Nonprofit · EIN 04-3013709
NEUROFIBROMATOSIS INCORPORATED NORTHEAST
Tax-exempt · BURLINGTON, MA 01803
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $675,651 | $685,189 | -$9,538 | $900,101 | $131,594 | $768,507 |
| December 31, 2023 | 990 | $558,976 | $642,447 | -$83,471 | $784,530 | $25,453 | $759,077 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $435,686
- Program service revenue
- $0
- Investment income
- $24,101
- Net gain from sales of assets
- $3,157
- Net income from fundraising events
- $213,723
- Other revenue
- $215,864
Expenses
- Grants and similar amounts paid
- $56,799
- Compensation of officers, directors and key employees
- $138,873
- Other salaries and wages
- $198,033
- Salaries, compensation and benefits (total)
- $368,840
- Professional fundraising fees
- $0
- Accounting fees
- $14,945
- Occupancy
- $38,003
- Depreciation
- $6,876
- Program services (functional)
- $396,527
- Management and general (functional)
- $141,373
- Fundraising (functional)
- $147,289
Balance sheet and other
- Total assets, start of year
- $814,413
- Total assets, end of year
- $900,101
- Total liabilities, end of year
- $131,594
- Net assets, end of year
- $768,507
- Land, buildings and equipment
- $8,468
- Publicly traded securities
- $351,565
- Net assets without donor restrictions
- $742,027
- Net assets with donor restrictions
- $26,480
- Gross receipts
- $910,829
- Employees
- 8
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| SHARON KLEIN | EXECUTIVE DI Officer | 40 | $138,873 | $4,176 |
| JOHN MANTH | PRESIDENT Trustee or director, Officer | 1 | $0 | $0 |
| ANDRES LESSING | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| BENJAMIN BUTTRICK | CLERK Trustee or director, Officer | 1 | $0 | $0 |
| MARYBETH SHAW | DIRECTOR Trustee or director | 1 | $0 | $0 |
| LORI RYAN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| JOHN SHEA | DIRECTOR Trustee or director | 1 | $0 | $0 |
| JUSTIN JORDAN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| FRANK BUONO | DIRECTOR Trustee or director | 1 | $0 | $0 |
| ALEXANDRA CELLUCCI | DIRECTOR Trustee or director | 1 | $0 | $0 |
| PATRICK CALLAHAN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| NICOLE ULLRICH | DIRECTOR Trustee or director | 1 | $0 | $0 |
| JOHN THOMSON | DIRECTOR Trustee or director | 1 | $0 | $0 |
| THERESA OWHADY | DIRECTOR Trustee or director | 1 | $0 | $0 |
| KAREN PELUSO | DIRECTOR Trustee or director | 1 | $0 | $0 |
2 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| KRISTINA RATH | DIRECTOR Trustee or director | 1 | $0 |
| TAMARA INDIANER | DIRECTOR Trustee or director | 1 | $0 |
990 for the year ended December 31, 2023: 17 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| SHARON KLEIN | EXECUTIVE DI Officer | 40 | $133,692 | $4,305 |
| FRANK BUONO | DIRECTOR Trustee or director | – | $0 | $0 |
| BEN BUTTRICK | DIRECTOR Trustee or director | – | $0 | $0 |
| PATRICK CALLAHAN | DIRECTOR Trustee or director | – | $0 | $0 |
| ALEXANDRA POWERS CELLUCCI | DIRECTOR Trustee or director | – | $0 | $0 |
| TAMARA INDIANER | DIRECTOR Trustee or director | – | $0 | $0 |
| JUSTIN JORDAN | DIRECTOR Trustee or director | – | $0 | $0 |
| ANDRES LESSING | DIRECTOR Trustee or director | – | $0 | $0 |
| ANDRES LESSING | TREASURER Trustee or director, Officer | – | $0 | $0 |
| MELISSA SHEA MALERBA | DIRECTOR/ SE Trustee or director, Officer | – | $0 | $0 |
| JOHN MANTH | CHAIRPERSON Trustee or director, Officer | – | $0 | $0 |
| THERESA OWHADY | DIRECTOR Trustee or director | – | $0 | $0 |
| NICOLE ULLRICH MD PHD | DIRECTOR Trustee or director | – | $0 | $0 |
| KRISTINA RATH | DIRECTOR Trustee or director | – | $0 | $0 |
| MARYBETH SHAW | DIRECTOR Trustee or director | – | $0 | $0 |
| JOHN SHEA | DIRECTOR Trustee or director | – | $0 | $0 |
| JOHN THOMSON | DIRECTOR Trustee or director | – | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 9 BEDFORD ST 3RD FLOOR, BURLINGTON, MA 01803-3755
- Principal officer (990 for 2024)
- JOHN MANTH, 417 STANLEY STREET, NORTH TONAWANDA, NY 14120
- Signed the 990
- SHARON KLEIN, EXECUTIVE DIRECTOR
- Phone
- (781) 272-9936
- Website
- WWW.NFNORTHEAST.ORG
- Return prepared by
- KING MCNAMARA MORIARTY LLP
Mission
THE DIAGNOSIS AND TREATMENT OF NEUROFIBROMATOSIS AND TO SUPPORT PROGRAMS INTENDED TO INCREASE AWARENESS OF NEUROFIBROMATOSIS.
