Nonprofit · EIN 93-1451051
SCA27B ATAXIA FOUNDATION
Tax-exempt · LYNCHBURG, VA 24506
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990-EZ | $51,186 | $7,670 | $43,516 | $74,453 | $0 | $74,453 |
| December 31, 2024 | 990-EZ | $26,343 | $2,423 | $23,920 | $30,937 | $0 | $30,937 |
| December 31, 2023 | 990-EZ | $5,901 | $128 | $5,773 | $5,023 | $0 | $5,023 |
Financial details: 990-EZ for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $51,186
- Program service revenue
- $0
- Investment income
- $0
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $0
- Salaries, compensation and benefits (total)
- $0
- Printing, publications and postage
- $485
- Other expenses
- $7,185
- Program services (functional)
- $7,670
Balance sheet and other
- Total assets, start of year
- $30,937
- Total assets, end of year
- $74,453
- Total liabilities, end of year
- $0
- Net assets, end of year
- $74,453
- Cash, savings and investments
- $74,453
- Gross receipts
- $51,186
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Mary Hogan | Executive Director | 20 | $0 |
| Jennifer Austin | President of the Board of Directors | 2 | $0 |
| Eric Legg | board member | 2 | $0 |
| Jack Barile | board member | 2 | $0 |
| Corinna Hogan | Secretary | 2 | $0 |
| Andy Nye | Facebook discussion group admin | 7 | $0 |
| Sarah Ying | medical advisor | 2 | $0 |
| Margit Burmeister | genetics advisor | 5 | $0 |
| Bill Nye | scientific advisor | 2 | $0 |
990-EZ for the year ended December 31, 2024: 9 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Mary Hogan | Executive Director | 20 | $0 |
| Jennifer Austin | President of the Board of Directors | 2 | $0 |
| Eric Legg | board member | 2 | $0 |
| Jack Barile | board member | 1 | $0 |
| Corinna Hogan | Secretary | 1 | $0 |
| Andy Nye | Facebook discussion group admin | 3 | $0 |
| Sarah Ying | medical advisor | 1 | $0 |
| Margit Burmeister | genetics advisor | 1 | $0 |
| Bill Nye | scientific advisor | 1 | $0 |
990-EZ for the year ended December 31, 2023: 9 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Mary Hogan | Executive Director | 25 | $0 |
| Jennifer Austin | President of the Board of Directors | 10 | $0 |
| Eric Legg | board member | 2 | $0 |
| Jack Barile | board member | 2 | $0 |
| Corinna Hogan | Secretary | 2 | $0 |
| Andy Nye | Facebook discussion group admin | 4 | $0 |
| Sarah Ying | medical advisor | 2 | $0 |
| Margit Burmeister | genetics advisor | 2 | $0 |
| Bill Nye | scientific advisor | 1 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 10702, LYNCHBURG, VA 24506-0702
- In care of
- % MARY HOGAN
- Signed the 990-EZ
- Mary Hogan, Executive Director
- Phone
- (615) 900-0234
- Website
- sca27b.org
Mission
Our mission is to improve the quality of life of individuals and families affected by SCA27b while promoting research and treatments for Ataxia. We bring awareness, education, and resources to individuals and families affected by SCA27b. The foundation actively connects patients to Ataxia experts and researchers to accelerate solutions for SCA27b.
Program accomplishments
- Year 2025: 1) Attended and presented at patient & researcher conferences - Annual Ataxia Conference (Las Vegas), Ataxia Clinical Training (Las Vegas), International Congress of Ataxia Research (ICAR)(Amsterdam), EuroAtaxia (Amsterdam), National Ataxia Foundation's Face to Face meeting (Minneapolis), National Organization of Rare Diseases, TN chapter (Nashville). 2) Maintained & updated educational website sca27b.org, 3) Hosted monthly Zoom meetings for patients with invited guest speakers, 4) Collaborated with many other ataxia organizations: NAF, EuroAtaxia, FARA, Ataxie Canada, Ataxia UK, Ataxia Global Initiative (AGI). 5) Active member of AGI's SCA27B study group. 6) Raised funds to provide research grants in 2026. 7) Maintained private & public Facebook SCA27B Facebook groups. 7) Hosted webinars for genetic testing to members. 8) Distributed surveys for research data and will be published in 2026 with UChicago for paper on lifestyle/environmental factors that influence disease onset and progression. 9) Foundation membership is now over 1400 patients and researchersExpenses $7,670
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990-EZ on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 93-1451051
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (509(a)(2))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2024
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Mutual and membership benefit (Y99)
- Assets (IRS master file)
- $74,453
- Income (IRS master file)
- $51,186
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2025 | $51,186 | $7,670 | $74,453 | IRS |
| 990-EZ | December 2024 | $26,343 | $2,423 | $30,937 | XML |
| 990-EZ | December 2023 | $5,901 | $128 | $5,023 | XML |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 93-1451051).
Questions about SCA27B ATAXIA FOUNDATION
- What is the EIN of SCA27B ATAXIA FOUNDATION?
- The employer identification number (EIN) of SCA27B ATAXIA FOUNDATION is 93-1451051.
- Is SCA27B ATAXIA FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2024.
- Are donations to SCA27B ATAXIA FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does SCA27B ATAXIA FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of SCA27B ATAXIA FOUNDATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did SCA27B ATAXIA FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2025.
- Who are the officers and directors of SCA27B ATAXIA FOUNDATION?
- The 990-EZ for the year ended December 31, 2025 lists 9 people; 0 received compensation from the organization.
- How much revenue does SCA27B ATAXIA FOUNDATION have?
- On its 990-EZ for the year ended December 31, 2025 it reported revenue of $51,186, expenses of $7,670 and total assets of $74,453 at year end.
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