Nonprofit · EIN 11-3283268
HERMANSKY PUDLAK SYNDROME NETWORK INC
Tax-exempt · OYSTER BAY, NY 11771
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| July 31, 2025 | 990 | $425,468 | $447,480 | -$22,012 | $270,081 | $15,688 | $254,393 |
| July 31, 2024 | 990 (amended) | $323,223 | $459,209 | -$135,986 | $283,257 | $6,853 | $276,404 |
| July 31, 2023 | 990 | $293,005 | $424,551 | -$131,546 | $419,221 | $6,831 | $412,390 |
Financial details: 990 for the year ended July 31, 2025
Revenue
- Contributions, gifts and grants
- $425,375
- Program service revenue
- $0
- Investment income
- $93
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $0
- Other salaries and wages
- $83,026
- Salaries, compensation and benefits (total)
- $113,139
- Professional fundraising fees
- $0
- Accounting fees
- $12,425
- Travel
- $24,611
- Depreciation
- $891
- Program services (functional)
- $329,903
- Management and general (functional)
- $70,559
- Fundraising (functional)
- $47,018
Balance sheet and other
- Total assets, start of year
- $283,257
- Total assets, end of year
- $270,081
- Total liabilities, end of year
- $15,688
- Net assets, end of year
- $254,393
- Land, buildings and equipment
- $1,336
- Net assets without donor restrictions
- $254,393
- Gross receipts
- $425,468
- Employees
- 6
- Year formed
- 1992
- State of legal domicile
- NY
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended July 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| DONNA APPELL | PRESIDENT Trustee or director, Officer | 25 | $21,600 |
| RICHARD APPELL | TREASURER Trustee or director, Officer | – | $0 |
| HEATHER KIRKWOOD | VP/SEC Trustee or director, Officer | – | $0 |
| NANCY LEE | BOARD MEMBER Trustee or director | – | $0 |
| BECKY NIEVES | BOARD MEMBER Trustee or director | – | $0 |
990 for the year ended July 31, 2024: 3 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| DONNA APPELL | PRESIDENT Trustee or director, Officer | 25 | $19,640 |
| RICHARD APPELL | TREASURER Trustee or director, Officer | – | $0 |
| HEATHER KIRKWOOD | VP/SEC Trustee or director, Officer | – | $0 |
990 for the year ended July 31, 2023: 3 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| DONNA APPELL | PRESIDENT Trustee or director, Officer | 25 | $15,520 |
| RICHARD APPELL | TREASURER Trustee or director, Officer | 1 | $0 |
| HEATHER KIRKWOOD | VP/SEC Trustee or director, Officer | 10 | $0 |
Address and contacts
- Address (IRS master file)
- 1 SOUTH RD, OYSTER BAY, NY 11771-1905
- In care of
- % DONNA APPELL
- Principal officer (990 for 2024)
- DONNA APPELL, ONE SOUTH ROAD, OYSTER BAY COVE, NY 117711905
- Signed the 990
- DONNA APPELL, PRESIDENT
- Phone
- (800) 789-9477
- Website
- WWW.HPSNETWORK.ORG
- Return prepared by
- WEISSBERG & SPELLER CPAS
Mission
THE HERMANSKY-PUDLAK SYNDROME (HPS) NETWORK'S MISSION IS TO PROVIDE ADVOCACY, FELLOWSHIP, EDUCATION AND HOPE TO INDIVIDUALS AND FAMILIES AFFECTED BY HPS. WE FUND AND FACILITATE RESEARCH. WE DEVELOPE AND PRODUCE MATERIAL AND RESOURSES FOR HEALTHCARE.
Program accomplishments
- COMPILES PATIENT DATA TO ASSIST IN RESEARCH, RUNS CONFERENCES TO COLLECT AND PROVIDE DISEASE INFORMATION AND PROVIDES INFORMATION AND SUPPORT TO AFFECTED FAMILIES.Expenses $329,903
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in July, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | July 31, 2026 | December 15, 2026 | Not due yet |
| 2024 | July 31, 2025 | December 15, 2025 | 990 on file |
| 2023 | July 31, 2024 | December 16, 2024 | 990 on file |
IRS record
- EIN
- 11-3283268
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1998
- Accounting year ends
- July
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Human services (P20Z)
- Assets (IRS master file)
- $270,081
- Income (IRS master file)
- $425,468
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | July 2025 | $425,468 | $447,480 | $270,081 | XML |
| 990 | July 2024 | $323,223 | $459,209 | $283,257 | XML |
| 990 | July 2023 | $293,005 | $424,551 | $419,221 | XML |
| 990 | July 2022 | $425,722 | $526,660 | $559,842 | IRS |
| 990 | July 2021 | – | – | – | IRS |
| 990 | July 2020 | – | – | – | IRS |
| 990 | July 2019 | – | – | – | IRS |
| 990 | July 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 11-3283268).
Questions about HERMANSKY PUDLAK SYNDROME NETWORK INC
- What is the EIN of HERMANSKY PUDLAK SYNDROME NETWORK INC?
- The employer identification number (EIN) of HERMANSKY PUDLAK SYNDROME NETWORK INC is 11-3283268.
- Is HERMANSKY PUDLAK SYNDROME NETWORK INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1998.
- Are donations to HERMANSKY PUDLAK SYNDROME NETWORK INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does HERMANSKY PUDLAK SYNDROME NETWORK INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of HERMANSKY PUDLAK SYNDROME NETWORK INC due?
- The return for tax year 2025 (the year ending July 31, 2026) is due December 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did HERMANSKY PUDLAK SYNDROME NETWORK INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended July 2025.
- Who is the principal officer of HERMANSKY PUDLAK SYNDROME NETWORK INC?
- The 990 for the year ended July 31, 2025 names DONNA APPELL.
- Who are the officers and directors of HERMANSKY PUDLAK SYNDROME NETWORK INC?
- The 990 for the year ended July 31, 2025 lists 5 people; 1 received compensation from the organization, the highest $21,600 (DONNA APPELL, PRESIDENT).
- How much revenue does HERMANSKY PUDLAK SYNDROME NETWORK INC have?
- On its 990 for the year ended July 31, 2025 it reported revenue of $425,468, expenses of $447,480 and total assets of $270,081 at year end.
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