Nonprofit · EIN 16-1459422
DIAMOND BLACKFAN ANEMIA FOUNDATION
Tax-exempt · WEST SENECA, NY 14224
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $603,747 | $474,761 | $128,986 | $1,934,886 | $0 | $1,934,886 |
| December 31, 2024 | 990 | $499,448 | $397,142 | $102,306 | $1,779,752 | $0 | $1,779,752 |
| December 31, 2023 | 990 | $664,145 | $720,383 | -$56,238 | $1,649,768 | $0 | $1,649,768 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $552,323
- Program service revenue
- $0
- Investment income
- $51,424
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $199,000
- Compensation of officers, directors and key employees
- $67,600
- Salaries, compensation and benefits (total)
- $72,740
- Professional fundraising fees
- $0
- Accounting fees
- $4,800
- Depreciation
- $109
- Program services (functional)
- $442,420
- Management and general (functional)
- $27,597
- Fundraising (functional)
- $4,744
Balance sheet and other
- Total assets, start of year
- $1,779,752
- Total assets, end of year
- $1,934,886
- Total liabilities, end of year
- $0
- Net assets, end of year
- $1,934,886
- Publicly traded securities
- $1,206,614
- Net assets without donor restrictions
- $1,934,886
- Gross receipts
- $603,747
- Employees
- 1
- Volunteers
- 20
- Year formed
- 1994
- State of legal domicile
- NY
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| DAWN BAUMGARDNER | EXECUTIVE DIRECTOR Trustee or director, Officer | 40 | $67,600 |
| KATHI VROMAN | VICE PRESIDENT Trustee or director, Officer | 10 | $0 |
| PETER BAUMGARDNER | TREASURER Trustee or director, Officer | 10 | $0 |
| CAROL MANCUSO | SECRETARY Trustee or director, Officer | 10 | $0 |
| LAUREN BRADY | DIRECTOR Trustee or director | 10 | $0 |
| CARA BREIDSTER | DIRECTOR Trustee or director | 10 | $0 |
| CHARLES BROWN | DIRECTOR Trustee or director | 10 | $0 |
| ANITA SHIER BRUTON | DIRECTOR Trustee or director | 10 | $0 |
| REBECCA DEGROFF | DIRECTOR Trustee or director | 10 | $0 |
| JAMIE DERMATIS | DIRECTOR Trustee or director | 10 | $0 |
| JACY DOWNEY | DIRECTOR Trustee or director | 10 | $0 |
| ANTHONY MARCHESE | DIRECTOR Trustee or director | 10 | $0 |
990 for the year ended December 31, 2024: 12 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| DAWN BAUMGARDNER | EXECUTIVE DIRECTOR Trustee or director, Officer | 40 | $65,704 |
| KATHI VROMAN | VICE PRESIDENT Trustee or director, Officer | 10 | $0 |
| PETER BAUMGARDNER | TREASURER Trustee or director, Officer | 10 | $0 |
| CAROL MANCUSO | SECRETARY Trustee or director, Officer | 10 | $0 |
| LAUREN BRADY | DIRECTOR Trustee or director | 10 | $0 |
| CARA BREIDSTER | DIRECTOR Trustee or director | 10 | $0 |
| CHARLES BROWN | DIRECTOR Trustee or director | 10 | $0 |
| ANITA SHIER BRUTON | DIRECTOR Trustee or director | 10 | $0 |
| REBECCA DEGROFF | DIRECTOR Trustee or director | 10 | $0 |
| JAMIE DERMATIS | DIRECTOR Trustee or director | 10 | $0 |
| JACY DOWNEY | DIRECTOR Trustee or director | 10 | $0 |
| ANTHONY MARCHESE | DIRECTOR Trustee or director | 10 | $0 |
990 for the year ended December 31, 2023: 12 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| DAWN BAUMGARDNER | EXECUTIVE DIRECTOR Trustee or director, Officer | 40 | $58,500 |
| KATHI VROMAN | VICE PRESIDENT Trustee or director, Officer | 10 | $0 |
| PETER BAUMGARDNER | TREASURER Trustee or director, Officer | 10 | $0 |
| CAROL MANCUSO | SECRETARY Trustee or director, Officer | 10 | $0 |
| LAUREN BRADY | DIRECTOR Trustee or director | 10 | $0 |
| CARA BREIDSTER | DIRECTOR Trustee or director | 10 | $0 |
| CHARLES BROWN | DIRECTOR Trustee or director | 10 | $0 |
| ANITA SHIER BRUTON | DIRECTOR Trustee or director | 10 | $0 |
| REBECCA DEGROFF | DIRECTOR Trustee or director | 10 | $0 |
| JAMIE DERMATIS | DIRECTOR Trustee or director | 10 | $0 |
| JACY DOWNEY | DIRECTOR Trustee or director | 10 | $0 |
| ANTHONY MARCHESE | DIRECTOR Trustee or director | 10 | $0 |
Address and contacts
- Address (IRS master file)
- 20 TRACY LYNN LN, WEST SENECA, NY 14224-3666
- Principal officer (990 for 2025)
- DAWN BAUMGARDNER, 20 TRACY LYNN LANE, WEST SENECA, NY 14224
- Signed the 990
- DAWN BAUMGARDNER, EXECUTIVE DIRECTOR
- Phone
- (716) 674-2818
- Website
- WWW.DBAFOUNDATION.ORG
- Return prepared by
- LUMSDEN & MCCORMICK LLP
Mission
THE MISSION OF THE DIAMOND BLACKFAN ANEMIA FOUNDATION IS TO ADVANCE RESEARCH INITIATIVES THAT PROMOTE A BETTER UNDERSTANDING, THERAPEUTIC STRATEGIES AND A CURE FOR THIS RARE BONE MARROW FAILURE SYNDROME. WE ARE DEDICATED TO PROVIDING PATIENT ADVOCACY, SUPPORT AND EDUCATION SERVICES TO INDIVIDUALS, FAMILIES AND MEDICAL PROFESSIONALS RESULTING IN IMPROVEMENTS IN THE DIAGNOSIS, CLINICAL TREATMENT AND MANAGEMENT OF THE DISORDER, WHILE ENHANCING THE QUALITY OF LIFE OF AFFECTED FAMILIES WORLDWIDE.
