Nonprofit · EIN 20-0299958
CURE DUCHENNE
Tax-exempt · MISSION VIEJO, CA 92691
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $3,941,885 | $9,167,617 | -$5,225,732 | $30,906,923 | $247,864 | $30,659,059 |
| December 31, 2023 | 990 | $7,357,938 | $10,247,154 | -$2,889,216 | $27,086,351 | $256,435 | $26,829,916 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $3,505,601
- Program service revenue
- $0
- Investment income
- -$1,944,106
- Net gain from sales of assets
- -$2,178,195
- Net income from fundraising events
- $2,193,296
- Other revenue
- $2,380,390
Expenses
- Grants and similar amounts paid
- $660,000
- Compensation of officers, directors and key employees
- $2,095,003
- Other salaries and wages
- $1,840,165
- Salaries, compensation and benefits (total)
- $4,567,404
- Professional fundraising fees
- $0
- Legal fees
- $338,359
- Accounting fees
- $69,001
- Occupancy
- $126,148
- Travel
- $620,884
- Depreciation
- $3,892
- Program services (functional)
- $7,366,415
- Management and general (functional)
- $914,402
- Fundraising (functional)
- $886,800
Balance sheet and other
- Total assets, start of year
- $27,086,351
- Total assets, end of year
- $30,906,923
- Total liabilities, end of year
- $247,864
- Net assets, end of year
- $30,659,059
- Land, buildings and equipment
- $5,840
- Net assets without donor restrictions
- $30,659,059
- Gross receipts
- $13,991,364
- Employees
- 30
- Volunteers
- 0
- Year formed
- 2003
- State of legal domicile
- CA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| LAURA HAMEED | EXECUTIVE DIRECTOR Former | 40 | $243,077 |
| MICHAEL KELLY | CHIEF SCIENTIFIC OFFICER Key employee | 40 | $235,000 |
| LIANNA ORLANDO | VICE PRESIDENT OF RESEARCH Key employee | 40 | $213,873 |
| HEATHER MEDLIN | DIRECTOR OF CLINICAL DEVEL Key employee | 40 | $198,846 |
| KATHLENE BALISY | FINANCE DIRECTOR Key employee | 40 | $190,000 |
| ANDREA PIKE | DIRECTOR OF MARKETING Key employee | 40 | $173,619 |
| EMILIE PERKINS | DIRECTOR OF COMMUNICATIONS Key employee | 40 | $169,737 |
| MONICA UTLEY | DIRECTOR OF PROGRAMS Key employee | 40 | $168,502 |
| DEBRA MILLER | CEO Trustee or director, Officer | 40 | $151,304 |
| PAUL MILLER | SECRETARY Trustee or director, Officer | 10 | $0 |
| JEFFREY GOFFMAN | DIRECTOR Trustee or director | 1 | $0 |
| PETER STRELOW | DIRECTOR Trustee or director | 1 | $0 |
| DAVID MACINNIS | DIRECTOR Trustee or director | 1 | $0 |
| DANA WHITE | DIRECTOR Trustee or director | 1 | $0 |
| RYAN WILLIAMS | DIRECTOR Trustee or director | 1 | $0 |
8 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| MARTIN LEHR | DIRECTOR Trustee or director | 1 | $0 |
| TJ FARNSWORTH | DIRECTOR Trustee or director | 1 | $0 |
| DIANE KEMPLE | DIRECTOR Trustee or director | 1 | $0 |
| CHRISTOPHER FINAZZO | DIRECTOR Trustee or director | 1 | $0 |
| TIM SULLIVAN | DIRECTOR Trustee or director | 1 | $0 |
| BOB SMITH | DIRECTOR Trustee or director | 1 | $0 |
| JOHN MANAGONORE | DIRECTOR Trustee or director | 1 | $0 |
| NICHOLAS PRYTHERCH | DIRECTOR Trustee or director | 1 | $0 |
990 for the year ended December 31, 2023: 22 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| LIANNA ORLANDO | VICE PRESIDENT OF RESEARCH Key employee | 40 | $225,000 |
| MICHAEL KELLY | CHIEF SCIENTIFIC OFFICER Key employee | 40 | $225,000 |
| HEATHER MEDLIN | DIRECTOR OF CLINICAL DEVELOPMENT Key employee | 40 | $220,141 |
| RYAN MEARDON | FORMER VP OF DONOR RELATIONS Former | 40 | $183,333 |
| KATHLENE BALISY | FINANCE DIRECTOR Key employee | 40 | $175,000 |
| ANDREA PIKE | DIRECTOR OF MARKETING Key employee | 40 | $175,000 |
| MONICA UTLEY | DIRECTOR OF PROGRAMS Key employee | 40 | $170,353 |
| EMILIE PERKINS | DIRECTOR OF COMMUNICATIONS Key employee | 40 | $166,267 |
| DEBRA MILLER | PRESIDENT & CEO Trustee or director, Officer | 40 | $151,304 |
