Nonprofit · EIN 88-3066433
16P GENETIC SYNDROME FOUNDATION
Tax-exempt · IRVINE, CA 92612
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990-EZ | $100,772 | $70,051 | $30,721 | $34,018 | $319 | $33,699 |
| December 31, 2024 | 990-EZ | $8,405 | $9,409 | -$1,004 | $3,064 | $86 | $2,978 |
| December 31, 2023 | 990-EZ | $5,091 | $6,109 | -$1,018 | $4,021 | $39 | $3,982 |
Financial details: 990-EZ for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $81,740
- Program service revenue
- $19,032
Expenses
- Compensation of officers, directors and key employees
- $0
- Professional fees and payments to contractors
- $1,585
- Printing, publications and postage
- $2,085
- Other expenses
- $66,381
- Program services (functional)
- $61,883
Balance sheet and other
- Total assets, start of year
- $3,064
- Total assets, end of year
- $34,018
- Total liabilities, end of year
- $319
- Net assets, end of year
- $33,699
- Cash, savings and investments
- $32,336
- Gross receipts
- $100,772
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| FARANAK HERRERA | CEO | 10 | $0 |
| WENDY CHUNG | Secretary | 2 | $0 |
| CAROLINE PEREIRA | CFO | 2 | $0 |
990-EZ for the year ended December 31, 2024: 3 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| FARANAK HERRERA | CEO | 10 | $0 |
| WENDY CHUNG | Secretary | 2 | $0 |
| CAROLINE PEREIRA | CFO | 2 | $0 |
990-EZ for the year ended December 31, 2023: 3 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| FARANAK HERRERA | CEO | 10 | $0 |
| WENDY CHUNG | Secretary | 2 | $0 |
| CAROLINE PEREIRA | CFO | 2 | $0 |
Address and contacts
- Address (IRS master file)
- 5319 UNIVERSITY DRIVE 780, IRVINE, CA 92612-2965
- Signed the 990-EZ
- FARANAK HERRERA, CEO
- Phone
- (510) 502-9267
- Website
- https://16pdel.org/
- Return prepared by
- TaxLAB Strategies
California records
California keeps its own records of charities and corporations. Search them by EIN 88-3066433 or by the name 16P GENETIC SYNDROME FOUNDATION.
- Attorney General, Registry of Charities and Fundraisers
- Registration status and filed reports (CT-TR-1, RRF-1)
- Secretary of State, bizfile Online
- Corporation status, entity number, agent for service
- Franchise Tax Board
- Entity status letter (state tax exemption, good standing)
Mission
During the tax year, the organization advanced planning efforts for the development of Centers of Excellence dedicated to individuals affected by 16p11.2 genetic variances. We conducted community outreach initiatives, including surveys, educational discussions, and engagement opportunities to better understand the needs of affected individuals and families. The organization also organized and supported fundraising efforts to further research, awareness, and program development. We expanded our reach within the 16p11.2 community, successfully connecting with and supporting hundreds of individuals and families impacted by these genetic variances. In addition, we continued to build partnerships and collaborations across healthcare, education, research, and community sectors to improve diagnosis, treatment, management, and long-term outcomes. We also supported scientific and clinical initiatives, including efforts to advance recognition of 16p11.2 genetic variances within healthcare system
Program accomplishments
- Our mission is to treat and integrate 16p11.2 genetic variances seamlessly throughout the health, education, and societal landscapes by 2030. We do it for our children.Expenses $61,883
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990-EZ on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 88-3066433
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2022
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Education (B99)
- Assets (IRS master file)
- $34,018
- Income (IRS master file)
- $100,772
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2025 | $100,772 | $70,051 | $34,018 | XML |
| 990-T | December 2025 | – | – | – | IRS |
| 990-EZ | December 2024 | $8,405 | $9,409 | $3,064 | XML |
| 990-T | December 2024 | – | – | – | IRS |
| 990-EZ | December 2023 | $5,091 | $6,109 | $4,021 | XML |
| 990-EZ | December 2022 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 88-3066433).
Questions about 16P GENETIC SYNDROME FOUNDATION
- What is the EIN of 16P GENETIC SYNDROME FOUNDATION?
- The employer identification number (EIN) of 16P GENETIC SYNDROME FOUNDATION is 88-3066433.
- Is 16P GENETIC SYNDROME FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2022.
- Are donations to 16P GENETIC SYNDROME FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does 16P GENETIC SYNDROME FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of 16P GENETIC SYNDROME FOUNDATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did 16P GENETIC SYNDROME FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2025.
- Who are the officers and directors of 16P GENETIC SYNDROME FOUNDATION?
- The 990-EZ for the year ended December 31, 2025 lists 3 people; 0 received compensation from the organization.
- How much revenue does 16P GENETIC SYNDROME FOUNDATION have?
- On its 990-EZ for the year ended December 31, 2025 it reported revenue of $100,772, expenses of $70,051 and total assets of $34,018 at year end.
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