Nonprofit · EIN 20-4915307
AUTOINFLAMMATORY ALLIANCE INC
Tax-exempt · SAN FRANCISCO, CA 94159
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990-EZ | $62,992 | $38,656 | $24,336 | $125,809 | $0 | $125,809 |
| December 31, 2024 | 990-EZ | $55,372 | $18,617 | $36,755 | $117,071 | $0 | $117,071 |
| December 31, 2023 | 990-EZ | $21,999 | $115,869 | -$93,870 | $48,411 | $0 | $48,411 |
Financial details: 990-EZ for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $26,984
- Program service revenue
- $0
- Investment income
- $3
- Net income from fundraising events
- $36,005
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $25,500
- Compensation of officers, directors and key employees
- $0
- Salaries, compensation and benefits (total)
- $0
- Printing, publications and postage
- $677
- Other expenses
- $12,479
- Program services (functional)
- $12,917
Balance sheet and other
- Total assets, start of year
- $117,071
- Total assets, end of year
- $125,809
- Total liabilities, end of year
- $0
- Net assets, end of year
- $125,809
- Cash, savings and investments
- $98,991
- Gross receipts
- $67,906
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Karen Durrant | RN, president, founder, director, research lead, patient group admin and board member | 15 | $0 |
| Nathan Durrant | secretary/treasurer, graphic PR lead, Board member | 2 | $0 |
| Dorelia Rivera | Vice President, patient advocate, policy lead, CAPS patient group moderator, board member | 2 | $0 |
| Jennifer Tousseau | Blog editor, patient groups lead admin, patient advocate, research team, outreach, board member | 12 | $0 |
| Katie Bailey | RN, patient advocate, patient group admin, outreach, event committee, board member | 2 | $0 |
| Saskya Angevare | EU patient representative, patient group moderator, research team, advocacy, policy, board member | 1 | $0 |
| Colleen Paduani | CAPS patient group moderator, events & policy committees, rare patient advocacy, board member | 2 | $0 |
| Erin Wilson | Military patients/ families advocate, outreach, events, fundraising, board member, | 1 | $0 |
| Carla Herbert | Rare patient advocate, policy, events committees, board member | 1 | $0 |
| Heather Briganti | PR committee lead, rare patient advocacy, outreach, board member | 1 | $0 |
| Julie Cunningham | Rare Disease patient advocacy, events, outreach, board member | 1 | $0 |
990-EZ for the year ended December 31, 2024: 12 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Karen Durrant | RN, president, founder, director, research lead, patient group admin and board member | 25 | $0 |
| Nathan Durrant | secretary/treasurer, graphic PR lead, Board member | 2 | $0 |
| Dorelia Rivera | Vice President, patient advocate, policy lead, CAPS patient group moderator, board member | 2 | $0 |
| Jennifer Tousseau | Blog editor, patient groups lead admin, patient advocate, research team, outreach, board member | 15 | $0 |
| Katie Bailey | RN, patient advocate, patient group admin, outreach, event committee, board member | 2 | $0 |
| Saskya Angevare | EU patient representative, patient group moderator, research team, advocacy, policy, board member | 1 | $0 |
| Colleen Paduani | CAPS patient group moderator, events & policy committees, rare patient advocacy, board member | 2 | $0 |
| Erin Wilson | Military patients/ families advocate, outreach, events, fundraising, board member, | 1 | $0 |
| Carla Herbert | Rare patient advocate, policy, events committees, board member | 1 | $0 |
| Heather Briganti | PR committee lead, rare patient advocacy, outreach, board member | 1 | $0 |
| Julie Cunningham | Rare Disease patient advocacy, events, outreach, board member | 1 | $0 |
| Seth Durrant | Young adult patient group volunteer moderator, and volunteer patient advocate. | 1 | $0 |
990-EZ for the year ended December 31, 2023: 12 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Karen Durrant | RN, president, founder, director, research lead, patient group admin and board member | 25 | $0 |
| Nathan Durrant | secretary/treasurer, graphic PR lead, Board member | 2 | $0 |
| Dorelia Rivera | Vice President, patient advocate, policy lead, CAPS patient group moderator, board member | 1 | $0 |
| Jennifer Tousseau | Blog editor, patient groups lead admin, patient advocate, research team, outreach, board member | 15 | $0 |
| Katie Bailey | RN, patient advocate, patient group admin, outreach, event committee, board member | 1 | $0 |
| Saskya Angevare | EU patient representative, patient group moderator, research team, advocacy, policy, board member | 1 | $0 |
| Colleen Paduani | CAPS patient group moderator, events & policy committees, rare patient advocacy, board member | 1 | $0 |
| Erin Wilson | Military patients/ families advocate, outreach, events, fundraising, board member, | 1 | $0 |
| Carla Herbert | Rare patient advocate, policy, events committees, board member | 1 | $0 |
| Heather Briganti | PR committee lead, rare patient advocacy, outreach, board member | 1 | $0 |
| Julie Cunningham | Rare Disease patient advocacy, events, outreach, board member | 1 | $0 |
| Seth Durrant | Young adult patient group volunteer moderator, and volunteer patient advocate. | 2 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 590354, SAN FRANCISCO, CA 94159-0354
- In care of
- % KAREN DURRANT
- Mailing address (990-N for 2023)
- PO Box 590354, San Francisco CA 94159
- Principal officer (990-N for 2023)
- Karen Durrant, 1786 34th Avenue, San Francisco CA 94122
- Signed the 990-EZ
- Karen Durrant, President
- Phone
- (415) 831-8782
- Website
- https://autoinflammatory.org
California records
California keeps its own records of charities and corporations. Search them by EIN 20-4915307 or by the name AUTOINFLAMMATORY ALLIANCE INC.
