2024-03-02T01:39:30-00:00 2023-06-30 320048525 LaPier Dillon & Associates PC 333 Elm Street W Springfield MA 01089 990 2022-07-01 043511754 CHOROIDEREMIA RESEARCH FOUNDATION INC CHOR 8002100233 23 E BRUNDRETH STREET SPRINGFIELD MA 011092110 Kathi Wagner Executive Director 8002100233 2023-12-01 true Kathi Wagner XXX-XX-XXXX Nicholas LaPier P01227383 4137320200 2023-12-01 2 AAL1 IAL1 2022 2023-04-26 12:10:37Z Kathi Wagner 1901 MAGDALENE MANOR DRIVE TAMPA FL 33613 560892 false X www.curechm.org X 2000 MA To raise funds in support of scientific research leading to a treatment or cure of Choroideremia, a hereditary retinal-degenerative disease that causes blindness to educate people affected by the disease and the public. 18 18 7 0 652492 536725 707 0 11682 24167 0 664881 560892 274353 359320 0 175222 184209 0 90989 135102 201971 584677 745500 80204 -184608 985906 801239 0 985906 801239 To raise funds in support of scientific research leading to a treatment or cure of Choroideremia, a hereditary retinal-degenerative disease that causes blindness to educate people affected by the disease and the public. false false 597995 TO PROVIDE GRANTS FOR CHOROIDEREMIA RESEARCH AND PATIENT AND FAMILY EDUCATION AND ADVOCACY PROGRAMS 597995 true true false false false false false false false true true false true false false false true false false false true true false false false false false true false false false false false false false false false false false false false false false false false false false false false false true 0 0 true 7 true false false false false false false false false false false false false X 18 18 false false false false true true true true true false false false true true true true true true true false false NY X X X CORY A MACDONALD 4135235393 23 EAST BRUNDRETH SPRINGFIELD MA 01109 KATHI WAGNER EXECUTIVE DIRECTOR 040.00 X X 93474 0 0 MICHAEL LAENGSFELD DIRECTOR 001.00 X 0 0 0 JASON MCKINNEY DIRECTOR 001.00 X 0 0 0 JOHN OSTER DIRECTOR 001.00 X 0 0 0 TRACEY PRETORIUS DIRECTOR 001.00 X 0 0 0 DR JOHN ROSS RIZZO DIRECTOR 001.00 X 0 0 0 CRAIG ROWLEY DIRECTOR 001.00 X 0 0 0 JONATHAN SALOIS DIRECTOR 001.00 X 0 0 0 ROBERT HILLIER DIRECTOR 001.00 X 0 0 0 DR STEPHANIE VETERE SIMS DIRECTOR 001.00 X 0 0 0 BRIAN COUNTER DIRECTOR 001.00 X 0 0 0 AURELIE HARP DIRECTOR 001.00 X 0 0 0 YAMIL ROSETE RODRIGUEZ DIRECTOR 001.00 X 0 0 0 NEAL BENCH PRESIDENT 001.00 X 0 0 0 JOHN TROTT 1ST VICE PRESIDENT 001.00 X 0 0 0 MICHAEL MULLEN 2ND VICE PRESIDENT 001.00 X 0 0 0 TARA CASSIDY-DRISCOLL TREASURER 001.00 X 0 0 0 BRIAN MAYER SECRETARY 001.00 X 0 0 0 KAYLA SCHILLER TREASURER 001.00 X 0 0 0 93474 false false false 536725 536725 24167 560892 359320 359320 0 0 0 93474 56393 19134 17947 0 75786 45729 15508 14549 0 0 14949 9020 3059 2870 0 125 125 8524 8524 0 0 77 17 60 0 15516 2426 2705 10385 16156 6947 4663 4546 0 0 0 0 105730 105730 0 0 5613 3387 1148 1078 2681 1617 549 515 Special Events 6574 2110 4464 Fundraising Expense 20985 20985 Bank Fees 12047 295 11752 Memberships 3928 3928 4015 1371 806 1838 745500 597995 56516 90989 158944 82361 2195 2195 821349 718878 5613 985906 801239 0 0 X 