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Nonprofit · EIN 94-2781004

SUPPORT ORGANIZATION FOR TRISOMY 18 13 AND RELATED DISORDERS SOFT INC

Tax-exempt · ROCHESTER, NY 14624

Financials

$190K$209K2023$180K$154K2024
Revenue Expenses · by fiscal year end
Financials of SUPPORT ORGANIZATION FOR TRISOMY 18 13 AND RELATED DISORDERS SOFT INC by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
July 31, 2025990$180,293$153,754$26,539$582,451$0$582,451
July 31, 2024990$190,287$209,361-$19,074$555,912$0$555,912
Financial details: 990 for the year ended July 31, 2025

Revenue

Contributions, gifts and grants
$70,168
Program service revenue
$101,917
Investment income
$8,084
Other revenue
$124

Expenses

Grants and similar amounts paid
$0
Compensation of officers, directors and key employees
$0
Salaries, compensation and benefits (total)
$0
Professional fundraising fees
$0
Accounting fees
$1,210
Program services (functional)
$142,348
Management and general (functional)
$11,406

Balance sheet and other

Total assets, start of year
$555,912
Total assets, end of year
$582,451
Total liabilities, end of year
$0
Net assets, end of year
$582,451
Net assets without donor restrictions
$582,451
Gross receipts
$180,293
Employees
0

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended July 31, 2025, highest compensation first.

NameTitleHours / weekCompensation
Renae BradleyDirector
Trustee or director
0$0
Terre KrotzerVice President
Trustee or director
0$0
Randy KrotzerVice President
Trustee or director
0$0
Jennifer SoggeVice President
Trustee or director
0$0
Steve SoggeVice President
Trustee or director
0$0
Angie McCauleyDirector
Trustee or director
0$0
Micah McCauleyDirector
Trustee or director
0$0
Dr John CareyFounding Profes
Trustee or director
0$0
Leslie CareyDirector
Trustee or director
0$0
Kris HolladayFounding Parent
Trustee or director
0$0
Hal HolladayFounding Parent
Trustee or director
0$0
Kelly HernandezVice President
Trustee or director
0$0
Sal HernandezVice President
Trustee or director
0$0
Nick HolladayExecutive Dir.
Trustee or director
0$0
Dave VanHerrewegheDirector
Trustee or director
0$0
6 more people on this return
NameTitleHours / weekCompensation
Jim DyeDirector
Trustee or director
0$0
Gina CsontosDirector
Trustee or director
0$0
Glenn CsontosDirector
Trustee or director
0$0
Josh BradleyPresident
Officer
4$0
Barb VanHerrewegheTreasurer
Officer
0$0
Debbie DyeSecretary
Officer
0$0
990 for the year ended July 31, 2024: 22 people
NameTitleHours / weekCompensation
Dave VanHerreweghePast President
Trustee or director
0$0
Josh BradleyPresident
Trustee or director
0$0
Terre KrotzerVice President
Trustee or director
0$0
Jennifer SoggeVice President
Trustee or director
0$0
Angie McCauleyDirector
Trustee or director
0$0
Micah McCauleyDirector
Trustee or director
0$0
Dr John CareyFounding Profes
Trustee or director
0$0
Leslie CareyDirector
Trustee or director
0$0
Kris HolladayFounding Parent
Trustee or director
0$0
Hal HolladayFounding Parent
Trustee or director
0$0
Kelly HernandezVice President
Trustee or director
0$0
Sal HernandezVice President
Trustee or director
0$0
Raline BanksDirector
Trustee or director
0$0
Josh BanksDirector
Trustee or director
0$0
Jim DyeDirector
Trustee or director
0$0
Gina CsontosDirector
Trustee or director
0$0
Glenn CsontosDirector
Trustee or director
0$0
Barb VanHerreweghePast President
Officer
4$0
Renae BradleyPresident
Officer
0$0
Randy KrotzerVice President
Officer
0$0
Steve SoggeVice President
Officer
0$0
Debbie DyeSecretary
Officer
0$0

Address and contacts

Address (IRS master file)
2982 S UNION ST, ROCHESTER, NY 14624-1964
Signed the 990
Josh Bradley, President
Return prepared by
BIRNIE CPA PC

Mission

Support organization for Trisomy 18/13

990 for the year ended July 31, 2025

Program accomplishments

  • Conferences and seminars to provide medical information to families and professionals regarding Trisomy 18/13.
    Expenses $74,240 · revenue $101,917
  • Support organization to provide support, understanding, and encouragement to families of individuals with Trisomy 18/13.
    Expenses $64,548 · revenue $70,168
  • Newsletters, books, brochures, and research to increase public awareness.
    Expenses $3,560 · revenue $124

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in July, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025July 31, 2026December 15, 2026Not due yet
2024July 31, 2025December 15, 2025990 on file
2023July 31, 2024December 16, 2024990 on file

IRS record

EIN
94-2781004
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
1981
Accounting year ends
July
Files
Form 990 or 990-EZ
Assets (IRS master file)
$582,451
Income (IRS master file)
$180,293

Filing history

FormYear endedRevenueExpensesAssetsReturn
990July 2025$180,293$153,754$582,451XML
990July 2024$190,287$209,361$555,912XML
990July 2023$148,862$71,160$574,986IRS
990-EZJuly 2022–––IRS
990-EZJuly 2021–––IRS
990-EZJuly 2019–––IRS
990-EZJuly 2018–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 94-2781004).

Questions about SUPPORT ORGANIZATION FOR TRISOMY 18 13 AND RELATED DISORDERS SOFT INC

What is the EIN of SUPPORT ORGANIZATION FOR TRISOMY 18 13 AND RELATED DISORDERS SOFT INC?
The employer identification number (EIN) of SUPPORT ORGANIZATION FOR TRISOMY 18 13 AND RELATED DISORDERS SOFT INC is 94-2781004.
Is SUPPORT ORGANIZATION FOR TRISOMY 18 13 AND RELATED DISORDERS SOFT INC tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1981.
Are donations to SUPPORT ORGANIZATION FOR TRISOMY 18 13 AND RELATED DISORDERS SOFT INC tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does SUPPORT ORGANIZATION FOR TRISOMY 18 13 AND RELATED DISORDERS SOFT INC file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of SUPPORT ORGANIZATION FOR TRISOMY 18 13 AND RELATED DISORDERS SOFT INC due?
The return for tax year 2025 (the year ending July 31, 2026) is due December 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
When did SUPPORT ORGANIZATION FOR TRISOMY 18 13 AND RELATED DISORDERS SOFT INC last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended July 2025.
Who are the officers and directors of SUPPORT ORGANIZATION FOR TRISOMY 18 13 AND RELATED DISORDERS SOFT INC?
The 990 for the year ended July 31, 2025 lists 21 people; 0 received compensation from the organization.
How much revenue does SUPPORT ORGANIZATION FOR TRISOMY 18 13 AND RELATED DISORDERS SOFT INC have?
On its 990 for the year ended July 31, 2025 it reported revenue of $180,293, expenses of $153,754 and total assets of $582,451 at year end.

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