ, LINE 16: 50,361. FORM 990-EZ, PART II, LINE 24 - OTHER ASSETS DESCRIPTION: ENDOWED FUNDS. BEG. OF YEAR AMOUNT: 51,754. END OF YEAR AMOUNT: 156,177. DESCRIPTION: OTHER DEPRECIABLE ASSETS. BEG. OF YEAR AMOUNT: 1,142. END OF YEAR AMOUNT: 306. FORM 990-EZ, PART II, LINE 26 - OTHER LIABILITIES DESCRIPTION: OTHER PAYABLES. BEG. OF YEAR AMOUNT: 1,186. END OF YEAR AMOUNT: 1,186. THE ORGANIZATION DID NOT, DURING THE YEAR, RECEIVE ANY FUNDS, DIRECTLY,OR INDIRECTLY, TO PAY PREMIUMS ON A PERSONAL BENEFIT CONTRACT.THE ORGANIZATION, DID NOT, DURING THE YEAR, PAY ANY PREMIUMS, DIRECTLY,OR INDIRECTLY, ON A PERSONAL BENEFIT CONTRACT.