Nonprofit · EIN 92-0534021
FOUNDATION FOR RARE DISEASE RESEARCH INC
Tax-exempt · SILVER SPRING, MD 20904
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $339,269 | $104,396 | $234,873 | $2,367,680 | $0 | $2,367,680 |
| December 31, 2024 | 990 | $668,532 | $1,533,144 | -$864,612 | $2,132,807 | $0 | $2,132,807 |
| December 31, 2023 | 990 | $1,319,799 | $2,380 | $1,317,419 | $2,997,419 | $0 | $2,997,419 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $158,542
- Program service revenue
- $0
- Investment income
- $180,727
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $0
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Program services (functional)
- $96,501
- Management and general (functional)
- $7,895
Balance sheet and other
- Total assets, start of year
- $2,132,807
- Total assets, end of year
- $2,367,680
- Total liabilities, end of year
- $0
- Net assets, end of year
- $2,367,680
- Net assets without donor restrictions
- $2,367,680
- Gross receipts
- $339,269
- Employees
- 0
- Year formed
- 2022
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| HUAMIN LI | President Trustee or director, Officer | 1 | $0 |
| JOSEPH CHIAO | Secretary Trustee or director, Officer | 1 | $0 |
| JUAN YU | Treasurer Trustee or director, Officer | 1 | $0 |
| LILI WAN | Vice President Trustee or director, Officer | 1 | $0 |
| SHAOBIN HOU | Vice President Trustee or director, Officer | 1 | $0 |
990 for the year ended December 31, 2024: 3 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| HUAMIN LI | President Trustee or director, Officer | 1 | $0 |
| JOSEPH CHIAO | Secretary Trustee or director, Officer | 1 | $0 |
| JUAN YU | Treasurer Trustee or director, Officer | 1 | $0 |
990 for the year ended December 31, 2023: 4 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| HUAMIN LI | President Trustee or director | 1 | $0 |
| JOSEPH CHIAO | Director Trustee or director | 1 | $0 |
| JEFFREY YANG | Director Trustee or director | 1 | $0 |
| JUAN YU | Director Trustee or director | 0 | $0 |
Address and contacts
- Address (IRS master file)
- 12501 PROSPERITY DR STE 340, SILVER SPRING, MD 20904-1689
- In care of
- % HUAMIN H LI
- Signed the 990
- JUAN YU, Treasurer
- Phone
- (240) 736-0795
- Website
- ffrdr.org
- Return prepared by
- ELIZABETH YE ZANG CPA LLC
Mission
Discover, pursue and support the development of clinical diagnostics tools that can lead to cures for rare and orphan diseases by contributing to the advancement in research and development.
Program accomplishments
- The organization conducts research on rare diseases, including hereditary angioedema. During the year, the organization continued development of a method to measure the biomarker Bradykinin for use in clinical diagnosis and therapy monitoring. Research activities were carried out by contracted scientific service providers, and results were presented at professional meetings to support patient care and clinician education.Expenses $96,501
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 92-0534021
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2023
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H90)
- Assets (IRS master file)
- $2,367,680
- Income (IRS master file)
- $339,269
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $339,269 | $104,396 | $2,367,680 | XML |
| 990 | December 2024 | $668,532 | $1,533,144 | $2,132,807 | IRS |
| 990 | December 2023 | $1,319,799 | $2,380 | $2,997,419 | XML |
| 990 | December 2022 | $1,680,000 | $0 | $1,680,000 | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 92-0534021).
Questions about FOUNDATION FOR RARE DISEASE RESEARCH INC
- What is the EIN of FOUNDATION FOR RARE DISEASE RESEARCH INC?
- The employer identification number (EIN) of FOUNDATION FOR RARE DISEASE RESEARCH INC is 92-0534021.
- Is FOUNDATION FOR RARE DISEASE RESEARCH INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2023.
- Are donations to FOUNDATION FOR RARE DISEASE RESEARCH INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does FOUNDATION FOR RARE DISEASE RESEARCH INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of FOUNDATION FOR RARE DISEASE RESEARCH INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did FOUNDATION FOR RARE DISEASE RESEARCH INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who are the officers and directors of FOUNDATION FOR RARE DISEASE RESEARCH INC?
- The 990 for the year ended December 31, 2025 lists 5 people; 0 received compensation from the organization.
- How much revenue does FOUNDATION FOR RARE DISEASE RESEARCH INC have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $339,269, expenses of $104,396 and total assets of $2,367,680 at year end.
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