2025-11-14T09:56:37-05:00 2024-12-31 042686846 KING MCNAMARA MORIARTY LLP 473 WASHINGTON STREET NORWOOD MA 020622330 990 2024-01-01 043013709 NEUROFIBROMATOSIS INC NORTHEAST NEUR 7812729936 9 BEDFORD STREET BURLINGTON MA 01803 SHARON KLEIN EXECUTIVE DIRECTOR 7812729936 2025-11-13 false JOSEPH B MORIARTY CPA P00043600 7817696300 2025-11-14 2024 2025-03-06 01:10:19Z JOHN MANTH 417 STANLEY STREET NORTH TONAWANDA NY 14120 910829 false X WWW.NFNORTHEAST.ORG X NEUROFIBROMATOSIS, INC. NORTHEAST IS COMMITTED TO ADVANCING RESEARCH INTO THE CAUSES, TREATMENT, AND CURE OF NEUROFIBROMATOSIS. THE ORGANIZATION RAISES FUNDS TO SUPPORT SCIENTIFIC RESEARCH, PROVIDES VITAL SUPPORT SERVICES TO INDIVIDUALS LIVING WITH THE CONDITION AND THEIR FAMILIES, AND HELPS SUSTAIN CLINICS DEDICATED TO THE DIAGNOSIS AND CARE OF NEUROFIBROMATOSIS PATIENTS. THROUGH EDUCATION AND OUTREACH, THE ORGANIZATION ALSO WORKS TO INCREASE PUBLIC AWARENESS AND UNDERSTANDING OF THE DISEASE. 16 16 8 0 383694 435686 0 1150 24101 174132 215864 558976 675651 20000 56799 0 400169 368840 0 147289 222278 259550 642447 685189 -83471 -9538 814413 900101 55336 131594 759077 768507 THE DIAGNOSIS AND TREATMENT OF NEUROFIBROMATOSIS AND TO SUPPORT PROGRAMS INTENDED TO INCREASE AWARENESS OF NEUROFIBROMATOSIS. false false 42799 42799 RESEARCH: SUPPORT AND RESEARCH WITH GRANTS FOR THE STUDY INTO THE CAUSES, TREATMENT AND CURE OF NEUROFIBROMATOSIS. 328728 14000 THE ORGANIZATION SERVES AS A VALUABLE RESOURCE FOR INDIVIDUALS AFFECTED BY NEUROFIBROMATOSIS, HELPING PATIENTS LOCATE EXPERIENCED PHYSICIANS AND SPECIALISTS. IT PROMOTES VOLUNTEER INVOLVEMENT AT EVENTS WHERE PATIENTS CAN CONNECT WITH OTHERS WHO SHARE SIMILAR EXPERIENCES. THROUGH ORGANIZED GATHERINGS, THE ORGANIZATION BRINGS TOGETHER PATIENTS, FAMILIES, AND FRIENDS TO SHARE MEDICAL UPDATES, RESEARCH DEVELOPMENTS, AND COMMUNITY SUPPORT. ADDITIONALLY, IT PROVIDES SCHOLARSHIPS FOR PERSONS WITH NEOUROFIBROMATOSIS TO CONTINUE THEIR EDUCATION AFTER HIGH SCHOOL AND TO PURSUE AN UNDERGRADUATE DEGREE. 25000 LOBBYING: THE ORGANIZATION LOBBIED CONGRESS FOR INCREASED FUNDING FOR NEUROFIBROMATOSIS RESEARCH AT BOTH THE NATIONAL INSTITUTE OF HEALTH AND THE ARMY'S NEUROFIBROMATOSIS RESEARCH PROGRAM. 396527 true true false true false false false false false false true false false true true true false false false false false false false false true false false true true false false false false false false false false false false false false false false false false false false true 6 0 false 8 true false false false false false false false false false false false false false false X 16 16 false false false false false false false true true false false false true true true true true true false false MA X X X SHARON KLEIN 7812729936 188 HUDSON ROAD BOLTON MA 01740 JOHN MANTH PRESIDENT 1.00 X X 0 0 0 ANDRES LESSING TREASURER 1.00 X X 0 0 0 BENJAMIN BUTTRICK CLERK 1.00 X X 0 0 0 SHARON KLEIN EXECUTIVE DI 40.00 X 138873 0 4176 MARYBETH SHAW DIRECTOR 1.00 X 0 0 0 LORI RYAN DIRECTOR 1.00 X 0 0 0 JOHN SHEA DIRECTOR 1.00 X 0 0 0 JUSTIN JORDAN DIRECTOR 1.00 X 0 0 0 FRANK BUONO DIRECTOR 1.00 X 0 0 0 ALEXANDRA CELLUCCI DIRECTOR 1.00 X 0 0 0 PATRICK CALLAHAN DIRECTOR 1.00 X 0 0 0 NICOLE ULLRICH DIRECTOR 1.00 X 0 0 0 JOHN THOMSON DIRECTOR 1.00 X 0 0 0 THERESA OWHADY DIRECTOR 1.00 X 0 0 0 KAREN PELUSO DIRECTOR 1.00 X 0 0 0 KRISTINA RATH DIRECTOR 1.00 X 0 0 0 TAMARA INDIANER DIRECTOR 1.00 X 0 0 0 138873 4176 1 