Program accomplishments
- (RESEARCH) SUPPORT OF PEER-REVIEWED RESEARCH PROJECTS INVESTIGATING THE CAUSE AND POTENTIAL TREATMENT OPTIONS AND A CURE FOR DIAMOND BLACKFAN ANEMIA.Expenses $243,555 · grants $189,000
- (DBA ICC) A CONFERENCE ORGANIZED TO PROVIDE A VENUE FOR THE EXCHANGE OF IDEAS AND FOSTER NEW COLLABORATIONS AMONG DBA CLINICIANS AND SCIENTISTS, DOCUMENT RESULTS FROM ONGOING CLINICAL TRIALS AND COORDINATE EFFORTS FOR NEW TRIALS, BRIDGE THE GAP BETWEEN CLINICIANS AND SCIENTISTS WORKING ON DBA TO PROMOTE TRANSLATIONAL RESEARCH, AND ENCOURAGE YOUNG CLINICIANS AND SCIENTISTS TO ENTER INTO DBA AS INDEPENDENT INVESTIGATORS.Expenses $169,051
- (ASH) EXHIBITION AT THE AMERICAN SOCIETY OF HEMATOLOGY ANNUAL MEETING (ASH) ATTENDED BY APPROXIMATELY 20,000 WORLDWIDE HEMATOLOGISTS TO PROVIDE THE LATEST CLINICAL AND RESEARCH INFORMATION PERTAINING TO DIAMOND BLACKFAN ANEMIA.Expenses $10,257
- (CAMP SUNSHINE) ORGANIZATION AND OPERATION OF AN EDUCATIONAL, FAMILY ORIENTED, SUPPORT MEETING AT CAMP SUNSHINE, BRINGING TOGETHER DIAMOND BLACKFAN ANEMIA PATIENTS, FAMILIES, CLINICIANS, AND RESEARCHERS.Expenses $19,557 · grants $10,000
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 16-1459422
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1994
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G12)
- Assets (IRS master file)
- $1,934,886
- Income (IRS master file)
- $603,747
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $603,747 | $474,761 | $1,934,886 | XML |
| 990 | December 2024 | $499,448 | $397,142 | $1,779,752 | XML |
| 990 | December 2023 | $664,145 | $720,383 | $1,649,768 | XML |
| 990 | December 2022 | $383,838 | $151,934 | $1,691,996 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 16-1459422).
Questions about DIAMOND BLACKFAN ANEMIA FOUNDATION
- What is the EIN of DIAMOND BLACKFAN ANEMIA FOUNDATION?
- The employer identification number (EIN) of DIAMOND BLACKFAN ANEMIA FOUNDATION is 16-1459422.
- Is DIAMOND BLACKFAN ANEMIA FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1994.
- Are donations to DIAMOND BLACKFAN ANEMIA FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does DIAMOND BLACKFAN ANEMIA FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of DIAMOND BLACKFAN ANEMIA FOUNDATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did DIAMOND BLACKFAN ANEMIA FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of DIAMOND BLACKFAN ANEMIA FOUNDATION?
- The 990 for the year ended December 31, 2025 names DAWN BAUMGARDNER.
- Who are the officers and directors of DIAMOND BLACKFAN ANEMIA FOUNDATION?
- The 990 for the year ended December 31, 2025 lists 12 people; 1 received compensation from the organization, the highest $67,600 (DAWN BAUMGARDNER, EXECUTIVE DIRECTOR).
- How much revenue does DIAMOND BLACKFAN ANEMIA FOUNDATION have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $603,747, expenses of $474,761 and total assets of $1,934,886 at year end.
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