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Nonprofit · EIN 11-2779073

SJOGRENS FOUNDATION INC

Tax-exempt · RESTON, VA 20191

Financials

$3.5M$3.2M2023$5.3M$4.2M2024
Revenue Expenses · by fiscal year end
Financials of SJOGRENS FOUNDATION INC by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
June 30, 2025990$5,277,586$4,223,979$1,053,607$5,240,223$1,212,835$4,027,388
June 30, 2024990$3,497,666$3,174,412$323,254$4,167,805$1,255,608$2,912,197
Financial details: 990 for the year ended June 30, 2025

Revenue

Contributions, gifts and grants
$4,712,138
Program service revenue
$502,889
Investment income
$143,224
Royalties
$3,492
Net income from fundraising events
-$88,528
Net income from sales of inventory
-$2,661
Other revenue
-$80,665

Expenses

Grants and similar amounts paid
$636,789
Compensation of officers, directors and key employees
$556,072
Other salaries and wages
$1,096,498
Salaries, compensation and benefits (total)
$1,937,731
Professional fundraising fees
$0
Legal fees
$107,958
Accounting fees
$34,804
Occupancy
$102,392
Travel
$36,655
Depreciation
$37,608
Program services (functional)
$3,551,082
Management and general (functional)
$203,642
Fundraising (functional)
$469,255

Balance sheet and other

Total assets, start of year
$4,167,805
Total assets, end of year
$5,240,223
Total liabilities, end of year
$1,212,835
Net assets, end of year
$4,027,388
Land, buildings and equipment
$20,135
Publicly traded securities
$4,600,242
Net assets without donor restrictions
$2,926,653
Net assets with donor restrictions
$1,100,735
Gross receipts
$5,382,573
Employees
16
Volunteers
684
Year formed
1983
State of legal domicile
NY

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended June 30, 2025, highest compensation first.

