Nonprofit · EIN 87-0492100
THE SUDDEN ARRHYTHMIA DEATH SYNDROMES FOUNDATION
Tax-exempt · SALT LAKE CTY, UT 84117
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $838,946 | $883,267 | -$44,321 | $801,083 | $86,484 | $714,599 |
| December 31, 2023 | 990 | $809,771 | $812,020 | -$2,249 | $891,924 | $142,320 | $749,604 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $882,872
- Program service revenue
- $23,883
- Investment income
- $26,456
- Net income from fundraising events
- -$94,265
- Other revenue
- -$94,265
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $103,751
- Salaries, compensation and benefits (total)
- $542,513
- Professional fundraising fees
- $0
- Accounting fees
- $20,655
- Occupancy
- $25,853
- Travel
- $43,099
- Depreciation
- $389
- Program services (functional)
- $722,218
- Management and general (functional)
- $61,127
- Fundraising (functional)
- $99,922
Balance sheet and other
- Total assets, start of year
- $891,924
- Total assets, end of year
- $801,083
- Total liabilities, end of year
- $86,484
- Net assets, end of year
- $714,599
- Publicly traded securities
- $525,848
- Net assets without donor restrictions
- $614,599
- Net assets with donor restrictions
- $100,000
- Gross receipts
- $933,211
- Employees
- 9
- Volunteers
- 85
- Year formed
- 1991
- State of legal domicile
- UT
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| ALICE LARA ALICE LARA ALICE | EXECUTIVE DIR. Trustee or director, Officer | 40 | $103,751 |
| MICHAEL J ACKERMAN MD PHD | PRESIDENT Trustee or director, Officer | 0 | $0 |
| SUSAN ETHERIDGE MD | VICE PRESIDENT Trustee or director, Officer | 0 | $0 |
| SCOTT DAILARD | SECRETARY Trustee or director, Officer | 0 | $0 |
| PHILIP MURRAY HOWARD III | TREASURER Trustee or director, Officer | 0 | $0 |
| JOANNA BEWICK | BOARD MEMBER Trustee or director | 0 | $0 |
| BRYNN DECHERT-CROOKS RN MSN | BOARD MEMBER Trustee or director | 0 | $0 |
| LAURIE SMITH HOOPER | BOARD MEMBER Trustee or director | 0 | $0 |
| JEFFREY J KIM MD | BOARD MEMBER Trustee or director | 0 | $0 |
| ANTHONY LUCATUORTO | BOARD MEMBER Trustee or director | 0 | $0 |
| CHARLES BERUL MD | BOARD MEMBER Trustee or director | 0 | $0 |
| GENEVIE ECHOLS | BOARD MEMBER Trustee or director | 0 | $0 |
990 for the year ended December 31, 2023: 12 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| ALICE LARA | EXECUTIVE DI Trustee or director, Officer | 40 | $91,233 |
| MICHAEL J ACKERMAN MD PHD | PRESIDENT Trustee or director, Officer | – | $0 |
| SUSAN ETHERIDGE MD | VICE PRESIDE Trustee or director, Officer | – | $0 |
| SCOTT DAILARD | SECRETARY Trustee or director, Officer | – | $0 |
| PHILIP MURRAY HOWARD III | TREASURER Trustee or director, Officer | – | $0 |
| JOANNA BEWICK | BOARD MEMBER Trustee or director | – | $0 |
| BRYNN DECHERT-CROOKS RN MSN | BOARD MEMBER Trustee or director | – | $0 |
| LAURIE SMITH HOOPER | BOARD MEMBER Trustee or director | – | $0 |
| JEFFREY J KIM MD | BOARD MEMBER Trustee or director | – | $0 |
| ANTHONY LUCATUORTO | BOARD MEMBER Trustee or director | – | $0 |
| CHARLES BERUL MD | BOARD MEMBER Trustee or director | – | $0 |
| GENEVIE ECHOLS | BOARD MEMBER Trustee or director | – | $0 |
Address and contacts
- Address (IRS master file)
- 4527 S 2300 E STE 104, SALT LAKE CTY, UT 84117-4448
- In care of
- % G MICHAEL VINCENT PRES
- Principal officer (990 for 2024)
- WALKER FRAHM, 4527 SOUTH 2300 EAST STE 104, SALT LAKE CITY, UT 84117
- Signed the 990
- WALKER FRAHM, CEO
- Phone
- (801) 531-0937
- Website
- WWW.SADS.ORG
- Return prepared by
- THE MUMFORD GROUP PC
Mission
THE ORGANIZATION'S MISSION IS TO SAVE THE LIVES OF CHILDREN AND YOUNG ADULTS WHO ARE GENETICALLY PREDISPOSED OR OTHERWISE SUSCEPTIBLE TO SUDDEN DEATH TO CARDIAC ARRHYTHMIAS AND TO PROVIDE EDUCATION AND SUPPORT TO FAMILIES AND THE MEDICAL COMMUNITY WHO ARE DEALING WITH THESE DISORDERS. THE SADS FOUNDATION IS DEDICATED TO PROVIDING INFORMATION, ASSISTANCE, AND HOPE.
