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Nonprofit · EIN 92-1885014

TED COMMUNITY ORGANIZATION

Tax-exempt · PACIFIC GROVE, CA 93950

Financials

$493K$186K2025
Revenue Expenses · by fiscal year end
Financials of TED COMMUNITY ORGANIZATION by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2025990$492,544$186,219$306,325$518,130$0$518,130
Financial details: 990 for the year ended December 31, 2025

Revenue

Contributions, gifts and grants
$492,544
Program service revenue
$0
Investment income
$0
Other revenue
$0

Expenses

Grants and similar amounts paid
$0
Compensation of officers, directors and key employees
$0
Salaries, compensation and benefits (total)
$0
Professional fundraising fees
$0
Program services (functional)
$186,219

Balance sheet and other

Total assets, start of year
$211,805
Total assets, end of year
$518,130
Total liabilities, end of year
$0
Net assets, end of year
$518,130
Net assets without donor restrictions
$518,130
Gross receipts
$492,544
Employees
0
Volunteers
0
Year formed
2023
State of legal domicile
CA

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2025, highest compensation first.

NameTitleHours / weekCompensation
Leslie WilliamsChair of Board
Officer
0$0
Elizabeth Nee WilliamsTreasurer Secretary
Officer
0$0
Christine GustafsonCEO Executive Director
Officer
0$0

Address and contacts

Address (IRS master file)
680 LIGHTHOUSE AVE UNIT 12, PACIFIC GROVE, CA 93950-8000
In care of
% CHRISTINE GUSTAFSON
Mailing address (990-N for 2023)
680 Lighthouse Avenue 12, Pacific Grove CA 93950
Principal officer (990 for 2025)
Christine Gustafson, 680 Lighthouse Avenue 12, Pacific Grove, CA 93950
Principal officer (990-N for 2023)
Christine Gustafson, 680 Lighthouse Avenue 12, Pacific Grove CA 93950
Signed the 990
Christine Gustafson, CEO
Phone
(831) 241-2243

Mission

As a dedicated thyroid eye disease TED 501c3 nonprofit our vision and quest is to ensure that no one need ever walk alone through the arduous and often isolating ted journey. to this end we provide education support and connection for all who are affected by TED.