NameTitleHours / weekCompensation
JANET CHURCHPRESIDENT AND CEO
Officer
40$368,360
KATHERINE MORLAND HAMMITTVP OF MEDICAL AND SCIENTIFIC AFFAIRS
Key employee
40$189,280
BEN BASLOEVP OF PHILANTHROPY AND OPERATIONS
Highest-paid employee
40$135,085
LANE DESTROSR. DIRECTOR, CORPORATE PARTNERSHIPS & STRATEGIC I
Highest-paid employee
40$125,368
MICHELE CHAMPIGNYVP OF PATIENT SERVICES AND EDUCATION
Highest-paid employee
40$115,761
MATTHEW MAKARASENIOR DIRECTOR OF RESEARCH & SCIENTIFIC AFFAIRS
Highest-paid employee
40$114,253
SUSAN BARAJASCHAIRMAN
Trustee or director, Officer
2$0
DONALD E THOMAS MDPAST CHAIRMAN
Trustee or director, Officer
2$0
VIDYA SANKAR DMD MHSTREASURER
Trustee or director, Officer
2$0
KATIE FORTESECRETARY
Trustee or director, Officer
2$0
ALAN BAER MDDIRECTOR, CHAIRMAN OF MSAC
Trustee or director
2$0
ALLISSA LATHAMDIRECTOR
Trustee or director
2$0
BRENT P GOODMAN MDDIRECTOR
Trustee or director
2$0
DANIEL WALLACE MDDIRECTOR
Trustee or director
2$0
DAVID SCHRADERDIRECTOR
Trustee or director
2$0
8 more people on this return
NameTitleHours / weekCompensation
NISHANT GUPTA MDDIRECTOR
Trustee or director
2$0
ROBYN LAUKIENDIRECTOR
Trustee or director
2$0
RUBENSTEIN LISADIRECTOR
Trustee or director
2$0
SARA MCCOY MDDIRECTOR
Trustee or director
2$0
SCOTT LIEBERMAN MDDIRECTOR
Trustee or director
2$0
TAMMY DOTSONDIRECTOR
Trustee or director
2$0
TOM IATESTADIRECTOR
Trustee or director
2$0
VATINEE BUNYA MD MSCEDIRECTOR
Trustee or director
2$0
990 for the year ended June 30, 2024: 23 people
NameTitleHours / weekCompensationOther / benefits
JANET CHURCHPRESIDENT AND CEO
Officer
40$384,450$23,911
KATHERINE MORLAND HAMMITTVP OF MEDICAL AND SCIENTIFIC AFFAIRS
Key employee
40$179,450$6,150
BEN BASLOEVP OF PHILANTHROPY AND OPERATIONS
Highest-paid employee
40$127,283$20,924
LANE DESTRODIR OF CORPORATE RELATIONS AND INITIATIVES
Highest-paid employee
40$115,034$8,737
MATTHEW MAKARASR. DIR OF RESEARCH AND SCIENTIFIC AFFAIRS
Highest-paid employee
40$108,211$8,157
MICHELE CHAMPIGNYVP OF PATIENT SERVICES AND EDUCATION
Highest-paid employee
40$108,863$3,016
SUSAN BARAJASCHAIRMAN
Trustee or director, Officer
2$0$0
DONALD E THOMAS MDPAST CHAIRMAN
Trustee or director, Officer
2$0$0
VIDYA SANKAR DMD MHSTREASURER
Trustee or director, Officer
2$0$0
KATIE FORTESECRETARY
Trustee or director, Officer
2$0$0
ALAN BAER MDDIRECTOR, CHAIRMAN OF MSAC
Trustee or director
2$0$0
ALLISSA LATHAMDIRECTOR
Trustee or director
2$0$0
BRENT P GOODMAN MDDIRECTOR
Trustee or director
2$0$0
DANIEL WALLACE MDDIRECTOR
Trustee or director
2$0$0
DAVID SCHRADERDIRECTOR
Trustee or director
2$0$0
JONATHAN MORSE MSCDIRECTOR
Trustee or director
2$0$0
NISHANT GUPTA MDDIRECTOR
Trustee or director
2$0$0
ROBYN LAUKIENDIRECTOR
Trustee or director
2$0$0
SARA MCCOY MDDIRECTOR
Trustee or director
2$0$0
SCOTT LIEBERMAN MDDIRECTOR
Trustee or director
2$0$0
TAMMY DOTSONDIRECTOR
Trustee or director
2$0$0
TOM IATESTADIRECTOR
Trustee or director
2$0$0
VATINEE BUNYA MD MSCEDIRECTOR
Trustee or director
2$0$0

Address and contacts

Address (IRS master file)
10701 PARKRIDGE BLVD STE 170, RESTON, VA 20191-5326
Principal officer (990 for 2024)
JANET CHURCH, 10701 PARKRIDGE BLVD 170, RESTON, VA 20191
Signed the 990
JANET CHURCH, CHIEF EXECUTIVE OFFICER
Phone
(301) 530-4420
Return prepared by
RENNER AND COMPANY CPA PC

Mission

THE FOUNDATION'S MISSION IS TO PROVIDE EDUCATION AND RESOURCES TO SJOGREN'S PATIENTS AND THEIR LOVED ONES, PROVIDE CREDIBLE RESOURCES/EDUCATION TO HEALTHCARE PROFESSIONALS, SERVE AS THE VOICE OF ALL PATIENTS THROUGH ADVOCACY AND FUND INNOVATIVE RESEARCH.

