2026-08-19T08:19:03-05:00 2025-12-31 160765486 LUMSDEN & MCCORMICK LLP 369 FRANKLIN STREET BUFFALO NY 14202 990 2025-01-01 161459422 DIAMOND BLACKFAN ANEMIA FOUNDATION DIAM 7166742818 20 TRACY LYNN LANE WEST SENECA NY 14224 DAWN BAUMGARDNER EXECUTIVE DIRECTOR 7166742818 2026-08-12 0 SARAH M HOPKINS P02010701 7168563300 2026-07-21 2025 2025-03-06 01:10:19Z DAWN BAUMGARDNER 20 TRACY LYNN LANE WEST SENECA NY 14224 603747 0 X WWW.DBAFOUNDATION.ORG X 1994 NY TO GENERATE FUNDS FOR THE CHARITABLE AND SCIENTIFIC PURPOSE OF PROVIDING SUPPORT FOR DIAMOND BLACKFAN ANEMIA PATIENTS, FAMILIES AND RESEARCH. 12 10 1 20 0 0 442809 552323 0 0 56639 51424 0 0 499448 603747 215000 199000 0 0 74156 72740 0 0 4744 107986 203021 397142 474761 102306 128986 1779752 1934886 0 0 1779752 1934886 X THE MISSION OF THE DIAMOND BLACKFAN ANEMIA FOUNDATION IS TO ADVANCE RESEARCH INITIATIVES THAT PROMOTE A BETTER UNDERSTANDING, THERAPEUTIC STRATEGIES AND A CURE FOR THIS RARE BONE MARROW FAILURE SYNDROME. WE ARE DEDICATED TO PROVIDING PATIENT ADVOCACY, SUPPORT AND EDUCATION SERVICES TO INDIVIDUALS, FAMILIES AND MEDICAL PROFESSIONALS RESULTING IN IMPROVEMENTS IN THE DIAGNOSIS, CLINICAL TREATMENT AND MANAGEMENT OF THE DISORDER, WHILE ENHANCING THE QUALITY OF LIFE OF AFFECTED FAMILIES WORLDWIDE. 0 0 243555 189000 (RESEARCH) SUPPORT OF PEER-REVIEWED RESEARCH PROJECTS INVESTIGATING THE CAUSE AND POTENTIAL TREATMENT OPTIONS AND A CURE FOR DIAMOND BLACKFAN ANEMIA. 169051 (DBA ICC) A CONFERENCE ORGANIZED TO PROVIDE A VENUE FOR THE EXCHANGE OF IDEAS AND FOSTER NEW COLLABORATIONS AMONG DBA CLINICIANS AND SCIENTISTS, DOCUMENT RESULTS FROM ONGOING CLINICAL TRIALS AND COORDINATE EFFORTS FOR NEW TRIALS, BRIDGE THE GAP BETWEEN CLINICIANS AND SCIENTISTS WORKING ON DBA TO PROMOTE TRANSLATIONAL RESEARCH, AND ENCOURAGE YOUNG CLINICIANS AND SCIENTISTS TO ENTER INTO DBA AS INDEPENDENT INVESTIGATORS. 10257 (ASH) EXHIBITION AT THE AMERICAN SOCIETY OF HEMATOLOGY ANNUAL MEETING (ASH) ATTENDED BY APPROXIMATELY 20,000 WORLDWIDE HEMATOLOGISTS TO PROVIDE THE LATEST CLINICAL AND RESEARCH INFORMATION PERTAINING TO DIAMOND BLACKFAN ANEMIA. 19557 10000 (CAMP SUNSHINE) ORGANIZATION AND OPERATION OF AN EDUCATIONAL, FAMILY ORIENTED, SUPPORT MEETING AT CAMP SUNSHINE, BRINGING TOGETHER DIAMOND BLACKFAN ANEMIA PATIENTS, FAMILIES, CLINICIANS, AND RESEARCHERS. 19557 10000 442420 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 1 1 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 1 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 X 12 10 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 NY X X PETER BAUMGARDNER 7166742818 20 TRACY LYNN LANE WEST SENECA NY 14224 DAWN BAUMGARDNER EXECUTIVE DIRECTOR 40.00 X X 67600 0 0 KATHI VROMAN VICE PRESIDENT 10.00 X X 0 0 0 PETER BAUMGARDNER TREASURER 10.00 X X 0 0 0 CAROL MANCUSO SECRETARY 10.00 X X 0 0 0 LAUREN BRADY DIRECTOR 10.00 X 0 0 0 CARA BREIDSTER DIRECTOR 10.00 X 0 0 0 CHARLES BROWN DIRECTOR 10.00 X 0 0 0 ANITA SHIER BRUTON DIRECTOR 10.00 X 0 0 0 REBECCA DEGROFF DIRECTOR 10.00 X 0 0 0 JAMIE DERMATIS DIRECTOR 10.00 X 0 0 0 JACY DOWNEY DIRECTOR 10.00 X 0 0 0 ANTHONY MARCHESE DIRECTOR 10.00 X 0 0 0 67600 0 0 0 0 0 0 0 50854 501469 11306 552323 51424 51424 0 50854 0 0 603747 0 0 51424 120000 120000 79000 79000 67600 50700 13520 3380 5140 3855 1028 257 4800 4800 188865 188865 109 109 9247 8140 1107 474761 442420 27597 4744 61355 53254 541187 