Nonprofit · EIN 20-1959386
CHIARI & SYRINGOMYELIA RESEARCH FOUNDATION INC
Tax-exempt · WEST SENECA, NY 14224
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990-EZ | $37,399 | $68,934 | -$31,535 | $273,719 | – | $273,719 |
| December 31, 2024 | 990-EZ | $14,943 | $1,300 | $13,643 | $305,254 | – | $305,254 |
| December 31, 2023 | 990-EZ | $12,502 | $57,767 | -$45,265 | $291,611 | – | $291,611 |
Financial details: 990-EZ for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $7,551
- Investment income
- $6,848
- Net income from fundraising events
- $23,000
Expenses
- Grants and similar amounts paid
- $67,564
- Compensation of officers, directors and key employees
- $0
- Other expenses
- $1,370
- Program services (functional)
- $67,564
Balance sheet and other
- Total assets, start of year
- $305,254
- Total assets, end of year
- $273,719
- Total liabilities, end of year
- –
- Net assets, end of year
- $273,719
- Cash, savings and investments
- $273,719
- Gross receipts
- $39,199
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| MARK S KANE | PRESIDENT | 5 | $0 |
| BARBARA KANE | SECRETARY | 2 | $0 |
| KEVIN STRINGER | VICE PRESIDE | 1 | $0 |
| JEFF MILLER | TREASURER | 1 | $0 |
| LAURA HOLENA | DIRECTOR | 1 | $0 |
990-EZ for the year ended December 31, 2024: 5 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| MARK S KANE | PRESIDENT | 5 | $0 |
| BARBARA KANE | SECRETARY | 2 | $0 |
| KEVIN STRINGER | VICE PRESIDE | 1 | $0 |
| JEFF MILLER | TREASURER | 1 | $0 |
| LAURA HOLENA | DIRECTOR | 1 | $0 |
990-EZ for the year ended December 31, 2023: 5 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| MARK S KANE | PRESIDENT | 8 | $0 |
| BARBARA KANE | SECRETARY | 1 | $0 |
| KEVIN STRINGER | VICE PRESIDE | 1 | $0 |
| JEFF MILLER | TREASURER | 1 | $0 |
| LAURA HOLENA | DIRECTOR | 1 | $0 |
Address and contacts
- Address (IRS master file)
- 228 GARRY DR, WEST SENECA, NY 14224-4504
- In care of
- % KANE & SABO CPAS
- Signed the 990-EZ
- MARK S KANE, PRESIDENT
- Phone
- (716) 633-7022
- Website
- WWW.COLUMNOFHOPE.ORG
- Return prepared by
- EDWARD L ARCARA CPA PC
Mission
SEARCHING FOR BETTER UNDERSTANDING, TREATMENTS AND CURES FOR CHIARI MALFORMATION (CM), SYRINGOMYELIA (SM), NEUROPATHIC PAIN AND RELATED DISORDERS
Program accomplishments
- STRIVE FOR IMPROVED SURGICAL OUTCOMES FOR CHIARI MALFORMATION AND SYRINGOMYELIA PATIENTS INCLUDING MUCH LOWER INITIAL COMPLICATION RATES. ONGOING STUDIES: PRE- AND POST-OPERATIVE MORPHOLOGICAL CHARACTERISTICS ASSOCIATED WITH SYRINX OUTCOME AFTER POSTERIOR FOSSA DECOMPRESSION FOR CHIARI MALFORMATION- AUSTRALIA - APROXIMATELY 50% OF GRANT PAID IN 2025. WE WOULD EXPECT TO PAY THE REMAINDER IN 2026 - APROXIMATELY 47,000 - DATA FROM TWO CENTERS COLLECTED - MANUAL MORPHOMETRIC DATA COLLECTION IS PROCEEDING - "TRAINING THE AI BOT" FOR A SEPARATE ANALYSIS IS ONGOING - STATICAL ANALYSIS AND DETERMINATION OF "NEXT STEPS" LATER IN 2026 PUBLISH COMPLICATION RATES AND SURGICAL TECHNIQUES FROM LOW COMPLICATION RATE CENTERS TO SET A BENCHMARK FOR ALL CENTERS. -ONE CENTER NEAR SUBMISSION FOR PUBLICATION AND ONE IN THE DISCUSSION STAGE. UPDATING CLINICAL DATA FOR PUBLICATION ON SYRINX SHUNT PLACEMENT OUTCOMES.Expenses $67,564 · grants $67,564
- UNDERSTANDING THE BIOLOGY, CHEMISTRY, AND FLUID DYNAMICS OF POST TRAUMATIC SYRINGOMYELIA TO UNDERSTAND ALL FORMS OF SYRINGOMYELIA. -HOW IS CSF FLOW IN SYRINGOMYELIA PATIENTS IMPACTED BY HEART RATE, BLOOD PRESSURE AND RESPIRATION -POST TRAUMATIC SYRINX FORMATION IMPLICATIONS FROM LYMPHATIC DRAINAGE RECENT PUBLICATIONS: "HOW VOLUME CHANGES IN EPIDURAL SPACE DRIVES RESPIRATORY CEREBROSPINAL FLUID FLOW" - JOURNAL OF BIOMECHANICS - DECEMBER 2025 "CHIARI MALFORMATION DOES NOT OBSTRUCT CSF FLOW DURING COUGHS" - COMPUTERS IN MEDICINE - NOVEMBER OF 2025
What it must file and when
IRS records say it files Form 990-N (e-Postcard). Gross receipts normally $50,000 or less. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990-EZ on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 20-1959386
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2005
- Accounting year ends
- December
- Files
- Form 990-N (e-Postcard)
- Category (NTEE)
- Medical research (H96)
- Assets (IRS master file)
- $273,719
- Income (IRS master file)
- $39,199
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2025 | $37,399 | $68,934 | $273,719 | IRS |
| 990-EZ | December 2024 | $14,943 | $1,300 | $305,254 | IRS |
| 990-EZ | December 2023 | $12,502 | $57,767 | $291,611 | XML |
| 990-EZ | December 2022 | – | – | – | IRS |
| 990-EZ | December 2021 | – | – | – | IRS |
| 990-EZ | December 2020 | – | – | – | IRS |
| 990-EZ | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 20-1959386).
Questions about CHIARI & SYRINGOMYELIA RESEARCH FOUNDATION INC
- What is the EIN of CHIARI & SYRINGOMYELIA RESEARCH FOUNDATION INC?
- The employer identification number (EIN) of CHIARI & SYRINGOMYELIA RESEARCH FOUNDATION INC is 20-1959386.
- Is CHIARI & SYRINGOMYELIA RESEARCH FOUNDATION INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2005.
- Are donations to CHIARI & SYRINGOMYELIA RESEARCH FOUNDATION INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does CHIARI & SYRINGOMYELIA RESEARCH FOUNDATION INC file?
- Form 990-N (e-Postcard). Gross receipts normally $50,000 or less.
- When is the next return of CHIARI & SYRINGOMYELIA RESEARCH FOUNDATION INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did CHIARI & SYRINGOMYELIA RESEARCH FOUNDATION INC last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2025.
- Who are the officers and directors of CHIARI & SYRINGOMYELIA RESEARCH FOUNDATION INC?
- The 990-EZ for the year ended December 31, 2025 lists 5 people; 0 received compensation from the organization.
- How much revenue does CHIARI & SYRINGOMYELIA RESEARCH FOUNDATION INC have?
- On its 990-EZ for the year ended December 31, 2025 it reported revenue of $37,399, expenses of $68,934 and total assets of $273,719 at year end.
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