| KENT MORA | FORMER CHIEF OF STAFF Former | 40 | $151,051 |
| PAUL MILLER | SECRETARY Trustee or director, Officer | 10 | $0 |
| JEFFREY GOFFMAN | DIRECTOR Trustee or director | 1 | $0 |
| PETER STRELOW | DIRECTOR Trustee or director | 1 | $0 |
| DAVID MACINNIS | DIRECTOR Trustee or director | 1 | $0 |
| DANA WHITE | DIRECTOR Trustee or director | 1 | $0 |
| RYAN WILLIAMS | DIRECTOR Trustee or director | 1 | $0 |
| MARTIN LEHR | DIRECTOR Trustee or director | 1 | $0 |
| TJ FARNSWORTH | DIRECTOR Trustee or director | 1 | $0 |
| DIANE KEMPLE | DIRECTOR Trustee or director | 1 | $0 |
| CHRISTOPHER FINAZZO | DIRECTOR Trustee or director | 1 | $0 |
| TIM SULLIVAN | DIRECTOR Trustee or director | 1 | $0 |
| BOB SMITH | DIRECTOR Trustee or director | 1 | $0 |
Address and contacts
- Address (IRS master file)
- 24000 ALICIA PARKWAY STE 466, MISSION VIEJO, CA 92691-3929
- In care of
- % DEBRA MILLER
- Principal officer (990 for 2024)
- DEBRA MILLER, 100 BAYVIEW 5600, NEWPORT BEACH, CA 92660
- Signed the 990
- DEBRA MILLER, CEO
- Phone
- (949) 872-2552
- Website
- WWW.CUREDUCHENNE.ORG
- Return prepared by
- JOHN S BALISY & COMPANY
Mission
CURE DUCHENNE IS A NON-PROFIT ORGANIZATION DEDICATED TO RAISING FUNDS; COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY, INCREASING PUBLIC AWARENESS FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS, IMPROVING CARE, HEALTH,AND QUAILITY OF LIVING FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS.
Program accomplishments
- CURE DUCHENNE WAS ORGANIZED IN 2003 WITH THE MISSION TO FUND RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS, AND IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DYSTROPHY PATIENTS. SINCE CURE DUCHENNE WAS ORGANIZED, THE ORGANZIATIO HAS BEEN VERY INSTRUMENTAL IN HAVING SEVERAL DRUGS APPROVED BY THE FDA FOR PATIENTS WITH DUCHENNE MUSCULAR DYSTROPHY.Expenses $7,366,415 · grants $660,000
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 20-0299958
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2004
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H50)
- Assets (IRS master file)
- $30,906,923
- Income (IRS master file)
- $13,991,364
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $3,941,885 | $9,167,617 | $30,906,923 | XML |
| 990 | December 2023 | $7,357,938 | $10,247,154 | $27,086,351 | XML |
| 990 | December 2022 | $5,751,368 | $9,005,616 | $28,410,543 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS publishes only the latest e-Postcard per organization; earlier years appear here as 990.tax collects the monthly files. 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS.
Questions about CURE DUCHENNE
- What is the EIN of CURE DUCHENNE?
- The employer identification number (EIN) of CURE DUCHENNE is 20-0299958.
- Is CURE DUCHENNE tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2004.
- Are donations to CURE DUCHENNE tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does CURE DUCHENNE file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of CURE DUCHENNE due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did CURE DUCHENNE last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of CURE DUCHENNE?
- The 990 for the year ended December 31, 2024 names DEBRA MILLER.
- Who are the officers and directors of CURE DUCHENNE?
- The 990 for the year ended December 31, 2024 lists 23 people; 9 received compensation from the organization, the highest $243,077 (LAURA HAMEED, EXECUTIVE DIRECTOR).
- How much revenue does CURE DUCHENNE have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $3,941,885, expenses of $9,167,617 and total assets of $30,906,923 at year end.
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All nonprofits in MISSION VIEJO · California · Medical research