2024-06-05T15:58:55-04:00 2023-07-31 113179015 WEISSBERG & SPELLER CPAS 3601 HEMPSTEAD TPKE STE 200 LEVITTOWN NY 117561331 990 2022-08-01 113283268 HERMANSKY PUDLAK SYNDROME NETWORK HERM 8007899477 ONE SOUTH ROAD OYSTER BAY COVE NY 11771 DONNA APPELL PRESIDENT 0800789947 2024-06-05 DONNA APPELL XXX-XX-XXXX false JOHN W SPELLER P00453623 5167962727 2024-06-05 2022 2023-04-26 12:10:37Z DONNA APPELL ONE SOUTH ROAD OYSTER BAY COVE NY 117711905 293005 false X WWW.HPSNETWORK.ORG X 1992 NY THE HERMANSKY-PUDLAK SYNDROME (HPS) NETWORK'S MISSION IS TO PROVIDE ADVOCACY, FELLOWSHIP, EDUCATION AND HOPE TO INDIVIDUALS AND FAMILIES AFFECTED BY HPS. WE FUND AND FACILITATE RESEARCH. WE DEVELOPE AND PRODUCE MATERIAL AND RESOURSES FOR HEALTHCARE. 3 0 5 0 425559 292852 0 163 153 0 425722 293005 0 0 92281 122224 0 49446 434379 302327 526660 424551 -100938 -131546 559841 419221 15905 6831 543936 412390 X THE HERMANSKY-PUDLAK SYNDROME (HPS) NETWORK'S MISSION IS TO PROVIDE ADVOCACY, FELLOWSHIP, EDUCATION AND HOPE TO INDIVIDUALS AND FAMILIES AFFECTED BY HPS. WE FUND AND FACILITATE RESEARCH. WE DEVELOPE AND PRODUCE MATERIAL AND RESOURSES FOR HEALTHCARE. false false 299078 COMPILES PATIENT DATA TO ASSIST IN RESEARCH, RUNS CONFERENCES TO COLLECT AND PROVIDE DISEASE INFORMATION AND PROVIDES INFORMATION AND SUPPORT TO AFFECTED FAMILIES. 299078 true true false false false false false false false false true false false true true false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false 5 0 false 5 false false false false false false false false false false false false false false false X 3 0 true false false false false false false true true false false false false false false false false false NY DONNA APPELL 8007899477 ONE SOUTH ROAD OYSTER BAY COVE NY 11771 DONNA APPELL PRESIDENT 25.00 X X 15520 0 0 RICHARD APPELL TREASURER 1.00 X X 0 0 0 HEATHER KIRKWOOD VP/SEC 10.00 X X 0 0 0 15520 false false false 292852 292852 153 153 293005 153 X 15520 10136 5384 84672 20454 29197 35021 12917 12917 9115 2887 3063 3165 5500 5500 75115 74641 474 10778 1395 4833 4550 8786 3728 5058 53766 52877 889 99570 99570 891 891 1886 1886 DUES & SUBSCRIPTIONS 14930 13877 1053 MEALS 8137 8137 OUTREACH EXPENSES 7299 7299 FUNDRAISING EXPENSES 6710 6710 8959 4077 4882 424551 299078 76027 49446 189925 145167 336811 236990 20779 17662 4008 3117 29097 33947 559841 419221 15905 6831 15905 6831 X 543936 412390 543936 412390 559841 419221 X -131546 X false false X 383942 547303 632259 425559 292852 2281915 193 153 346 383942 547303 632452 425559 293005 2282261 187069 187069 187069 187069 2095192 163 163 163 163 383942 547303 632452 425722 293005 2282424 0.91800 0.91430 0.00000 0.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 20779 17662 3117 3117 LOANS RECEIVABLE 33947 33947 CREDIT CARD PAYABLE 4872 PAYROLL TAXES PAYABLE 1959 6831 FORM 990 - ORGANIZATION'S MISSION THE HERMANSKY-PUDLAK SYNDROME (HPS) NETWORK'S MISSION IS TO PROVIDE ADVOCACY, FELLOWSHIP, EDUCATION AND HOPE TO INDIVIDUALS AND FAMILIES AFFECTED BY HPS. WE FUND AND FACILITATE RESEARCH. WE DEVELOPE AND PRODUCE MATERIAL AND RESOURSES FOR HEALTHCARE. FORM 990, PART VI THE ORGANIZATION IS PROVIDED WITH THE CONPLETED REVIEWED FINANCIAL STATEMENT AND A COPY OF THE TAX RETUN TO BE REVIEWED PRIOR TO FILING. FORM 990, PAGE 6, PART VI, LINE 2 DONNA APPELL RICHARD APPELL PRES HUSBAND & WIFE FORM 990, PAGE 6, PART VI, LINE 11B NO REVIEW WAS OR WILL BE CONDUCTED. FORM 990, PAGE 6, PART VI, LINE 19 THE ORGANIZATION HAS IT'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENT AVAILABLE UPON REQUEST. FORM 990, PART IX, LINE 11G CONSULTANT 46,371 474 0 PROFFESSIONAL SERVICES 28,270 0 0 TOTAL 74,641 474 0 FORM 990, PART XI, LINE 9 ROUNDING 0