THE DOWN SYNDROME CONNECTION OF THE BAY AREA

Financials

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2025, highest compensation first.

Address and contacts

Address (IRS master file)

101 TOWN AND COUNTRY DR STE J, DANVILLE, CA 94526-3968

Signed the 990

TERESA DEVINCENZI, Executive Director

Phone

(925) 362-8660

Website

www.dscba.org

Return prepared by

GREGG S BOSSEN CPA PC

California records

California keeps its own records of charities and corporations. Search them by EIN 91-1904304 or by the name THE DOWN SYNDROME CONNECTION OF THE BAY AREA.

Attorney General, Registry of Charities and Fundraisers

Registration status and filed reports (CT-TR-1, RRF-1)

Secretary of State, bizfile Online

Corporation status, entity number, agent for service

Franchise Tax Board

Entity status letter (state tax exemption, good standing)

Mission

Our mission is to empower, inspire and support people with Down Syndrome, their families and the community that serves them, while fostering awareness and acceptance in all areas of life.

Program accomplishments

• In 2025, DSCBA provided the following services, support, and events: (i) Together Happy Respected Independent Valued Empowered (THRIVE): THRIVE is a unique program for individuals with Down syndrome. THRIVE is conducted by age group with a focus on developing strong core strength, gross and fine motor, executive functioning, and social and friendship-building skills. These sessions embody a unique combination of strengthening cognitive skills and social/behavioral interactions, all while fostering lifelong friendships and having fun. (ii) Music Therapy: Music therapy takes the joy and power of music and combines it with the goals of a traditional therapy session. Music therapy interventions such as singing, instrument playing, music improvisation, songwriting, music and movement, and musical games are used to address speech, physical, academic, cognitive, and behavioral goals. It can also strengthen family connections, as caretakers are encouraged to participate. Music therapy sessions are available for members from infancy to adulthood. (iii) New and Ongoing Family Support: Support services for families from the prenatal and/or postnatal diagnosis stage through childhood, school years, and adulthood. DSCBA offers Early Connections groups, where our families and their young children can bring their questions, connect, socialize, and learn. New families can be connected with a mentor family for additional connection and support. As DSCBA members grow older, DSCBA continues to support them with their needs in group settings and one-on-one support as needed. (iv) Connection Groups: DSCBAs Connection Groups offer opportunities for families to meet with those who have similar interests and are seeking peer support. Connection Groups available were Early Connections (0-3 years old), Parents with School Aged Children, Spanish Speaking, Parents/Caregivers of Adults with Symptoms of Dementia, Grandparents Group, Dual Diagnosis (Down syndrome and autism spectrum disorder), Moms Chat and Dads Group Daddy & Me. The majority, but not all, of DSCBAs support groups were conducted virtually. Teen & YA Connections Groups met in person and from multiple locations on multiple dates (Danville, Sonoma County, and Solano County) in 2025. (v) Webinars and Workshops: Throughout the year, DSCBA provided webinars and workshops to members on a variety of topics for all age groups. Webinars included topics such as education, mental health, caregiver self-care, and safety. (vi) Communication Readiness Program (CRP): A six-week intensive summer program for children ages 47 with complex communication needs stemming from Down syndrome or dual diagnoses such as Down syndrome and autism. CRP incorporates reading, writing, art, music, obstacle courses, speech, and socialization with communication and school-readiness skills at the programs core. Students are introduced to alternative ways to communicate so they can successfully participate in school, and parents and educational teams are provided with instruction, training, and ongoing support to facilitate successful communication. (vii) iCan Shine Bike Camp: During the summer, DSCBA hosts its weeklong iCan Bike Camp. Riders learn to balance, pedal, steer and take off on their own, by attending 5 days for 75 minutes each day. It is an adapted approach to each individual rider based on the accommodations they may need to benefit the most from the program. The success rate of riders independently riding a bicycle (at least 75 feet with no assistance) by the end of DSCBAs iCan Bike program is approximately 80% and all riders progress and gain skills during the week. (viii) Empowerment Every Stage Conference In 2025, DSCBA hosted the first Empowering Every Stage Conference. It was a one-day event focused on medical and life planning for individuals with Down syndromeacross the lifespan. It was attended by parents, caregivers, family members, professionals, and self-advocates. The conference offered expert-led presentations, resources, and the opportunity for members to connect with other families. (ix) Medical OutreachPartnership with dozens of Bay Area hospitals and hundreds of healthcare providers that serve people with Down syndrome. The alliance provides accurate, current information about Down syndrome to medical practitioners in new parent packets (in English and Spanish) they can share with their families welcoming a child with Down syndrome. The alliance also provides in-person trainings for doctors, genetic counselors, geneticists, nurses, social workers, and other healthcare workers covering how to deliver a Down syndrome diagnosis, how to support and form a strong team with families who have a member with Down syndrome, the abilities of people with Down syndrome, and the local and national resources available. (x) Down Syndrome Education Alliance A DSCBA program that partners with schools, districts, and community organizations across the Bay Area to support the successful education, inclusion, and participation of students with Down syndrome. Services include professional development trainings, parent and educator workshops, Ability Awareness presentations, consultations, evidence-based resources, and access to AAC supports and lending libraries. (xi) Ability Awareness PresentationsIn-school presentations for K12 students designed to build understanding of Down syndrome and disability through age-appropriate information, discussion, and engagement. The program promotes empathy, respect, and inclusion by helping students understand how to connect with and support peers with disabilities in school and community settings. Offered in classroom or assembly formats, in person or virtually. (xii) Education Resources A collection of resources for families and educators, including information on special education, inclusion, communication supports, and evidence-based strategies, available through DSCBAs website and direct support services. (xiii) Expression Connection (AAC Program)A program focused on supporting communication for individuals with Down syndrome through Augmentative and Alternative Communication (AAC). Services include consultations, trainings, and access to high-tech AAC devices and low-tech communication supports, including a library of customizable communication boards. (xiv) Lending LibraryA lending library of books, instructional materials, and learning approaches available to DSCBA members and educators. Resources include materials on Down syndrome, education, and related topics, as well as hands-on learning programs such as Handwriting Without Tears, Whole Child Reading, and Numicon. Materials may be checked out at no cost for a designated period (typically up to three months) to support exploration and implementation. (xvi) Resource DirectoryA variety of resource directories are available to members through Padlet. Resources listed on the directories are recommendations from members and local disability organizations. Directories available are general resource directories and recreation programs. (xvii) Community Events:Throughout the year, DSCBA hosted the following community events for and to benefit DSCBAs members:(a)World Down Syndrome Day Dance Party - In 2025, DSCBA hosted a Dance Party to celebrate WDSD. It is a free event for all DSCBA members and their families.(b)Holiday Parties - In 2025, the DSCBA hosted three Holiday Parties across different locations. All three celebrations were free for all DSCBA members and their families. (c)Napa Meet and Greet In 2025, DSCBA hosted its first Meet and Greet for families in the Napa area inside of the ParentsCan office. The event was well attended and created a new collaborative relationship with ParentsCan and their members.
  Expenses $1,027,323 · grants $6,000 · revenue $47,074

