Nonprofit · EIN 85-3776266
ALZHEIMERS DISEASE DATA INITIATIVE INC
Tax-exempt · KIRKLAND, WA 98033
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $12,475,933 | $17,043,595 | -$4,567,662 | $2,040,922 | $1,719,346 | $321,576 |
| December 31, 2023 | 990 | $12,963,288 | $11,257,774 | $1,705,514 | $5,319,702 | $430,464 | $4,889,238 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $12,339,343
- Program service revenue
- $0
- Investment income
- $136,590
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $3,014,488
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Legal fees
- $180,522
- Accounting fees
- $253,027
- Travel
- $28,680
- Program services (functional)
- $16,124,944
- Management and general (functional)
- $918,651
Balance sheet and other
- Total assets, start of year
- $5,319,702
- Total assets, end of year
- $2,040,922
- Total liabilities, end of year
- $1,719,346
- Net assets, end of year
- $321,576
- Net assets without donor restrictions
- $321,576
- Gross receipts
- $12,475,933
- Employees
- 0
- Volunteers
- 0
- Year formed
- 2020
- State of legal domicile
- DE
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Niranjan Bose | DIRECTOR Trustee or director | 5 | $0 |
| PAUL RAMSEY | DIRECTOR Trustee or director | 1 | $0 |
| HILLARY BOUNDS | SECRETARY Officer | 10 | $0 |
| TONY POUND | TREASURER Officer | 1 | $0 |
990 for the year ended December 31, 2023: 5 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Niranjan Bose | DIRECTOR Trustee or director | 5 | $0 |
| PAUL RAMSEY | DIRECTOR Trustee or director | 1 | $0 |
| HILLARY BOUNDS | SECRETARY Officer | 10 | $0 |
| TETSUYUKI MARUYAMA | EXECUTIVE DIRECTOR Officer | 40 | $0 |
| TONY POUND | TREASURER Officer | 1 | $0 |
Address and contacts
- Address (IRS master file)
- 4110 CARILLON PT, KIRKLAND, WA 98033-7463
- In care of
- % HILLARY BOUNDS
- Principal officer (990 for 2024)
- DAVINA INSLEE, 4110 Carillon Point, Kirkland, WA 98033
- Signed the 990
- HILLARY BOUNDS, SECRETARY
- Phone
- (425) 497-4300
- Return prepared by
- ERNST & YOUNG US LLP
Mission
Alzheimer's Disease Data Initiative is a coalition of leading academic, advocacy, government, industry, and philanthropy organizations that recognizes the need for dementia researchers to find easier ways to share data, analytical tools, and scientific findings. These partners are working together to accelerate progress towards new diagnostics, treatments, and cures for Alzheimer's disease and related dementias. Learn more atwww.alzheimersdata.org.
Program accomplishments
- AD Workbench - a free, secure, cloud-based data sharing and analytics environment - is the interoperability layer of the AD Data Initiative technical suite and its flagship product offering. AD Workbench empowers researchers around the world to share, access, and analyze data across platforms. It provides data hosting, offers collaborative workspaces, and supports federated and distributed data sharing via FDSA.There are currently 8,400+ registered AD Workbench users from across 120 countries with access to over 800K participant records. Through AD Workbench, researchers and institutions can accelerate progress towards new and better treatments and diagnostic tools for Alzheimer's disease and related dementias.Expenses $5,168,435
- Global Research Platforms - GRIP is a secure, cloud-based, and open-access platform designed to help researchers integrate, analyze, and share complex biomedical data with ease. It is a multi-site, multi-modal collaboration platform with co-developed, modular tools, workflows, and workspaces that enable secure data sharing, analysis, and collaboration.Expenses $5,091,974 · grants $50,000
- The AD Data Initiative product suite consists of data sharing and analytic products along with enabling technical resources to empower researchers around the world to share, access and analyze data across multiple platforms. AD Workbench is the interoperability layer of the AD Data Initiative technical suite and its flagship product offering. There are currently more than 120 datasets accessible via AD Workbench - including clinical tabular data, imaging, omics and biosamples. The AD Data Initiative works closely with data contributors and data platform partners to ensure interoperability with AD data-sharing platforms and data accessibility across the global Alzheimer's data ecosystem.Expenses $2,932,616 · grants $2,414,488
- Core to the AD Data Initiative's mission is the belief that data sharing and global collaboration will accelerate progress, seed innovation and lead to breakthroughs faster. AD Data Initiative is advancing a scientific strategy and investing in strategic initiatives to foster global collaboration, empower researchers and advance scientific discovery. These initiatives include: the William H. Gates Sr. Fellowship Program, Global Data Challenges, Scientific Driver Projects and Global Research Collaborations and Consortia. This scientific strategy and the AD Data Initiative's programmatic efforts are guided by an evolving list of priority research questions that have been shaped by insights from Advisory Board members, input from the AD research community and engagement with thought leaders in Alzheimer's and related dementias research.Expenses $2,270,057 · grants $550,000
- The AD Data Initiative amplifies its mission through communications and engagement: website, social media, conferences and events, partnership campaigns/communications and special projects. These efforts expand access to important datasets, broaden the use of data platforms and tools, and foster global collaboration to accelerate discovery.Expenses $661,862
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 85-3776266
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Hospital or medical research organization
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2021
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G83)
- Assets (IRS master file)
- $2,040,922
- Income (IRS master file)
- $12,475,933
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $12,475,933 | $17,043,595 | $2,040,922 | IRS |
| 990 | December 2023 | $12,963,288 | $11,257,774 | $5,319,702 | XML |
| 990 | December 2022 | $1,655,356 | $11,164,241 | $3,293,505 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990-EZ | December 2020 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 85-3776266).
Questions about ALZHEIMERS DISEASE DATA INITIATIVE INC
- What is the EIN of ALZHEIMERS DISEASE DATA INITIATIVE INC?
- The employer identification number (EIN) of ALZHEIMERS DISEASE DATA INITIATIVE INC is 85-3776266.
- Is ALZHEIMERS DISEASE DATA INITIATIVE INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2021.
- Are donations to ALZHEIMERS DISEASE DATA INITIATIVE INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does ALZHEIMERS DISEASE DATA INITIATIVE INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of ALZHEIMERS DISEASE DATA INITIATIVE INC due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did ALZHEIMERS DISEASE DATA INITIATIVE INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of ALZHEIMERS DISEASE DATA INITIATIVE INC?
- The 990 for the year ended December 31, 2024 names DAVINA INSLEE.
- Who are the officers and directors of ALZHEIMERS DISEASE DATA INITIATIVE INC?
- The 990 for the year ended December 31, 2024 lists 4 people; 0 received compensation from the organization.
- How much revenue does ALZHEIMERS DISEASE DATA INITIATIVE INC have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $12,475,933, expenses of $17,043,595 and total assets of $2,040,922 at year end.
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