- Attorney General, Registry of Charities and Fundraisers
- Registration status and filed reports (CT-TR-1, RRF-1)
- Secretary of State, bizfile Online
- Corporation status, entity number, agent for service
- Franchise Tax Board
- Entity status letter (state tax exemption, good standing)
Mission
Rare Disease Organization. The Autoinflammatory Alliance is a 501 (c)(3) non-profit public charity dedicated to promoting awareness, proper diagnosis and treatment, and improved care for people with autoinflammatory diseases. This includes supporting appropriate research and programs that will improve the lives of patients.
Program accomplishments
- A main focus of our nonprofit is to be a free resource online and print for education for patients and medical professionals.This includes hosting and coordinating efforts for International Autoinflammatory Awareness Month, Rare Disease Day, and research collaborations. We are also fundraising online to support for the 2026 3rd NIH Autoinflammatory and Immunedysregulatory Diseases Symposium, DLK evening reception. Plus a Task Force Working group to work on Clinical Trial Modular Outcome Measures to improve future treatment clinical trial design that is tailored to rare autoinflammatory and immunedysregulatory diseases to make a positive change for research and treatment for patients. Our costs for the hosting, plug-ins, domains, SSL certificates, managed hosting for 4 websites and subdomains, and materials in print, mailed to those in need at no cost, or to download online for free are a part of our operating budget yearly. Costs for autoinflammatory.org and the subdomains for our main site, that also includes downloadable information. We also have saidsupport.org, which is a leading source of information in a blog format based on covering common questions we get from patients and medical professionals, plus other resources, advocacy and engagement, patient stories and more to help patients and caregivers to better understand and become empowered to manage these complex, rare diseases. We also host the official International Autoinfammatory Awarness Month site at autoinflammatorymonth.org to feature global events, upcoming events and activities for engagement and awareness. Also, autoinflammatory-search.org is a leading resource for medical professionals to compare and consider the features of various autoinflammatory disease symptoms and findings, which has expert medical editors for these diseases. Our main website and this search database need to be updated and improved in 2026 to cover some of the more newly classified diseases. We also participate, and support a lot of research The total costs for this outreach to support education, awareness and research efforts from our org in 2025 was $10,168.79Expenses $10,169
- Patient advocacy and international patient advocacy, including research representation and collaboration meetings. Karen Durrant RN, BSN-President of the Autoinflammatory Alliance is also the unpaid patient organizations representative for the International Society of Systemic Autoinflammatory Diseases (ISSAID.) Karen had to attend and assist as a patient advocate and member of the ISSAID steering committee for the April 2025 ISSAID Paris Congress to participate and speak at a patient program hosted by French organizations, and also attend ISSAID to participate in programs there, some research meetings in concurrent sessions to advocate for patient needs, and get the latest updates to share to our patient community on autoinflammatory and immunedysregulatory diseases at the congress. In addition, Karen represented patients in other advocacy roles throughout the year virtually, or in person as a part of the Childhood Arthritis Rheumatology and Research Aliance (CARRA), ISSAID, the Translational Autoinflammatory Disease Network (TARN), and the Unite4Rare Global Council (all unpaid-no money or stipends go to Karen Durrant-any funds, if offered are directly paid to the Autoinflammatory Alliance.)Expenses $2,748
