Nonprofit · EIN 95-4310830
CELIAC DISEASE FOUNDATION
Tax-exempt · WOODLAND HLS, CA 91367
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $5,315,881 | $4,579,989 | $735,892 | $8,297,238 | $1,467,942 | $6,829,296 |
| December 31, 2024 | 990 (amended) | $4,294,353 | $4,336,074 | -$41,721 | $7,559,145 | $2,000,126 | $5,559,019 |
| December 31, 2023 | 990 (amended) | $4,203,443 | $2,975,235 | $1,228,208 | $5,959,854 | $633,790 | $5,326,064 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $2,568,848
- Program service revenue
- $2,389,372
- Investment income
- $149,308
- Net gain from sales of assets
- -$2,912
- Net income from fundraising events
- $208,353
- Other revenue
- $208,353
Expenses
- Grants and similar amounts paid
- $355,540
- Compensation of officers, directors and key employees
- $760,428
- Other salaries and wages
- $1,325,936
- Salaries, compensation and benefits (total)
- $2,590,343
- Professional fundraising fees
- $0
- Accounting fees
- $16,000
- Occupancy
- $12,221
- Depreciation
- $180,167
- Program services (functional)
- $3,189,546
- Management and general (functional)
- $790,648
- Fundraising (functional)
- $599,795
Balance sheet and other
- Total assets, start of year
- $7,559,145
- Total assets, end of year
- $8,297,238
- Total liabilities, end of year
- $1,467,942
- Net assets, end of year
- $6,829,296
- Land, buildings and equipment
- $543,411
- Net assets without donor restrictions
- $6,610,016
- Net assets with donor restrictions
- $219,280
- Gross receipts
- $6,203,837
- Employees
- 18
- Volunteers
- 20,323
- Year formed
- 1990
- State of legal domicile
- CA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| MARILYN GRUNZWEIG GELLER | CEO Key employee | 40 | $350,580 | $56,486 |
| BRETT SPITALE | CHIEF OF STAFF Key employee | 40 | $223,440 | $33,831 |
| VANESSA WEISBROD | CHIEF EDUCATION & COMMUNIT Key employee | 40 | $186,408 | $42,507 |
| BRADLEY HERREMA | BOARD SECRETARY Trustee or director, Officer | 2 | $0 | $0 |
| JOHN WAGNER | GOVERNMENT & ADVOCACY COMMITTEE CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| WARREN SAFT | TREASURER Trustee or director, Officer | 2 | $0 | $0 |
| ADRIENNE BENDER | VICE CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| LEE JONES | BOARD GOVERNANCE CO-CHAIR Trustee or director | 2 | $0 | $0 |
| JAMIE RESIN | MEMBER Trustee or director | 2 | $0 | $0 |
| BETH BLUE | MEMBER Trustee or director | 2 | $0 | $0 |
| DAN GIBBONS | MEMBER Trustee or director | 2 | $0 | $0 |
| KRISTIN YAREMA | MEMBER Trustee or director | 2 | $0 | $0 |
| GREG FRASCA | MEMBER Trustee or director | 2 | $0 | $0 |
| JORDAN RAMER | BOARD GOVERNANCE CO-CHAIR Trustee or director | 2 | $0 | $0 |
| JENNIFER SULLIVAN | MEMBER Trustee or director | 2 | $0 | $0 |
3 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| BLAKELY BRANIFF | DEVELOPMENT COMMITTEE CHAIR Trustee or director | 2 | $0 |
| WILLIAM THURSTON | BOARD CHAIR Trustee or director, Officer | 2 | $0 |
| KAREN WICKER | MEMBER Trustee or director | 2 | $0 |
990 for the year ended December 31, 2024: 16 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| MARILYN GRUNZWEIG GELLER | CEO Key employee | 40 | $335,685 | $19,851 |
| BRETT SPITALE | CHIEF OF STAFF Key employee | 40 | $208,636 | $6,775 |
