Nonprofit · EIN 93-0721765
SOCIETY FOR INHERITED METABOLIC DISORDERS
Tax-exempt · TROUTDALE, OR 97060
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| June 30, 2025 | 990 | $760,869 | $819,675 | -$58,806 | $1,098,216 | $0 | $1,098,216 |
| June 30, 2024 | 990 | $1,246,195 | $1,137,855 | $108,340 | $1,157,022 | $0 | $1,157,022 |
| June 30, 2023 | 990 | $1,354,915 | $1,099,432 | $255,483 | $1,048,682 | $0 | $1,048,682 |
Financial details: 990 for the year ended June 30, 2025
Revenue
- Contributions, gifts and grants
- $541,655
- of which government grants
- $10,000
- Membership dues
- $131,655
- Program service revenue
- $162,306
- Investment income
- $56,908
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $0
- Other salaries and wages
- $67,008
- Salaries, compensation and benefits (total)
- $68,560
- Professional fundraising fees
- $0
- Accounting fees
- $4,300
- Occupancy
- $4,650
- Travel
- $67,367
- Program services (functional)
- $681,291
- Management and general (functional)
- $138,384
Balance sheet and other
- Total assets, start of year
- $1,157,022
- Total assets, end of year
- $1,098,216
- Total liabilities, end of year
- $0
- Net assets, end of year
- $1,098,216
- Publicly traded securities
- $428,576
- Net assets without donor restrictions
- $1,098,216
- Gross receipts
- $760,869
- Employees
- 1
- Volunteers
- 19
- Year formed
- 1977
- State of legal domicile
- OR
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended June 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| SUSAN BERRY | PRESIDENT & BOARD MEMBER Trustee or director, Officer | 1 | $0 |
| DEBRA REGIER | PRESIDENT-ELECT & BOARD MEMBER Trustee or director, Officer | 3 | $0 |
| GERARD BERRY | PAST PRESIDENT & BOARD MEMBER Trustee or director, Officer | 1 | $0 |
| CARY HARDING | TREASURER & BOARD MEMBER Trustee or director, Officer | 1 | $0 |
| BRUCE BARSHOP | SECRETARY & BOARD MEMBER Trustee or director, Officer | 5 | $0 |
| PETE BAKER | MEMBERSHIP CHAIR & BOARD MEMBER Trustee or director | 0.5 | $0 |
| MOLLY CRENSHAW | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
| REBECCA GANETZKY | ED COMMITTEE CHAIR & BOARD MEMBER Trustee or director | 1 | $0 |
| IRINI MANOLI | PROGRAM COMM. CHAIR & BOARD MEMBER Trustee or director | 0.5 | $0 |
| SHIDEH MOFIDI | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
| AMARLIS SANCHEZ VALLE | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
| KARA SIMPSON | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
| DAVID SINASAC | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
| WENDY SMITH | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
| ASHLEE STILES | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
4 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| REID SUTTON | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
| SARAH VIALL | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
| KIRKLAND WILSON | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
| TIMOTHY WOOD | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
990 for the year ended June 30, 2024: 18 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| GERARD BERRY | PAST PRESIDENT & BOARD MEMBER Trustee or director, Officer | 1 | $0 |
| SUSAN BERRY | PRESIDENT & BOARD MEMBER Trustee or director, Officer | 1 | $0 |
| CARY HARDING | TREASURER & BOARD MEMBER Trustee or director, Officer | 1 | $0 |
| BRUCE BARSHOP | SECRETARY & BOARD MEMBER Trustee or director, Officer | 5 | $0 |
| DEBRA REGIER | PRESIDENT-ELECT & BOARD MEMBER Trustee or director, Officer | 3 | $0 |
| PETE BAKER | MEMBERSHIP CHAIR & BOARD MEMBER Trustee or director | 0.5 | $0 |
| MOLLY CRENSHAW | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
| REBECCA GANETZKY | ED COMMITTEE CHAIR & BOARD MEMBER Trustee or director | 1 | $0 |
| ERIN MACLEOD | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
| IRINI MANOLI | PROGRAM COMM. CHAIR & BOARD MEMBER Trustee or director | 0.5 | $0 |
| AMARLIS SANCHEZ VALLE | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
| DAVID SINASAC | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
| WENDY SMITH | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
| ASHLEE STILES | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
| REID SUTTON | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
| SARAH VIALL | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
| KIRKLAND WILSON | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
| TIMOTHY WOOD | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
990 for the year ended June 30, 2023: 22 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| GEORGIANNE ARNOLD | PAST PRESIDENT & BOARD MEMBER Trustee or director, Officer | 0.5 | $0 |
| GERARD BERRY | PAST PRESIDENT & BOARD MEMBER Trustee or director, Officer | 1 | $0 |
| SUSAN BERRY | PRESIDENT & BOARD MEMBER Trustee or director, Officer | 1 | $0 |
| CARY HARDING | TREASURER & BOARD MEMBER Trustee or director, Officer | 1 | $0 |
| BRUCE BARSHOP | SECRETARY & BOARD MEMBER Trustee or director, Officer | 5 | $0 |
| DEBRA REGIER | PRESIDENT-ELECT & BOARD MEMBER Trustee or director, Officer | 3 | $0 |
| PETE BAKER | MEMBERSHIP CHAIR & BOARD MEMBER Trustee or director | 0.5 | $0 |
| JANE DELUCA | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
| LAURA DUQUE LASIO | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
| REBECCA GANETZKY | ED COMMITTEE CHAIR & BOARD MEMBER Trustee or director | 1 | $0 |
| ERIN MACLEOD | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
| IRINI MANOLI | PROGRAM COMM. CHAIR & BOARD MEMBER Trustee or director | 0.5 | $0 |
| MARZIA PASQUALI | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
| DAWN PECK | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
| AMARLIS SANCHEZ VALLE | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
| DAVID SINASAC | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
| WENDY SMITH | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
| ASHLEE STILES | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
| REID SUTTON | MEMBERSHIP CHAIR & BOARD MEMBER Trustee or director | 2 | $0 |
| SARAH VIALL | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
| KIRKLAND WILSON | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
| TIMOTHY WOOD | BOARD MEMBER AT LARGE Trustee or director | 0.5 | $0 |
Address and contacts
- Address (IRS master file)
- 1047 SE WALTER CIR, TROUTDALE, OR 97060-4551
- Principal officer (990 for 2024)
- SUSAN BERRY MD, 2450 RIVERSIDE AVE RPB 500, MINNEAPOLIS, MN 55454
- Signed the 990
- CARY HARDING MD, TREASURER
- Phone
- (503) 939-0695
- Website
- WWW.SIMD.ORG
- Return prepared by
- PERKINS & COMPANY PC
Mission
TO INCREASE KNOWLEDGE OF AND PROMOTE RESEARCH IN INBORN ERRORS OF METABOLISM IN HUMANS, AND TO STIMULATE INTERACTIONS BETWEEN CLINICIANS AND INVESTIGATORS IN INBORN ERRORS OF METABOLISM. TO SEEK TO FOSTER TRAINING AND MAINTENANCE OF A CORE OF QUALIFIED PHYSICIANS, FELLOWS, NUTRITIONISTS, NURSES AND LABORATORY STAFF.
