2024-01-16T21:02:58-07:00 2023-09-30 990 2022-10-01 161083229 LUPUS AND ALLIED DISEASES ASSOCIATION INC LUPU 3158294272 PO Box 170 Verona NY 134780170 Kathleen Arntsen President 3152649101 2023-12-29 1 1 11 0 AAL2 2022 2023-04-26 12:10:37Z Kathleen A Arntsen PO Box 170 Verona NY 13478 1041187 0 X www.ladainc.org X 1978 NY To enhance quality of life for those affected by lupus and allied diseases by providing education and empowerment programs and wielding the patient voice as a catalyst to improve healthcare and treatment access, advance research and promote advocacy and awareness initiatives. 10 10 0 109 0 0 1071018 962903 0 0 10848 46627 0 0 1081866 1009530 475700 531400 0 0 0 0 0 0 574 65039 175959 540739 707359 541127 302171 1944374 2246545 0 0 1944374 2246545 The Lupus and Allied Diseases Association's mission is to advocate for those affected by lupus and allied diseases through public awareness, education and research program initiatives to improve quality of life. 0 0 531400 531400 0 1. The organization supported lupus and autoimmune research to improve methods of diagnosis and treatment, as well as to find causes and cures for lupus and autoimmune diseases by funding a $150,000 grant to the Lupus Research Alliance for Noninvasive Imaging of Lupus Nephritis and Targeting B Cells to Prevent Fetal Loss projects. 2. The organization supported pediatric lupus research to study Neuropsychiatric SLE and Genetics to Advance Precision Medicine in the pediatric population by funding a $101,400 grant to the Childhood Arthritis and Rheumatology Research Alliance. 3. The organization also supported $45,000 to support the Michael Jon Barlin Childhood Pediatric Research Program to improve the quality of life for the pediatric population with lupus at the Lupus Foundation of America. 4. The organization funded the Marc R. Chevrier, MD, PhD, FACR, Lupus Research Memorial Fund at the Rheumatology Research Foundation by supporting a $35,000 grant within the Foundation's preceptorships program. 5. The organization supported lupus research by funding a $200,000 grant to the Masonic Medical Research Institute for Use of cardiosphere-derived human exosomes, the RhoA Pathway in Lupus Nephritis, SHP2 inflammatory macrophage and Effects of Lymphocytes on VTs. 139025 139025 0 The organization provided public education and advocated for those impacted by lupus and autoimmune diseases in various states and federally through education meetings, briefings, seminars, forums, public testimony, and written comments. The organization also distributed informational materials, newsletters, and issue briefs; developed poster presentations; and represented the lupus and autoimmune patient perspective at education and advocacy initiatives to improve access to medical care and treatments and advance biomedical research to improve patient quality of life. 34249 34249 0 The organization promoted disease awareness by disseminating information at virtual and in person health and wellness events; participating in media interviews, press releases, speaking engagements and press conferences; posting information and resources to websites and through social media, blogs, op-eds, videos, and e-mails; and hosting informational booths in exhibit halls to improve disease awareness to the general public, medical professional community, public officials, the media, researchers, the healthcare industry, and people with lupus and allied diseases and their loved ones. 0 0 0 704674 1 1 0 1 0 0 0 0 0 0 1 0 0 0 0 0 1 0 0 0 0 0 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 X 10 10 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 0 0 0 NY X X X Lori Vogel 3158294272 PO Box 170 Verona NY 134780170 X Lori A Vogel Treasurer 14 0 X X 0 0 0 Lisabeth S Iglesias Director 10 0 X 0 0 0 Jane M Porter Director 8 0 X 0 0 0 Dina Thachet Director 5 5 X 0 0 0 Brian J Vogel Director 4 0 X 0 0 0 Anne M Zablotowicz Director 10 0 X 0 0 0 Kathleen A Arntsen President and CEO 20 0 X 0 0 0 David L Arntsen Secretary 12 0 X 0 0 0 Sandra M Frear 1st Vice President 8 X 0 0 0 Jacqueline L Taylor 2nd Vice President 4 0 X 0 0 0 0 0 0 0 0 0 0 0 205 0 154243 