Program accomplishments
- RESEARCH: SUPPORT AND RESEARCH WITH GRANTS FOR THE STUDY INTO THE CAUSES, TREATMENT AND CURE OF NEUROFIBROMATOSIS.Expenses $42,799 · grants $42,799
- THE ORGANIZATION SERVES AS A VALUABLE RESOURCE FOR INDIVIDUALS AFFECTED BY NEUROFIBROMATOSIS, HELPING PATIENTS LOCATE EXPERIENCED PHYSICIANS AND SPECIALISTS. IT PROMOTES VOLUNTEER INVOLVEMENT AT EVENTS WHERE PATIENTS CAN CONNECT WITH OTHERS WHO SHARE SIMILAR EXPERIENCES. THROUGH ORGANIZED GATHERINGS, THE ORGANIZATION BRINGS TOGETHER PATIENTS, FAMILIES, AND FRIENDS TO SHARE MEDICAL UPDATES, RESEARCH DEVELOPMENTS, AND COMMUNITY SUPPORT. ADDITIONALLY, IT PROVIDES SCHOLARSHIPS FOR PERSONS WITH NEOUROFIBROMATOSIS TO CONTINUE THEIR EDUCATION AFTER HIGH SCHOOL AND TO PURSUE AN UNDERGRADUATE DEGREE.Expenses $328,728 · grants $14,000
- LOBBYING: THE ORGANIZATION LOBBIED CONGRESS FOR INCREASED FUNDING FOR NEUROFIBROMATOSIS RESEARCH AT BOTH THE NATIONAL INSTITUTE OF HEALTH AND THE ARMY'S NEUROFIBROMATOSIS RESEARCH PROGRAM.Expenses $25,000
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 04-3013709
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (509(a)(2))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1989
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Assets (IRS master file)
- $900,101
- Income (IRS master file)
- $910,829
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $675,651 | $685,189 | $900,101 | XML |
| 990 | December 2023 | $558,976 | $642,447 | $784,530 | XML |
| 990 | December 2022 | $616,977 | $651,825 | $842,757 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
| 990 | December 2017 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 04-3013709).
Questions about NEUROFIBROMATOSIS INCORPORATED NORTHEAST
- What is the EIN of NEUROFIBROMATOSIS INCORPORATED NORTHEAST?
- The employer identification number (EIN) of NEUROFIBROMATOSIS INCORPORATED NORTHEAST is 04-3013709.
- Is NEUROFIBROMATOSIS INCORPORATED NORTHEAST tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1989.
- Are donations to NEUROFIBROMATOSIS INCORPORATED NORTHEAST tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does NEUROFIBROMATOSIS INCORPORATED NORTHEAST file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of NEUROFIBROMATOSIS INCORPORATED NORTHEAST due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did NEUROFIBROMATOSIS INCORPORATED NORTHEAST last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of NEUROFIBROMATOSIS INCORPORATED NORTHEAST?
- The 990 for the year ended December 31, 2024 names JOHN MANTH.
- Who are the officers and directors of NEUROFIBROMATOSIS INCORPORATED NORTHEAST?
- The 990 for the year ended December 31, 2024 lists 17 people; 1 received compensation from the organization, the highest $138,873 (SHARON KLEIN, EXECUTIVE DI).
- How much revenue does NEUROFIBROMATOSIS INCORPORATED NORTHEAST have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $675,651, expenses of $685,189 and total assets of $900,101 at year end.
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