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

IRS record

EIN

91-1904304

Tax-exempt status

501(c)(3): Charitable, religious, educational or scientific organization

Foundation status

Publicly supported organization (170(b)(1)(A)(vi))

Donations deductible (Pub 78)

Public charity, 50% deduction limit

Exempt since

1998

Accounting year ends

December

Files

Form 990 or 990-EZ

Category (NTEE)

Voluntary health associations and medical disciplines (G25)

Assets (IRS master file)

$3,524,085

Income (IRS master file)

$4,217,821

Filing history

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 91-1904304).

Questions about THE DOWN SYNDROME CONNECTION OF THE BAY AREA

What is the EIN of THE DOWN SYNDROME CONNECTION OF THE BAY AREA?

The employer identification number (EIN) of THE DOWN SYNDROME CONNECTION OF THE BAY AREA is 91-1904304.

Is THE DOWN SYNDROME CONNECTION OF THE BAY AREA tax-exempt?

Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1998.

Are donations to THE DOWN SYNDROME CONNECTION OF THE BAY AREA tax-deductible?

Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).

Which annual return does THE DOWN SYNDROME CONNECTION OF THE BAY AREA file?

Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.

When is the next return of THE DOWN SYNDROME CONNECTION OF THE BAY AREA due?

The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.

When did THE DOWN SYNDROME CONNECTION OF THE BAY AREA last file with the IRS?

The latest return in the IRS public files is the 990 for the year ended December 2025.

Who are the officers and directors of THE DOWN SYNDROME CONNECTION OF THE BAY AREA?

The 990 for the year ended December 31, 2025 lists 6 people; 1 received compensation from the organization, the highest $123,786 (TERESA DEVINCENZI, Executive Dir.).

How much revenue does THE DOWN SYNDROME CONNECTION OF THE BAY AREA have?

On its 990 for the year ended December 31, 2025 it reported revenue of $1,420,299, expenses of $1,364,535 and total assets of $3,524,085 at year end.

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