0 0 808455 0 962903 0 46627 46627 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 31657 154243 31657 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1009530 46627 0 0 531400 531400 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 2500 1250 1250 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 5510 4959 276 275 3184 2865 160 159 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 211 179 21 11 2578 2320 129 129 Education 68111 68111 0 0 Advocacy 63199 63199 0 0 Awareness 30391 30391 0 0 Charity Registration 275 0 275 0 707359 704674 2111 574 211192 301604 1732654 1944624 5399 5082 528 317 1944374 2246545 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 1944374 2246545 0 0 1944374 2246545 1944374 2246545 302171 0 0 0 0 0 X 0 1 X 1 0 X 565500 645469 723304 1098330 994560 4027163 0 0 0 0 0 0 0 0 0 0 0 0 565500 645469 723304 1098330 994560 4027163 15122 4012041 8361 11348 10186 10848 46627 87370 0 0 0 0 0 0 0 0 0 0 0 0 4114533 0 0.97509 0.96760 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 273 273 738743 739016 135852 33963 0 0 66360 70460 110208 135852 382880 574320 320 52 443 273 1088 16590 17615 27552 33963 95720 143580 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 5399 5082 317 0 0 0 0 317 1041187 0 0 0 31657 31657 1009530 0 0 0 1009530 739016 0 0 0 31657 31657 707359 0 0 0 707359 Schedule D, Part XI, Line 2d Part XI, Line 2d Other The gross income from special events not including the contributions amount is 31,657. Schedule D, Part XII, Line 2d Part XII, Line 2d Other The special events direct donor benefit expenses amount is 31,657. Lupus Charity Golf Classic 185900 154243 31657 0 0 0 14501 0 17156 0 0 185900 154243 31657 0 0 0 14501 0 17156 31657 0 1 CARRA 1050 Connecticut Ave Washington DC 20036 464152355 501(c)(3) 101400 0 Book Pediatric Lupus Research Lupus Foundation of America 2121 K St Washington DC 20037 431131436 501(c)(3) 45000 0 Book Pediatric Lupus Research Lupus Research Alliance 270 Madison Ave Suite 300 New York NY 10016 582492929 501(c)(3) 150000 0 Book Lupus Research Rheumatology Research Foundation 2200 Lake Blvd NE Atlanta GA 30319 581654301 501(c)(3) 35000 0 Book Marc Chevrier Lupus Research Fund Masonic Medical Research Institute 2150 Bleecker St Utica NY 13501 135648611 501(c)(3) 200000 0 Book Lupus and Lupus Nephritis Research 5 0 Schedule I, Part I, Line 2 The Childhood Arthritis and Rheumatology Research Alliance (CARRA), Lupus Foundation of America, Lupus Research Alliance, Rheumatology Research Foundation, and Masonic Medical Research Institute provide periodic progress reports back to our organization on the research being conducted and share any findings along with any subsequent publications. Our organization also has representatives who attend scientific meetings where the investigators present their findings. Form 990, Part VI, Section A, Line 2 2. President & CEO Kathleen A. Arntsen has a family relationship with Secretary David L. Arntsen; 1st Vice President Sandra M. Frear has a family relationship with Director Jane M. Porter; Director Brian J. Vogel has a family relationship with Treasurer Lori A. Vogel. Form 990, Part VI, Section B, Line 11b 11b. Once the 990 and appropriate schedules are completed, the forms are then reviewed by the President & CEO and Treasurer and then sent electronically to the organization's Board of Directors to review and approve before filing with the IRS. Form 990, Part VI, Section B, Line 12c 12c. The organization's conflict of interest policy is reviewed annually in January by each Board of Director and any interests are disclosed that have the potential to be a conflict on the COI form, and the form is then signed by the Director, reviewed by Leadership and filed. Form 990, Part VI, Section C, Line 19 19. The organization's governing documents, conflict of interest policy, and financial statements are available to the public during the tax year through the New York State Attorney General's Bureau website or by written request to us. The organization's financial statements and conflict of interest policy are also available on our website www.ladainc.org and at www.guidestar.org.