673837 612 1181 2298 2298 109 0 1176489 1206614 1779752 1934886 0 0 X 1779752 1934886 1779752 1934886 1779752 1934886 128986 26148 0 X X 1 X 0 1 0 X 400779 382199 624853 442809 552323 2402963 400779 382199 624853 442809 552323 2402963 303600 2099363 3044 1639 39292 56639 51424 152038 2555001 0.82170 0.82620 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 2298 2298 0 0 0 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM 0 0 GRANTS TO RECIPIENTS LOCATED IN REGION. GRANTS FOR STUDY OF DIAMOND BLACKFAN ANEMIA. 79000 0 0 0 0 0 0 79000 0 79000 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESEARCH PROPOSAL 74000 WIRE TRANSFER 0 0 0 0 0 0 0 PART I, LINE 2: ALL GRANT REQUESTS (INCLUDING FOREIGN) ARE SUBMITTED TO THE DIAMOND BLACKFAN RESEARCH DIRECTOR (RD). THE RD THEN SEEKS OUT THREE INDEPENDENT SOURCES WHO ARE SPECIALISTS IN THE AREA RELATING TO THE RESEARCH PROJECT. THE RD SUMMARIZES THE INDEPENDENT REVIEWS AND SUBMITS THE SUMMARY REPORT ALONG WITH THE INDEPENDENT SPECIALISTS' REPORTS TO THE BOARD. THE BOARD REVIEWS AND IF A MAJORITY APPROVE, THE GRANT IS ISSUED. THE PRINCIPAL INVESTIGATOR, THE SCIENTIST WHO IS SPEARHEADING THE RESEARCH PROJECT AND WHO SUBMITTED THE REQUEST, PREPARES A MEDICAL AND FINANCIAL REPORT FOR THE RD/BOARD AT THE END OF THE PROJECT OR ON A MORE REGULAR BASIS IF DEEMED NECESSARY. CHARLIE'S HOPE GOLF TOURNAMENT 45000 45000 6 5854 5854 50854 50854 1 UNIVERSITY OF CALIFORNIA SAN DIEGO - DR HOJUN LI 3855 HEALTH SCIENCES DRIVE MAIL CODE 0815 LA JOLLA CA 92093 956006144 501C3 50000 0 RESEARCH PROPOSAL UNIVERSITY OF MICHIGAN - DR SHARON SINGH 3003 S STATE STREET 5TH FLOOR WOLVERINE TOWER ANN ARBOR MI 48109 386006309 501C3 60000 0 RESEARCH PROPOSAL CAMP SUNSHINE 35 ACADIA ROAD CASCO ME 04015 222582877 501C3 10000 0 GENERAL OPERATIONS 3 0 PART I, LINE 2: ALL GRANT REQUESTS (INCLUDING FOREIGN) ARE SUBMITTED TO THE DIAMOND BLACKFAN RESEARCH DIRECTOR (RD). THE RD THEN SEEKS OUT THREE INDEPENDENT SOURCES WHO ARE SPECIALISTS IN THE AREA RELATING TO THE RESEARCH PROJECT. THE RD SUMMARIZES THE INDEPENDENT REVIEWS AND SUBMITS THE SUMMARY REPORT ALONG WITH THE INDEPENDENT SPECIALISTS' REPORTS TO THE BOARD. THE BOARD REVIEWS AND IF A MAJORITY APPROVE, THE GRANT IS ISSUED. THE PRINCIPAL INVESTIGATOR, THE SCIENTIST WHO IS SPEARHEADING THE RESEARCH PROJECT AND WHO SUBMITTED THE REQUEST, PREPARES A MEDICAL AND FINANCIAL REPORT FOR THE RD/BOARD AT THE END OF THE PROJECT OR ON A MORE REGULAR BASIS IF DEEMED NECESSARY. X 2 11806 0 0 0 FORM 990, PART VI, SECTION A, LINE 2 EXECUTIVE DIRECTOR AND TREASURER ARE MARRIED TO EACH OTHER. FORM 990, PART VI, SECTION B, LINE 11B FORM 990 AVAILABLE FOR REVIEW UPON REQUEST OF BOARD MEMBERS BEFORE FILING. FORM 990, PART VI, SECTION B, LINE 12C CURRENT RESPONSIBLE PERSONS ANNUALLY COMPLETE A DISCLOSURE FORM IDENTIFYING ANY RELATIONSHIPS, POSITIONS OR CIRCUMSTANCES IN WHICH THEY ARE INVOLVED THAT COULD POTENTIALLY BE A CONFLICT. THE POLICY IS REVIEWED ANNUALLY AND AMENDED IF NECESSARY. ANY NEW RESPONSIBLE PERSON IS REQUIRED TO REVIEW A COPY OF THE POLICY AND SIGN OFF ON IT. FORM 990, PART VI, SECTION B, LINE 15A SALARIES ARE DETERMINED AT THE BOARD LEVEL BASED ON NON-PROFIT SALARY SURVEYS, PREVIOUS SALARY OF THE EMPLOYEE, AND THE CURRENT BUDGET. FORM 990, PART VI, SECTION C, LINE 19 DBA WEBSITE AND UPON REQUEST FORM 990, PART XII, LINE 2C: THE PROCESS HAS NOT CHANGED FROM THE PRIOR YEAR.