2024-11-14T17:13:35-07:00 2023-12-31 990EZ 2023-01-01 204915307 AUTOINFLAMMATORY ALLIANCE INC AUTO 4158318782 PO Box 590354 San Francisco CA 94159 Karen Durrant President 4158318782 2024-11-14 1 2023 2024-10-15 13:58:12Z X X https://autoinflammatory.org X X 21999 X 21953 0 0 46 0 0 0 0 0 0 0 0 0 0 0 21999 77975 0 0 0 0 492 37402 115869 -93870 136103 6178 48411 X 126438 32568 0 0 9665 15843 136103 48411 0 0 136103 48411 Rare Disease Organization. The Autoinflammatory Alliance is a 501 (c)(3) non-profit public charity dedicated to promoting awareness, proper diagnosis and treatment, and improved care for people with autoinflammatory diseases. The Autoinflammatory Alliance paid $77,975.48 USD, which was the equivalent of $100,000 CAD to support the formation of the Translational Autoinflammatory Research Network (TARN) to support autoinflammatory research for North America, including the US and Canada. The funds were matched 100% by Western University Ontario Lawsons Research Fund so half the funds came from our org from the US, and it was matched in Canada for the collaboration. The TARN Network is dedicated to advancing autoinflammatory research, genomics research, education and networking with medical professionals to help experts help clinicians and advance training for healthcare providers. The funds were used to start the TARN network, and eventually this network will involve not just the US and Canada, but North and South America, and other parts of the world with unmet needs, including Africa and Asia as well. 0 77975 International Autoinflammatory Awareness Month in August 2023 expenses for a translated online programs with medical experts and patient advocates that had live translation, with recorded translation, and the program was to put online to share later. No cost to attendees. We had hundreds of medical professionals and patients from around the world attending the programs. The major costs were large zoom meeting hosting and translation into many languages for each program.$9031.73. We also had building lighting in various parts of the US and the world, and an in-person events hosted by local patients in Michigan, and also at Union Station and the WWI Memorial in Kansas City, MO building lighting with food, freebies and items from our org for all attendees. $3638.60. The events were free to attendees. 0 12670 Support for the International Society for Auto-inflammatory Diseases (ISSAID) 2023 Congress and Advocacy program for patients, patient orgs and advocates and healthcare professionals at the ISSAID Congress. The costs included covering the costs for the advocacy program, and having it broadcast virtually as well, so patients, advocates and healthcare providers globally that could not attend the program could participate virtually. Plus costs for 2 presenters to attend the program (one presenter in Canada, and one from South America), plus food, handouts and materials for the program. In addition, the Autoinflammatory Allliance hosted a nonprofit booth that we used to bring awareness to our organization efforts, give out educational materials, and have a space to share with other organizations and patients to gather. ISSAID asked for donations, so we paid for this table for 2500 CAD. Also, costs for flight, hotel and travel in Canada, plus bringing supplies in suitcases to the congress was paid for Karen Durrant only, and she personally paid for the cost for bringing Seth Durrant, who spoke at the conference, so that was not covered by org expenses. The Autoinflammatory Alliance paid for a patient advocate affilated with the Autoinflammatory Alliance from upstate NY and one from Canada to attend and assist with the congress, table, and help share the findings from the Congress to our patient community in our patient groups, and the latest research, and assist with the programs. Receipts are available for all expenses. Karen Durrant paid some funds out of pocket for the congress program that she put on her personal credit card, with receipts that were not paid back to her in 2023, but will be paid in 2024. She realized he had not used the org credit card for all costs. All volunteer service, no one is paid, and took time off from work to help with this program. Total costs $11,574.12 0 11574 102219 Karen Durrant RN, president, founder, director, research lead, patient group admin and board member 25 0 0 0 Nathan Durrant secretary/treasurer, graphic PR lead, Board member 2.00 0 0 0 Dorelia Rivera Vice President, patient advocate, policy lead, CAPS patient group moderator, board member 1 0 0 0 Jennifer Tousseau Blog editor, patient groups lead admin, patient