658464 440101 327442 361138 985906 801239 985906 801239 -184608 -59 X X false true X true false X 409797 538010 671033 652492 536725 2808057 409797 538010 671033 652492 536725 2808057 106303 257597 297710 289392 101726 1052728 106303 257597 297710 289392 101726 1052728 1755329 364 9828 355 11682 24167 46396 0 364 9828 355 11682 24167 46396 0 0 410161 547838 671388 664174 560892 2854453 0.61490 0.59970 0.01630 0.00800 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED false 290342 31700 322042 250300 40042 290342 250300 250300 1.00000 false false 2195 2195 Financial derivatives and other financial products Closely-held equity interests Investments 718878 F 718878 Federal income taxes 560833 -59 -59 560892 560892 745500 745500 745500 V 4 The Organizations investments consist of a donor restricted endowment fund and funds functioning as quasi-endowment funds. Donor restricted endowments consist of gifts received with a donor stipulation that require the funds to be invested in perpetuity. Quasi-endowment funds consist of Board designated funds. Board designated funds consist of monies internally designated. true Europe Including Iceland and Greenland FOR CHOROIDEREMIA RESEARCH 7391 WIRE TRANSFER Europe Including Iceland and Greenland FOR CHOROIDEREMIA RESEARCH 55160 WIRE TRANSFER North America FOR CHOROIDEREMIA RESEARCH 2000 WIRE TRANSFER North America FOR CHOROIDEREMIA RESEARCH 31558 WIRE TRANSFER Europe Including Iceland and Greenland FOR CHOROIDEREMIA RESEARCH 38375 WIRE TRANSFER Europe Including Iceland and Greenland FOR CHOROIDEREMIA RESEARCH 61660 WIRE TRANSFER Middle East and North Africa FOR CHOROIDEREMIA RESEARCH 75785 WIRE TRANSFER 7 false false false false false false true RENOVATE BIOSCIENCES INC 50000 UNIVERSITY OF ROCHESTER 7391 UNIVERSITY OF PHILADELPHIA 30000 3 Form 990, Part VI, Section B, Line 11 THE BOARD MEMBERS ARE PROVIDED WITH A COPY OF THE 990 FOR REVIEW BEFORE APPROVAL Form 990, Part XII, Line 2C COORDINATION OF THE AUDIT IS BY THE DIRECTOR, EXECUTIVE DIRECTOR, AND TREASURER, THE FINANCE COMMITTEE AND THE BOARD OF DIRECTORS ARE ACTIVELY INVOLVED AS WELL Form 990, Part IV, Section B, Line C THE BOARD OF DIRECTORS REGULARLY REVIEWS THE POLICY AND ANY POSSIBLE CONFLICTS OF INTEREST. Form 990, Part VI, Section B, Line 15A THE BOARD OF DIRECTORS APPROVES COMPENSATION FOR THE EXECUTIVE DIRECTOR. Form 990, Part VI, Section C, Line 19 GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICIES, AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST BY WRITING KATHI WAGNER, EXECUTIVE DIRECTOR AT KATHIWAGNERCURECHM.ORG OR BY PHONE AT 800-210-0233. Form 990, Part I, Line 5 OF THE 7 LISTED INDIVIDUALS EMPLOYED BY THE ORGANIZATION, 6 ARE PART TIME AND 1 IS FULL TIME. Form 990, Part IV, Line 15 SCHEDULE F PART II GRANTS TO ORGANIZATIONS OUTSIDE THE UNITED STATES 1 FUNDACAO CHAMPALIMAUD - 7,391, 2 UNIVERSITY OF MELBOURNE - 55,160, 3 INSTITUTE OF NEUROSCIENCE OF MONTPELLIER - 2,000, 4 GOVERNORS OF UNIVERSITY OF ALBERTA - 31,558, 5 ANGILA RUSKIN UNIVERSITY - 38,375, 6 AGENCE COMPTABLE UNIVERSITE - 61,660, 7 HADASSAH-HEBREW UNIVERSITY MEDICAL CENTER - 75,785.