| VANESSA WEISBROD | CHIEF EDUCATION & COMMUNITY ENG. OFFICER Key employee | 40 | $185,611 | $8,120 |
| BRADLEY HERREMA | BOARD SECRETARY Trustee or director, Officer | 2 | $0 | $0 |
| JOHN WAGNER | VICE CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| JORDAN RAMER | TREASURER Trustee or director, Officer | 2 | $0 | $0 |
| ADRIENNE BENDER | BOARD CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| LEE JONES | DEVELOPMENT COMMITTEE CHAI Trustee or director | 2 | $0 | $0 |
| JAMIE RESIN | MEMBER Trustee or director | 2 | $0 | $0 |
| WARREN SAFT | MEMBER Trustee or director | 2 | $0 | $0 |
| DAN GIBBONS | MEMBER Trustee or director | 2 | $0 | $0 |
| KRISTIN YAREMA | MEMBER Trustee or director | 2 | $0 | $0 |
| YASITH WEERASURIYA | MEMBER Trustee or director | 2 | $0 | $0 |
| CASEY GUBER | MEMBER Trustee or director | 2 | $0 | $0 |
| JENNIFER SULLIVAN | MEMBER Trustee or director | 2 | $0 | $0 |
| BLAKELY BRANIFF | MEMBER Trustee or director | 2 | $0 | $0 |
990 for the year ended December 31, 2023: 14 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| MARILYN GRUNZWEIG GELLER | CEO Key employee | 40 | $280,800 | $16,860 |
| DEBORAH CEIZLER | CDO Key employee | 40 | $205,271 | $3,500 |
| BRADLEY HERREMA | BOARD SECRETARY Trustee or director, Officer | 2 | $0 | $0 |
| JOHN WAGNER | VICE CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| JORDAN RAMER | TREASURER Trustee or director, Officer | 2 | $0 | $0 |
| ADRIENNE BENDER | BOARD CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| LEE JONES | DEVELOPMENT COMMITTEE CHAIR Trustee or director | 2 | $0 | $0 |
| JAMIE RESIN | MEMBER Trustee or director | 2 | $0 | $0 |
| WARREN SAFT | MEMBER Trustee or director | 2 | $0 | $0 |
| DAN GIBBONS | MEMBER Trustee or director | 2 | $0 | $0 |
| KRISTIN YAREMA | MEMBER Trustee or director | 2 | $0 | $0 |
| YASITH WEERASURIYA | MEMBER Trustee or director | 2 | $0 | $0 |
| CASEY GUBER | MEMBER Trustee or director | 2 | $0 | $0 |
| WILLIAM THURSTON | MEMBER Trustee or director | 2 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 21300 VICTORY BLVD STE 300, WOODLAND HLS, CA 91367-7725
- Principal officer (990 for 2025)
- MARILYN GRUNZWEIG GELLER, 21300 VICTORY BLVD 300, WOODLAND HILLS, CA 91367
- Signed the 990
- MARILYN GRUNZWEIG GELLER, CEO
- Phone
- (818) 716-1513
- Website
- WWW.CELIAC.ORG
- Return prepared by
- HENSIEK & CARON CPA'S
California records
California keeps its own records of charities and corporations. Search them by EIN 95-4310830 or by the name CELIAC DISEASE FOUNDATION.
- Attorney General, Registry of Charities and Fundraisers
- Registration status and filed reports (CT-TR-1, RRF-1)
- Secretary of State, bizfile Online
- Corporation status, entity number, agent for service
- Franchise Tax Board
- Entity status letter (state tax exemption, good standing)
Mission
THE CELIAC DISEASE FOUNDATION IS THE LEADING GLOBAL PATIENT ADVOCACY ORGANIZATION COMMITTED TO ACCELERATING DIAGNOSIS, TREATMENTS, AND A CURE FOR CELIAC DISEASE. OUR MISSION IS TO IMPROVE THE HEALTH AND WELL-BEING OF THE MILLIONS OF INDIVIDUALS AROUND THE WORLD AFFECTED BY THIS GENETIC AUTOIMMUNE DISEASE THROUGH OUR STRATEGIC INVESTMENTS IN RESEARCH, ADVOCACY, AND EDUCATION.