false false false 256091 179595 435686 20944 20944 132245 129088 3157 3157 3157 319813 256091 106090 213723 213723 MISCELLANEOUS 2141 2141 2141 675651 5298 234667 42799 42799 14000 14000 138873 83323 27775 27775 198033 115574 46437 36022 4632 2964 834 834 27302 16149 5993 5160 14945 14945 25000 25000 61691 61691 23322 6013 2579 14730 38003 31032 6408 563 6876 6876 6972 6972 OTHER PROGRAM EXPENSES 44396 44396 BANK FEES 20857 20857 PUBLIC AWARENESS 10109 10109 FAMILY SUPPORT 5143 5143 2236 25 1697 514 685189 396527 141373 147289 242846 109352 177144 293550 21052 29917 20967 20126 11658 4950 8468 324903 351565 4770 29883 95147 814413 900101 25453 34681 4062 29883 92851 55336 131594 X 628619 742027 130458 26480 759077 768507 814413 900101 -9538 18968 X true X false true X 376585 574054 360789 383694 435686 2130808 61560 246431 369888 359842 319813 1357534 438145 820485 730677 743536 755499 3488342 118489 118489 40075 162759 145892 348726 40075 162759 145892 118489 467215 3021127 5248 5655 13556 14248 20944 59651 5248 5655 13556 14248 20944 59651 2141 2141 443393 826140 744233 757784 778584 3550134 0.85100 0.84950 0.02000 0.01000 X PART III, LINE 12 MISCELLANEOUS 2,141 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED false false false false false false false false true 25000 25000 false SCHEDULE C, PART II-B, LINE 1 THE ORGANIZATION VISITS WITH LEGISLATORS AND/OR THEIR STAFF IN WASHINGTON DC OR THEIR OFFICES. THE ORGANIZATION ENCOURAGES LEGISLATORS TO CONTINUE THE GOVERMENT'S INVESTMENT IN NEUROFIBROMATOSIS RESEARCH. NF RESEARCH PROJECTS ARE CURRENTLY BEING CONDUCTED AT THE NATIONAL INSTITUTE OF HEALTH AND US ARMY MEDICAL RESEARCH AND MATERIAL COMMAND. NEUROFIBROMATOSIS, INC., NORTHEAST DOES NOT RECEIVE ANY FUNDS AS A RESULT OF THIS EFFORT. HOWEVER, AS A RESULT OF THE LOBBYING, NF RESEARCH AT THE FEDERAL LEVEL HAS INCREASED. 20126 11658 8468 8468 RIGHT OF USE ASSET 95147 95147 LEASE LIABILITY 92851 92851 X SCHEDULE D, PAGE 3, PART X MANAGEMENT HAS EVALUATED SIGNIFICANT TAX POSITIONS AGAINST THE CRITERIA ESTABLISHED BY PROFESSIONAL STANDARDS AND BELIEVES THERE ARE NO SUCH TAX POSITIONS REQUIRING ACCOUNTING RECOGNITION IN THE FINANCIAL STATEMENTS. ANY CHANGES IN TAX POSITIONS WILL BE RECORDED WHEN THE ULTIMATE OUTCOME BECOMES KNOWN. STEP2CURE 180091 56835 123256 16568 MALERBA/COMITTE 109580 74903 34677 9173 1800 910 6 263015 117662 145353 26530 4909 38188 552686 249400 303286 35703 4909 1800 55666 98078 205208 false MASSACHUSETTS GENERAL HOSPITAL 165 CAMBRIDGE STREET BOSTON MA 02114 501(C) 40000 RESEARCH SCHOLARSHIPS 14 14000 SCHEDULE I, PAGE 4, PART IV SCHOLARSHIPS TO BE USED FOR HIGHER EDUCATION COSTS. FORM 990, PAGE 6, PART VI, LINE 11B THE FORM 990 IS EMAILED TO THE GOVERNING BODY MEMBERS VIA CONFIRM RECEIPT EMAIL. THE ORGANIZATION'S GOVERNING BODY REVIEWS THE FORM 990 FORM 990, PAGE 6, PART VI, LINE 12C THE ORGANIZATION REQUIRES ALL BOARD MEMBERS TO READ AND SIGN THE CONFLICT OF INTEREST POLICY. THEY REVIEW AND SIGN ANNUALLY. FORM 990, PAGE 6, PART VI, LINE 15A THE BOARD MEETS ANNUALLY AND REVIEWS THE EXECUTIVE DIRECTOR'S PERFORMANCE AND COMPARES THE SALARY TO OTHER EXECUTIVES DIRECTORS AT SIMILAR ORGANIZATIONS. BASED ON THIS ANALYSIS, THE EXECUTIVE DIRECTOR'S SALARY IS DETERMINED AND APPROVED BY THE BOARD OF DIRECTORS. FORM 990, PAGE 6, PART VI, LINE 19 THE ORGANIZATION'S GOVERNING DOCUMENTS AND FORM 990 ARE AVAILABLE FOR INSPECTION AT THE ORGANIZATIONS OFFICE.