990 for the year ended June 30, 2025

Program accomplishments

  • THE SJOGREN'S FOUNDATION AWARDED FOUR RESEARCH GRANTS UNDER THE ANNUAL SJOGREN'S FOUNDATION GRANT PROGRAM TO UNIVERSITY AFFILIATED RESEARCHERS IN JUNE 2025. THREE PILOT GRANTS WERE AWARDED AND ONE HIGH IMPACT GRANT AWARDED. THE SJOGREN'S FOUNDATION ALSO AWARDED A DYNAMIC GRANT TO THE UNIVERSITY OF UTAH FOR DEVELOPMENT OF INTERNATIONAL CLASSIFICATION CRITERIA FOR CHILDREN WITH SJOGREN'S DISEASE. THE FOUNDATION PAID THE THIRD PAYMENT TO SUPPORT THE FOUNDATION FOR THE NIH AMP AIM RESEARCH PROJECT ON SJOGREN'S AND OTHER AUTOIMMUNE DISEASES, AND THE FIRST PAYMENT OF THE NEW FOUNDATION FOR THE NIH SJOGREN'S BIOMARKERS CONSORTIUM PROJECT TO DISCOVER NEW BIOMARKERS FOR SJOGREN'S TO AID IN IMPROVED DIAGNOSIS AND TREATMENT.THE SJOGREN'S FOUNDATION ALSO WORKED CLOSELY WITH MULTIPLE PHARMA COMPANIES TO PREPARE FOR, AND BRING, PHASE 2 AND PHASE 3 CLINICAL TRIALS FORWARD. THE FOUNDATION SUPPORTED THESE PROGRAMS BY CONFERRING WITH PHARMA ON PROTOCOLS AND PATIENT NEEDS, CERTIFYING CLINICAL TRIAL INVESTIGATORS ON PROPER USE OF ESSDAI OUTCOME MEASURES, AND ENGAGING PATIENTS TO ENCOURAGE TRIAL ENROLLMENT, IN ORDER TO HELP BRING THERAPIES TO MARKET.
    Expenses $1,227,774 · grants $636,789
  • NEWSLETTER - THE FOUNDATION PRODUCES TWO NEWSLETTERS. "CONQUERING SJOGREN'S" IS A PATIENT FOCUSED NEWSLETTER WITH INFORMATION ABOUT SJOGREN'S AND ITS MANY MANIFESTATIONS. CS IS PRODUCED BI-MONTHLY. THE "SJOGREN'S QUARTERLY" IS A PROFESSIONAL PUBLICATION PRODUCED 4 TIMES A YEAR AND OFFERED FREE TO ALL HEALTHCARE PROFESSIONALS TO INCREASE AWARENESS AND EDUCATION AROUND SJOGREN'S.
    Expenses $254,954
  • THE SJOGREN'S FOUNDATION INCREASED PATIENT SUPPORT AND EDUCATION PROGRAMS IN 2025 AS WELL AS HEALTHCARE PROVIDER EDUCATION AND AWARENESS ABOUT SJOGREN'S AND THE SYSTEMIC, MULTI-FACETED NATURE OF THE DISEASE. OF NOTE WAS THE EXPANSION OF PROVIDER OUTREACH THROUGH STATE OF SJOGREN'S AND THE FOUNDATION'S CME PROGRAM AS WELL AS PARTNERING WITH EXTERNAL CME PROGRAMS FOR SPECIALTIES AND PRIMARY CARE PROVIDERS. THE FOUNDATION ALSO INCREASED OUR ADVOCACY EFFORTS TO HIGHLIGHT THE IMPORTANCE OF CONTINUED AUTOIMMUNE DISEASE RESEARCH FUNDING, ESPECIALLY FOR SJOGREN'S AND TO HIGHLIGHT THE IMPORTANCE OF SUPPORTING THE OFFICE OF AUTOIMMUNE DISEASE RESEARCH. WE SUCCEEDED IN GETTING A NEW HOUSE RESOLUTION #245 TO AFFIRM APRIL AS SJOGREN'S AWARENESS MONTH WHICH INCLUDED MESSAGING ABOUT THE NEED FOR MORE RESEARCH AND WE HELD OUR FIRST CONGRESSIONAL BRIEFING ON SJOGREN'S. THE FOUNDATION ALSO CONTINUED OUR DIALOG WITH CENTERS FOR MEDICARE AND MEDICAID FOR DENTAL COVERAGE. WE CONTINUED TO ADVANCE OUR RELATIONSHIPS WITH CLINICIANS, RESEARCHERS, GOVERNMENT SCIENTISTS, AND CORPORATE SCIENTISTS WHO ARE INTERESTED IN SJOGREN'S. IN JUNE 2025, THE FOUNDATION WORK TO CHANGE THE DISEASE NAME FROM SJOGREN'S SYNDROME TO SJOGREN'S DISEASE WAS INTERNATIONALLY CONFIRMED BY THE PUBLICATION OF THE INITIATIVE IN A PEER-REVIEWED PUBLICATION NATURE REVIEWS RHEUMATOLOGY.
    Expenses $1,216,516
  • OTHER PROGRAMS WITHIN THE FOUNDATION INCLUDE STRATEGIC GOVERNANCE PROJECTS; PATIENT MEMBERSHIP AND SUPPORT PROGRAMS FOR PEOPLE LIVING WITH SJOGREN'S; HEALTHCARE PROVIDER EDUCATION SUCH AS CREATING CLINICAL PRACTICE GUIDELINES AND ABSTRACTS, PARTNERING WITH EXTERNAL CME PROVIDERS TO CREATE SJOGREN'S COURSES, AND PRESENTING AT PROFESSIONAL CONFERENCES; INDUSTRY SUPPORT AND CO-AUTHORSHIP ON ABSTRACTS TO ENSURE ACCURATE UNDERSTANDING OF SJOGREN'S AND THE NEED FOR EARLY PATIENT INVOLVEMENT IN RESEARCH AND ENCOURAGING FURTHER DEVELOPMENT OF SJOGREN'S THERAPIES FOR ALL PATIENTS.
    Expenses $851,838 · revenue $395,510