Program accomplishments
- RESEARCHTHE CELIAC DISEASE FOUNDATION MAKES STRATEGIC INVESTMENTS IN CUTTING-EDGE BIOMEDICAL RESEARCH AND COLLABORATES WITH RESEARCHERS AND CLINICIANS TO ADVANCE UNDERSTANDING OF AND TREATMENTS FOR CELIAC DISEASE. IN 2025, THE FOUNDATION AWARDED NEARLY $500,000 IN BREAKTHROUGH GRANTS FOCUSED ON IMMUNE RESPONSE TO GLUTEN AND DISEASE ONSET, FUNDING PROJECTS AT BOSTON CHILDREN'S HOSPITAL, UC DAVIS, COLORADO CHILDREN'S HOSPITAL, CHILDREN'S NATIONAL HOSPITAL, AND BETH ISRAEL DEACONESS MEDICAL CENTER. THE FOUNDATION SPONSORED MAJOR SCIENTIFIC GATHERINGS INCLUDING THE TAMPERE CELIAC DISEASE SYMPOSIUM, THE COLUMBIA UNIVERSITY CELIAC DISEASE ON THE HORIZON CONFERENCE, THE NASPGHAN SINGLE TOPIC SYMPOSIUM, AND THE COLORADO SCREENING SYMPOSIUM. IN A LANDMARK PARTNERSHIP, THE NORTH AMERICAN SOCIETY FOR THE STUDY OF CELIAC DISEASE (SSCD) BECAME THE FOUNDATION'S SCIENTIFIC ADVISORY COMMITTEE. THE FOUNDATION'S CLINICAL TRIAL RECRUITMENT PLATFORM, IQUALIFYCELIAC, SURPASSED 34,000 PARTICIPATING PATIENTS, WHILE IRECRUITCELIAC SUPPORTED 9 ACTIVE TRIALS ACROSS 9 NEW GLOBAL PARTNER ORGANIZATIONS ON 3 CONTINENTS. THE FOUNDATION ALSO LAUNCHED THE FIRST-EVER CELIAC DISEASE CLINICAL TRIAL SITE ADVISORY COUNCIL AND THE CELIAC DISEASE FOUNDATION IMPACT FUND, A VENTURE PHILANTHROPY VEHICLE TO FAST-TRACK BREAKTHROUGH THERAPIES AND DIAGNOSTICS FROM LAB TO PATIENT.________________________________________ADVOCACYIN 2025, THE CELIAC DISEASE FOUNDATION AFFIRMED ITS ROLE AS THE LEADING VOICE FOR CELIAC DISEASE POLICY. THE NIH ALLOCATED $10 MILLION FOR CELIAC DISEASE RESEARCH IN FY2025, AND CELIAC DISEASE WAS INCLUDED FOR THE THIRD CONSECUTIVE YEAR IN THE DEPARTMENT OF DEFENSE PEER REVIEWED MEDICAL RESEARCH PROGRAM, WITH $1.58 MILLION AWARDED. ADVOCATES FROM 14 STATES ATTENDED THE 2025 ADVOCACY SUMMIT AND HILL DAY, MEETING WITH 30 BIPARTISAN CONGRESSIONAL OFFICES AND SENDING MORE THAN 5,000 ADVOCACY EMAILS. ADVOCATES FROM ALL 50 STATES SUBMITTED CELIAC DISEASE AWARENESS MONTH PROCLAMATION REQUESTS, SECURING A RECORD 27 STATES AND WASHINGTON, D.C. CEO MARILYN G. GELLER REPRESENTED CELIAC PATIENTS AT THE 48TH SESSION OF THE CODEX COMMITTEE ON FOOD LABELLING IN QUEBEC CITY, SECURING AMENDED LABELING TEXT, INCLUSION OF CELIAC DISEASE IN MANDATORY PREPACKAGED FOOD LABELING AND PRECAUTIONARY ALLERGEN LABELING GUIDELINES, AND A CALL FOR EXPERTS TO INFORM SETTING A GLUTEN THRESHOLD. THE FOUNDATION ALSO CONVENED THE GLOBAL CELIAC ADVOCACY ALLIANCE, UNITING PATIENT ADVOCACY LEADERS FROM 12 ORGANIZATIONS ACROSS 6 CONTINENTS.