Nonprofit · EIN 87-3607948
FAM177A1 RESEARCH FUND
Tax-exempt · MERCER ISLAND, WA 98040
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $333,831 | $272,224 | $61,607 | $327,249 | $0 | $327,249 |
| December 31, 2024 | 990 | $306,239 | $81,485 | $224,754 | $265,642 | $0 | $265,642 |
| December 31, 2023 | 990-EZ | $129,152 | $102,871 | $26,281 | $40,887 | $0 | $40,887 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $362,115
- Program service revenue
- $0
- Investment income
- $4,967
- Net income from fundraising events
- -$33,251
- Other revenue
- -$33,251
Expenses
- Grants and similar amounts paid
- $243,153
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Program services (functional)
- $246,812
- Management and general (functional)
- $2,689
- Fundraising (functional)
- $22,723
Balance sheet and other
- Total assets, start of year
- $265,642
- Total assets, end of year
- $327,249
- Total liabilities, end of year
- $0
- Net assets, end of year
- $327,249
- Net assets without donor restrictions
- $327,249
- Gross receipts
- $392,132
- Employees
- 0
- Volunteers
- 15
- Year formed
- 2022
- State of legal domicile
- WA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Jill Hawkins | Founder & President Trustee or director, Officer | 25 | $0 |
| Doug Hawkins | Vice President Trustee or director, Officer | 1 | $0 |
| Beth Sampson | Treasurer Trustee or director | 1 | $0 |
| Michelle Bice | Secretary Trustee or director | 1 | $0 |
990 for the year ended December 31, 2024: 4 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Doug Hawkins | Vice President Officer | 1 | $0 |
| Jill Hawkins | Founder and President Officer | 25 | $0 |
| Michelle Bice | Advisor Trustee or director | 1 | $0 |
| Beth Sampson | Treasurer Trustee or director | 1 | $0 |
990-EZ for the year ended December 31, 2023: 4 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Jill Hawkins | Founder and President | 25 | $0 |
| Douglas Hawkins | Vice President | 1 | $0 |
| Michelle Brice | Advisor | 1 | $0 |
| Beth Sampson | Treasurer | 1 | $0 |
Address and contacts
- Address (IRS master file)
- 8838 SE 72ND PL, MERCER ISLAND, WA 98040-5419
- In care of
- % JILL HAWKINS
- Mailing address (990-N for 2022)
- 8838 SE 72nd Place, Mercer Island WA 98040
- Principal officer (990 for 2025)
- Jill Hawkins, 8838 SE 72nd Place, Mercer Island, WA 98040
- Principal officer (990-N for 2022)
- Jill Hawkins, 8838 SE 72nd Place, Mercer Island WA 98040
- Signed the 990
- JILL HAWKINS, Founder & President
- Phone
- (206) 310-5575
- Website
- www.fam177a1.org
- Return prepared by
- Mullins PC
Mission
The FAM177A1 Research Fund is a family-led patient advocacy organization dedicated to improving the lives of everyone impacted by FAM177A1 Disorder. We provide hope to affected families while focusing the global research community on FAM177A1 to develop life-transformative treatm
Program accomplishments
- Patient Advocacy & Data: Global Networking: Successfully connected with more families globally, including new cases in the Middle East and Europe, increasing the known patient cohort to facilitate research.Expenses $153,211 · grants $153,211
- Breakthrough Research & Grants: The Fund strategically allocated resources to multiple international research projects aimed at understanding the genes function and developing therapies: Gene Therapy Initiative: Funded a pioneering AAV9-based gene therapy project at Hebrew University led by Professor Rami I. Aqeilan, aiming to deliver functional copies of the FAM177A1 gene. CURE Epilepsy Partnership: Formed a significant partnership with CURE Epilepsy to co-fund a $100,000 grant. This project, led by Dr. Berrak Ugur at Yale University, utilizes patient-derived organoids (brain-in-a-dish) to study how FAM177A1 loss affects neuronal growth and protein transport in the Golgi complex. Model Organism Development: Continued funding for research at the University of Portsmouth (UK) using Xenopus (frog) models to test potential treatments and study early brain development mysteries. Drug Repurposing: Advanced work on fruit fly models to identify existing medications that might be effective for FAM177A1 patients.Expenses $93,601 · grants $89,942
- Fundraising & Awareness: The Organization saw a record-breaking year for community engagement: FAM JAM 2025: The 2nd annual FAM JAM event in Seattle raised $280,000, directly fueling the research pipeline. Impact Reporting: Released the 2024 Impact Report in March 2025, providing transparency and documenting the foundations growth and scientific strategy for donors.
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 87-3607948
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2022
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H20)
- Assets (IRS master file)
- $327,249
- Income (IRS master file)
- $392,132
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $333,831 | $272,224 | $327,249 | XML |
| 990 | December 2024 | $306,239 | $81,485 | $265,642 | XML |
| 990-EZ | December 2023 | $129,152 | $102,871 | $40,887 | XML |
| 990-N for 2022 Officer: Jill Hawkins | December 31, 2022 | ≤ $50,000 receipts | – | – | e-Postcard |
| 990-EZ | December 2021 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 87-3607948).
Questions about FAM177A1 RESEARCH FUND
- What is the EIN of FAM177A1 RESEARCH FUND?
- The employer identification number (EIN) of FAM177A1 RESEARCH FUND is 87-3607948.
- Is FAM177A1 RESEARCH FUND tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2022.
- Are donations to FAM177A1 RESEARCH FUND tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does FAM177A1 RESEARCH FUND file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of FAM177A1 RESEARCH FUND due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did FAM177A1 RESEARCH FUND last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of FAM177A1 RESEARCH FUND?
- The 990 for the year ended December 31, 2025 names Jill Hawkins.
- Who are the officers and directors of FAM177A1 RESEARCH FUND?
- The 990 for the year ended December 31, 2025 lists 4 people; 0 received compensation from the organization.
- How much revenue does FAM177A1 RESEARCH FUND have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $333,831, expenses of $272,224 and total assets of $327,249 at year end.
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