2024-10-11T18:43:26-05:00 2023-12-31 954303700 JOHN S BALISY & COMPANY 24000 ALICIA PARKWAY 17 STE 466 MISSION VIEJO CA 92691 990 2023-01-01 200299958 CURE DUCHENNE CURE 9498722552 100 BAYVIEW CIRCLE 5600 NEWPORT BEACH CA 92660 DEBRA MILLER CEO 9498722552 2024-09-27 1 1 JOHN S BALISY COMPANY P01385861 9495407519 2023 2024-10-15 13:58:12Z DEBRA MILLER 100 BAYVIEW 5600 NEWPORT BEACH CA 92660 16749448 0 X WWW.CUREDUCHENNE.ORG X 2003 CA COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY. AS WELL AS, IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DISTROPHY PATIENTS. 13 13 35 0 0 0 2429586 4489779 0 0 147656 549583 3174126 2318576 5751368 7357938 330000 495000 0 0 3851657 4682911 0 0 1106226 4823959 5069243 9005616 10247154 -3254248 -2889216 28210389 27086351 110504 256435 28099885 26829916 X CURE DUCHENNE IS A NON-PROFIT ORGANIZATION DEDICATED TO RAISING FUNDS AND COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY, INCREASING PUBLIC AWARENESS FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS, IMPROVING CARE, HEALTH,AND QUAILITY OF LIVING FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS. 0 0 8370237 495000 930777 CURE DUCHENNE WAS ORGANIZED IN 2003 WITH THE MISSION TO FUND RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS, AND IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DYSTROPHY PATIENTS. SINCE CURE DUCHENNE WAS ORGANIZED, THE ORGANZIATIO HAS BEEN VERY INSTRUMENTAL IN HAVING SEVERAL DRUGS APPROVED BY THE FDA FOR PATIENTS WITH DUCHENNE MUSCULAR DYSTROPHY. 8370237 1 1 0 0 0 0 0 0 0 0 1 0 1 0 1 0 1 1 0 0 0 0 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 1 74 0 1 35 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 13 13 1 0 0 0 0 0 0 1 1 0 0 0 0 0 0 1 1 0 CA MA TN X X DEBRA MILLER 9498722552 100 BAYVIEW CIRCLE 5600 NEWPORT BEACH CA 92660 PAUL MILLER SECRETARY 10.00 X X 0 0 0 DEBRA MILLER PRESIDENT & CEO 40.00 X X 151304 0 0 JEFFREY GOFFMAN DIRECTOR 1.00 X 0 0 0 PETER STRELOW DIRECTOR 1.00 X 0 0 0 DAVID MACINNIS DIRECTOR 1.00 X 0 0 0 DANA WHITE DIRECTOR 1.00 X 0 0 0 RYAN WILLIAMS DIRECTOR 1.00 X 0 0 0 MARTIN LEHR DIRECTOR 1.00 X 0 0 0 TJ FARNSWORTH DIRECTOR 1.00 X 0 0 0 DIANE KEMPLE DIRECTOR 1.00 X 0 0 0 CHRISTOPHER FINAZZO DIRECTOR 1.00 X 0 0 0 TIM SULLIVAN DIRECTOR 1.00 X 0 0 0 BOB SMITH DIRECTOR 1.00 X 0 0 0 KATHLENE BALISY FINANCE DIRECTOR 40.00 X 175000 0 0 LIANNA ORLANDO VICE PRESIDENT OF RESEARCH 40.00 X 225000 0 0 MICHAEL KELLY CHIEF SCIENTIFIC OFFICER 40.00 X 225000 0 0 HEATHER MEDLIN DIRECTOR OF CLINICAL DEVELOPMENT 40.00 X 220141 0 0 ANDREA PIKE DIRECTOR OF MARKETING 40.00 X 