Nonprofit · EIN 04-3511754
CHOROIDEREMIA RESEARCH FOUNDATION INC
Tax-exempt · SPRINGFIELD, MA 01109
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| June 30, 2025 | 990 | $964,837 | $819,056 | $145,781 | $956,687 | $0 | $956,687 |
| June 30, 2024 | 990 | $699,069 | $689,478 | $9,591 | $810,811 | $0 | $810,811 |
| June 30, 2023 | 990 | $560,892 | $745,500 | -$184,608 | $801,239 | $0 | $801,239 |
Financial details: 990 for the year ended June 30, 2025
Revenue
- Contributions, gifts and grants
- $932,115
- Program service revenue
- $0
- Investment income
- $30,908
- Other revenue
- $1,814
Expenses
- Grants and similar amounts paid
- $418,922
- Compensation of officers, directors and key employees
- $100,280
- Other salaries and wages
- $85,031
- Salaries, compensation and benefits (total)
- $199,909
- Professional fundraising fees
- $0
- Legal fees
- $250
- Accounting fees
- $13,273
- Depreciation
- $215
- Program services (functional)
- $656,983
- Management and general (functional)
- $73,024
- Fundraising (functional)
- $89,049
Balance sheet and other
- Total assets, start of year
- $810,811
- Total assets, end of year
- $956,687
- Total liabilities, end of year
- $0
- Net assets, end of year
- $956,687
- Land, buildings and equipment
- $1,182
- Net assets without donor restrictions
- $364,797
- Net assets with donor restrictions
- $591,890
- Gross receipts
- $964,837
- Employees
- 6
- Volunteers
- 200
- Year formed
- 2000
- State of legal domicile
- MA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended June 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| KATHI WAGNER | EXECUTIVE DIRECTOR | 40 | $107,780 |
| Neal Bench | President Trustee or director, Officer | 1 | $0 |
| John Trott | Vice President Trustee or director, Officer | 1 | $0 |
| Michael Mullen | Vice President Trustee or director, Officer | 1 | $0 |
| Tara Cassidy-Driscoll | Director Trustee or director | 1 | $0 |
| Brian Mayer | Secretary Trustee or director, Officer | 1 | $0 |
| Michael Laengsfeld | Director Trustee or director | 1 | $0 |
| Jason McKinney | Director Trustee or director | 1 | $0 |
| Dr John-Ross Rizzo | Director Trustee or director | 1 | $0 |
| Liza Zumsteg | Treasurer Trustee or director | 1 | $0 |
| Jon Salois | Director Trustee or director | 1 | $0 |
| Kayla Schiller | Treasurer Trustee or director, Officer | 1 | $0 |
| Bob Hillier | DIRECTOR Trustee or director | 1 | $0 |
| Brian Counter | Director Trustee or director | 1 | $0 |
| Aurelie Harp | Director Trustee or director | 1 | $0 |
6 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Yamil Rosete-Rodriguez | Director Trustee or director | 1 | $0 |
| Sarah Thompson | Director Trustee or director | 1 | $0 |
| Mary Porter | Director Trustee or director | 1 | $0 |
| Rachel Oster | Director Trustee or director | 1 | $0 |
| Naama Goldman-Einhorn | Director Trustee or director | 1 | $0 |
| Thomas Driscoll | Director Trustee or director | 1 | $0 |
990 for the year ended June 30, 2024: 21 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Kathi Wagner | Executive Dir. Officer | 40 | $97,948 |
| Tara Cassidy-Driscoll | Director Trustee or director | 1 | $0 |
| Michael Laengsfeld | Director Trustee or director | 1 | $0 |
| Jason McKinney | Director Trustee or director | 1 | $0 |
| Dr John Ross Rizzo | Director Trustee or director | 1 | $0 |
| Craig Rowley | Director Trustee or director | 1 | $0 |
| Jon Salois | Director Trustee or director | 1 | $0 |
| Bob Hiller | DIRECTOR Trustee or director | 1 | $0 |
| Brian Counter | Director Trustee or director | 1 | $0 |
| Aurelie Harp | Director Trustee or director | 1 | $0 |
| Yamil Rosete Rodriguez | Director Trustee or director | 1 | $0 |
| Stephanie Vetere Sims | Director Trustee or director | 1 | $0 |
| Mary Porter | Director Trustee or director | 1 | $0 |
| Rachel Oster | Director Trustee or director | 1 | $0 |
| Naama Goldman | Director Trustee or director | 1 | $0 |
| Thomas Driscoll | Director Trustee or director | 1 | $0 |
| Neal Bench | President Officer | 1 | $0 |
| John Trott | 1st Vice Pres. Officer | 1 | $0 |
| Michael Mullen | 2nd Vice Pres. Officer | 1 | $0 |
| Brian Mayer | Secretary Officer | 1 | $0 |
| Kayla Schiller | Treasurer Officer | 1 | $0 |
990 for the year ended June 30, 2023: 19 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| KATHI WAGNER | EXECUTIVE DIRECTOR Officer, Key employee | 40 | $93,474 |
