Nonprofit · EIN 16-1083229
LUPUS AND ALLIED DISEASES ASSOCIATION INC
Tax-exempt · VERONA, NY 13478
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| September 30, 2025 | 990 | $987,432 | $740,149 | $247,283 | $2,825,249 | $0 | $2,825,249 |
| September 30, 2024 | 990 | $1,076,141 | $744,720 | $331,421 | $2,577,966 | $0 | $2,577,966 |
| September 30, 2023 | 990 | $1,009,530 | $707,359 | $302,171 | $2,246,545 | $0 | $2,246,545 |
Financial details: 990 for the year ended September 30, 2025
Revenue
- Contributions, gifts and grants
- $893,615
- Program service revenue
- $0
- Investment income
- $93,817
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $564,724
- Compensation of officers, directors and key employees
- $0
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Accounting fees
- $3,500
- Depreciation
- $478
- Program services (functional)
- $736,783
- Management and general (functional)
- $2,696
- Fundraising (functional)
- $670
Balance sheet and other
- Total assets, start of year
- $2,577,966
- Total assets, end of year
- $2,825,249
- Total liabilities, end of year
- $0
- Net assets, end of year
- $2,825,249
- Land, buildings and equipment
- $566
- Net assets without donor restrictions
- $2,825,249
- Gross receipts
- $1,019,976
- Employees
- 0
- Volunteers
- 108
- Year formed
- 1978
- State of legal domicile
- NY
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended September 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Kathleen A Arntsen | President and CEO Trustee or director, Officer | 25 | $0 |
| Lori A Vogel | Treasurer Trustee or director, Officer | 15 | $0 |
| David L Arntsen | Secretary Trustee or director, Officer | 12 | $0 |
| Sandra M Frear | 1st Vice President Trustee or director, Officer | 8 | $0 |
| Anne M Zablotowicz | 2nd Vice President Trustee or director, Officer | 14 | $0 |
| Jane M Porter | Director Trustee or director | 8 | $0 |
| Jacqueline L Taylor | Director Trustee or director | 4 | $0 |
| Dina Thachet | Director Trustee or director | 8 | $0 |
| Meghan P Valadez | Director Trustee or director | 4 | $0 |
| Brian J Vogel | Director Trustee or director | 4 | $0 |
990 for the year ended September 30, 2024: 10 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Kathleen A Arntsen | President and CEO Trustee or director, Officer | 20 | $0 |
| Lori A Vogel | Treasurer Trustee or director, Officer | 14 | $0 |
| David L Arntsen | Secretary Trustee or director, Officer | 12 | $0 |
| Sandra M Frear | 1st Vice President Trustee or director, Officer | 8 | $0 |
| Anne M Zablotowicz | 2nd Vice President Trustee or director, Officer | 10 | $0 |
| Jane M Porter | Director Trustee or director | 8 | $0 |
| Jacqueline L Taylor | Director Trustee or director | 5 | $0 |
| Dina Thachet | Director Trustee or director | 8 | $0 |
| Meghan P Valadez | Director Trustee or director | 4 | $0 |
| Brian J Vogel | Director Trustee or director | 4 | $0 |
990 for the year ended September 30, 2023: 10 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Lori A Vogel | Treasurer Trustee or director, Officer | 14 | $0 |
| Lisabeth S Iglesias | Director Trustee or director | 10 | $0 |
| Jane M Porter | Director Trustee or director | 8 | $0 |
| Dina Thachet | Director Trustee or director | 5 | $0 |
| Brian J Vogel | Director Trustee or director | 4 | $0 |
| Anne M Zablotowicz | Director Trustee or director | 10 | $0 |
| Kathleen A Arntsen | President and CEO Officer | 20 | $0 |
| David L Arntsen | Secretary Officer | 12 | $0 |
| Sandra M Frear | 1st Vice President Officer | 8 | $0 |
| Jacqueline L Taylor | 2nd Vice President Officer | 4 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 170, VERONA, NY 13478-0170
- Principal officer (990 for 2024)
- Kathleen A Arntsen, PO Box 170, Verona, NY 134780170
- Signed the 990
- Kathleen Arntsen, President
- Phone
- (315) 829-4272
- Website
- www.ladainc.org
Mission
The Lupus and Allied Diseases Association's mission is to advocate for those affected by lupus and allied diseases through public awareness, education and research program initiatives to improve quality of life.