175000 0 0 MONICA UTLEY DIRECTOR OF PROGRAMS 40.00 X 170353 0 0 EMILIE PERKINS DIRECTOR OF COMMUNICATIONS 40.00 X 166267 0 0 KENT MORA FORMER CHIEF OF STAFF 40.00 X 151051 0 0 RYAN MEARDON FORMER VP OF DONOR RELATIONS 40.00 X 183333 0 0 1842449 0 0 19 1 1 0 TRINDS LLC 6425 LIVING SPACES 2ND FLOOR PITTSBURGH PA 15206 PROGRAM SERVICES 339986 STARS & STRIPE CHILDREN FOUNDATION 8149 SPECTRUM IRVINE CA 92618 EVENT SERVICES 252000 MOBILITY WORKS 560 BOSTON PROVIDENCE TRNPK NORWOOD MA 02062 MEDICAL DEVICE SERVICES 182590 DMH NAPA VALLEY LLC 108 RANDOLPH ST B NAPA CA 94559 CONSULTING COMPANY 174068 BRAND AMP LLC 1945 PLACENTIA AVENUE BLG C COSTA MESA CA 92627 MARKETING 150779 7 130632 4359147 4489779 363250 363250 6783677 6597344 186333 186333 186333 4731548 130632 2794166 1937382 1937382 DATASET INCOME 541700 245789 245789 TRINDS LLC INCOME 541700 135405 135405 381194 7357938 930777 0 1937382 495000 495000 2563123 2380782 14255 168086 1540526 854951 313509 372066 268067 212139 2681 53247 311195 237522 19252 54421 377814 310570 6195 61049 68759 41255 13752 13752 20734 1098 4222 15414 84972 79241 125 5606 542 542 155775 123898 20874 11003 175894 161157 3293 11444 540276 286734 78129 175413 125936 60256 23809 41871 6488 6488 9148 5551 2039 1558 OUTSIDE SERVICES 2407152 2336910 67889 2353 PUBLIC RELATIONS 464766 464766 OFFICE SUPPLIES 268543 84499 160412 23632 RESEARCH EXPENSE 130007 130007 232437 103901 33225 95311 10247154 8370237 770691 1106226 8410921 2539794 37337 27605 16220 9732 19514869 24150054 268379 386771 28210389 27086351 36108 137002 66808 42469 7588 76964 110504 256435 X 28099885 26829916 28099885 26829916 28210389 27086351 X -2889216 1377813 241434 X 0 1 X 0 0 X 5323906 2772905 1804005 2429586 4489779 16820181 5323906 2772905 1804005 2429586 4489779 16820181 16820181 21839191 1574511 994482 147656 363250 24919090 41739271 13618663 0.40300 0.40960 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 37337 27605 9732 9732 INVESTMENTS HELD 24150054 F 24150054 PENSION PAYABLE 76964 76964 8977185 1377813 241434 1619247 7357938 0 7357938 10516661 269507 269507 10247154 0 10247154 PART XI, LINE 2D - OTHER ADJUSTMENTS: EMPLOYEE RETENTION CREDIT RECEIVED IN 2023 241,434. PART XII, LINE 2D - OTHER ADJUSTMENTS: RENT EXPENSE REDUCTION DUE TO RIGHT OF USE ADJUSTMENT 269,507. FUNDRAISER - 2023 MJM EVENT 1114700 1114700 72995 FUNDRAISER-NEWPORT BEACH GALA 960095 25000 935095 571998 22 2787385 105632 2681753 2149173 4862180 130632 4731548 2794166 2794166 1937382 1 THE BRIGHAM AND WOMEN'S HOSPITAL INC 75 FRANCIS STREET BOSTON MA 02115 042312909 155000 