advocate, research team, outreach, board member 15 0 0 0 Katie Bailey RN, patient advocate, patient group admin, outreach, event committee, board member 1 0 0 0 Saskya Angevare EU patient representative, patient group moderator, research team, advocacy, policy, board member 1 0 0 0 Colleen Paduani CAPS patient group moderator, events & policy committees, rare patient advocacy, board member 1 0 0 0 Erin Wilson Military patients/ families advocate, outreach, events, fundraising, board member, 1 0 0 0 Carla Herbert Rare patient advocate, policy, events committees, board member 1 0 0 0 Heather Briganti PR committee lead, rare patient advocacy, outreach, board member 1 0 0 0 Julie Cunningham Rare Disease patient advocacy, events, outreach, board member 1 0 0 0 Seth Durrant Young adult patient group volunteer moderator, and volunteer patient advocate. 2 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 AK AL AR AZ CA CT DE FL GA HI IA ID IL IN KS KY LA MA MD ME MI MN MO MS MT NC ND NE NH NJ NM NV NY OH OK OR PA RI SC SD TN TX UT VA WA WI WY Karen and Nathan Durrant PO Box 590354 San Francisco CA 94159 4158318782 0 0 0 0 0 0 0 0 0 0 0 NONE NONE 1 X 102886 45852 89949 51851 21953 312491 0 0 0 0 0 0 25000 0 0 0 0 25000 127886 45852 89949 51851 21953 337491 0 337491 6 4 3 10 46 69 0 0 0 0 0 0 0 0 0 0 0 0 337560 0 0.99980 0.99992 X Form 990-EZ, Part I, Line 10 Grant paid to support the formation of the Translational Autoinflammatory Research Network (TARN). The funds were paid in USD to equal 100,000 CAD, which was matched by the University of Western Ontario. TARN is a North American Research Network with researchers in the US and Canada, and these funds were put to use to develop the network, support an administrative assistant for the research program that has helped to apply for more grants, and support the cost for the development of the TARN website, and organizational structure for the research to start, along with efforts for a genomic registry, biobank, and collaborative network to help advance new autoinflammatory treatment research, a clinical network and education for healthcare professionals. The steering committee is unpaid, and this is a voluntary research effort, but funds we donated were needed, and are being put to use to directly support patient-driven and much needed research for autoinflammatory diseases that will benefit many. TARN also will help with efforts for areas of the world with unmet needs, including South America, Africa and Asia with the network later on, but all funds donated by our org are being put to use for the initial startup of this network, and to secure matching funds paid directly to the TARN network, not to our org. Form 990-EZ, Part I, Line 16 Autoinflammatory Awareness Events in MO, MI, and an online program with translation into many languages. The International Society of Systemic Autoinflammatory Diseases (ISSAID) 2023 Congress awareness table, and costs to host the ISSAID 2023 Advocacy Program for patients and medical professionals. Websites, domains, apps, software, survey software, org insurance, wire transfer fees, new checks purchases, State filings and other costs for online filing and zoom, zoom for meetings for the ISSAID advocacy meeting, Autoinflammatory Awareness Month program (virtual) and zoom for meetings that we have for the board, volunteers, scientific advisors. $34874.16 Plus out of pocket with receipts paid to Karen Durrant on 12/31/20222 totaling $2527.89 not taken from our accounts until Jan 2023, so it was deducted off our 2023 accounting. $34,874.16+ $2527.89= $37,402.05 total other expenses paid in 2023. Form 990-EZ, Part I, Line 20 1 DOGE amount 0.089472 value at the end of 12/31/23 x 98652.44736107 (our amount of DOGE end 2023)=$8826.63 and 1 BTC valued at $42,265.19 x 0.089472 BTC x 0.166 BTC (our amount of BTC)= 7016.02 is a total of $15,842.65 in cryptocurrency value end of 2022. At the end of 2022, the total value of cryptocurrency was $9665.09. $15,842.65-$9665.09= a +$6177.56 gain in value at the end of 2023 in cryptocurrency. Form 990-EZ, Part II, Line 24 End of 2023 vaule for Bitcoin BTC and Dogecoin DOGE for 2023. We have 0.166 BTC x 42,265.19 = $7016.02 and 98652.44736107 DOGE x 0.0989472 = $8826.63. Total value of cryptocurrency is $7016.02 BTC and $8826.63 DOGE= $15,842.65 total value on 12/31/2023. We are only required to do the IRS e-postcard, which was filed by the original deadline. We are doing this IRS 990 form for accounting reasons and for state filing, and transparency only. We can supply copies of our 2023 IRS e-postcard if requested. We also filed our CA e postcard, and have records.