Program accomplishments
- THE SADS FOUNDATION PROVIDES INFORMATION, ASSISTANCE, AND HOPE RELATED TO THIS DISEASE. IN FULFILLING THIS MISSION, THE ORGANIZATION HAS THE FOLLOWING GOALS: EDUCATION: TO EDUCATE HEALTH CARE PROVIDERS AND LAY PUBLIC TO PROMOTE EARLY DIAGNOSIS AND TREATMENT. PATIENT SERVICES: TO SERVE AS A PHYSICIAN REFERRAL RESOURCE AND TO PROVIDE INFORMATION TO PHYSICIANS WHO CARE FOR PATIENTS WITH CARDIAC ARRHYTHMIAS. SUPPORT SERVICES: TO ASSIST ALL THOSE AFFECTED BY THE SUDDEN DEATH OF AN INFANT. PUBLIC AWARENESS: TO INFORM FAMILIES, PHYSICIANS, AND COMMUNITIES ABOUT THE GENETIC CARDIAC ARRHYTHMIAS IN THE YOUNG AND THEREBY PREVENT SUDDEN CARDIAC DEATH IN YOUNG PEOPLE. RESEARCH: TO ENCOURAGE RESEARCH ON GENETIC CARDIOVASCULAR DISEASES PREDISPOSING THE YOUNG TO SUDDEN DEATH.Expenses $722,218
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 87-0492100
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1992
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H8XZ)
- Assets (IRS master file)
- $801,083
- Income (IRS master file)
- $933,211
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $838,946 | $883,267 | $801,083 | XML |
| 990 | December 2023 | $809,771 | $812,020 | $891,924 | XML |
| 990 | December 2022 | $683,854 | $664,292 | $835,602 | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
| 990 | December 2017 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 87-0492100).
Questions about THE SUDDEN ARRHYTHMIA DEATH SYNDROMES FOUNDATION
- What is the EIN of THE SUDDEN ARRHYTHMIA DEATH SYNDROMES FOUNDATION?
- The employer identification number (EIN) of THE SUDDEN ARRHYTHMIA DEATH SYNDROMES FOUNDATION is 87-0492100.
- Is THE SUDDEN ARRHYTHMIA DEATH SYNDROMES FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1992.
- Are donations to THE SUDDEN ARRHYTHMIA DEATH SYNDROMES FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does THE SUDDEN ARRHYTHMIA DEATH SYNDROMES FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of THE SUDDEN ARRHYTHMIA DEATH SYNDROMES FOUNDATION due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did THE SUDDEN ARRHYTHMIA DEATH SYNDROMES FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of THE SUDDEN ARRHYTHMIA DEATH SYNDROMES FOUNDATION?
- The 990 for the year ended December 31, 2024 names WALKER FRAHM.
- Who are the officers and directors of THE SUDDEN ARRHYTHMIA DEATH SYNDROMES FOUNDATION?
- The 990 for the year ended December 31, 2024 lists 12 people; 1 received compensation from the organization, the highest $103,751 (ALICE LARA ALICE LARA ALICE, EXECUTIVE DIR.).
- How much revenue does THE SUDDEN ARRHYTHMIA DEATH SYNDROMES FOUNDATION have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $838,946, expenses of $883,267 and total assets of $801,083 at year end.
Other nonprofits in SALT LAKE CTY
- HUNTSMAN CANCER FOUNDATION EIN 87-0541293 · last filed 990 for 2024
- BATEMAN HORNE CENTER OF EXCELLENCE INC EIN 87-0687610 · last filed 990 for 2024
- ROW4ALS EIN 38-4083007 · last filed 990-N for 2025
- HOPEFUL SCIENCE EIN 82-2850722 · last filed 990-N for 2023
- TINY BUT MIGHTY BABY FOUNDATION INC EIN 86-3575414 · last filed 990-N for 2025
- LIVE TO INSPIRE FOUNDATION EIN 83-0655981 · last filed 990-N for 2025
- MOCRAZY STRONG BRAIN INJURY FOUNDATION EIN 87-3891631 · last filed 990-N for 2025
- IHC HEALTH SERVICES INC EIN 94-2854057 · last filed 990 for 2024