990 for the year ended December 31, 2025

Program accomplishments

  • The TED Patient & Partner Global Online Conference is the first event of its kind dedicated to bringing together patients caregivers healthcare professionals and industry leaders to discuss the latest advancements in thyroid eye disease TED education treatment and patient support. Hosted by the TED Community Organization the only 501c3 nonprofit exclusively supporting TED patients this virtual conference will offer a comprehensive platform for learning connection and advocacy.
    Expenses $90,800
  • The in-person workshop is all expenses paid for TED patients to come together to work on specific programs that will benefit the global TED Community. It is a 2.5 day event that includes brainstorming program ideation building curriculum and taking on an active role in the execution of the program. Normally 15-18 TED Community Builders are involved. This is supplemented by our 15-person Medical Council. And 18 person Corporate Council.
    Expenses $35,677
  • The TED Patient Corporate & Medical Global Outreach Initiative is a groundbreaking effort to connect educate and empower the global TED community through strategic collaboration and outreach . By leveraging the expertise of our Medical & Scientific Council Corporate Council and Patient Advocate Council we are ensuring that all TED Community Organization programs including the TED Quality of Life Program the Global Virtual Conference TED ART and support groups reach the widest and most diverse audience possible. Key Outreach Components Global Network Expansion: Strengthening relationships with TED specialists researchers patient advocates and corporate partners worldwide to ensure access to the latest research treatments and patient resources. TED Corporate Council Engagement: Bringing together pharmaceutical biotech and healthcare industry leaders to collaborate on patient education access to care and innovation in TED treatment. TED Medical & Scientific Council Collaboration: Ensuring medical accuracy research-driven initiatives and high-quality patient education in all outreach efforts. TED Patient Advocate Council Leadership: Ensuring that patient voices remain central in all decision-making programming and outreach strategies. Global Awareness Campaigns: Developing multilingual educational materials social media campaigns and virtual events to enhance TED awareness and engagement. As well as attendance and exhibits at relevant conferences and meetings.
    Expenses $24,560
  • The TED ART & Creative Studio is a transformative initiative that provides TED patients with a healing experience an avenue for personal growth and a platform for connection and advocacy. By engaging in creative expression participants regain a sense of agency over their lives moving beyond the challenges of thyroid eye disease TED toward self-discovery community and empowerment. Through monthly virtual meet-ups special projects in-person workshops and advocacy initiatives this program fosters an environment where art becomes a catalyst for healing and awareness. Two Monthly Virtual Meet-Ups Themed Sessions: Each session explores a different creative medium e.g. watercolor poetry journaling or theme e.g. Hope and Healing, Vision Through Art. Guest Artists & Patient Creators: Professional artists and TED patients with artistic experience share their journey insights and techniques. Art Challenges: Participants receive creative prompts or challenges to work on between sessions fostering continuous engagement and growth.
    Expenses $23,400
  • The TED Community Organizations Educational Webinars & Patient Story Videos initiative empowers TED patients with knowledge support and inspiration. By providing expert-led discussions and authentic patient experiences we bridge the gap between medical intervention and real-world lived experiences ensuring TED patients feel informed validated and supported. Educational Webinars Our live interactive webinars offer TED patients access to leading experts researchers and healthcare professionals covering critical topics such as: Understanding TED & Its Treatments: Insights from ophthalmologists endocrinologists and researchers on the latest developments in TED care. Quality of Life & Coping Strategies: Practical guidance on nutrition movement as medicine stress reduction and mental well-being reinforcing the TED Quality of Life Program. Patient-Centered Healthcare: Helping TED patients become advocates for their own care improving communication with healthcare providers. Special Topics: Sessions dedicated to psychosocial challenges workplace accommodations and navigating insurance & treatment access. Global Reach: Webinars will be recorded and available for on-demand viewing ensuring accessibility for patients worldwide. Patient Story Videos TED patients often feel isolated misunderstood and overwhelmed. Our Patient Story Video Series brings real-life experiences to the forefront fostering connection and showcasing the resilience of the TED community. TED Journeys: Patients share their diagnosis treatment and recovery experiences offering hope and guidance. Before & After Reflections: Showcasing the emotional and physical transformations of patients who have navigated TED. Creative Expression in Healing: Featuring TED ART participants who use art writing or music to cope with their journey. Global Perspectives: Highlighting stories from TED patients around the world emphasizing shared struggles and diverse solutions.
    Expenses $11,782

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026990 on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990-N on file

IRS record

EIN
92-1885014
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
2023
Accounting year ends
December
Files
Form 990 or 990-EZ
Assets (IRS master file)
$518,130
Income (IRS master file)
$492,544

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2025$492,544$186,219$518,130IRS
990December 2024–––IRS
990-N for 2023
Officer: Christine Gustafson
December 31, 2023≤ $50,000 receipts––e-Postcard

990-N: the IRS publishes only the latest e-Postcard per organization; earlier years appear here as 990.tax collects the monthly files. 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS.

Questions about TED COMMUNITY ORGANIZATION

What is the EIN of TED COMMUNITY ORGANIZATION?
The employer identification number (EIN) of TED COMMUNITY ORGANIZATION is 92-1885014.
Is TED COMMUNITY ORGANIZATION tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2023.
Are donations to TED COMMUNITY ORGANIZATION tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does TED COMMUNITY ORGANIZATION file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of TED COMMUNITY ORGANIZATION due?
The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
When did TED COMMUNITY ORGANIZATION last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2025.
Who is the principal officer of TED COMMUNITY ORGANIZATION?
The 990 for the year ended December 31, 2025 names Christine Gustafson.
Who are the officers and directors of TED COMMUNITY ORGANIZATION?
The 990 for the year ended December 31, 2025 lists 3 people; 0 received compensation from the organization.
How much revenue does TED COMMUNITY ORGANIZATION have?
On its 990 for the year ended December 31, 2025 it reported revenue of $492,544, expenses of $186,219 and total assets of $518,130 at year end.

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