Program accomplishments
- DURING THE YEAR ENDED JUNE 30, 2025, SOCIETY FOR INHERITED METABOLIC DISORDERS ("THE ORGANIZATION") CONTINUED TO CONDUCT ITS METABOLIC COURSE FOR YOUNG TRAINEES IN THE FIELD OF INBORN ERRORS OF METABOLISM AND GENETICS. THE NORTH AMERICAN METABOLIC ACADEMY 1.0, NOW CALLED NORTH AMERICAN METABOLIC ACADEMY FOUNDATIONS, WAS HELD DURING THE FISCAL YEAR.Expenses $388,936 · revenue $153,978
- DURING THE YEAR ENDED JUNE 30, 2025, SOCIETY FOR INHERITED METABOLIC DISORDERS ("THE ORGANIZATION") CONDUCTED ITS SECOND METABOLIC COURSE FOR YOUNG TRAINEES IN THE FIELD OF INBORN ERRORS OF METABOLISM AND GENETICS. THE NORTH AMERICAN METABOLIC ACADEMY SYSTEMS REVIEW WAS HELD DURING THE FISCAL YEAR.Expenses $101,930 · revenue $8,328
- ALSO DURING THE YEAR, THE ORGANIZATION CONTINUED TO PROVIDE IEMBASE, AN EXTENSIVE SYSTEM PROVIDING BOTH AN ONLINE KNOWLEDGEBASE AND A SMART SYSTEM (ARTIFICIAL INTELLIGENCE) FOR CURATION AND DIAGNOSIS SUPPORT FOR INBORN ERRORS OF METABOLISM.Expenses $87,135
- THE SOCIETY CONTINUES ITS MEMBERSHIP PROGRAM AND OFFERS A SUBSCRIPTION TO THE JOURNAL OF THE SIMD - MGM (MOLECULAR GENETICS AND METABOLISM).Expenses $61,492
- OTHER PROGRAM EXPENSESExpenses $41,798
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in June, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | June 30, 2026 | November 16, 2026 | Not due yet |
| 2024 | June 30, 2025 | November 17, 2025 | 990 on file |
| 2023 | June 30, 2024 | November 15, 2024 | 990 on file |
IRS record
- EIN
- 93-0721765
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1979
- Accounting year ends
- June
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G2XZ)
- Assets (IRS master file)
- $1,098,216
- Income (IRS master file)
- $760,869
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | June 2025 | $760,869 | $819,675 | $1,098,216 | XML |
| 990 | June 2024 | $1,246,195 | $1,137,855 | $1,157,022 | XML |
| 990 | June 2023 | $1,354,915 | $1,099,432 | $1,048,682 | XML |
| 990 | June 2022 | $1,017,641 | $968,108 | $793,199 | IRS |
| 990 | June 2021 | – | – | – | IRS |
| 990 | June 2020 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 93-0721765).
Questions about SOCIETY FOR INHERITED METABOLIC DISORDERS
- What is the EIN of SOCIETY FOR INHERITED METABOLIC DISORDERS?
- The employer identification number (EIN) of SOCIETY FOR INHERITED METABOLIC DISORDERS is 93-0721765.
- Is SOCIETY FOR INHERITED METABOLIC DISORDERS tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1979.
- Are donations to SOCIETY FOR INHERITED METABOLIC DISORDERS tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does SOCIETY FOR INHERITED METABOLIC DISORDERS file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of SOCIETY FOR INHERITED METABOLIC DISORDERS due?
- The return for tax year 2025 (the year ending June 30, 2026) is due November 16, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did SOCIETY FOR INHERITED METABOLIC DISORDERS last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended June 2025.
- Who is the principal officer of SOCIETY FOR INHERITED METABOLIC DISORDERS?
- The 990 for the year ended June 30, 2025 names SUSAN BERRY MD.
- Who are the officers and directors of SOCIETY FOR INHERITED METABOLIC DISORDERS?
- The 990 for the year ended June 30, 2025 lists 19 people; 0 received compensation from the organization.
- How much revenue does SOCIETY FOR INHERITED METABOLIC DISORDERS have?
- On its 990 for the year ended June 30, 2025 it reported revenue of $760,869, expenses of $819,675 and total assets of $1,098,216 at year end.
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