Program accomplishments
- 1. The organization supported lupus research to improve methods of diagnosis and treatment by funding a $150,000 grant to the the Lupus Research Alliance to support SLE Cognitive Impairment Differentiation and Imaging Lupus Nephritis Biopsies Prognosis Projects. 2. The organization supported pediatric lupus research to study Advancing Molecular Profiling and Understanding Adverse Events Projects in the pediatric population by funding a $89,424 grant to the Childhood Arthritis and Rheumatology Research Alliance. 3. The organization also supported $25,000 to support Does Air Pollution Influence the Baseline Characteristics of Pediatric SLE Project to improve the quality of life for the pediatric population with lupus at the Lupus Foundation of America. 4. The organization funded the Marc R. Chevrier, MD, PhD, FACR, Lupus Research Memorial Fund at the Rheumatology Research Foundation by supporting a $25,300 preceptorship grant and a separate $50,000 grant to support Innovative Lupus Research. 5. The organization supported lupus research by funding a $200,000 grant to the Masonic Medical Research Institute to provide $50,000 to support a study on Gain-of-function mutations in SHP2 enhance inflammatory macrophage activation in SLE, $50,000 for Cell Activation in Venous Thromboembolism in Female Murine SLE, $50,000 for pathophysiological role of IRF2BP2 in SLE, and $50,000 for Identification of Novel Genes in Lupus Nephritis Development.Expenses $539,724 · grants $539,724
- The organization provided public education and advocated for those impacted by lupus and autoimmune diseases in various states and federally through education meetings, briefings, seminars, forums, public testimony, and written comments. The organization also distributed informational materials, newsletters, and issue briefs; developed poster presentations; and represented the lupus and autoimmune patient perspective at education and advocacy initiatives to improve access to medical care and treatments and advance biomedical research to improve patient quality of life. The organization also provided a $25,000 education grant to the Masonic Medical Research Institute to support their general education program and Summer Fellows education program.Expenses $148,292 · grants $25,000
- The organization promoted disease awareness by disseminating information at virtual and in person health and wellness events; participating in media interviews, press releases, speaking engagements and press conferences; posting information and resources to websites and through social media, blogs, op-eds, videos, and e-mails; and hosting informational booths in exhibit halls to improve disease awareness to the general public, medical professional community, public officials, the media, researchers, the healthcare industry, and people with lupus and allied diseases and their loved ones.Expenses $48,767
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in September, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | September 30, 2026 | February 16, 2027 | Not due yet |
| 2024 | September 30, 2025 | February 17, 2026 | 990 on file |
| 2023 | September 30, 2024 | February 18, 2025 | 990 on file |
IRS record
- EIN
- 16-1083229
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (509(a)(2))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1980
- Accounting year ends
- September
- Files
- Form 990 or 990-EZ
- Assets (IRS master file)
- $2,825,249
- Income (IRS master file)
- $1,019,976
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | September 2025 | $987,432 | $740,149 | $2,825,249 | XML |
| 990 | September 2024 | $1,076,141 | $744,720 | $2,577,966 | XML |
| 990 | September 2023 | $1,009,530 | $707,359 | $2,246,545 | XML |
| 990 | September 2022 | $1,081,866 | $540,739 | $1,944,374 | IRS |
| 990 | September 2021 | – | – | – | IRS |
| 990 | September 2020 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 16-1083229).
Questions about LUPUS AND ALLIED DISEASES ASSOCIATION INC
- What is the EIN of LUPUS AND ALLIED DISEASES ASSOCIATION INC?
- The employer identification number (EIN) of LUPUS AND ALLIED DISEASES ASSOCIATION INC is 16-1083229.
- Is LUPUS AND ALLIED DISEASES ASSOCIATION INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1980.
- Are donations to LUPUS AND ALLIED DISEASES ASSOCIATION INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does LUPUS AND ALLIED DISEASES ASSOCIATION INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of LUPUS AND ALLIED DISEASES ASSOCIATION INC due?
- The return for tax year 2025 (the year ending September 30, 2026) is due February 16, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did LUPUS AND ALLIED DISEASES ASSOCIATION INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended September 2025.
- Who is the principal officer of LUPUS AND ALLIED DISEASES ASSOCIATION INC?
- The 990 for the year ended September 30, 2025 names Kathleen A Arntsen.
- Who are the officers and directors of LUPUS AND ALLIED DISEASES ASSOCIATION INC?
- The 990 for the year ended September 30, 2025 lists 10 people; 0 received compensation from the organization.
- How much revenue does LUPUS AND ALLIED DISEASES ASSOCIATION INC have?
- On its 990 for the year ended September 30, 2025 it reported revenue of $987,432, expenses of $740,149 and total assets of $2,825,249 at year end.
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