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IRS-authorized e-file provider · not the IRS

Nonprofit · EIN 87-2041980

CURE KCNH1 FOUNDATION

Tax-exempt · ENCINITAS, CA 92024

Financials

$317K$263K2025
Revenue Expenses · by fiscal year end
Financials of CURE KCNH1 FOUNDATION by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2025990$316,563$263,319$53,244$272,745$0$272,745
Financial details: 990 for the year ended December 31, 2025

Revenue

Contributions, gifts and grants
$309,127
Program service revenue
$0
Investment income
$2,814
Net income from fundraising events
$4,622
Other revenue
$4,622

Expenses

Grants and similar amounts paid
$168,480
Compensation of officers, directors and key employees
$0
Salaries, compensation and benefits (total)
$0
Professional fundraising fees
$600
Legal fees
$943
Accounting fees
$666
Program services (functional)
$212,601
Management and general (functional)
$50,118
Fundraising (functional)
$600

Balance sheet and other

Total assets, start of year
$219,501
Total assets, end of year
$272,745
Total liabilities, end of year
$0
Net assets, end of year
$272,745
Net assets without donor restrictions
$272,745
Gross receipts
$321,075
Employees
0
Volunteers
15
Year formed
2021
State of legal domicile
CA

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2025, highest compensation first.

NameTitleHours / weekCompensation
Michaelle JinnettePresident
Officer
50$0
Kevin WittTreasurer
Officer
15$0
Noreen HaiderDirector
Officer
2$0
Meg Stacker KingDirector
Officer
2$0
Josh YelseyDirector
Officer
2$0
James PearsonSecretary
Officer
2$0
Amy FinniganDirector
Officer
2$0

Address and contacts

Address (IRS master file)
1928 WANDERING RD, ENCINITAS, CA 92024-5621
In care of
% MICHAELLE JINNETTE
Mailing address (990-N for 2021)
1928 Wandering Road, Encinitas CA 92024
Principal officer (990 for 2025)
Michaelle Jinnette, 1928 Wandering Rd, Encinitas, CA 92024
Principal officer (990-N for 2021)
Michaelle Jinnette, 1928 Wandering Road, Encinitas CA 92024
Signed the 990
Kevin Witt, Treasurer
Phone
(619) 742-0013

Mission

Our mission is to urgently improve the lives of individuals and families affected by KCNH1-Related Disorders by accelerating research toward the development of effective treatments and a cure building connections within the KCNH1 patient and professional community raising awareness about KCNH1-related disorders and advocating for the needs of families affected by rare diseases.

990 for the year ended December 31, 2025

Program accomplishments

  • Funded the launch of a CRISPR gene-editing project a true cure for KCNH1 disorders our research team has identified very promising base-editors that show high efficiency and low off-target effects.
    Expenses $100,000 · grants $100,000
  • Established a biorepository to collect patient-derived bio samples to fund the development of cell lines that will be used to develop disease-models and screen therapeutics for KCNH1.
    Expenses $30,591 · grants $30,000
  • Funded the ongoing development of antisense oligonucleotides RNA therapeutics this treatment is showing very promising results in mouse studies for KCNH1.
    Expenses $20,000 · grants $20,000
  • Funded the final stages of preclinical development of an allele selective antisense oligonucleotide RNA therapeutic for KCNH1.
    Expenses $18,480 · grants $18,480
  • Launched a natural history patient registry database for the rare genetic disorder KCNH1. This is an essential initiative for advancing the research and laying the foundation for future clinical trials.
    Expenses $12,371
  • Scientific engagement and education for KCNH1 patient families and scientific advocacy for KCNH1 related disorders across the rare disease community.
    Expenses $18,352
  • KCNH1 awareness campaign within the rare disease and broader general community.
    Expenses $993
  • Organized and participated in scientific clinical and community gatherings that advance research education and support for individuals affected by KCNH1-related conditions. KCNH1 patient community conventions focused on education peer support and care coordination. Research-focused meetings with clinicians geneticists and scientists studying KCNH1 and related neurological conditions. Broader rare disease conferences that facilitate collaboration data sharing and advocacy alignment across similar conditions.
    Expenses $11,814

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026990 on file
2024December 31, 2024May 15, 2025990-EZ on file
2023December 31, 2023May 15, 2024990-EZ on file

IRS record

EIN
87-2041980
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (509(a)(2))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
2021
Accounting year ends
December
Files
Form 990 or 990-EZ
Category (NTEE)
Medical research (H01)
Assets (IRS master file)
$272,745
Income (IRS master file)
$321,075

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2025–––IRS
990-EZDecember 2024–––IRS
990-EZDecember 2023$52,188$76,854$114,174IRS
990December 2022$277,279$142,439$138,840IRS
990-N for 2021
Officer: Michaelle Jinnette
December 31, 2021≤ $50,000 receipts––e-Postcard

990-N: the IRS publishes only the latest e-Postcard per organization; earlier years appear here as 990.tax collects the monthly files. 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS.

Questions about CURE KCNH1 FOUNDATION

What is the EIN of CURE KCNH1 FOUNDATION?
The employer identification number (EIN) of CURE KCNH1 FOUNDATION is 87-2041980.
Is CURE KCNH1 FOUNDATION tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2021.
Are donations to CURE KCNH1 FOUNDATION tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does CURE KCNH1 FOUNDATION file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of CURE KCNH1 FOUNDATION due?
The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
When did CURE KCNH1 FOUNDATION last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2025.
Who is the principal officer of CURE KCNH1 FOUNDATION?
The 990 for the year ended December 31, 2025 names Michaelle Jinnette.
Who are the officers and directors of CURE KCNH1 FOUNDATION?
The 990 for the year ended December 31, 2025 lists 7 people; 0 received compensation from the organization.
How much revenue does CURE KCNH1 FOUNDATION have?
On its 990 for the year ended December 31, 2025 it reported revenue of $316,563, expenses of $263,319 and total assets of $272,745 at year end.

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