0 EDUCATION/ OUTREACH/ RESEARCH NEUROLOGY AND NEURO CARE CENTER 2817 S MAYHILL RD STE 115 DENTON TX 76208 882364725 300000 0 EDUCATION/ OUTREACH/ RESEARCHEDUCATION/ OUTREACH/ RESEARCH ANALYSIS GROUP PO BOX 845512 BOSTON MA 02284 042727260 40000 0 EDUCATION/ OUTREACH/ RESEARCH PART I, LINE 2: GRANTS GIVEN OUT BY THE COMPANY ARE MONITORED AND ASSESSED WHETHER THE GRANTS WERE USED FOR THE ORIGINALLY INTENDED PURPOSE FOR THE GRANT. X X X 0 0 0 0 0 0 0 0 0 LIANNA ORLANDO VICE PRESIDENT OF RESEARCH 225000 0 0 0 0 0 0 0 0 0 225000 0 0 0 MICHAEL KELLY CHIEF SCIENTIFIC OFFICER 225000 0 0 0 0 0 0 0 0 0 225000 0 0 0 HEATHER MEDLIN DIRECTOR OF CLINICAL DEVELOPMENT 220141 0 0 0 0 0 0 0 0 0 220141 0 0 0 RYAN MEARDON FORMER VP OF DONOR RELATIONS 183333 0 0 0 0 0 0 0 0 0 183333 0 0 0 KATHLENE BALISY FINANCE DIRECTOR 175000 0 0 0 0 0 0 0 0 0 175000 0 0 0 ANDREA PIKE DIRECTOR OF MARKETING 175000 0 0 0 0 0 0 0 0 0 175000 0 0 0 MONICA UTLEY DIRECTOR OF PROGRAMS 170353 0 0 0 0 0 0 0 0 0 170353 0 0 0 EMILIE PERKINS DIRECTOR OF COMMUNICATIONS 166267 0 0 0 0 0 0 0 0 0 166267 0 0 0 DEBRA MILLER PRESIDENT & CEO 151304 0 0 0 0 0 0 0 0 0 151304 0 0 0 KENT MORA FORMER CHIEF OF STAFF 151051 0 0 0 0 0 0 0 0 0 151051 0 0 0 FORM 990, PART VI, SECTION A, LINE 2 DEBRA AND PAUL MILLER HAVE A FAMILY RELATIONSHIP. FORM 990, PART VI, SECTION B, LINE 11B FORM 990 WILL BE AVAILABLE TO ALL THE BOARD MEMBERS TO REVIEW PRIOR TO FILING AT THE REGULARLY SCHEDULED BOARD MEETINGS. HOWEVER, A LIMITED NUMBER OF BOARD MEMBERS WILL REVIEW THE ENTIRE FORM 990 PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12 THE BOARD OF DIRECTORS ARE REQUIRED TO REVIEW AND SIGN THE CONFLICT OF INTEREST POLICY AT LEAST ANNUALLY. THE BOARD MEMBER MUST INFORM THE REST OF THE BOARD IF A CONFLICT ARISES OR IF IT EXISTS. FORM 990, PART VI, SECTION B, LINE 15 COMPENSATION OF TOP MANAGEMENT AND OFFICERS OF THE ORGANIZATION ARE REVIEWED BY INDEPENDENT LEGAL COUNSEL AND SUBMITTED TO THE BOARD MEMBERS FOR APPROVAL. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANZIATION'S AUDITED FINANCIAL STATEMENTS AND FORM 990 ARE AVAILABLE TO THE PUBLIC VIA THE GUIDESTAR USA INC WEBSITE. FORM 990, PART XI, LINE 9: 2020 & 2021 EMPLOYEE RETENTION CREDIT 241,434. CUREDUCHENNE VENTURE LLC 24000 ALICIA PARKWAY STE 466 MISSION VIEJO CA 92691 383934145 INVESTING IN RESEARCH CA 624635 20206075 CURE DUCHENNE CD ACCESS 24000 ALICIA PARKWAY STE 466 MISSION VIEJO CA 92691 813735979 DISTRIBUTE MEDICINE & OTHER THERAPIES TO INDIVIDUALS WITH DUCHENNE DISEASE CA 501(C)(3) ACTIVE 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0