Nonprofit · EIN 16-1569293
CARDIO FACIO CUTANEOUS INTERNATIONAL INC
Tax-exempt · LARGO, FL 33771
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $207,106 | $401,040 | -$193,934 | $344,835 | $0 | $344,835 |
| December 31, 2023 | 990 | $184,530 | $196,485 | -$11,955 | $534,730 | $1,531 | $533,199 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $101,341
- Program service revenue
- $58,064
- Investment income
- $12,187
- Net income from fundraising events
- $35,514
- Other revenue
- $35,514
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $19,624
- Other salaries and wages
- $41,373
- Salaries, compensation and benefits (total)
- $171,876
- Professional fundraising fees
- $0
- Accounting fees
- $1,343
- Travel
- $17,434
- Program services (functional)
- $208,341
- Management and general (functional)
- $192,699
Balance sheet and other
- Total assets, start of year
- $534,730
- Total assets, end of year
- $344,835
- Total liabilities, end of year
- $0
- Net assets, end of year
- $344,835
- Net assets without donor restrictions
- $125,016
- Net assets with donor restrictions
- $219,819
- Gross receipts
- $207,154
- Employees
- 4
- Volunteers
- 29
- State of legal domicile
- NY
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Troy Greisen | Former Executive Director | 5 | $70,833 |
| Tuesdi Dyer | Executive Dir. Trustee or director, Officer | 5 | $19,624 |
| Alexis Nash | President Trustee or director, Officer | 5 | $0 |
| Jeff Kohler | Past President Trustee or director | 5 | $0 |
| Richard Boyce | Board Member Trustee or director | 5 | $0 |
| Darin Iacobelli | Treasurer Trustee or director, Officer | 5 | $0 |
| Vidya Ramabadran | Board Member Trustee or director | 5 | $0 |
| Glenda Hux | Secretary Trustee or director, Officer | 5 | $0 |
| Pilar Magoulas | Vice President Trustee or director | 5 | $0 |
990 for the year ended December 31, 2023: 9 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Tuesdi Dyer | Former Executive Director | 5 | $67,516 |
| Troy Greisen | CEO Trustee or director, Officer | 5 | $17,167 |
| Alexis Nash | President Trustee or director, Officer | 5 | $0 |
| Jeff Kohler | Past President Trustee or director, Officer | 5 | $0 |
| Richard Boyce | Board Member Trustee or director | 5 | $0 |
| Darin Iacobelli | Treasurer Trustee or director, Officer | 5 | $0 |
| Vidya Ramabadran | Board Member Trustee or director | 5 | $0 |
| Glenda Hux | Board Member Trustee or director | 5 | $0 |
| Pilar Magoulas | Board Member Trustee or director | 5 | $0 |
Address and contacts
- Address (IRS master file)
- 3665 E BAY DR STE 204, LARGO, FL 33771-1989
- In care of
- % GLENDA E HUX
- Signed the 990
- Alexis Nash, President
- Website
- www.cfcsyndrome.org
Mission
CFC International's mission is to improve the quality of life for individuals with Cardiofaciocutaneous Syndrome and their families through support, research, awareness, and education. Our vision is to advance understanding and treatment of CFC syndrome. We achieve our mission and seek our vision by providing comprehensive educational materials, a robust website, condition management webinars, and disseminate vital information - like peer-reviewed treatment guidelines - to diagnosed patients and caregivers. We improve access to experts in the management of CFC syndrome by hosting a biennial medical conference as well as at least one Rasopathy Clinic care event per year. Our patient families convene for support in multiple ways: through a Facebook support group, six to eight virtual support groups per month, and regional family meetups. Through our Medical Advisory Board, we strive to ensure that healthcare professionals have immediate access to the most current information, facilitatin
Program accomplishments
- We are a patient advocacy organization that supports families whose children have been diagnosed with Cardio-Facio-Cutaneous Syndrome (CFC syndrome). We offer education and resources through email, webinars, social media, published materials, and a website to support families as they manage this condition. We also provide financial assistance to families struggling with medical costs. Our organization hosts a family medical conference every two years and at least one clinical care weekend each year at a Rasopathy Clinic. These events allow families to connect and learn from medical professionals and researchers. We also provide scholarships to help families attend these events. Additionally, we run a private Facebook page, virtual support groups, and a monthly newsletter with helpful information and peer support. We organize family meetups around the world so families can form connections with one another. Families can apply for travel stipends to help with the costs of attending these meetups.We fund important research on CFC syndrome through a grant process and support researchers who need help finding patients for their studies. Our goal is to keep families informed about new treatments and therapies, giving hope to those affected by this rare condition and ensuring they receive the best care and support possible.Expenses $208,341
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 16-1569293
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1999
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Education (B99)
- Assets (IRS master file)
- $344,835
- Income (IRS master file)
- $207,154
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $207,106 | $401,040 | $344,835 | IRS |
| 990 | December 2023 | $184,530 | $196,485 | $534,730 | XML |
| 990 | December 2022 | $108,197 | $175,123 | $550,724 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 16-1569293).
Questions about CARDIO FACIO CUTANEOUS INTERNATIONAL INC
- What is the EIN of CARDIO FACIO CUTANEOUS INTERNATIONAL INC?
- The employer identification number (EIN) of CARDIO FACIO CUTANEOUS INTERNATIONAL INC is 16-1569293.
- Is CARDIO FACIO CUTANEOUS INTERNATIONAL INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1999.
- Are donations to CARDIO FACIO CUTANEOUS INTERNATIONAL INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does CARDIO FACIO CUTANEOUS INTERNATIONAL INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of CARDIO FACIO CUTANEOUS INTERNATIONAL INC due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did CARDIO FACIO CUTANEOUS INTERNATIONAL INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who are the officers and directors of CARDIO FACIO CUTANEOUS INTERNATIONAL INC?
- The 990 for the year ended December 31, 2024 lists 9 people; 2 received compensation from the organization, the highest $70,833 (Troy Greisen, Former Executive Director).
- How much revenue does CARDIO FACIO CUTANEOUS INTERNATIONAL INC have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $207,106, expenses of $401,040 and total assets of $344,835 at year end.
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