Nonprofit · EIN 99-1893360
INTERNATIONAL CONSORTIUM ON NEWBORN SEQUENCING INC
Also known as ICONS
Tax-exempt · CHARLESTOWN, MA 02129
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| October 31, 2025 | 990 | $405,799 | $331,457 | $74,342 | $181,967 | $4,077 | $177,890 |
| October 31, 2024 | 990 | $407,771 | $304,223 | $103,548 | $158,615 | $55,067 | $103,548 |
Financial details: 990 for the year ended October 31, 2025
Revenue
- Contributions, gifts and grants
- $306,820
- Membership dues
- $34,861
- Program service revenue
- $98,979
- Investment income
- $0
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $215,385
- Other salaries and wages
- $8,719
- Salaries, compensation and benefits (total)
- $258,971
- Professional fundraising fees
- $0
- Legal fees
- $7,011
- Accounting fees
- $600
- Travel
- $12,710
- Program services (functional)
- $165,733
- Management and general (functional)
- $99,433
- Fundraising (functional)
- $66,291
Balance sheet and other
- Total assets, start of year
- $158,615
- Total assets, end of year
- $181,967
- Total liabilities, end of year
- $4,077
- Net assets, end of year
- $177,890
- Gross receipts
- $405,799
- Employees
- 0
- Year formed
- 2024
- State of legal domicile
- MA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended October 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Nicolas Encina | Executive Dir. Officer | 40 | $215,385 |
| Robert Green | Secretary Officer | 1 | $0 |
| David Bick | Treasurer Officer | 1 | $0 |
990 for the year ended October 31, 2024: 3 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| NICOLAS ENCINA | EXECUTIVE DIRECTOR Trustee or director, Officer | 40 | $0 |
| ROBERT GREEN | CLERK/SECRETARY Trustee or director, Officer | 1 | $0 |
| DAVID BICK | TREASURER/CO-CHAIRMAN Trustee or director, Officer | 1 | $0 |
Address and contacts
- Address (IRS master file)
- 88 BALDWIN ST, CHARLESTOWN, MA 02129-1424
- Principal officer (990 for 2024)
- Nicolas Encina, 88 Baldwin Street, Charlestown, MA 02129
- Signed the 990
- Nicolas Encina, Executive Director
- Phone
- (617) 767-9191
- Website
- iconseq.org
- Return prepared by
- Weiner and Rice LLC
Mission
ADVANCE THE FIELD OF NEWBORN SEQUENCING TO BE USED AS A PREVENTATIVE SCREENING TOOL AT POPULATION LEVELS. WE ARE A GLOBAL BODY THAT UNITES LEADING RESEARCHERS, TECHNOLOGISTS, CLINICIANS, AND POLICY EXPERTS TO WORK ON ADVANCING COMMON INTERESTS, SOLVING GLOBAL CHALLENGES, AND CONSOLIDATING LEARNINGS AND EVIDENCE.
Program accomplishments
- 1 Annual Conference with 400-500 attendees, of which are clinicians, policy and economics experts, patients, and advocacy.1 Consortium meeting per month with =100 members attending every month. Scientific discussions and presentations.5 Subcommittee activities, consisting of volunteer time by global experts working on topics ranigng from gene lists, policy, economics, data sharing, and conference coordination.Expenses $165,733 · revenue $98,979
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in October, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | October 31, 2026 | March 15, 2027 | Not due yet |
| 2024 | October 31, 2025 | March 16, 2026 | 990 on file |
| 2023 | October 31, 2024 | March 17, 2025 | 990 on file |
IRS record
- EIN
- 99-1893360
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (509(a)(2))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2024
- Accounting year ends
- October
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Health care (E03)
- Assets (IRS master file)
- $181,967
- Income (IRS master file)
- $405,799
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | October 2025 | $405,799 | $331,457 | $181,967 | XML |
| 990 | October 2024 | $407,771 | $304,223 | $158,615 | XML |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 99-1893360).
Questions about INTERNATIONAL CONSORTIUM ON NEWBORN SEQUENCING INC
- What is the EIN of INTERNATIONAL CONSORTIUM ON NEWBORN SEQUENCING INC?
- The employer identification number (EIN) of INTERNATIONAL CONSORTIUM ON NEWBORN SEQUENCING INC is 99-1893360.
- Is INTERNATIONAL CONSORTIUM ON NEWBORN SEQUENCING INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2024.
- Are donations to INTERNATIONAL CONSORTIUM ON NEWBORN SEQUENCING INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does INTERNATIONAL CONSORTIUM ON NEWBORN SEQUENCING INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of INTERNATIONAL CONSORTIUM ON NEWBORN SEQUENCING INC due?
- The return for tax year 2025 (the year ending October 31, 2026) is due March 15, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did INTERNATIONAL CONSORTIUM ON NEWBORN SEQUENCING INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended October 2025.
- Who is the principal officer of INTERNATIONAL CONSORTIUM ON NEWBORN SEQUENCING INC?
- The 990 for the year ended October 31, 2025 names Nicolas Encina.
- Who are the officers and directors of INTERNATIONAL CONSORTIUM ON NEWBORN SEQUENCING INC?
- The 990 for the year ended October 31, 2025 lists 3 people; 1 received compensation from the organization, the highest $215,385 (Nicolas Encina, Executive Dir.).
- How much revenue does INTERNATIONAL CONSORTIUM ON NEWBORN SEQUENCING INC have?
- On its 990 for the year ended October 31, 2025 it reported revenue of $405,799, expenses of $331,457 and total assets of $181,967 at year end.
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