- Supporting Autoinflammtory Disease Research with innovative research for unmet needs. The Autoinflammatory Alliance has fundraised and worked with our scientific advisors, and also our patient community and families that have done fundraising to help determine the right programs to support for advancing care and research for systemic autoinflammatory diseases. In 2025, we were able to find the right program at the NIH NIAID Translational Autoinflammatory Research Institute Gift Fund to support research for the severe form of CAPS, including NOMID/CINCA and the new complications affecting some patients with all forms of CAPS globally that are experiencing amyloidosis induced by one of the few, or only medication to treat their form of CAPS-especially for NOMID patients that need this medication to get to the brain. The medication-induced amyloidosis is a new, and concerning issue that has been found to not only cause some lumps and tissue issues in the injection sites that can start to grow enormous in some cases, but a few are developing life limiting systemic medication induced amyloidosis. $18,000 was donated to the NIAID TARI gift fund in 2025 to directly support the research study to develop a new scanning method to check patients for this amyloidosis to see if it is in the tissues and organs in the body, since it is otherwise impossible to biopsy randomly internal organs, or all over the skin at multiple sites without a risk to patients. This scanner and future new medication trials to find another drug to treat these patients instead of this current one causing this issue were supported with this grant. In addition, $7500 was donated to start the TNFAIP3 HA20 Registry with NORD and the University of Pittsburgh, which is needed to better understand the many forms and issues that this more newly discovered disease can cause. We paid this money in 2025, and received a reimbursement for the money in 2026 from the University of Pittsburgh once they received their grant funds, and we had established this as a NORD member org. This registry will be finalized in 2026, and there will be some ongoing costs that we will support and receive some reimbursement. We are a NORD member org, and this registry with IAMRARE must be done in collaboration with researchers, our scientific advisors, and NORD, along with U Pitt researchers. These funds are being used strictly for this registry, and not financially benefitting any scientific advisor or board member of the Autoinflammatory Alliance. Total grants paid out for research in 2025= $25,500.grants $25,500
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990-EZ on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-N on file |
IRS record
- EIN
- 20-4915307
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2007
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G12)
- Assets (IRS master file)
- $125,809
- Income (IRS master file)
- $67,906
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2025 | $62,992 | $38,656 | $125,809 | XML |
| 990-EZ | December 2024 | $55,372 | $18,617 | $117,071 | XML |
| 990-N for 2023 Officer: Karen Durrant | December 31, 2023 | ≤ $50,000 receipts | – | – | e-Postcard |
| 990-EZ | December 2023 | $21,999 | $115,869 | $48,411 | XML |
| 990-N for 2022 Officer: Karen Durrant | December 31, 2022 | ≤ $50,000 receipts | – | – | e-Postcard |
| 990-EZ | December 2022 | – | – | – | IRS |
| 990-EZ | December 2021 | – | – | – | IRS |
| 990-N for 2020 Officer: Karen Durrant | December 31, 2020 | ≤ $50,000 receipts | – | – | e-Postcard |
| 990-EZ | December 2020 | – | – | – | IRS |
| 990-N for 2019 Officer: Karen Durrant | December 31, 2019 | ≤ $50,000 receipts | – | – | e-Postcard |
| 990-N for 2018 Officer: Karen Durrant | December 31, 2018 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 20-4915307).
Questions about AUTOINFLAMMATORY ALLIANCE INC
- What is the EIN of AUTOINFLAMMATORY ALLIANCE INC?
- The employer identification number (EIN) of AUTOINFLAMMATORY ALLIANCE INC is 20-4915307.
- Is AUTOINFLAMMATORY ALLIANCE INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2007.
- Are donations to AUTOINFLAMMATORY ALLIANCE INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does AUTOINFLAMMATORY ALLIANCE INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of AUTOINFLAMMATORY ALLIANCE INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did AUTOINFLAMMATORY ALLIANCE INC last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2025.
- Who is the principal officer of AUTOINFLAMMATORY ALLIANCE INC?
- The 990-N for 2023 names Karen Durrant.
- Who are the officers and directors of AUTOINFLAMMATORY ALLIANCE INC?
- The 990-EZ for the year ended December 31, 2025 lists 11 people; 0 received compensation from the organization.
- How much revenue does AUTOINFLAMMATORY ALLIANCE INC have?
- On its 990-EZ for the year ended December 31, 2025 it reported revenue of $62,992, expenses of $38,656 and total assets of $125,809 at year end.
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