| MICHAEL LAENGSFELD | DIRECTOR Trustee or director | 1 | $0 |
| JASON MCKINNEY | DIRECTOR Trustee or director | 1 | $0 |
| JOHN OSTER | DIRECTOR Trustee or director | 1 | $0 |
| TRACEY PRETORIUS | DIRECTOR Trustee or director | 1 | $0 |
| DR JOHN ROSS RIZZO | DIRECTOR Trustee or director | 1 | $0 |
| CRAIG ROWLEY | DIRECTOR Trustee or director | 1 | $0 |
| JONATHAN SALOIS | DIRECTOR Trustee or director | 1 | $0 |
| ROBERT HILLIER | DIRECTOR Trustee or director | 1 | $0 |
| DR STEPHANIE VETERE SIMS | DIRECTOR Trustee or director | 1 | $0 |
| BRIAN COUNTER | DIRECTOR Trustee or director | 1 | $0 |
| AURELIE HARP | DIRECTOR Trustee or director | 1 | $0 |
| YAMIL ROSETE RODRIGUEZ | DIRECTOR Trustee or director | 1 | $0 |
| NEAL BENCH | PRESIDENT Officer | 1 | $0 |
| JOHN TROTT | 1ST VICE PRESIDENT Officer | 1 | $0 |
| MICHAEL MULLEN | 2ND VICE PRESIDENT Officer | 1 | $0 |
| TARA CASSIDY-DRISCOLL | TREASURER Officer | 1 | $0 |
| BRIAN MAYER | SECRETARY Officer | 1 | $0 |
| KAYLA SCHILLER | TREASURER Officer | 1 | $0 |
Address and contacts
- Address (IRS master file)
- 23 E BRUNDRETH ST, SPRINGFIELD, MA 01109-2110
- Principal officer (990 for 2024)
- Kathi Wagner
- Signed the 990
- Kathi Wagner, Executive Dir.
- Phone
- (800) 210-0233
- Website
- www.curechm.org
- Return prepared by
- LaPier Dillon & Associates PC
Mission
To raise funds in support of scientific research leading to a treatment or cure of Choroideremia, a hereditary retinal-degenerative disease that causes blindness; to educate people affected by the disease and the public.
Program accomplishments
- To raise funds in support of scientific research leading to a treatment or cure of Choroideremia, a hereditary retinal-degenerative disease that causes blindness; to educate people affected by the disease and the public.Expenses $656,983
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in June, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | June 30, 2026 | November 16, 2026 | Not due yet |
| 2024 | June 30, 2025 | November 17, 2025 | 990 on file |
| 2023 | June 30, 2024 | November 15, 2024 | 990 on file |
IRS record
- EIN
- 04-3511754
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2001
- Accounting year ends
- June
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Science and technology (U05)
- Assets (IRS master file)
- $956,687
- Income (IRS master file)
- $964,837
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | June 2025 | $964,837 | $819,056 | $956,687 | XML |
| 990 | June 2024 | $699,069 | $689,478 | $810,811 | XML |
| 990 | June 2023 | $560,892 | $745,500 | $801,239 | XML |
| 990 | June 2022 | $664,881 | $584,677 | $985,906 | IRS |
| 990 | June 2021 | – | – | – | IRS |
| 990 | June 2019 | – | – | – | IRS |
| 990 | June 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 04-3511754).
Questions about CHOROIDEREMIA RESEARCH FOUNDATION INC
- What is the EIN of CHOROIDEREMIA RESEARCH FOUNDATION INC?
- The employer identification number (EIN) of CHOROIDEREMIA RESEARCH FOUNDATION INC is 04-3511754.
- Is CHOROIDEREMIA RESEARCH FOUNDATION INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2001.
- Are donations to CHOROIDEREMIA RESEARCH FOUNDATION INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does CHOROIDEREMIA RESEARCH FOUNDATION INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of CHOROIDEREMIA RESEARCH FOUNDATION INC due?
- The return for tax year 2025 (the year ending June 30, 2026) is due November 16, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did CHOROIDEREMIA RESEARCH FOUNDATION INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended June 2025.
- Who is the principal officer of CHOROIDEREMIA RESEARCH FOUNDATION INC?
- The 990 for the year ended June 30, 2025 names Kathi Wagner.
- Who are the officers and directors of CHOROIDEREMIA RESEARCH FOUNDATION INC?
- The 990 for the year ended June 30, 2025 lists 21 people; 1 received compensation from the organization, the highest $107,780 (KATHI WAGNER, EXECUTIVE DIRECTOR).
- How much revenue does CHOROIDEREMIA RESEARCH FOUNDATION INC have?
- On its 990 for the year ended June 30, 2025 it reported revenue of $964,837, expenses of $819,056 and total assets of $956,687 at year end.
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