Nonprofit · EIN 88-4412307
RARE LIFE
Tax-exempt · BOUNTIFUL, UT 84010
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990-EZ | $68,571 | $44,417 | $24,154 | $37,800 | $2,576 | $35,224 |
| December 31, 2023 | 990-EZ | $38,411 | $26,642 | $11,769 | $18,857 | $7,088 | $11,769 |
Financial details: 990-EZ for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $68,571
Expenses
- Compensation of officers, directors and key employees
- $23,040
- Salaries, compensation and benefits (total)
- $24,996
- Professional fees and payments to contractors
- $17,150
- Other expenses
- $2,271
- Program services (functional)
- $33,292
Balance sheet and other
- Total assets, start of year
- $18,857
- Total assets, end of year
- $37,800
- Total liabilities, end of year
- $2,576
- Net assets, end of year
- $35,224
- Cash, savings and investments
- $37,711
- Gross receipts
- $68,571
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| MADELINE CHENEY | EXECUTIVE DI | 12 | $23,040 |
| JUSTON CHENEY | CIO | 0.5 | $0 |
| BRITTANY STEITZ | PRESIDENT/TR | 0.5 | $0 |
| AMANDA GRIFFITH-ATKINS | SECRETARY | 0.25 | $0 |
| KARI HARBATH | BOARD MEMBER | 0.25 | $0 |
| CINDY REINHARD | BOARD MEMBER | 0.1 | $0 |
| SARAH RIPPY | BOARD MEMBER | 0.25 | $0 |
| ASHLEY BOUCHER | BOARD MEMBER | 0.1 | $0 |
| CAROLINA QUIJADA | BOARD MEMBER | 0.5 | $0 |
990-EZ for the year ended December 31, 2023: 6 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| MADELINE CHENEY | EXECUTIVE DI | 12 | $6,300 |
| BRITTANY STEITZ | TREASURER | 0.75 | $0 |
| JUSTON CHENEY | CTO | 1.5 | $0 |
| AMANDA GRIFFITH-ATKINS | SECRETARY | 0.08 | $0 |
| KELLY KELSO | BOARD MEMBER | 0.04 | $0 |
| KARI HARBATH | BOARD MEMBER | 0.08 | $0 |
Address and contacts
- Address (IRS master file)
- 598 E 1650 S, BOUNTIFUL, UT 84010-4024
- Mailing address (990-N for 2022)
- 598 E 1650 S, BOUNTIFUL UT 84010
- Principal officer (990-N for 2022)
- MADELINE CHENEY, 598 E 1650 S, BOUNTIFUL UT 84010
- Signed the 990-EZ
- MADELINE CHENEY, EXECUTIVE DIRECTOR
- Phone
- (208) 284-1715
- Website
- HTTPS://THERARELIFE.ORG/
- Return prepared by
- BOUNTIFUL PEAK ADVISORS
Mission
THE RARE LIFE'S MISSION IS TO PROVIDE EMOTIONAL SUPPORT FOR PARENTS OF CHILDREN WITH MEDICAL COMPLEXITIES AND DISABILITIES.
Program accomplishments
- PODCASTS THE ORGANIZATION CREATES THE WELL-LOVED PODCAST--THE RARE LIFE. GUESTS INCLUDE OTHER PARENTS IN THE COMMUNITY AND EXPERTS IN THE FIELD OF DISABILITY. THE RARE LIFE PODCAST IS COMPRISED OF TWO THEMED SEASONS PER CALENDAR YEAR, EACH EPISODE RELEASED WEEKLY. THE RARE LIFE EPISODES WERE LISTENED TO 95,154 TIMES OVER THE YEAR OF 2024, WITH 50 EPISODES.Expenses $32,786
- DISCUSSION GROUPS THE ORGANIZATION HOSTS DISCUSSION GROUPS ON A REGULAR BASIS. THESE GROUPS ARE HELD VIRTUALLY AND ARE FACILITATED BY VOLUNTEER PARENT-LISTENERS. THESE DISCUSSION GROUPS PROVIDE A SAFE SPACE FOR LISTENERS TO SHARE THEIR THOUGHTS ON THE MOST RECENT EPISODES AND CREATE FRIENDSHIPS WITH OTHERS IN THE COMMUNITY. WE HOSTED AND FACILITATED APPROXIMATELY 40 DISCUSSION GROUPS HELD VIRTUALLY.Expenses $506
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 88-4412307
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2023
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Human services (P50)
- Assets (IRS master file)
- $37,800
- Income (IRS master file)
- $68,571
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2024 | $68,571 | $44,417 | $37,800 | XML |
| 990-EZ | December 2023 | $38,411 | $26,642 | $18,857 | XML |
| 990-N for 2022 Officer: MADELINE CHENEY | December 31, 2022 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 88-4412307).
Questions about RARE LIFE
- What is the EIN of RARE LIFE?
- The employer identification number (EIN) of RARE LIFE is 88-4412307.
- Is RARE LIFE tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2023.
- Are donations to RARE LIFE tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does RARE LIFE file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of RARE LIFE due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did RARE LIFE last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2024.
- Who is the principal officer of RARE LIFE?
- The 990-N for 2022 names MADELINE CHENEY.
- Who are the officers and directors of RARE LIFE?
- The 990-EZ for the year ended December 31, 2024 lists 9 people; 1 received compensation from the organization, the highest $23,040 (MADELINE CHENEY, EXECUTIVE DI).
- How much revenue does RARE LIFE have?
- On its 990-EZ for the year ended December 31, 2024 it reported revenue of $68,571, expenses of $44,417 and total assets of $37,800 at year end.
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