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in June, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025June 30, 2026November 16, 2026Not due yet
2024June 30, 2025November 17, 2025990 on file
2023June 30, 2024November 15, 2024990 on file

IRS record

EIN
11-2779073
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
1986
Accounting year ends
June
Files
Form 990 or 990-EZ
Assets (IRS master file)
$5,240,223
Income (IRS master file)
$5,382,573

Filing history

FormYear endedRevenueExpensesAssetsReturn
990June 2025$5,277,586$4,223,979$5,240,223XML
990-TJune 2025–––IRS
990June 2024$3,497,666$3,174,412$4,167,805XML
990-TJune 2024–––IRS
990June 2023$3,324,713$2,841,846$3,694,277IRS
990-TJune 2023–––IRS
990June 2022–––IRS
990-TJune 2022–––IRS
990June 2021–––IRS
990-TJune 2021–––IRS
990June 2019–––IRS
990June 2018–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 11-2779073).

Questions about SJOGRENS FOUNDATION INC

What is the EIN of SJOGRENS FOUNDATION INC?
The employer identification number (EIN) of SJOGRENS FOUNDATION INC is 11-2779073.
Is SJOGRENS FOUNDATION INC tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1986.
Are donations to SJOGRENS FOUNDATION INC tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does SJOGRENS FOUNDATION INC file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of SJOGRENS FOUNDATION INC due?
The return for tax year 2025 (the year ending June 30, 2026) is due November 16, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
When did SJOGRENS FOUNDATION INC last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended June 2025.
Who is the principal officer of SJOGRENS FOUNDATION INC?
The 990 for the year ended June 30, 2025 names JANET CHURCH.
Who are the officers and directors of SJOGRENS FOUNDATION INC?
The 990 for the year ended June 30, 2025 lists 23 people; 6 received compensation from the organization, the highest $368,360 (JANET CHURCH, PRESIDENT AND CEO).
How much revenue does SJOGRENS FOUNDATION INC have?
On its 990 for the year ended June 30, 2025 it reported revenue of $5,277,586, expenses of $4,223,979 and total assets of $5,240,223 at year end.

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