________________________________________EDUCATIONTHE CELIAC DISEASE FOUNDATION PROVIDES INNOVATIVE TOOLS AND PROGRAMMING TO PROMOTE CELIAC DISEASE EDUCATION FOR PATIENTS, FAMILIES, AND HEALTHCARE PROFESSIONALS. THROUGH CELIAC.ORG, THE FOUNDATION OFFERS A SYMPTOMS ASSESSMENT TOOL, A NATIONWIDE PRACTITIONER DIRECTORY, EAT! GLUTEN-FREE MEAL PLANS, AND THE CELIAC DISEASE MANAGEMENT PLAN FOR SCHOOL TRAINING PROGRAM. VIRTUAL PROGRAMMING - INCLUDING CULINARY MEDICINE WEBINARS NOW AVAILABLE WITH LIVE SPANISH AND PORTUGUESE TRANSLATION - REACHED OVER 1,000 PATIENTS AND 200 HEALTHCARE PROFESSIONALS IN 2025. THE FOUNDATION CONVENED THE COLLEGE CONSENSUS SUMMIT TO DEVELOP THE FIRST-EVER NATIONAL RECOMMENDATIONS FOR SUPPORTING COLLEGE STUDENTS WITH CELIAC DISEASE, AND LAUNCHED THE CELIAC DISEASE FOUNDATION DIETITIAN ADVISORY COUNCIL. TOOLS FOR HEALTHCARE PROFESSIONALS INCLUDE THE NASPGHAN CLINICAL GUIDE FOR PEDIATRIC CELIAC DISEASE, THE CELIAC DISEASE AND PSYCHOLOGICAL HEALTH TRAINING PROGRAM, AND ACCREDITED CME/CEU PROGRAMS. THE FOUNDATION REACHES A GLOBAL AUDIENCE THROUGH CELIAC.ORG, SOCIAL MEDIA CHANNELS WITH OVER 250,000 FOLLOWERS AND 25 MILLION VIEWS, AND AN E-NEWSLETTER WITH MORE THAN 100,000 SUBSCRIBERS.Expenses $3,189,546 · grants $355,540 · revenue $2,386,650
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 95-4310830
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1995
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G46Z)
- Assets (IRS master file)
- $8,297,238
- Income (IRS master file)
- $6,203,837
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $5,315,881 | $4,579,989 | $8,297,238 | XML |
| 990 | December 2024 | $4,294,353 | $4,336,074 | $7,559,145 | XML |
| 990 | December 2023 | $4,203,443 | $2,975,235 | $5,959,854 | XML |
| 990 | December 2022 | $3,118,626 | $2,177,592 | $4,468,403 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 95-4310830).
Questions about CELIAC DISEASE FOUNDATION
- What is the EIN of CELIAC DISEASE FOUNDATION?
- The employer identification number (EIN) of CELIAC DISEASE FOUNDATION is 95-4310830.
- Is CELIAC DISEASE FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1995.
- Are donations to CELIAC DISEASE FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does CELIAC DISEASE FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of CELIAC DISEASE FOUNDATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did CELIAC DISEASE FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of CELIAC DISEASE FOUNDATION?
- The 990 for the year ended December 31, 2025 names MARILYN GRUNZWEIG GELLER.
- Who are the officers and directors of CELIAC DISEASE FOUNDATION?
- The 990 for the year ended December 31, 2025 lists 18 people; 3 received compensation from the organization, the highest $350,580 (MARILYN GRUNZWEIG GELLER, CEO).
- How much revenue does CELIAC DISEASE FOUNDATION have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $5,315,881, expenses of $4,579,989 and total assets of $8,297,238 at year end.
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All nonprofits in WOODLAND HLS · California · Voluntary health associations and medical disciplines